💪 A Day In the Life of a Gastroparesis Warrior | GP Awareness Month 💚 (8/8/17)
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- Опубликовано: 1 окт 2024
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What kind of person doesn't like soup?! Soup is the best! And I'm sorry you were feeling so poorly. But those purple leggings are super cute!
Melissa Murray i hate soup
Melissa Murray I don't like soup it hurts my stomach XD
Judd dislikes soups 😂
Melissa Murray I hate soup too , it's not the most refreshing thing the only thing I drink hot is coffee.
My dad doesn't like soup. He says if he's thirsty he'll get a drink, soup isn't food lol
I'm sorry you had a rough night. Harlow always seems to make you happy I like soup also. Your soup looks good. I'm glad you were able to eat your soup.
Lynn Amidon I love your comment.
Lynn Amidon best thing i've read all day
When you have vomiting spells even though you haven't eaten anything are you just dry heaving? Or is acid coming up? Or even nutrition from your feeding tube? Sorry to hear last night wasn't a good night and can be triggered even without eating orally☹️
DoubleEmA when I was dealing with chronic symptoms before I was diagnosed I was 12 and I would throw up acid because I was 23 pounds which sounds crazy and I couldn't eat or drink water and my gums were bleeding and I would throw up acid constantly and I'd be in agony the acid burned and ruined my gums so yeah even if you don't have food you have acid
DoubleEmA i normally vomit up acid, because i wont eat if im sick.
TheWienerDogVlog yeah but like chronic illnesses wise
vomit up acid most def.. even if we drink water it can come up. It is horrible to go through.
Kim Cote yes it was so bad my throats would start to bleed towards the end and that's when I practically almost died .
Tomorrow I'm going to my gastro doctor to discuss a potential new formula because apparently I'm deficient in protein (and moreover) and hopefully get a new nutritionist. Becuse the one I have us NOT good.
Wish me luck!
BTW LOVE YOR LEGGINGS 😍😍😍😍😍😍
You're the reason I push through. You give me hope.
Thanks for being real and sharing your struggles! My daughter has gp and we are trying to get the doctors to move forward with working to get nutrition in her. She also has MCAS, EDS, Fibro, & POTS. Five of us are dealing with these and you are so right that it looks different on everyone. Thanks for taking us on your adventures! Blessings!
I suffer from horrible anxiety and seizures and seeing you go through so much is so inspiring to me and make me want to try harder to get my dog back home. She's an esa for my mental health and helps me recover from seizures when they get bad but when my husband got restationed to Virginia (he's atc in the navy) we weren't allowed to bring her until we got an updated letter from my doctor that allows me to have her in our apartment building. After months of struggling with Tricare going through and finding the right neurologist and therapist here im happy to say my babygirl gets to come home. We got the letter yesterday and in a few weeks we're going back home for the weekend to pick her up and reunite us. If it weren't for your videos I may have given up a long time ago on getting her back from my parents back home. Keep up what you're doing Jacquie you're amazing and inspiring to so many.
You're a true warrior and an inspiration. Thank you for your positivity..i hope you feel better from this soon!
OMG when I watched your chronic illness video I cried and was on the phone to my mom so fast I could hardly dial the phone. Why? Because you could have been telling my story!! Only your story had way more answers to it than mine does/did. The more of your stuff I've watched the more answers I've been able to hunt down for myself. Obviously it's not all the same but you have helped me so so much!!! Thank you from the bottom of my heart!!!
Wow......you are the bravest person I have ever seen...I would have given up so long ago if I went through you're illness and stuff.
All I could think about when you were talking about the special feed bag distributors were drug dealer. "Hey., you got the good good" "Yea completely organic man"
Hoping you had a better day. GP is rough. I try to prep as much before it gets real bad (cool compresses, towels or soft padding, flat ginger ale & Zofran). I pad the bathroom floor ever since I broke 2 toes during a GP vomiting session (sometimes I start flailing from the fear of blacking out or anxiety). So glad you have Harlow with you 🌻
i've noticed that you take naps quite often and i was just wondering if you sleep in your contacts? isn't it uncomfortable once you wake up? because it is for me! haha
I was wondering that too
Vanessa G There are extended wear contacts that you can sleep in and keep in for weeks at a time
Harlows sooooo adorable. She knew that you weren't feeling well... So I think she made you laugh when she was getting your blanket. Bc I see that when you said get my blanket, she stopped and wanted to find a way to make u laugh.
