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How is dementia diagnosed?

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  • Опубликовано: 7 апр 2018
  • Welcome to the place where I share dementia tips, strategies, and information for family members caring for a loved one with any type of dementia (such as Alzheimer's disease, Lewy Body dementia, vascular dementia, frontotemporal dementia, etc.)
    In this week’s video, I’m answering a question that many of you have been asking lately- How is dementia diagnosed? I think I’m getting this question a lot because there isn’t really an easy, clear answer. The diagnosis of dementia can be given by various professionals and can be given in a variety of different ways. In this video, I include an easy-to-follow diagram to help you understand how dementia is diagnosed AND I share the 3 essential pieces of information that must be gathered before ever diagnosing dementia. If you have any questions about dementia, make sure you are leaving a comment under my videos for your chance to get featured on an upcoming Careblazers TV segment!
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    Connect with other Careblazers for information and support inside my Facebook group: / dementiacareblazers
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    CHECK OUT MY POPULAR PLAYLISTS
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    OTHER VIDEOS MENTIONED IN THIS VIDEO:
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    __
    In case you haven’t met me, my name is Natali Edmonds and I am a board certified geropsychologist. That means that I am a clinical psychologist who specializes in working with older adults. One day, while hiking a trail, I came up with the idea for Careblazers and I decided to see if posting videos online could provide help to the many other Careblazers in the world who don’t get to have help come directly to them in their homes. I hope that this work helps you in some way on your caregiving journey.
    #careblazer #dementia #dementiacare

Комментарии • 100

  • @juliamessina1845
    @juliamessina1845 4 года назад +11

    Your video series has been a life saver for me and my brothers as we manage our mom's dementia. We are employing your "kindness and distract" approach; mom's slide into late-stage dementia is graceful and not traumatic. I've recommended it to my sister-in-law and others who are dealing with elderly parents with dementia. Thank you.

  • @ralphwaters8905
    @ralphwaters8905 4 года назад +9

    I totally get the value of an extended (5 hr) set of tests for someone engaged in research, but not so much for the family of a dementia patient. e.g. If there is no effective treatment, why bother going to all that effort (and expense) to pinpoint the person's precise stage? Just wait a couple of months; they'll get worse...

  • @kathygill1923
    @kathygill1923 4 года назад +2

    Thank you for such a comprehensive and informative forum to help navigate through (for us) very unfamiliar territory. We are at the beginning of the diagnosis process for my mother-in-law. She asked me to take her to and attend her PCP appt. last month where a cognition test was administered as a part of the exam (I *may* have called the day before to voice our concerns). She scored 19 out of 30 and her PCP was comfortable saying she showed moderate cognitive impairment, that she should have a blood work done in advance of a follow-up appt in three months and she would know more at that time.
    Well, my mil is not making the arrangements to get to the lab, which I have offered to assist with, saying that she "doesn't want to get stuck". End of discussion. She is incredibly physically weak, barely able to stand up from a sitting position and extremely slow-moving in walking any distance. She has been OC about pretty much everything that matters to her, including house work, her diet, etc. She said she is no longer interested in doing house work, thus, there are evidences of that in her kitchen and elsewhere. My husband sees her regularly, bringing in lunch every Friday and he sees an increase in stains on her carpet and that the stove and sink are never cleaned. He has also noticed that the food she requested he pick up for her at the grocery remains in the freezer, uneaten. She has opted for a diet of only tea, chocolate bars and peanut butter on crackers. This is deliberate from a person who, through sheer determination, brought har A1C levels to the normal range after a diabetic diagnosis a few years ago. She is not taking her statin prescription because "she doesn't want to".
    She gave wrong answers to some of the normal screening questions such as whether or not she'd fallen in the past year, if she handles her own finances, does she exercise, what her diet consists of, etc. She has always been a strong personality who prides herself on being independent and stated to the Dr. that she wanted to remain as independent as possible for as long as possible. She talks about resuming driving and doing her own errands but then (to our relief) does not. She exhibits a lot of anger and denies that anything is wrong cognitively, yet fixates on the "four bills she has to pay", hearing (for the 8th time) what her bank balance is, etc.
    Lacking an "event" where she is found wandering or falls and injures herself, we are at a loss as to how to proceed. We have mentioned that the physical weakness and the memory issues may be remedied based upon the results of blood tests, but we cannot move her to make the follow-up appt with her PCP. I first thought she may be clinically depressed but the signs we see point more to severe apathy, which is a BIG part of why she's not taking the next steps on her own, eating horribly, making poor judgements. We would welcome any advice on what has worked for others in a similar situation or even to tell me that we need to back off, if that's what we need to hear but she is really declining physically and emotionally and we are watching growing weaker by the week.

