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How are you today?

I've been offered this drug. I know that it can improve speed slightly but does in also improve the distance that you can walk? I'm lucky to be able to walk 100 metres these days. I'm not concerned about speed for that distance but I'd love to walk further.

Thanks and stay strong, very handy info. Any updates?

James great work doing this video. I have also sec progressive. It increases my walking speed by 30% .however I get more fatigued and my balance is terrible.

Stay Positive Brother! Your courage is amazing and it really is inspiring.

Thants so annoying it hasnt worked too well for you . I'm about to start farmpyra .. nervous about side effects

Hi, James how have you been ? No videos since 6 months ? I hope you're alright, prayers all the way from India 🇮🇳

Hi James. How are you doing?

Hey James, just checking to see how you are doing?

😪 PЯӨMӨƧM

Thank you for sharing your journey! It is helpful and appreciated!

Thank you James for the feedback I hope you MRI will be good and hope you will get improvement with time 🙏 take care men and keep your positive attitude 🤞🤞

Hey James, good to see you keeping positive. Sorry to hear it hasn't had an immediate effect but fingers crossed there maybe some positive changes to come. Be interesting to know off any changes on your MRI too 👍🤞 Totally agree with you that it's good to talk with others. Hopefully will get to meet some in the very near future. I've always called my right leg a twat lol. I tell people I'm just taking it for a walk, only problem now is I've got 2 off them 😂. Not giving up though 👍👍👍

Hi James. How are you feeling now?

how you doing?

Hello James happy new year to you :) how you are feeling now after 1 month ?

Hey James, great to see you on the up. I really do have my fingers crossed for you 🤞🤞🤞 Sorry not been in touch, not been great myself and also busy trying to Xmas. Will you be in hospital for Christmas mate?

Happy you are feeling better

Glad to hear you’re doing well. Enjoy the takeaways. James

Was wondering what had happened to ya! Good drills 🙌🏻

Keep going James. Can’t be easy being isolated but will all be worth it in the end.

Rlly hoping this works for ya

Stay strong. Each day that passes is a day closer to getting home.

Wish you Good luck 🙏 Stay strong

You're hopefully gonna do well out of this long term

Rooting for ya. Grateful for updates. Stay strong

James I’ve been following your videos for a while and have to say thanks so much for sharing your progress with us. You’re not alone and I think you can be sure the rest of us here at home are rooting for you 👍

You're an absolute legend mate. Keep strong and keep fighting.

Hope it all goes well.

_When you’re going through hell - keep going._

Hi James. Well done with the fundraiser and good luck with the next stage in London. James

Thank you for the update 👋🏻

Update please

Hello mate, I could hear the emotion in your voice. Your a top bloke, keep strong 💪 If you was nearer I would off visit you. I'm having a nightmare with my trial at the moment, meant to be having blood tests but no one seems to have a clue so may have to stop 😔 Ever want to chat mate give us a shout 🙂

Hi James. Really glad to hear that you’ve made it here to London and that the treatment has started. I’m looking forward to watching some positive updates in the coming weeks. James

Good luck James. Brilliant news.

That is fantastic news mate. I wish you all the best and fingers crossed it works 🙂🙂🙂🙂

Hey James, sorry you've been struggling but so pleased you should be starting the stem cell therapy. Like you I've been struggling for a whole and sadly they confirmed progress to SPMS earlier this year. I'm hoping to start the MS-STAT2 trial soon, got screening on 9tg August. Keep well and safe mate 🙂

Hello James! I’m having the exact same experience. Im trying out Fampridine. Without fampridine: walked 1.74 km on 26 min, at an avg. speed of 3.9 km/h while with fampridine: walked 1.70 km on 21 min, at an avg. speed of 4.6 km/h. Problems with gait started at aprox. 1km with fampridine vrs. 700 m without. Whats your opinion?

Hello James, that's great news you've had some benefit no matter how small. Couldn't believe it when you said your only 32, that's such rubbish for you mate. The main thing is your a fighter mate so don't ever let that drop. Are you still managing to work mate? I'm still working but had to reduce my hours, still not stopping though lol Keep fighting mate 💪👍🙂

Hey James how you doing mate? Did you get to try the O juice yet? I'm having an MRI on Friday, been stopped taking the tec as it seems like it is no longer working. Will be having a talk with neuro in next few weeks to see what is best and if I've progressed. Keep safe mate, speak soon 🙂

Hi James.

Hey James I am roughly your age and just wanted to share this. I've tried tecfidera, tysabri and betaseron with no success. Gilenya seems to be the only drug that has given me success and a better quality of life (worth discussing with your neurologist). I have the trial pack for 1month of fampyra. Should I even bother with it? Does it make you feel different? thanks

Hey James, long time mate. So sorry to hear your having a rough time mate. I've recently had a bad relapse and just finished a steroid treatment. I was losing all feeling from waist down but luckily steroids seem to have worked. Now gotta see if the tec is still working and also waiting for a sooner appointment at addenbrookes. Good luck on the O juice mate, really look forward to seeing how you get on with and hope you get great benefits from it. Keep strong and keep fighting mate 🙂

I will follow your Bexarotene trial as I have ms too. I live in Dorset and have had rrms since 1992. I am 7 years past menopause and walking has become difficult over the last twp years or so. I read about the bexarotene trial recently, but as I'm not on any DMD's, I've decided to do my own trial with bex. Great success to you! And me too.

Man.. you are doing better than most people with MS. Stay blessed!

Sorry to hear about your job. I've got about the same level of walking, maybe a little worse with a limp. Looking forward to seeing how the Famypra works for you.

Hello James,how are you?I greet you

I’m so sorry about your job. I don’t know what is your job about but please, don’t take any decision while heartbroken. Give it some time! Just FYI, I started Ocrevus yesterday! No reactions whatsoever. Good luck with Fampyra!!!!!

I feel your pain mate. Keep strong and keep fighting as we will always live in hope of a cure. I fear having to give up my job as its what we do. It gives us a reason to keep going. Always here if you ever wanna chat mate :-)