That looks so painful. You never cease to amaze me. I have a chronic pain issue from so many spinal surgeries but your illnesses are a full time job. Most days you just push through and act like it's just another day but everything you have to do is so time consuming, no matter how you feel you just do it. You are a trooper and someone to be admired.☺
Damn, you did a lot this day. I agree with the comment saying what a trooper you are. I agree that we all need to think about our health & wellness each day, but you have a lot more on your check list. Your attitude and positivity through it all makes you a superior being. 😉
Thank you for bringing us along on your day. I also soak my tubbie pads before I wash them. I got a mesh bag to put them I and then I just put the mesh bag in the washer if I am washing stuff on hot water. But if I don't have a bunch to wash then I just wash them by hand like you are... Lot Tom's thinks that make you go hmmm question, I have asked that question a few times to my friends that are twins... Can't wait to watch a video with your new mic. Sending you lots of hugs and live from Oregon!!!
awe don’t say your failing at life! your doing anything but that! i have heart problems that cause pains and sometimes i wonder if i’m overreacting. i see you and know that i’m not that bad off. your in pain a lot of the time and push through it. i la ce your videos and you!! hope you feel better for a while soon! love from canada 🇨🇦
hey sweetie it doesn't matter if you can't film everything, do not force yourself to film things that are difficult because we know you show us everything that you can ❤️ love you
Amy, I have been following you for a long time now and love your videos. I also have a feeding tube that had granulation tissue. I didn’t know what it was at first. I didn’t want to tell my doctor. I cleaned it with hydrogen peroxide 2-3 times a day thinking it was an infection. It wasn’t painful at all. The hydrogen peroxide dried it up and it fell off and never came back. After it fell off I found it that it was granulation tissue and it’s pretty normal to get with a feeding tube. When it first started, I was afraid it was an infection and didn’t want to tell my doctor because I was afraid they might take the feeding tube out and I would have to go through the surgery all over again. Glad it wasn’t an infection, but I’m glad I thought it was because I found out that hydrogen peroxide works wonders for granulation tissue.
I just wanted to say I absolutely love all of your videos and I’m so grateful that you share your life because without finding your channel I wouldn’t have realised that the way I was feeling was not normal and encouraged me to talk to my doctor about it 💛☺️
Aw Amy! I think you do a fantastic job showing what life is like with a chronic illness. I can imagine doctors/hospitals sometimes get weird about being filmed.
Amy I love your channel we are from the same area when you lived in England I am struggling myself and find your channel so helpful to me in the last 6 weeks I’ve been diagnosed with 3 things and my heads up my arse I’ve been diagnosed with Gastroparesis fibromyalgia and nephrocalcinosis I never am pain free and it’s hard having my kids to look after and me suffering ... watching you helps me know that it’s not easy for anyone and we can all help each other with the struggles we have I really wish I had met u when you lived in the uk I absolutely love your channel 💖
Kerry Horrocks I’m so sorry you’re struggling hun. I have gastroparesis as well, among other things, and it’s hard dealing with chronic illness when you have little ones to care for. My kids have seen me sick most of their lives, but they also see me fighting like hell to give them a normal life. Keep your chin up and stay strong!
Kim Daniels Awww this is so sweet thank you I’ve been struggling for a good 10 years it takes so long sometimes to find out what it is my older kids are so used to it they say mum don’t forget all your meds ... I try so hard to as I just want my children to be able to do things others do ...have you any tips of what helps you better food wise with Gastroparesis as I’m eating all the wrong things ... I wish you all the best and I hope you and your beautiful family stay strong!
Amy spray the gunky pads with vanish gold and soak in boiling hot water. Then chuck in a hot cycle washing mashine wash with a little of the antibacterial stuff and they will be spotless. From the queen of stain removers and sanitisation! ME!! lolololxx
My best friend’s, when I was growing up, were the children of identical twins that had married identical twins!!! (...and yeah, they were very similar...!, and no they had separate weddings (...everyone always asks them if they got married together!), and their granny always said it would have saved them loads of money to have a double wedding!).