  • @sheagoff6009
    @sheagoff6009 5 лет назад +7

    My papa has dementia and my mom diagnosed him two and a half years before a doctor could!!!! She looked up all the symptoms that he was having and it came down to that he had Lewy body dementia. We mentioned it to his doctor and they didn’t do much of anything. Finally after my grandma kept begged for the testing the doctor did it. The doctor then realized my grandma/mom was right and sent papa to a neurologist.

  • @aiconic10
    @aiconic10 7 месяцев назад

    I gave up on getting a diagnosis after two years with the same neurologist. I kept telling them what I am seeing and being dismissed as if I am making things up. Nobody took us seriously. Yet, when tested for motor functions everything I said was true. All of her tests confirmed she was Stage 5 LBD. Two years of me pleading for a diagnosis. Nothing. I had to remove her from that doctors care and the system she was in. Mom is now in Stage 6. Plain as day. No idea why the doctors refuse to diagnose. Mind bending.

    • @richrocketlll
      @richrocketlll 4 месяца назад

      So sorry about your mom and the delay in diagnosis. My girl friend is 71 and showing cognitive decline. The wellness screening put her in the average range for her age. I know that she is declining. I did get her primary care to order a comprehensive exam. I requested a PET test but was told its to early for that. So we wait for the call to set up the comprehensive exam. Her daughter is very upset about the cognitive decline. I am trying to keep on track the medical care for her mother. I have seen where medicare will cover new treatments for this kind of thing but a PET test is required first.

  • @lucindrapresents
    @lucindrapresents 6 лет назад +3

    I just adore you for making such a difficult subject understandable in layman's terms. Thank you!!! Also, are there any red flags to look out for with different types of dementia clinics that sell supplements? My dear 80 year old friend posted her dementia test results accidentally on facebook instead of a private message. She is convinced but I just don't see it myself and we have been friends for a long time?

  • @BrianF716
    @BrianF716 5 лет назад +11

    Hi how are you? My stepdad has been giving us a hard time with going to sleep and staying to sleep. He has been up for 3 days straight. He is 83 years old and needs the sleep... He is thinking he has to go to work, even though he hasnt worked in 20 years... Also he woke up and went to the stove and turned the gas on and atleast I heard it ticking... I ran in there to turn it off and now turned off the main gas valve when not cooking. Lastly he doesnt know who we are. It is truly sad. He also is seeing many people and things that arent even there. He was also trying to tear the wall down, because he said that wall wasnt suppose to be there... Is there any help out there. My mom has hard time as he falls constantly and I am disabled and I cant be picking him up all the time too... There is so much, but this is a start of what is going on. Hope to hear back from you!
    Thanks so much
    Brian

  • @judithwallace2091
    @judithwallace2091 5 лет назад +5

    I understand that hydration can really impact geriatric health. Could you please talk about this in a video?
    Thank you.

  • @apincyahoocom
    @apincyahoocom 4 года назад +1

    "Blessings ' Why would I need a diagnose ? My Dad is 102 years old & I have lived with him for the last 25 years & I know he's not at all who he was -He more like my child now - Thank You So much ! For your videos - It's been a Big Big Help to me - I was not at all ready for my Dad to regress in his mind as he has - Why would I need a diagnose ? Or do I ? - I would not know why I would ? Now - You Be Blessed ! & Thank's Again !

    • @kathyleeman8604
      @kathyleeman8604 3 года назад +1

      I am facing this with my 101 year old grandma. We don't have a formal diagnosis but she is experiencing most of the signs

  • @nonacee5065
    @nonacee5065 4 года назад

    Hubby diagnosed mid sixties with vascular/alzheimer mix. His sister 2 years younger, with frontotemporal dementia. I asked hubbie's dr about the odds of different titles to same condition in one family.. He said they nearly gave hubby ftd diagnosis but settled on the one he ended up with....... my take is that dementia has same destination regardless of label.