Do I see a pimple there by your right lip or is that a small cut??
*She. Harlow is a girl.
Liz E just edited it.
Liz E yeah he/she said that
Yeah because they fixed it. See the (edited) by their name?
I'm so sorry you have to go through all that vomiting- it must be painful. I'll do almost anything to avoid throwing up, it's so uncomfortable! I only throw up with migraines, but one time when I had a migraine, I threw up so hard that I blistered my esophagus, and had trouble swallowing food for days! I hope the rest of your day goes much better!
I've been thinking about you a lot today, Jaquie! I hope today is a better day for you. Sending you many prayers and love!
I'm sorry your GP acted up agian... I hope you won't have much trouble anymore❤
You are such an inspiration to me, you, Jaquie Beckwith, are *literally* the reason I am still alive🍀💙💜💟💚🍀
Sorry you weren't feeling well 🙁 Love those leggings!
We are ao proud of you for fighting so hard! Dont be afraid to rest and do nice things that make you happy ❤ you are completely allowed to have a bad day. You are amazing!
My furry shadow 😂😂💖💖 I love it !
I have a question ! If you are too sick or weak to walk or stand , how do you exercise and take Harlow out ? What about if Judd or your mom aren't there?
Btw love your channel so much and so inspiring ❤️❤️
I bought your merch😁 should be coming in soon. Love your channel❤️ you inspire me so much.
I'm sorry today wasn't a good day for you Jaquie. I'm hoping tomorrow is better, much much better. ❤️
You're so dam brave. You're an inspiration!
I love you jaquie hope you feel butter!! 😝😏😋
Since your feeding tube goes to a different part of your intestines when you have vomiting spells does the formula come up or is it just stuff in your stomach. That soup looks so yummy
Are you eligible for a gastric pacemaker? I live in KY and we have a doctor here that is world renowned for his work with GP. He developed a surgery that puts a pacemaker type thing inside you and makes your stomach move. They also have external ones, but they are mainly used for temporary trials.
Another option is the vagus stimulating medication Pyridostigmine, which works in a similar manner but without the surgery. I've had success with it in treating both my gastroparesis and POTS. My Ehlers Danlos syndrome makes surgeries a bit risky, so my doctors wanted to avoid the pacemaker.
I'm so thankful for you sharing your story. My chronic illness was rough today and I definitely let it get to me. This reminded me to celebrate the small victories throughout the day. Thanks Jackie. ❤️❤️❤️
I don't think i have it as bad as you do, but i always get sick (i mean all the time), i'm also always tired but i have never been diagnosed with narcolepsy or anything like that, but I do have hives under my skin (which also means i always have hives) and I am allergic to pretty much anything (so far no food, my body says "I will give you that, for now"), I have been diagnosed with mild depression and cant take pills for it because 1 they don't work 2 im allergic to them, so i recently started going to the therapist. I have also recently stop going to school and have to be taught online since my mother is single and has a full time job to take care of my older brother, younger sister, 2 dogs, 3 cats, bills, my hospital bills (i've been to the hospital so much they remember me by name), and I.(Don't get me wrong I always thought I had an almost average life till my therapist reminded me other wise, but he said it nicely not in a mean way) I found your channel today in my recommendations on youtube and i have watched a couple of your vids and I feel a bit better about my life, cause if you can do it I can do it too.
I just clicked on this.. Girl.. I am 47 yrs old.. I also have gastroparesis.. a paralyzed stomach they call it.. I have thrown up since 1997.. tremendous pain, throwing up continuously.. A condition I got along with many others due to my nerves and stress.. I had gallbladder out.. I have driven myself to the Emergency room many a nights by myself stopping to puke along the way. My poor son listened to me every morning before he got up for school from the age of 5.. I have many digestive issues.. I went Vegan about a year and a half ago.. and my symptoms got increasingly better.. I still vomit here and there.. very careful about what and how much I eat. I do not feel good all the time.. and I have really really bad GP and IBS issues from time to time.. but being Vegan helped soooooo much.. whole foods and less processed shit.. Government trying to kill us off with all the bs that is in processed food.. I do eat processed Vegan food also but not at the degree I need to worry about. Bless you. Some one that knows my pain. Because I am new why are you with FT? What exactly do you have going on? GOD I can so relate to this.. I could not even drink water... hell I threw up my spit. I love my dogs... they are every thing to me.. it is such a draining thing to go threw.. I could not keep jobs cause I was throwing up all the time.. in pain.. the pressure is unfucking real. Oh I also have my medical cannibus card.. it helps soooooo much. Even though I knew this already.. I live in a state that it is legal.. Best thing for nausea.
