Don't get too stressed about vlogmas, Amy! Just do what you can, and don't feel too bad if you have to skip a few days. ❤😚 No one can be perfect all the time, and god knows having a chronic illness only makes it worse!
I don't know why your channel popped up in my recommended, but I chose to watch a few and am now hooked! Your such a beautiful soul! Gorgeous as well! God bless you!
Hey Amy! I know how hard it is to learn do stuff with splints on, it's so annoying in the beginning! Maybe it will be easier for you to get used to them if you don't wear them all at once at first, but only those you need the most (joints that dislocate or hurt the most) and then add a new one. That way you will only have a few fingers that you can't use like you normally would. I have splints myself, but I didn't get them all at once and I had time in between to get used to using my hands with the few I had. When I'm not wearing them I even miss them `:-) , but I must say that I don't have as many as you do so it's easier to get used to I guess. Love from the Netherlands
Hey Amy. I'm a new subscriber. I battle with Fibromyalgia daily. And last week I had a flare up, and while searching on RUclips for something that would help, I found your channel. I love your vlogs. Watching your videos made me feel less alone during my flare up. I admire your relationship with Tom. Being chronicly ill takes a toll on relationship. Anyways, love your vlogs. Hugs from Brazil.😘
It's so weird how our seasons are complete opposite! I'm in California and its winter here 😄 winter is my favorite season even tho it doesn't get as cold as most places..I wish it did!
It’s funny that you say we about medical things you have or you go through I say that too and my partner says you mean you but i include them because they deal with it too in a different way haha xxx
I love these videos, but it’s okay if you don’t post everyday. You have several chronic illnesses that make it harder. So, take it easy. I have a chronic illness as well and I get so annoyed and sick sometimes. So, in a way I do get how you might feel. Btw I love the Harry Potter calendar and that collection of lipstick. God bless you sweetie. You are such an inspiration to other people as well as to me. Letting us know that it’s okay and you gotta keep moving forward. Love you Amy.
Oh my Gosh I love your advent calendar. My husband would love it too. My husband and I may have gone on a day trip to a massive hedge maze in Victoria and we may have both picked up sticks and ran around the maze shouting out hexes and spells. Yes we are that couple. This was before our son was born. Now that we have our son we blame all our childish games and running around silly on him. It’s heaps more socially excepted.
It's never occured to me that Christmas chocs melt ur neck-of-the-woods... & they spoil in the fridge; have a lovely British Christmas just the same ho-ho-ho
you're so gorgeous.. and keeping positivity in life no matter what comes ^^ you find reasons to smile and do things... I am sick too.. with... autoimmune stuff and it's even worse outcomes that itself soo hah.. I strugle currently a lot mentally... my health is getting worse and... I'm just in panic, anxiety and losing motivation :/ aaaaaaaaaah damn :P I try to look for positivity.. why is it is hard... you're doing it so well ^^
Keep your head up, honey! It is definitely difficult to look at the bright side of life when you are sick (especially if your health is getting worse), but always remember that there is light even in the darkest moments! Plus we're all here for you if you need a little reminder on how amazing life is now and then! We all could use one, and that's why we chronically ill people need to stick together! To be each other's hype-men! 😅😅
@@isthisnametaken6618 thank you ^^ I usually try to.. pretend I'm normal :P not tell many ppl and deny it to myself.. did work the past 11 years *^^* but.. when it gets worse there's this moment where it cannot be hidden or.. pretended not to exist lol I couldnt walk more than 3 min back then.. needed wheelchair to leave the house and walk further than the entrance door.. I had no power to walk up even 1 stair.. my dad did carry me.. my mom did buy food and try to cook for me even tho all did mostly leave me pretty quick after eating so I just slept to keep the food in XD and... now I dont have someone who will carry me up the one stair and cook for me.. this scares me more than sickness itself.. irgnorance of the ppl.. ok and the whole phisical shit too I cannot deny :P ow and how to pay bills.. the pension I can get is... not enough for anything.. when I did cry asking if there will be any help at the city hall.. they said me.. excuse me, theres nothing, you need 3 more years working to get more.. you should find a rich husband... GREAT thanks what a good advice! pffffffffffff radiculous.. as if I chose to be sick and not be able to go to work... even lately when I did end up in hospital... many times... no one woudl visit me coz... the timing wasnt right... they had holiday.. tired after work.. had to care for children etc...