  • @RegisteredNurseL.A.
    @RegisteredNurseL.A. 6 лет назад +8

    My mom scored 3 out of 30 on the SLUM test. She wasn’t bathing, changing her clothes, or maintaining her house. I finally moved her up close to me. She is in a memory care facility and seems to be doing better. However, she is still very forgetful. I’m an RN and I would be capable of taking care of her myself if I quit my job and did it full time. I have been contemplating this, but have been advised against this because I would no longer be her “daughter” but her caregiver. Do you have any advice to give on this subject? I don’t want to have to put my license on inactive status and lose my continuing education, but at the same time I’m racked with guilt for not being the one taking care of her (I’ll add that I’m also a parent to a teenager). I’m sandwiched between two people I love and medical professionals tell me I’ll burn myself out if I do it.

    • @DementiaCareblazers
      @DementiaCareblazers  6 лет назад +4

      My heart goes out to you. I can't tell you what is best for your situation. However, if you don't take great care of yourself, there is no way you can give great care to your mom. It's important to do what you need to do to feel good about yourself and that is good for your health. You do not want to life a life that you will eventually resent and regret.

    • @chrissy24-7
      @chrissy24-7 5 лет назад +1

      Maybe if you feel really torn, you might try to do both part time? But I get that raising your child may need more attention! 💕 Big hugs and we'll wishes in making the right choice for you.

  • @micheleevans3521
    @micheleevans3521 2 года назад +1

    When our LO goes for testing with the Neuropsychologist will I as a wife be able to tell him/her what has brought us to seek a diagnosis and what I've observed? My husband's Oncologist (Multiple Myeloma) referred us to a Neurologist after my husband started to show signs of rapid mental decline following a reaction to an IV pre-med given prior to administering a new therapy. Have you ever known of such an episode causing a sudden onset of dementia? Your input is greatly appreciated.

  • @lidialopez1432
    @lidialopez1432 5 лет назад +6

    Thank you and Why you do this? Just curious I really appreciate all your tips 🤗

    • @BoysLikeMeee
      @BoysLikeMeee 3 года назад +2

      Um why? She's a gerontologist psychologist.. she went to school for it.

    • @YGardenRose
      @YGardenRose 2 года назад

      @@BoysLikeMeee I didn’t know either

  • @eddycook1369
    @eddycook1369 2 года назад

    Thanks for all you do

  • @pellhappy1287
    @pellhappy1287 5 лет назад +4

    Can you talk about Lewy Body Dementia? No one seems to be able to give us answers. My mother has Parkinson’s disease. When we goggle the symptoms of Lewy body dementia she has the symptoms. The PCP diagnosed her with Lewy Body dementia but no test were done other than a CT scan. We are hoping to get an MRI ordered. Please help.

  • @bron9674
    @bron9674 5 лет назад +6

    1 to 5 hours of testing. My Mum would crack! I would as well.

    • @alises.5986
      @alises.5986 3 года назад +2

      My thought exactly! Even one hour can be taxing enough.

    • @pennyburkeen4377
      @pennyburkeen4377 4 месяца назад

      My 89 year old mom would crack, too. I don’t think she could or would do it.

  • @kristirose2289
    @kristirose2289 4 месяца назад

    My husband is severely depressed and neurologist has diagnosed Alzheimer’s (he’s 53 with a strong family history and genetic markers confirmed on blood test) I recently heard about Pseudo Dementia and I’m wondering if this could be my husband. He seems to remember things and drives, works (a little) etc. But his emotions are all over the place and he only wants to do fun things. He doesn’t want to do the hard grown up stuff (finances, working). Would love your take on pseudo dementia.

  • @naiireczskyzJJX
    @naiireczskyzJJX 3 года назад

    Thank you

  • @marybrand8269
    @marybrand8269 2 года назад

    Helpful.

  • @retroguy1976
    @retroguy1976 5 лет назад +2

    my grandmother was diagnosed by two doctors but I knew the symptoms before hand but one has dementia and another diagnosed vascular dementia he thinks she may had a stroke

  • @smithgary9297
    @smithgary9297 6 лет назад +1

    My LO was diagnosed by sleep studies and an event monitor. The unfortunate part is even though suspect LBD there is no real way to tell until after she is gone thru an autopsy. She is fifty nine, but has other illness's as well.

    • @DementiaCareblazers
      @DementiaCareblazers  6 лет назад +2

      You are correct. It's pretty much true for all dementia. Providers do their best to come up with the right diagnosis like putting together a puzzle but there is no 100% accurate way to know for sure without biopsy of the brain.

    • @DONALD1951
      @DONALD1951 5 лет назад

      I would ask now if he/she wants an autopsy done.

