#11 - Bexarotene trial complete!

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  • Опубликовано: 17 ноя 2024

Комментарии • 12

  • @danijelapasic428
    @danijelapasic428 6 лет назад +1

    Thank you,sorry if I was bored,all the best

  • @simoncandler9127
    @simoncandler9127 6 лет назад +1

    Hey James, hope everything went ok today. Well you can finally stop taking all those tablets lol.
    Im still not 100% sure if I'm on the real deal but I have had some improvement but like you the fatigue is horrendous. I still got 2 weeks to go

    • @jamesms8351
      @jamesms8351  6 лет назад

      Hello Simon!! Yes everything went very well today as usual Cambridge are really on top of things. I don't understand why but I always leave they're in a really good mood. They are so optimistic about treating MS. Sorry to hear about your fatigue being so bad mine has gotten worse also...😏 Oh well onwards and upwards hopefully!! There is talks of a new trial starting next year using an antihistamine drug with a drug used to treat diabetes to encourage remylination 😁 might see you there too I hope?!

    • @jamesms8351
      @jamesms8351  6 лет назад

      @@simoncandler9127 Dr Cole is excellent to be fair and so are the rest of the staff! I think we will see each other again until then fair well mate :)

  • @danijelapasic428
    @danijelapasic428 6 лет назад +1

    And I've felt much better before,with very few symptoms.Do you use stems from alternative methods and natural preparations?💖

    • @jamesms8351
      @jamesms8351  6 лет назад

      I hope you have hope. That's most important I think. I have not tried any natural alternatives as of yet do you have any recommendations?I spoke with my neurologist today and he did not recommend me for stem cells... It does not suit my symptoms.

  • @danijelapasic428
    @danijelapasic428 6 лет назад +1

    Hi James,you have not published anyting for long time,how do you feel at the moment😀

    • @jamesms8351
      @jamesms8351  6 лет назад

      Hello Danijela, I feel lucky to be as good as I am. I feel my symptoms worsening each week. My walking is getting quite poor and my fatigue is having an effect on my work. I don't know how long I will be able to do my job. How are you?

  • @danijelapasic428
    @danijelapasic428 6 лет назад +1

    I used 7yers of betaferon for the last year did not work any better.Did you take vitamin D,I just read about the carnosine extra preparation and activity on the brain and muscles.To ask me where your lesion are more,brain or spinal cord?

    • @jamesms8351
      @jamesms8351  6 лет назад

      Spinal cord unfortunately. Their called plaques I think? Yes I tried vitamin d but I wasn't organised enough to always have it to hand. I hope to be more organised for next year. I will be taking omega 3 supplements also. I might also take copper tablets I read somewhere they may help remylination...🤔
      Where are your lessons located?

  • @danijelapasic428
    @danijelapasic428 6 лет назад

    I have plaques on spinal cord also,in the brain i had one plaq.I did not have any vision problems,because of the plaques in a spinal cord i have problema with the walk.Do you have any problems with the moving?May I come to you and ask you if I am interested in it?☺

    • @jamesms8351
      @jamesms8351  6 лет назад

      Yes I am beginning to have difficulty with balance and walking in general I think this is due to the plaques that have been noted on my spinal cord during my MRI scans. I recommend that you get involved in doing some clinical trials. You would be helping a great cause and also it is good to have extra care for yourself :)