I have this syndrome and have just been diagnosed with cancer for the 6th time. Breast cancer four times and lung cancer twice. I have lung cancer again.
Hi, well it’s actually the TP53 cancer surpressant gene that is mutant. So cancer cells in my body have nothing to fight them off, so the cancer grows. I had the lung cancer removed and spent a good six months recovering amd now on follow up scans I have a cancer in my pelvic bone which they believe is breast cancer metastasis. I had 3 aggressive radiation treatments and it has shrunk, but they say this is not curable. Just praying it’s a slow process.
@@sandrabonavita2380 Thank you for sharing this experience with us. I am studying medicine and finding out about this syndrom. I am sending you all the good vibes I can, and hope, and strength from France. You clearly are an incredibly strong and beautiful human 🙏🏻
I have this syndrome and have just been diagnosed with cancer for the 6th time. Breast cancer four times and lung cancer twice. I have lung cancer again.
Hi, well it’s actually the TP53 cancer surpressant gene that is mutant. So cancer cells in my body have nothing to fight them off, so the cancer grows. I had the lung cancer removed and spent a good six months recovering amd now on follow up scans I have a cancer in my pelvic bone which they believe is breast cancer metastasis. I had 3 aggressive radiation treatments and it has shrunk, but they say this is not curable. Just praying it’s a slow process.
@@sandrabonavita2380 Thank you for sharing this experience with us. I am studying medicine and finding out about this syndrom. I am sending you all the good vibes I can, and hope, and strength from France. You clearly are an incredibly strong and beautiful human 🙏🏻
Thank you for sharing. Sending good vibes from India. How are you doing these days?
Mmmmmmn😮