  • @carolr5638
    @carolr5638 6 лет назад +4

    I’ve been watching your videos trying to decide if my mother is developing dementia or if she is simply dealing with normal age related memory loss. I’ve talked to her about it and she agreed to mention it to her (our) PCP. After her last appointment I questioned her about the doctor’s opinion. She told me she didn’t mention it because she doesn’t want to be “drugged up”. She (Mom) says she did fine on her Medicare AWE so therefore she doesn’t think she has a problem. I think she believes I’m gaslighting her. 😞

    • @aprilapril2
      @aprilapril2 5 лет назад

      Be cautious about seeking a dementia diagnosis....look first at depression or infection,

  • @allanbradshaw7892
    @allanbradshaw7892 2 года назад

    system is quite different in Canada
    at least in BC

  • @luwibuchike5299
    @luwibuchike5299 3 месяца назад

    What about the scores are determined out what?I mean for example to be dementia what is the score?

  • @josephgary2451
    @josephgary2451 6 лет назад

    My wife was diagnosed with Lewy Body/Parkinson's dementia by two sleep studies within on month. She has restless legs /Rem disorder along with bradycardia. It may also be mixed due to vitamin deficiency. .

  • @margaretgamon8838
    @margaretgamon8838 6 лет назад +1

    My mom is currently in the hospital on the adult psychiatry ward for evaluation for dementia. She does not want to be there and I need some advice on how to respond to her calling all the time saying I need to get out of here I am not crazy, why am I here? My mom is very stubborn and is in the hospital because of her calling Adult Protective Services over 50 plus times saying she is in danger at our house. She went willing to the hospital after the 2nd time she called the police paramedics and Adult Protective Services with her grandson. She has been there for over a week and just had an MRI and are now going to start the OT evaluations SLUM test, etc. She continues to call all her four (4) daughters to get her out and one of my sisters has hired her an attorney, lots of family drama, I did receive emergency temporary guardianship of my mom and know that she is safe and in the best hands right now as we need to know what is going on with her memory and other behaviors. Any advice from you regarding how to let her know that this is best for her or what do I say to her it is very hard she keeps saying I don't belong here I need to get out of here. Any advice, thank you.

    • @DementiaCareblazers
      @DementiaCareblazers  6 лет назад

      I'm sorry to hear of your situation. Unfortunately, trying to convince someone with dementia of something they don't believe doesn't usually work. Most people find success with listening and saying you will do your best to make sure she is going well. Try your best to avoid trying to convince her. I hope this video can help you in coming up with a way to respond ruclips.net/video/CWnILUjkgXg/видео.html

    • @ernestocaamano7818
      @ernestocaamano7818 5 лет назад

      Sorry for the bad situation. I wish you peace. The only suggestion that I have is look closely at ALL her prescriptions, vitamins and herbs. Pills are usually the culprit when individuals experience sudden behavioral changes, according to reports that I have read. Studies have shown that seniors in the US are Over medicated. Most doses on people above 75yrs should be 1/2 of the original prescription. I don't remember the name of the study but you can probably research and find the actual report. Good luck and peace be with your family.

  • @cathyg1099
    @cathyg1099 2 года назад +1

    What if your loved one is already at the point where they refuse to see doctors, eat, leave the home, and cannot perform the activities of daily living? I’m a friend and see signs of decline. I’m not sure the family sees what I see yet.

    • @DementiaCareblazers
      @DementiaCareblazers  2 года назад +2

      Hi Cathy, It can be a difficult thing to be a friend in this situation. Speaking with the family about what you see and your concerns can be a helpful place to start. I have done a video on how to get your LO to go to the doctor that may be helpful: ruclips.net/video/-bg1W1LDmTM/видео.html but likely your friend's family will need to be on board with helping a well.

    • @cathyg1099
      @cathyg1099 2 года назад +1

      @@DementiaCareblazers Thank you so much.

  • @carmensanchez5062
    @carmensanchez5062 4 года назад +1

    Does everyone who had a hemorrhagic stroke get vascular dementia?

  • @kumrulhasan695
    @kumrulhasan695 4 года назад

    thank you for the vdo. but u said that if a pcp suspect dementia then he/she will refer the pt to a neuro-psychologist or psychologist or to a neurologist. but why not to psychiatrist or neuro-psychiatrist also?

  • @Wheel-1
    @Wheel-1 4 года назад +1

    My mother 81 has had what i call Prescription medication induced dementia several times . They { Drs } call it a reaction . I call it over medicated 5 different times with some very serious outcomes, Bounced back to somewhat self but every time it takes a piece...