You are amazing, Jaquie! I had to fight for 3 months to get one medication. Everyone was losing patience with me. The Doctor was tired of submitting forms to the insurance company, the Pharmacy was getting tired of faxing forms to be filled out by the doctor and faxed to the insurance company. The Insurance company told me the Pharmacy had to select a different drug because the one my doctor requested was not covered. The Pharmacy told me that they couldn't do it, it was illegal. All in all, it took me 5 phone calls on Monday to get my medication. Lots of time on hold hearing how important my call was to the party I was calling. I certainly did not feel important. I had already been fighting for a refill on another med, then all of this started. It's quite ridiculous! I ended up bawling my eyes out! Stay strong and thank you for spreading awareness. Someone without a Chronic Illness would never understand. Your videos truly help people get it!
Oof :( so sorry about the crappy symptoms. I hope today brought some relief ❤️ I have no doubts that you're doing everything you can. It sucks that chronic illnesses can just overrun any precautions.
You feel crappy but you're looking super cute in your leggings! Hope you feel better soon! I'm celebrating with you the fact that you were able to eat!!! Hit us with what you put into that soup! Looks delicious! Sending prayers your way!
So sorry you had a miserable night and day. I'm glad you have Harlow to give you love and support. She is such an amazing and loving dog. Your soup looks great....... wish I lived close by lol. Wishing for a good night for you tonight and no vomiting tonight or tomorrow.
Take care.
Hope tonight's easier for you! ❤️
I appreciate the look into your life. I have chronic issues and go. But, my husband isn't quite as loving as yours. But, I'm not nearly as sick as you.
Hope you feel better soon!❤️
I'm sorry you had a bad day, but I am thankful that you have such a silly doggy who looks after you so well.
So sorry your not feeling well. Keeping you in my thoughts! Thanks for staying so raw and showing us what it's actually like to live with GP and your other chronic illnesses.
I have a g/j tube. It should significantly decrease the amount of vomiting that you have been experiencing.
Vomiting is the worst! Bless Harlow.
stay strong girl!!!! your so amazing you got this!! feel better soon
GP sucks my stomach constantly hurts and zofran is a godsend for my nausea thankful that I am not at the point of needing feeds and can eat puréed diet and liquids.
I was watching for this video for today. Are you having issues today today? I am having a so so day today so totally understand the feeling too tired to do anything when your body is being evil to you!
You don't have to answer but do you feel worse if it's that time of the month? If so what are you sxs? Thanks from NJ
I'm only 12 and have Crohn's disease, and you really inspire me everyday! You keep me going. Stay strong Jaquie. (Also I wish I could buy merch but I can't 😢)
UnicornLPS Tube Im 12 right now and the doctors thought I had GP but i dont then they thought it was IBD or IBS but we found out worse news. I have a “Growth” in my bile duct which is giving me problems with my liver. I think im getting a very dangerous surgery so they can remove it because it causes alot of pain and the medication isnt helping anymore. Going in for another MRI soon so we can see if it grew because if it did I have to go into surgery. Im praying for you to get better and just to be pain free. I hope you are doing well because the only thing you can do is be positive ! 💙🥰😇🙏🏻 We can do this !!!
Damn the soup looks like exactly what I want to have as comfort food. Too bad it's an "off the top of your head" thing and you don't have a recipe 😂 hope your stomach feels better soon!
Sending prayers. Hope you are feeling better today. Harlow is too cute!
GOD Bless, Jaquie. One thing is for sure, you aren't going through this alone. Your husband, your mom, all of us, ... *and* that furred, angel of yours. I'll share a quote about goldens from a woman who helped me with a baby porcupine (she rescued them) ... " goldens are the mothers of the earth." So perfectly loving. In my own experience, my golden girl Julia, cared more for me than is possible to express ... and I, her. We were as close as two souls can be. xo to you and a BIG hug to Harlow, please.
Evreryone with questions I recommend you go to her RUclips page she has a whole playlist where she speaks about her illnesses including her GP.
I hope you start feeling better soon
You are the best
Soup is the best! Glad Harlow was with you this whole time!
oh Jaquie :( .....I felt so sad at the beginning of this video....but yet your strength amazes me :) ....I'm so happy you have an amazing husband and such a great Hippo and your mother to help as well...((hugs))...hope switching nutrition types is of help!