I've seen the same movie trailer a couple of times every day, for the past couple of days - just by catching up on your content. I can now become the voice over person - as I already know what they are going to say^_^
Hi Amy! I love your vlogs so much ☺ I'm not criticising or anything, I just wanted to share some tips I've found over the years as a health professional. Absolutely follow your own medical team's advice and do what you're shown by them. During an update one of the feed reps told me to avoid using gauze as a dressing for stomas as this apparently leaves tiny fibres to irritate and potentially cause infection. They told me to stick to foam dressings while the area is sore. I've never seen any articles to support this so as I say I'm not critising at all just wanted to share what I was told 😘
Jemma Twigg i totally understand that! I used to use a different gauze that left little bits around my stoma! But now I use split drainage dressing (the one I’m currently using) and it doesn’t leave any bits ❤️
Very nice video. I am a medical geek you might say, so I am rather fascinated by medical stuff. I have been watching you for a little while and trying to watch past vlogs/videos and I understand why you have a feeding tube but I am curious about the granulation tissue. Is it irritated skin because of the stomach acid that come through or is it something else? Sorry if this is a strange question. By the way I love your outfit it is so cute.
Nora Jung granulation tissue can be from both acid and the feeding tube itself. When I switched to the AMT G-Jet button the granulation tissue reduced as compared to when I had the dangler tube as it was heavier and rubbed a lot more in the lower part of my stoma.
I actually disagree about the equipment Amy, I love your videos because you’re real, all the glitz and glamor these performers put out is awful, no matter what top equipment they use. Just keep being you x x
I love your attitude and your way you deal with your disease. You truly do it with grace. You are a lovely girl. I watch you on utube every day. Good night. Sweet dreams, love.
The whole having to get your stoma burned looks to be horribly painful. You are always showing us more and more how much of a badass chick you really are. Love you girl!!!
In your opinion what are the best biscuits to you? I live in Alaska but I have always wondered what are the best biscuits. Love watching your videos too!
Ohhhh what is the penguin biscuit?!?!? An the mint and gingerbread sound amazing, I may need to go to some specialty stores to find some real biscuit lol
It vents liquids really well! But solids not so great! My dangler was better for that. However I still absolutely love my GJ and would take it any day over my dangler and NJ xx
I got a things that make you go hum I don't know how to check your tire pressure either but I know how to put a starter in a car and break lines now how is that and iam a female??
I work for a security firm and we drive around in an SUV that looks a lot like a police SUV and it's so funny when we're driving behind people at night 🤣 they'll slow down and you can tell they're trying to be super careful lol, it's a little annoying as we're always in a hurry to attend an emergency but I totally get why people get so scared.
Hey Amy, I love your videos. I have a question after watching your AWESOME TPN setup video. When you unclamped your Hickman line, why don’t you bleed out of it? A bit like your gastric tube, if that unclamps, I believe you leak everywhere? Random question but I’m genuinely interested. :)
if you were anyone else I would give you smack about not knowing how to put air in your tires, but you know all the medical stuff yeah, why don't you tint your windows on your car then you don't have people looking in on you dancing? Your awesome love you much....
Debbie Zehfus I cant because of my Hickman! I have a letter from my doctor. I have to keep it off untill it completely heals (think it’s around 6 months)
That looks so painful. You never cease to amaze me. I have a chronic pain issue from so many spinal surgeries but your illnesses are a full time job. Most days you just push through and act like it's just another day but everything you have to do is so time consuming, no matter how you feel you just do it. You are a trooper and someone to be admired.☺
I'm thinking maybe Thank you! This means so much to me 🥰❤️🙊
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It makes me so happy to see what a positive change TPN has made for you! Physically, emotionally and mentally 🙌🏼
Damn, you did a lot this day. I agree with the comment saying what a trooper you are. I agree that we all need to think about our health & wellness each day, but you have a lot more on your check list. Your attitude and positivity through it all makes you a superior being. 😉
Thank you for bringing us along on your day. I also soak my tubbie pads before I wash them. I got a mesh bag to put them I and then I just put the mesh bag in the washer if I am washing stuff on hot water. But if I don't have a bunch to wash then I just wash them by hand like you are... Lot Tom's thinks that make you go hmmm question, I have asked that question a few times to my friends that are twins... Can't wait to watch a video with your new mic. Sending you lots of hugs and live from Oregon!!!