    • @TheAmtwhite
      @TheAmtwhite 4 года назад

      JJD1913 What prescriptions were involved? Just want to watch out for my loved ones.

    • @Wheel-1
      @Wheel-1 4 года назад +1

      @@TheAmtwhite They said each time she was depressed and gave her zyprexa and Abilify and vraylar. Not all at the same time it was over 3 different NH stays.These types of meds are very harmful to those with dementia but i do believe they use them black label prescribed. They caused much unneeded torture to my mother as well as taking away her life to a certain extent. Lawyers wouldnt touch it... Sad watching my mother go from a person that you couldn't keep home to a recluse ....

  • @JAYREMIXXX
    @JAYREMIXXX 6 лет назад +2

    The doctor just asked my mom a few questions and she was able to answer half of them, but they didn't give her paper testing however he diagnosed her with moderate dementia and prescribed her medicine. Should we get another testing done?

    • @jeanzurro4173
      @jeanzurro4173 6 лет назад

      Jay Senseng (

    • @sarahcrain8083
      @sarahcrain8083 6 лет назад +3

      Jay Senseng it would not hurt to find a Neurologist that specializes in geriatric care. Where I live, we have a Memory Care Clinic made up of Neurologist and Nurses that specializes in memory issues. Most that are related to dementia. On my journey with my loved one, I recently learned that medications found to benefit the effects of dementia are not a one size fits all protocol. Different medications are best not introduced until later in the progression of the disease. With that said, dementia patients have good and not so good days. If your Mom was a little more disconnected (as I call it) the quick assessment by her doctor may not be accurate. My recommendation is to find a specialist that can perform more in-depth testing to determine the correct diagnosis. Sometimes the lines between mild, moderate to even more advanced stages of dementia can can vasilate. Although it can be a challenge for experts to determine, their advanced training and skills are highly recommend to give patients with memory issues the best outcome. I also recommend that when you find the right care for your Mom, that you consider letting them prescribe and manage all medications needed to treat the dementia. To keep the specialist up to date on any medications prescribed by primary care or other doctors treating your Mom and vise versa. To offset any possible unintended side effects between all medications she might need. Hope this helps.

  • @Freedom-em3zb
    @Freedom-em3zb 5 лет назад

    How do they determine which condition the dementia is coming from?

  • @kimtern1771
    @kimtern1771 3 года назад

    Helped us isn't the right word.
    Saved us is the right word.

  • @palomahealing5073
    @palomahealing5073 6 лет назад +6

    Sorry to burst ur bubble....but Doctors are not doing all that!!! Not in Las Vegas atleast..

    • @hhrtwo
      @hhrtwo 6 лет назад +2

      I saved all the BS...My wife has Dementia and I diagnosed it myself...Its very simple without all those professionals and money...

    • @carolryan2419
      @carolryan2419 5 лет назад

      Yeah, because I took my husband to the neuro. & he still could not give us a definite diagnosis, he called it age-related memory loss-dementia-Alzheimers so we still do not know for sure what he has although his Mom has Alzheimer's & I was around her so my husband is showing the same symptoms that she did so I think he has Alzheimer's also.

  • @toryberch
    @toryberch 2 года назад

    Can you still have Dementia if your brain scan such as a Petscan comes out clear?

  • @lorarobinson5062
    @lorarobinson5062 5 лет назад +3

    My husband & I moved in with my mother in law 2 1/2 yrs ago after my father in law died. My MIT was depressed and could not do the outside chores of the 5 acres. She has steadily been declining since we moved in. We believe she is getting dementia because of many of her actions that you have mentioned in your videos. I have taken over all the household chores because she complains her back hurts no matter what she does. We feel that it is because she refuses to get out of her recliner, she sits all day with the TV full blast and her police scanner full blast and playing games on her computer. Anyway, I work full time so weekends is when I clean house. After I have done things such as vacuuming, she will get up, walk around looking at the floor and pointing out things that I missed, or that have gotten on the floor since I vacuumed, she makes a HUGE deal of it. Or, if I am cooking, she will come into the kitchen and belittle me for the way I do things while cooking. To me, that is a direct insult to the way my own mother taught me. I do not know how to respond to her, besides a snide remark. My husband endures the same treatment from her. She is very passive-aggressive toward us and it is taking its toll on us. We don't know what to say or do. Any pointers? We are in desperate need of help. My husband and I are not reacting the way we should, we are getting upset & yelling at her. We need a response plan.