@@lolaaaKa Lol I hear you! It is easier to just push the disease to the back of your head, and just try to deny it's existence! Except when you can't deny it anymore and are forced to face it! 😅 And that comment about you needing to find a rich husband is just the upmost of helpful isn't it? 😆
@@isthisnametaken6618 ow yea.. I'm very glad I did go ther and ask.. it changed my life.. best advice ever.. even better than the ppl who advice to stop taking medicine coz pharma companies only wanna money and make us sick to get our money.. if I did fast, God would heal me.. but I'm negative and refuse :P wonderful world.. always tries to make us smile XD entertaining!
Hi Amy, I have a question for you. I have a Crohns disease but I am on TPN rn as well but I have a big struggles with hypersensitive skin and it reacts to every dressing I put on and thats why I dont have any and I developed bad staph infection. I know you have mastcell reactions a lot of time but i see your hickmans entry in very good condition. Have you ever had any problem with the dressing and what brand on exact name are you using now? Can you help me please? :) I really like your vlogs, you are awesome warior😊
Erika Pinková - try using a Flovent asthma inhaler on your skin before putting any dressing/patch/bandage on your skin! I am allergic to adhesive but need pain patch so my pain doc suggested it and ordered it for me and it is miraculous!!!
@@disneymad7957 I can help with that! Though take whatever I say with a grain of salt because the things that work for me may not work for you. You dont have to listen to these, or do what I suggest, I'm only trying to give you some suggestions that MAY help. ❤ Braces are a great way to keep your most unstable joints supported. Though you don't want to wear them 24/7 because it may cause your body to depend on that brace just to keep your joints in place. They are only a sporadic thing for when your joints are very unstable. If you're interested in braces, talk to your doctor. They can usually get you whatever braces need. Though if you are not able to get braces, or can't afford them (because they can be expensive) then there are a few other things that I've found to really help with pain as well as dislocations. Ice is your best friend! It will relieve pain in your joints as well as take down the swelling in them, sometimes preventing dislocations. A heating pad or heat pack is also good for this as it relaxes stiff muscles, usually preventing them from dislocating. Lastly light exercise. Doing light exercises that focus on specific parts of the body (eg. wrist curls with a light weight in your hand), can help to strengthen your muscles and ligaments to help keep your joints in place. Yoga is a very good exercise to do this with as it's not high intensity, and it's also a very relaxing exercise, so it helps relieve stress at the same time! Just try simple stretchs at first, and when you feel you are ready, you could move onto some more complicated stuff. But also don't do it if it causes you pain, or it causes your joints to pop out. We're trying to keep them in place here! That would just be counterintuitive! :P Sorry this got so long! I didn't mean to write a whole novel about preventing joint dislocations! 😅 I hope I helped you in some way, and i hope these suggestions help keep those darn joints where they should be! :P And don't let the EDS drag you down too much! There is always fun and laughter even through the hardest of times. ❤😚
It’s funny that you say we about medical things you have or you go through I say that too and my partner says you mean you but i include them because they deal with it too in a different way haha xxx
Don't get too stressed about vlogmas, Amy! Just do what you can, and don't feel too bad if you have to skip a few days. ❤😚 No one can be perfect all the time, and god knows having a chronic illness only makes it worse!
I don't know why your channel popped up in my recommended, but I chose to watch a few and am now hooked!
Your such a beautiful soul! Gorgeous as well! God bless you!
Hey Amy! I know how hard it is to learn do stuff with splints on, it's so annoying in the beginning!
Maybe it will be easier for you to get used to them if you don't wear them all at once at first, but only those you need the most (joints that dislocate or hurt the most) and then add a new one. That way you will only have a few fingers that you can't use like you normally would. I have splints myself, but I didn't get them all at once and I had time in between to get used to using my hands with the few I had. When I'm not wearing them I even miss them `:-) , but I must say that I don't have as many as you do so it's easier to get used to I guess.
Love from the Netherlands
Hey Amy.
I'm a new subscriber. I battle with Fibromyalgia daily. And last week I had a flare up, and while searching on RUclips for something that would help, I found your channel. I love your vlogs. Watching your videos made me feel less alone during my flare up. I admire your relationship with Tom. Being chronicly ill takes a toll on relationship.
Anyways, love your vlogs.
Hugs from Brazil.😘
Your doing a great job at vlogmas. It's alot of work and we love you for it. ♥️
It's so weird how our seasons are complete opposite! I'm in California and its winter here 😄 winter is my favorite season even tho it doesn't get as cold as most places..I wish it did!
HelloJenni23 yeh come to Britain it’s bloody freezing here 😂
Even though it is vlogmas day 4 i still cant get over the new intro, it so cool
I can confirm it is indeed Fleur!!
Happy Christmas!!! Im so early and i love getting more them one vlogmas in a day!!! I love your mini harry potter people!!!!