awe don’t say your failing at life! your doing anything but that! i have heart problems that cause pains and sometimes i wonder if i’m overreacting. i see you and know that i’m not that bad off. your in pain a lot of the time and push through it. i la ce your videos and you!! hope you feel better for a while soon!
love from canada 🇨🇦
When I had a bone density scan, I didn’t know that you couldn’t wear any metal so I had to wear a gown because my shorts had a metal button on them
hey sweetie it doesn't matter if you can't film everything, do not force yourself to film things that are difficult because we know you show us everything that you can ❤️ love you
Sofi Ferritto love you too! Thanks for understanding 🥰
I need to book in for a bone scan- thank you for reminding me!
Amy, I have been following you for a long time now and love your videos. I also have a feeding tube that had granulation tissue. I didn’t know what it was at first. I didn’t want to tell my doctor. I cleaned it with hydrogen peroxide 2-3 times a day thinking it was an infection. It wasn’t painful at all. The hydrogen peroxide dried it up and it fell off and never came back. After it fell off I found it that it was granulation tissue and it’s pretty normal to get with a feeding tube. When it first started, I was afraid it was an infection and didn’t want to tell my doctor because I was afraid they might take the feeding tube out and I would have to go through the surgery all over again. Glad it wasn’t an infection, but I’m glad I thought it was because I found out that hydrogen peroxide works wonders for granulation tissue.
I just wanted to say I absolutely love all of your videos and I’m so grateful that you share your life because without finding your channel I wouldn’t have realised that the way I was feeling was not normal and encouraged me to talk to my doctor about it 💛☺️
Aw Amy! I think you do a fantastic job showing what life is like with a chronic illness. I can imagine doctors/hospitals sometimes get weird about being filmed.
I always love your car jams when your 100% just being yourself and having the best time. 💜
Amy I love your channel we are from the same area when you lived in England I am struggling myself and find your channel so helpful to me in the last 6 weeks I’ve been diagnosed with 3 things and my heads up my arse I’ve been diagnosed with Gastroparesis fibromyalgia and nephrocalcinosis I never am pain free and it’s hard having my kids to look after and me suffering ... watching you helps me know that it’s not easy for anyone and we can all help each other with the struggles we have I really wish I had met u when you lived in the uk I absolutely love your channel 💖
Kerry Horrocks I’m so sorry you’re struggling hun. I have gastroparesis as well, among other things, and it’s hard dealing with chronic illness when you have little ones to care for. My kids have seen me sick most of their lives, but they also see me fighting like hell to give them a normal life. Keep your chin up and stay strong!
Kim Daniels Awww this is so sweet thank you I’ve been struggling for a good 10 years it takes so long sometimes to find out what it is my older kids are so used to it they say mum don’t forget all your meds ... I try so hard to as I just want my children to be able to do things others do ...have you any tips of what helps you better food wise with Gastroparesis as I’m eating all the wrong things ... I wish you all the best and I hope you and your beautiful family stay strong!
I love your positive vibes and that car dancing was epic 👍❤️😂💃
I like seen all your stuff whether it's behind the scenes, medical stuff, anything that you produce and put in your vlogs and channels💕😁.
You are so amazing!! I love watching you, you brighten my day! Love hugs and spoons from USA, Pennsylvania! 💜💜💜
My god sweetie your a tough cookie,my heart goes out to you
Just started following you a couple weeks ago. I am from the US, but live in Spain. Love your channel!
I love the zebra tubby pad. The zebra print also is for PI (Primary Immune) Deficiency.
Amy spray the gunky pads with vanish gold and soak in boiling hot water. Then chuck in a hot cycle washing mashine wash with a little of the antibacterial stuff and they will be spotless.
From the queen of stain removers and sanitisation! ME!! lolololxx
Wish there was a LOVE button!!