    • @voltatech7772
      @voltatech7772 3 года назад +2

      Maybe realize it is her medical condition and not the person. Maybe a typical response to her and self could be “we are just doing the best we can.”

    • @lorarobinson5062
      @lorarobinson5062 3 года назад +3

      @@voltatech7772 It got so bad, that it was affecting our mental well being. She started telling my husbands brother that I was doing all these horrible things (which they could not come up with any when I asked what they were). We tried to have a meeting with my husbands brother, and we ended up being ambushed by him and his wife. His brother is an ex-patrol officer and a "christian". Him & his wife are in complete denial and refuse to believe the behaviors we were telling them about, and are now gossiping about us to anyone who will listen, defaming our character. It became a big mess, so my husband & I moved out of the MIL's and my husband has blocked all calls from his side of the family, because they are making false accusations toward me. I feel bad, because he has done that, but I am also grateful he has stood by my side when they tore my self esteem away from me and I was feeling like I didn't matter anymore. We both feel a lot better now that we are not around the negativity. We are at a peaceful place. This disease truly does tear families apart.

    • @KiKiQuiQuiKiKi
      @KiKiQuiQuiKiKi 10 месяцев назад

      @@lorarobinson5062I’m reading this two years later, as my husband and I are about to put ourselves into the exact same position. 😮

    • @lorarobinson5062
      @lorarobinson5062 10 месяцев назад

      If there are other family members, she may tell them things you are doing, that are made up. My MIL would talk behind my back to her other son (who is the "golden child") and complain about everything I did or did not do. Of course, he believed her without talking to his brother (my husband). We tried to talk to him about her decline and he refused to accept it. It got so difficult, I moved out, I was torn down by her verbally assaulted and a very near physical assault by her. She then got all happy when my husband told her I moved out because I couldn't take her abuse any longer. She smiled and excitedly said to him "oh good! Where is she moving to" He just looked at her, went and packed up his things & came to my daughters house to be with me & never looked back. He was totally devastated she expected him to divorce me to stay with her. Needless to say, after that, her golden boy moved her to an assisted living place, sold all her belongings including the house. My husbands parents a will that stated the house was never to be sold. They named my husband as the heir to the home & his brother got all the money (we loved the house & didn't care about the money. My husband had helped his dad build it. Anyway, so my husband obviously does not inherit the house & his brother walks away a millions of dollars from the sale of the home & contents. My husband & I are doing very well emotionally and our bond is stronger than ever before. So, you may have to face the same if you move in. Ugggg@@KiKiQuiQuiKiKi

  • @DONALD1951
    @DONALD1951 5 лет назад

    Can you pls explain the term “careblazer.”

    • @karinawitchell7881
      @karinawitchell7881 4 года назад

      I too was puzzled by this term. I am from England and it is not a word I am familiar with. I very nearly didn't watch the videos because I couldn't relate to the game phrase and thought it rather a flippant word to use linked to such a serious condition. I am very glad I did though. Now subscribed. Very informative.

    • @jonrambo4251
      @jonrambo4251 3 года назад +1

      It's a play on the word trailblazer which is to be a leader. It's not flippant or playful. It's used to encourage care givers to be strong, find the best ways to provide care and not give up on their loved ones.

  • @debbiehallmark9876
    @debbiehallmark9876 4 года назад

    My mom was diagnosed 7 years ago after an unrelated hospital stay. They just said, oh by the way she has dementia'. But now that i know there are many types and no one has ever told me what kind. I dont know what to expect regarding progress because i dont know what type she has. No one seems to want to do any formal testing. Any help? I am just trying to understand where she is going and how soon.

    • @freddygigliotti7214
      @freddygigliotti7214 3 года назад

      Debbie my father has the same thing happening. He has dementia really bad. Hallucinations are unbelievable. He sees 25 people in the house everyday and than he is perfectly normal. It is like living with an insane person. He never had a mri I because I was called by the neurologist at the va and was told he didn't need the mri because he clearly had dementia. If you live in Florida all the Dr's response is well they are old and lived their life, put him in a nursing home. Good luck on your journey. I describe it as living in hell every day and I am trying to claw my way out and when I finally reach the top of this pit and can finally see some light, the devil grabs me by the back of my pants and drags me back further into the pit of hell.

  • @paulboss1159
    @paulboss1159 6 лет назад +1

    Is there pills to slow down the process

    • @Wheel-1
      @Wheel-1 4 года назад

      My aunt takes a medication that is suppose to slow progression Not sure of the name but sound costly Not sure how proven those meds are

  • @luwibuchike5299
    @luwibuchike5299 3 месяца назад

    How about a person who can't read and write?