The pRt about finger splints is sooo accurate 😭😂 I don’t know how to hold things as someone who doesn’t hyperextend would
It’s funny that you say we about medical things you have or you go through I say that too and my partner says you mean you but i include them because they deal with it too in a different way haha xxx
It is fleur in her Yule ball gown :)
CONGRATULATIONS ON 100K!!!!
Congratulations on 100k subscribes!!😊
wow I'm never this early. Just wanted say I love your videos and I think your so strong and brave and a huge inspiration, never forgot that.
Congratulations on 100k xxx
We keep my kids chocolate advent calendars in the freezer.
Amy, you always make me smile, you have such a sweet personality even if you are sick. Love you and Tom! USA Granny♥️ Merry Christmas 🙏🇺🇸🎄🎅
Where did you get your splints? I need them
The blonde Funko is Fleur Delacour
OMG CONGRATS YOU HIT 100 k 💕
We need to get used to what we have to use, its hard. Keep having fun! :D
i love you so much 💕💕💕💕💕💕💕💕💕💕💕 i love your videos so much, your so strong and my inspiration! xxx
I love these videos, but it’s okay if you don’t post everyday. You have several chronic illnesses that make it harder. So, take it easy. I have a chronic illness as well and I get so annoyed and sick sometimes. So, in a way I do get how you might feel. Btw I love the Harry Potter calendar and that collection of lipstick. God bless you sweetie. You are such an inspiration to other people as well as to me. Letting us know that it’s okay and you gotta keep moving forward. Love you Amy.
Amy, do you guys not have air conditioner in your house for the summer months??
Yay two videos in one day i love u guys:)))
Got this notif as I was watching your other video😂❤️ love you 💕
I think it would be neat if you did a whole video on learning to do things with splints on🙂
I truly appreciate all the info you share! You are helping me live my Best life! Thank you☺Gracefully ️With much Love✝🙏🏻
Yes, that is Fleur
yup', da vlogmas'
Can you run both feed and TPN simultaneously ?
Hope you're having a great day!
Oh my Gosh I love your advent calendar. My husband would love it too. My husband and I may have gone on a day trip to a massive hedge maze in Victoria and we may have both picked up sticks and ran around the maze shouting out hexes and spells. Yes we are that couple. This was before our son was born. Now that we have our son we blame all our childish games and running around silly on him. It’s heaps more socially excepted.
I have the same advent calendar
It's never occured to me that Christmas chocs melt ur neck-of-the-woods... & they spoil in the fridge; have a lovely British Christmas just the same ho-ho-ho
All this time I thought those were rings lol
Love ❤️ your Harry Potter miniature dolls wise choice Amy 🌹
Happy hollidays
I love watching your vids so much!!!! Also just curious where did you buy your name necklace? I love!
Its 8 degrees Fahrenheit in maine so my life is hating me
Hi! When will you find out if the vitamin patches are working for you?
Its freezing cold here in Baltimore MD USA . it was 21 degrees this morning which is 11 degrees below freezing.
Winter sucks
@@bmoreblondie6301 I miss Baltimore. moved from towson to KS 2 years ago
That's definitely Fleur DelAcour! ❤️
Hi Amy happy christmas to you and Tom from the uk
you're so gorgeous.. and keeping positivity in life no matter what comes ^^ you find reasons to smile and do things...
I am sick too.. with... autoimmune stuff and it's even worse outcomes that itself soo hah.. I strugle currently a lot mentally... my health is getting worse and... I'm just in panic, anxiety and losing motivation :/ aaaaaaaaaah damn :P I try to look for positivity.. why is it is hard... you're doing it so well ^^
Keep your head up, honey! It is definitely difficult to look at the bright side of life when you are sick (especially if your health is getting worse), but always remember that there is light even in the darkest moments!
Plus we're all here for you if you need a little reminder on how amazing life is now and then! We all could use one, and that's why we chronically ill people need to stick together! To be each other's hype-men! 😅😅
@@isthisnametaken6618 thank you ^^ I usually try to.. pretend I'm normal :P not tell many ppl and deny it to myself.. did work the past 11 years *^^* but.. when it gets worse there's this moment where it cannot be hidden or.. pretended not to exist lol
I couldnt walk more than 3 min back then.. needed wheelchair to leave the house and walk further than the entrance door.. I had no power to walk up even 1 stair.. my dad did carry me.. my mom did buy food and try to cook for me even tho all did mostly leave me pretty quick after eating so I just slept to keep the food in XD and...
now I dont have someone who will carry me up the one stair and cook for me.. this scares me more than sickness itself.. irgnorance of the ppl.. ok and the whole phisical shit too I cannot deny :P
ow and how to pay bills.. the pension I can get is... not enough for anything.. when I did cry asking if there will be any help at the city hall.. they said me.. excuse me, theres nothing, you need 3 more years working to get more.. you should find a rich husband... GREAT thanks what a good advice! pffffffffffff radiculous.. as if I chose to be sick and not be able to go to work...
even lately when I did end up in hospital... many times... no one woudl visit me coz... the timing wasnt right... they had holiday.. tired after work.. had to care for children etc...