My best friend’s, when I was growing up, were the children of identical twins that had married identical twins!!!
(...and yeah, they were very similar...!, and no they had separate weddings (...everyone always asks them if they got married together!), and their granny always said it would have saved them loads of money to have a double wedding!).
In answer to toms thing to make you go hmmmm. Yes their kids can come out looking identical
they'd also biologically be half siblings not cousins =D
They'd be full siblings I believe. Genetically speaking
@@Pyro_Chick you are absolutely correct. If Identical twins married another set of identicals their children would be full siblings.
I've seen the same movie trailer a couple of times every day, for the past couple of days - just by catching up on your content. I can now become the voice over person - as I already know what they are going to say^_^
ugh bone scans are so tedioussssss :( love you ams keep fighting girl ♥️♥️♥️
The quality of your videos are awesome 😎
Hi Amy! I love your vlogs so much ☺ I'm not criticising or anything, I just wanted to share some tips I've found over the years as a health professional. Absolutely follow your own medical team's advice and do what you're shown by them. During an update one of the feed reps told me to avoid using gauze as a dressing for stomas as this apparently leaves tiny fibres to irritate and potentially cause infection. They told me to stick to foam dressings while the area is sore. I've never seen any articles to support this so as I say I'm not critising at all just wanted to share what I was told 😘
Jemma Twigg i totally understand that! I used to use a different gauze that left little bits around my stoma! But now I use split drainage dressing (the one I’m currently using) and it doesn’t leave any bits ❤️
Very nice video. I am a medical geek you might say, so I am rather fascinated by medical stuff. I have been watching you for a little while and trying to watch past vlogs/videos and I understand why you have a feeding tube but I am curious about the granulation tissue. Is it irritated skin because of the stomach acid that come through or is it something else? Sorry if this is a strange question. By the way I love your outfit it is so cute.
Nora Jung granulation tissue can be from both acid and the feeding tube itself. When I switched to the AMT G-Jet button the granulation tissue reduced as compared to when I had the dangler tube as it was heavier and rubbed a lot more in the lower part of my stoma.
Thank you. That is what I was thinking but wasn't sure. It looks very uncomfortable.
I actually disagree about the equipment Amy, I love your videos because you’re real, all the glitz and glamor these performers put out is awful, no matter what top equipment they use. Just keep being you x x
You are one brave person living with so much yet you are so happy .I also think Tom is a great guy
I love your attitude and your way you deal with your disease.
You truly do it with grace. You are a lovely girl. I watch you on utube every day.
Good night. Sweet dreams, love.
The whole having to get your stoma burned looks to be horribly painful. You are always showing us more and more how much of a badass chick you really are. Love you girl!!!
I love when you wear your hair down, it’s so cute!!
GAL WE LOVE YOUR CONTENT!
I have Osteogenesis Imperfecta and I do that bone scan once a year! I find it really awkward lol
You're mum seems like such a laugh lol, I would love a mum like her.
In your opinion what are the best biscuits to you? I live in Alaska but I have always wondered what are the best biscuits. Love watching your videos too!
Ana Dunahoe i love penguin biscuits 🥰 there English and I also love thin mint biscuits ❤️❤️❤️
OH and Gingerbread! 😍😍😍
Ohhhh what is the penguin biscuit?!?!? An the mint and gingerbread sound amazing, I may need to go to some specialty stores to find some real biscuit lol
I love penguin biscuits!
I've learned a lot of new things watching your videos!
Crazy out of the blue question but what makeup foundation and coned up do you wear? Also love u such an inspiration you are!
Don’t worry I’m 65 and I don’t know how to check the tire pressure.😘
thanks you welcome lots of love you tube all time
You make great vlogs! ❤
You're adorable! And very motivating! Question.. What camera do you use for vlogging?
Maija Criner-Harrison i use the Canon G7X mark II
@@amyslife4457 thank you so much sweetie! 😘I want one.. Have to look it👌
Amazing inspiration beautiful young lady you put up with so much and go on about your day as normal as possible all the very best
Does the g port on your button vent well? I have a GJ dangler but would love to get a button.