  • @maryhickling243
    @maryhickling243 Год назад

    Is there a MS Dementia? Otherwise the doctor who diagnoised my father is retired. And the woman with the legal paper wont tell me anything. As long as his Assisted Death is not used she gets his pension each month. Im helpless

  • @nealpaige3907
    @nealpaige3907 6 лет назад +2

    Is there anything to the coconut oil mtc oil or is that just nonsense

    • @goddesignd
      @goddesignd 6 лет назад +1

      Neal Paige Coconut Oil seems to be helping someone I know but she's kind of still in the early stages.

  • @markcook8767
    @markcook8767 5 лет назад

    My mother went through the PCP portion of the testing described in this video (including the 30 question mini test) which she scored well on. Then she was refered for an MRI of her brain which showed no abnormalities. Does this mean she does not have dementia? Or does she still need the long test? I know there is a problem because every day she is asking about people who have been dead for years, and asking the same questions over and over, she shows so many of the classic signs of dementia????

    • @DementiaCareblazers
      @DementiaCareblazers  5 лет назад +1

      The longer test will likely provide more information. It's called neuropsychological testing and your PCP should be able to refer her for that.

    • @markcook8767
      @markcook8767 5 лет назад

      @@DementiaCareblazers Thanks for the reply and information. I just was able to arrange this test with a Neuropsychologist next week. with a follow up visit with a Geriatric Psychiatrist the week after that! I'm confident these professionals will be able to give a diagnosis. Thanks again.
      I just remain puzzled that the MRI did not indicate any issues with the brain? I thought MRI was used to "confirm" dementia and/or Alzheimer's after a diagnosis?? - I assumed changes in the brain showed up just like a broken leg??? Especially given that her memory issues seem a little more advanced than some dementia suffers I have seen.

  • @reniehandler2595
    @reniehandler2595 6 лет назад +2

    We're at the VERY beginning stages of diagnosing my MIL with dementia. We have an appointment with a specialist next month (first one available) meanwhile she's living alone and making up fabricated stories about being robbed and is terrified to go get the mail etc.. It's so sad, but she has good days where she seems just fine. She told us yesterday that she rode in a car with a woman to go look at the trees in her neighborhood. ?? She lives way back off a road, so the chance of her having any visitors is HIGHLY doubtful. She also said that the newspaper delivery guy is stealing her carpets, ladders, lamps, etc. off her front porch which there has never had anything on it for the last 35 years. When she tries to remember these stories, she closes her eyes and really tries to remember. It's so very sad!!! She also puts notes up on her desk to remind her of these stories. When we see them, we take them down, hoping she'll forget that negative story.

    • @Lauren-mh9pt
      @Lauren-mh9pt 6 лет назад +1

      While I am no expert at handling things like what your MIL is doing, I have found that the techniques Natalie is giving us work really well. I'd suggest that you watch her other videos on how to handle those situations. I am in a similar situation, but I have the added challenge of the person having an intellectual disability and another health problem that is causing the person some frustration. Occasionally, this person "sees things like men or animals" that aren't there. I've actively shooed the person away and the person is comforted by that. For the stories, I would suggest not throwing away the papers--try to leave her routine the way it is as much as possible because they are less scared that way. You could just go along with the stories because to her they are real. I kind of look at it like it's her way of saying she's scared and losing control. For the person I care for, I try to just go with whatever they are saying, as long as it's not harmful. The person has confusion with the days of the week, and when they insist it is whatever day of the week, I just go with it and work around it. I try to redirect their conversations sometimes too--find something they love to talk about. Every person is different, but it's much easier to work around and adapt to their needs than to try and have them work with you. I also try to put myself in their shoes and imagine how it must feel to them to be in this situation. That also helps me not feel frustrated.

    • @carolkol2313
      @carolkol2313 6 лет назад +2

      Where is the survival guide

    • @reniehandler2595
      @reniehandler2595 6 лет назад +2

      Thank you so much for your helpful hints. I will leave the notes on her desk, I thought I was doing something good, but now I can see that it's interrupting her routine. We have been going along with her stories. The other problem is that she has called her landscaper and accused him of stealing her ladder etc. Now he won't come back to do yard work because he doesn't want the responsibility of being accused. She also has called the local police department and told them of the strange men on her property. I think it's only a matter of time before we need to find a good assisted living situation for her. I appreciate your time in replying to my post! xo

    • @Lauren-mh9pt
      @Lauren-mh9pt 6 лет назад +1

      Renie Handler you"re welcome! The thing about the landscaper is a tough one. The whole situation is tough. I thought shooing the people away was not right but it turned out to be the right thing. Sometimes it is a matter of trial and error to see what works. Good luck!