@@lolaaaKa Lol I hear you! It is easier to just push the disease to the back of your head, and just try to deny it's existence! Except when you can't deny it anymore and are forced to face it! 😅 And that comment about you needing to find a rich husband is just the upmost of helpful isn't it? 😆
@@isthisnametaken6618 ow yea.. I'm very glad I did go ther and ask.. it changed my life.. best advice ever.. even better than the ppl who advice to stop taking medicine coz pharma companies only wanna money and make us sick to get our money.. if I did fast, God would heal me.. but I'm negative and refuse :P
wonderful world.. always tries to make us smile XD entertaining!
Someone should design functional splints that are high fashion so that they compliment your hands like jewelry 🤔
I dont know if you looked yet but she is Fluer. But in my opinion her hair piece wasnt really translated well into their design
Jk you looked
That is definitely Fleur.
can you do a what’s on my iphone video please 💜💜💜💜💜💜💜💜💜💜
❤️❤️❤️❤️
💜💜💜💜💜💜
Hi Amy, I have a question for you. I have a Crohns disease but I am on TPN rn as well but I have a big struggles with hypersensitive skin and it reacts to every dressing I put on and thats why I dont have any and I developed bad staph infection. I know you have mastcell reactions a lot of time but i see your hickmans entry in very good condition. Have you ever had any problem with the dressing and what brand on exact name are you using now? Can you help me please? :) I really like your vlogs, you are awesome warior😊
I'm sure Amy has done a video on dressings before you might be able to find it I cant remember what it was called though!.x
Erika Pinková - try using a Flovent asthma inhaler on your skin before putting any dressing/patch/bandage on your skin! I am allergic to adhesive but need pain patch so my pain doc suggested it and ordered it for me and it is miraculous!!!
Erika Pinková Amy posted some videos on her other channel about stuff like that! 💕
Luv u
💜💜💜
I’m preetty sure that is fleur
💜
I need some advice on hypermobile joints
What do you need to know? I have some experience with them, and maybe I could help? ❤
What do you wanna know?
@@isthisnametaken6618 on how to minimise the dislocations
@@disneymad7957 I can help with that! Though take whatever I say with a grain of salt because the things that work for me may not work for you. You dont have to listen to these, or do what I suggest, I'm only trying to give you some suggestions that MAY help. ❤
Braces are a great way to keep your most unstable joints supported. Though you don't want to wear them 24/7 because it may cause your body to depend on that brace just to keep your joints in place. They are only a sporadic thing for when your joints are very unstable. If you're interested in braces, talk to your doctor. They can usually get you whatever braces need.
Though if you are not able to get braces, or can't afford them (because they can be expensive) then there are a few other things that I've found to really help with pain as well as dislocations.
Ice is your best friend! It will relieve pain in your joints as well as take down the swelling in them, sometimes preventing dislocations. A heating pad or heat pack is also good for this as it relaxes stiff muscles, usually preventing them from dislocating.
Lastly light exercise. Doing light exercises that focus on specific parts of the body (eg. wrist curls with a light weight in your hand), can help to strengthen your muscles and ligaments to help keep your joints in place. Yoga is a very good exercise to do this with as it's not high intensity, and it's also a very relaxing exercise, so it helps relieve stress at the same time! Just try simple stretchs at first, and when you feel you are ready, you could move onto some more complicated stuff. But also don't do it if it causes you pain, or it causes your joints to pop out. We're trying to keep them in place here! That would just be counterintuitive! :P
Sorry this got so long! I didn't mean to write a whole novel about preventing joint dislocations! 😅
I hope I helped you in some way, and i hope these suggestions help keep those darn joints where they should be! :P
And don't let the EDS drag you down too much! There is always fun and laughter even through the hardest of times. ❤😚
@@isthisnametaken6618 its ok thanks
I miss you
Sweet girl ❤️
Amy! When are you going to upload the video, about your relacionship whit tom?
Im first here
It’s funny that you say we about medical things you have or you go through I say that too and my partner says you mean you but i include them because they deal with it too in a different way haha xxx