I love you so much!💗💗💗
hope you feel better❤️
Dogs are a gift in life. Harlow is so beautiful!
Jud is a good hubby it's hard to stand by a sick wifey
Hugs and hope tomorrow is a better day for you.
😫😫😫 I hate to see her like this 😫😫😫 feel better Jaquie🙌😖🤢
Do you watch other RUclipsrs and who do you watch if you do
Jack The Poop she's answered in a live stream, and the two I remember are The Frey Life and Drew Lynch. There might have been more but I'm not sure.
I love both of those channels
Hi I like cows YASS DREW LYNCH
Don't we all love them, I feel like all of them are staples to any chronically Jacquie fan (we should really come up with a name)
Hi I like cows DREW IS SOO FUNNY! I was hoping that that was one that others here watched!
Your soup looked so good can you post the rescipe please thanks
Dogs are so comforting, just having somebody there who is concerned and you can count on to pet and make you feel better. I hope you feel better girl! Fight on!
I have learnt so much from you! I hope you feel better :) ive now been educated on invisible illnesses thanks to you :)
Sending you lots of love from Venezuela 🇻🇪❤️
I can't believe you can cook. I'm usually too nauseous to cook.
ily hope U feel better❤️💕💖
That soup looked so yummy did you save some for your subscribers?😂 glad you managed to eat some . Hopefully today's and tomorrow's GI day is better for you. Harlow is so cute and loves u so much .❤️❤️❤️
Hi Jaquie, I was diagnosed with paralisis of my colon. The solution proposed by the gastroenterologist was to remove all my intestine... which was very scary! 😣... so I decided to give my chiropractic a try. My logic: maybe a nerve or bunch of nerves for my intestine in my back are being pressed of clamped. It worked! After the first treatment I could feel better. Now I combine it with Kinesiology and I have been able to even gain weight after 6 years of not been able to eat without punishment after each bite. I know everybody's body is different but I wanted to tell you in case you want to look for other options. Have a great day!
My doctor thought I had Gastropareses due to my medical records being incorrect and he mentioned gastroelectrical stimulation (pacemaker). Is that something that's available in the USA?
I can't imagine what you're going through, but I find your positivity towards life incredible! It's definitely inspiring 😊
Love your vids!!❤️
Hope your day is better today :( ..love you jac..hope you are having a wonderful day 💚💚💚💚🐾🐾🐾🐶🐶🐶
I have gastroparesis also so i support you here! Have you tryed Metoclopramide (reglan) i take it and it works but if i go off of it im super sick.
How do u feel about the #ravenexposedparty? A girl named raven on big brother says she have severe gastroparisis but she eats so much junk, it makes me feel like she's exaggerating when she says its severe but then i see u and thats seems to actually be severe
Tori Ferri I'm not sure if this helps you at all but my doctor suspects that I have gp. I can't eat red meat, most vegetables and most fruits. On some days I can't have dairy but I like my dairy a little too much to give it up 😂. My body just can't tolerate it and probably about an hour after I eat something I can't tolerate I will throw up my food, and because I don't eat a lot, there tends to be a lot of dry retching as well.
That being said I can eat quite a bit of junk food! The only junk food that I've tried and can't tolerate is chocolate (bad days), flavored chips (original seems to be okay!) and corn chips (though let's be honest I'm not giving up Doritos 😂😂😂)
Hope that helped somewhat!
I went vegan a yr and a half ago and it helped me a lot... I still have episodes and pressure an vomiting at times but has improved ALOT.
Lesley bailey yes it helped tremendously.. I was a big milk drinker and cheese eater.. when I went vegan I could tell within 2 days I was feeling much better..milk products are probably some of the worst for you. Not saying that cause I am vegan either. It made big difference for me. it worth a try.. oatmeal is good for you though..try to eat less acidic stuff.. processed stuff is some of the worst. rices, potatoes.. avacados.. veggies a lot. I drink soy and almond milks..
If you want to cut out dairy you could try soya, hemp, almond or hazelnut milk for drinks and baking ( the rice milk is very watery and almost tasteless). There are soy and coconut yoghurts and ice creams available (the coconut versions are really tasty in my opinion). There are also cheese and ice creams made from soya. So plenty of choices if you want to experiment.