    • @DementiaCareblazers
      @DementiaCareblazers  6 лет назад +1

      Hi Caroluj- I apologize. Here is the correct link to get access to the Careblazer Survival Guide: app.convertkit.com/landing_pages/366531?v=7

  • @marybrand8269
    @marybrand8269 2 года назад

    Is vascular dementia a result of a stroke?

    • @DementiaCareblazers
      @DementiaCareblazers  2 года назад

      It could be and happens often, but it’s not always the case. Vascular dementia could also exist without a stroke.

  • @savannafields9601
    @savannafields9601 11 месяцев назад

    In your next video you might want to outline those 30 questions you don’t give us examples of the 30 questions give us a 30 questions because 30 questions could mean a lot of different things

  • @MyForeverPerson
    @MyForeverPerson 6 месяцев назад

    I think my mom has dementia

  • @ernestocaamano7818
    @ernestocaamano7818 5 лет назад +1

    Check the pills. You can at least look at all the pills that causes memory loss, dementia etc. And see if that could be the cause for dementia, memory loss, etc. Good luck to all.

    • @DementiaCareblazers
      @DementiaCareblazers  5 лет назад +1

      yes, always important to rule out other causes for memory loss like medications, infections, and vitamin deficiencies.

    • @ernestocaamano7818
      @ernestocaamano7818 5 лет назад +1

      @@DementiaCareblazers : Parkinson's link to statins: Calls to end widespread use of the drug
      PLANS for the mass prescription of statins should be shelved after a study linked the drug to Parkinson’s disease, an expert last night warned. By Lucy Johnston Mar 8, 2015 | The Daily Express, UK.
      Dr Kailash Chand, deputy chairman of the British Medical Association, was speaking following research which found those who take the cholesterol-lowering drugs are more than twice as likely to develop Parkinson’s disease in later life than those who do not. A study last week showed statin use increases the risk of diabetes by 46 per cent. It has led to calls to end to the widespread use of the drugs. “The risks of side-effects of these drugs are far greater than any potential benefits and it is high time these drugs were restricted in the low-risk population.” Dr Kailash Chand The Parkinson’s research carried out over 20 years, and involving nearly 16,000 people, suggests cholesterol may have a vital role in protecting the brain and nervous system.
      The findings have alarmed experts who say if applied to the number of Britons deemed eligible for statins it could equate to 150,000 extra patients with Parkinson’s, a central nervous system disorder affecting one in 350 mostly older people.

    • @KiKiQuiQuiKiKi
      @KiKiQuiQuiKiKi 10 месяцев назад

      @@ernestocaamano7818
      YES!!!! Our brains are largely made of cholesterol-it’s normal and needed. 🧠

  • @georgepersyn5479
    @georgepersyn5479 5 лет назад

    I was told that 50% of ALS patents will end up with Parkinson/ dementia.

  • @em......
    @em...... 6 лет назад +2

    I went to my doctor to talk about my mother before I brought her in and he told me to call this number and talk to them about a diagnosis. I was so taken aback, I felt as though I had been slapped. It took me months to work up the courage to speak with him. I am not good at talking to people about things and I even cried when I told him. Afterwards I just wanted to punch him.

    • @DementiaCareblazers
      @DementiaCareblazers  6 лет назад +4

      I'm so sorry that was your experience, Em. I do hope you have some better support now. One of the reasons I started this channel is because families need more than a 30 minute/1 hour appointment to help them cope with all of the challenges they face. Sending you strength as you continue your caregiving journey.

    • @MsNetwizard
      @MsNetwizard 3 года назад +2

      Stay strong, be courageous and don't let the turkeys get you down! Trust your own instinct and judgement. Don't let anyone bamboozle you.

    • @em......
      @em...... 3 года назад +1

      @@MsNetwizard sadly, my mum died in January. She was finally diagnosed by another wonderful doctor, who is still working with me to come to terms with everything that happened. Thanks for your support.

  • @78praxis
    @78praxis 5 лет назад

    What do you think of Trump?

    • @carolryan2419
      @carolryan2419 4 года назад +3

      This is not a site for questions about Trump, please ask your question on a site for that purpose. This is a site for people trying to find out about dementia.