I always thought I was alone. I never thought I’d find another woman who has EDS/POTS/MCAS/Lyme with a horrible adhesive allergy, who also sings and lives in both the physical and spiritual worlds. You are my shero! Thank you for shining light for the rest of us.
You most definitely are not alone. 💕 Omg this really got me in the feels. :') You almost got me teary. This was so nice to come across. Thank you so much for your kind words and support. 💗 It hasn't always been easy to share so much of my journey, but kind words and knowing I've uplifted people always helps remind me why I started doing this in the first place and why I've continued to share for so many years. More than literally anything, I share because I want people to know they're not alone. Because I was once very alone, didn't know anyone who had a story like me, and couldn't find anyone sharing in the way I am now. And now... for the last few years I get weekly messages (at least) from all kinds of people who have parallel stories as me. My hope is that people not only feel glad to be able to relate to me, but that also through my platform and thru all the other comments people feel comforted to see that many others have this journey too. We're not alone. 💗
I received like 18 different diagnoses over the years, those included. I never attached to the varying diagnoses too much as we felt it was all caused by my tick borne infections and MCAS. Treating the root cause eliminated most of the other diagnoses. I've had some mild POTS symptoms since I was little though, circulation issues, plus I'm tall and lanky. I'm 6' tall.
Waww I'm so proud of you and hearing your story. Our story is so alike. Thanks so much for speaking up
aw thank you 😊💖
I always thought I was alone. I never thought I’d find another woman who has EDS/POTS/MCAS/Lyme with a horrible adhesive allergy, who also sings and lives in both the physical and spiritual worlds. You are my shero! Thank you for shining light for the rest of us.
You most definitely are not alone. 💕 Omg this really got me in the feels. :') You almost got me teary. This was so nice to come across. Thank you so much for your kind words and support. 💗
It hasn't always been easy to share so much of my journey, but kind words and knowing I've uplifted people always helps remind me why I started doing this in the first place and why I've continued to share for so many years.
More than literally anything, I share because I want people to know they're not alone. Because I was once very alone, didn't know anyone who had a story like me, and couldn't find anyone sharing in the way I am now.
And now... for the last few years I get weekly messages (at least) from all kinds of people who have parallel stories as me.
My hope is that people not only feel glad to be able to relate to me, but that also through my platform and thru all the other comments people feel comforted to see that many others have this journey too. We're not alone. 💗
see Amber Walkers book
You truly have an amazing soul! Thank you for all your inspiration and advice!❤❤❤
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Hi Mayo. Is Mast cell syndrome akin to Cholinergic urticaria? Cause i watched your videos and basically you described my disorder with another name
I've actually never heard of that so I'm not sure. Interesting though that they sound similar to you!
Merry Christmas!!! I was wondering if you dealt with dysautomonia and POTS during your illness and journey?
I received like 18 different diagnoses over the years, those included. I never attached to the varying diagnoses too much as we felt it was all caused by my tick borne infections and MCAS. Treating the root cause eliminated most of the other diagnoses. I've had some mild POTS symptoms since I was little though, circulation issues, plus I'm tall and lanky. I'm 6' tall.
did you ever try Exomes for MCAS?
I've never heard of that. 🤔