You poor thing!!!🙁😦
Hi Jacquie, Thank you for sharing your everyday with us! Sorry to see you were so unwell. Hopefully it will be a shorter duration this time in between and glad you were able to eat something in the end. I love Harlow she's so gorgeous. Love your videos!! 💕💕
I'm so sorry you weren't feeling well, and I hope you're feeling better now. Also, I thought I was the only one that woke up from naps super disoriented and confused, but apparently not xD Anyways, I love your channel and you're very inspiring!
I have those episodes like four times a week
I hope you feel better, love. This is probably the worst part of watching you be a Chronic Illness warrior. One day, I'm sure there will be a cure. ❤️
I'm sorry you felt so crappy today but at least you had Harlow snuggles to keep you going!
No matter what type of mood I'm in due to my health,I always watch one of your videos and it always makes me feel much more positive about things again.
You keep being you girl! xx
Hey! It's your biggest Fan! It's Zoe, and I also have most of your diseases, but I was just reminding you, because I've gone through this to... I know, it's not fun vomiting. But just make sure your trying to stay hydrated. And eat if your able to. Hope you get better! I'll be praying for you! (I'm 11, so I have been watch every single one of your vids!) You and I can stay strong together! You inspire me everyday! 😆💖💪🙏🙌👍
Praying for you Jacquie! When I saw you in the bathroom I just hoped you could at least lay back on the bed.
I'm in the process of being diagnosed with Gastroparesis. I've noticed I have problems eating much on a daily basis. I have to eat small snacks all day. I can't eat big meals.
I hope you feel better soon, hugs❤❤❤
Your soup looks good. And I love that Harlow did not let you out of her sight. Puppy snuggles make all better.
You are a very inspiring person. I am sorry you have all these issues. But it is so encouraging that you can smile through it all. God bless.
Kinda late, but this video is amazing. I came into a video like this when I first found your channel, and that made me really aware, so maybe someone will see this as their first video and see he struggle, and the tiny wins. Hope you feel better! #ChronicallyJaquie
Ok, so I have to go back to school here really soon, and I have a health class. I really hope we go over GP month, becasue I can bring up your videos as a refrance!
When I first started to watch you Jaquie, my mom was really confused as to why I would want to watch your videos. "Why don't you watch something happier?" I do watch happy things, but here in my personal life, things arn't this, no offense, crappy. You are like my teather to reality. Once at disney, I got upset because we got seperated from the rest of my family because someone that looked perfectly healthy go on the ride where me and my dad should of been. And you make me stop and think, "Hey, they might of been like Jaquie. Maybe it was Jaquie. But they need the help and assistance that they get because they deserve to have normal lives. Or as normal as they can get. Love you!
I truly understand I suffer from the SAMs GI issues I use the same infinity system and I'm also at a rate of 35 most days .....I also have an illiostomy due to my bowels being damaged as well....I hope you start to feel better....soon ....you are not alone..I get a lot of comfort watching you and Harlow....my dog Rocco gives me a lot of comfort as well ...thanks for sharing your days....
Have you been checked for SIBO (Small Intestine Bacterial Overgrowth)?
Hi Jaquie I am new to your channel :) I hope you feel better chronic illness is no fun I have Lupus and RA as well as diverticulitis nothing nearly as bad as you :( so I do know somewhat what its like to get horrible cramping and nausea. I find your video very helpful :) love your dog she is so well trained
Hey maybee a little tip... insted of cutting with knife use a sissor! 10 months ago a couple of my stomach musscles got damaged when i had my hysterectomy. I'am starting to cook again last week and I found out i was less tired when i used a sissor (as Always with chicken). maybee its helps you to? :D
Have you thought about trying soylent? I don't have gastroparesis, but I have IBS and it's helped me. It could also help with your oral intake. Take care!
Thanks for sharing, you made me aware of some things going on in my life and i am really thankfull for that :) because of you i am more understanding
Hi, I'm new here. My bf has chronic illness, and wanted to say
"Hi"
Man, that looked like a really rough morning. I hope you're doing okay and feel a little better today.
Hope your day is a better one for you tomorrow Jaquie .... I love how Harlow decided on a different blanket for you... knew you needed cheering up with a giggle - clever dog. Hugs to all ...
I watching your videos!❤️ I pray you get better everyday!
I feel like I have watched most of the videos about your gastroparesis, but I don't remember if you addressed this. Are you a candidate for a gastric pacemaker and if not, why?
poor girl life full of suffering, I'm was born chronically ill growing up I'm suffering with mental and physical health issues, you give me hope