Kim Daniels I had a dangler and I found it vented better if I was venting foods, but the button vents stomach acid and liquids easily.
It vents liquids really well! But solids not so great! My dangler was better for that. However I still absolutely love my GJ and would take it any day over my dangler and NJ xx
im new to your channel . i find u quiet hilarious hahah
Loved this type of vlog...keep up good work Amy
Aw! You were so cute as a little kid! 😄
Dont feel bad of not knowing how to do tire pressure lol I sure don’t either lol 😂
Amy do you know of a weight blanket that is cheaper than 300.00 that works just as good Iam trying to find one for my grandmother she really needs one
I got a things that make you go hum I don't know how to check your tire pressure either but I know how to put a starter in a car and break lines now how is that and iam a female??
I work for a security firm and we drive around in an SUV that looks a lot like a police SUV and it's so funny when we're driving behind people at night 🤣 they'll slow down and you can tell they're trying to be super careful lol, it's a little annoying as we're always in a hurry to attend an emergency but I totally get why people get so scared.
babybluex that’s so funny! What a laugh 🤭 😂
Great video! 🤗
Hey Amy, I love your videos. I have a question after watching your AWESOME TPN setup video. When you unclamped your Hickman line, why don’t you bleed out of it? A bit like your gastric tube, if that unclamps, I believe you leak everywhere? Random question but I’m genuinely interested. :)
Danni R I’m not actually sure, I think it’s a one way valve, so you can only get draw back if you physically syringe it out. I think anyway 😅
Amy's Life it must be magic! Thanks for the reply!
There is a one way valve BUT if there ever was to be blood coming out on it’s own you’d need to go to the hospital as the line is broken.
You went to acre hall primary?! I’m from around that area!!
I love your video!! U do a awesome job Amy.
Was that a bone scan or a bone density test??
Kelly Cannon bone density usually requires iv contrast, so looks like bone scan
It was a Bone Density Scan xx
I love your videos! Also you're really pretty
Love love love ur videos!!!! ❤❤
This is a great video! You’re the boss 💚👍👍😁
Thanks you welcome lots of love you Tube all time from Becky Merrill heap
You are amazing ❤️❤️
Luv you too Amy, goodnight
You’re amazing
What camera do you use?
I love your blue peblum top 😍 Where is it from?
Allouise B i think it’s from valley girl ❤️
@@amyslife4457 Thanks!
I love your video's so much! You are amazing and I appreciate all your videos... and I jaut wanted you to know. !!!
Greetings from Veracruz,México ♥♥♥
good
You are so funny Amy😆
Your mam send line great fun 😂 love the accent!
Car party 🤷🏽♀️🎉 💃🏽😝💜
Love your content! You're such a sweetheart ❤
💜
I love the deathly hallows tube pad
I think you must have been born on a sunny day. You are an amazing person. What are you studying in school?
Victoria Tucker Pathology collection and blood taking ❤️
Looveed.. ❤️
I have severe osteoporosis I’ve shattered 3 bones
if you were anyone else I would give you smack about not knowing how to put air in your tires, but you know all the medical stuff yeah, why don't you tint your windows on your car then you don't have people looking in on you dancing? Your awesome love you much....
❤️❤️💜
Hey amy❤️
why do you have your stomach burned
ASMR honeycomb bite 😍
You don't have your shoulder strap across your shoulder and stomach. Police in USA would tickle you for that.....
Debbie Zehfus I cant because of my Hickman! I have a letter from my doctor. I have to keep it off untill it completely heals (think it’s around 6 months)
Would it be too ott to do a totally self aware and jokey medical ASMR- just for shits and giggles? hahahahha
Caitlin Padgett i actually wanted to!! Maybe I should 😂😂
Amy's Life Yesssssss 🙌🏻
Cute top Amy
westberry1 ty ❤️😊
luck
You always look great, but today your eyes look really hot... Keep up the good work. Love and prayers your way😁
“Literally”
Ugh
What camera do you use?