I have three plastic spoons that came in a set of four bowls and another spoon, the fourth broke. I never use them in hot food, and I always use each one with a specific cold food. Red for yogurt, blue for ice cream (those can occasionally switch, however never with the green one) and the green one is solely for cereal.
I can't stand wind! I feel battered by it and stop being able to think properly. I also get what I call 'ear freeze' when it's a cold wind, it's like brain freeze but in my ear tunnels.. I have to wear a hat or ear buds (flare-I love 'em) My friend also has this cold wind ear problem.
I feel attacked 😂 this video might as well have been about me. I hate it when my tongue feels too big for my mouth and I can’t get it to fit right. I didn’t know anyone else felt this way!
When I first started questioning if I was autistic, I assumed I didn't have sensory issues and that all my struggles were entirely normal. But I quite literally have chronic pain caused by sensory sensitivities! When I was little, the most physically painful sensory things for me were bright sunlight and showers (narrow shower jets felt like being stabbed with a million needles). Now it's loud, constant, unpredictable noise (barking dogs, concerts, people yelling/fighting outside my window, construction, etc.) And the tongue thing! Oh god, the tongue thing. When I'm having an extra bad sensory day, which thankfully is very rare, I am unable to STOP thinking about how my tongue feels in my mouth. I can feel individual papillae brushing against my teeth and the roof of my mouth as well as my saliva shifting around. Eating on these days is near-impossible because any movement of my mouth makes me extremely nauseous.
This year I got myself a new showerhead specifically because the old one had such sharp and painful jets. Or actually I should use "old" and "new" the other way round because the painful one was modern and eco-friendly and stuff, and the one I replaced it with is an old really simple model.
i have the same weird thing about breathing, actually a lot of these I relate to but the breathing thing is the worst it makes me feel like I can't breathe
I’m the same with some of those things Dana. The opposite with wind, I seek wind, I live for wind. But I get disordered breathing too, and that rightness and wrongness of eating implements. My nails have to be short but not too short but if they are a mum too long I can’t bear it. I got NHS funding for a sensory profile assessment and it was thorough and fascinating, wow, so much that explained a lot. They also helped put it into a plan to help me meet my needs. Fell like I’ve missed something but basically I completely relate to you. Oh and I have Hypermobility Spectrum Disorders) It doesn’t harm for you to look into it and bear it in mind if you develop more symptoms) I didn’t know til my late 30s, the symptoms got worse after my 30s, I had no idea that my thumbs were abnormal, I’ve now had both joints replaced 😂 like you say it is a common co-morbidity amongst other things and often it can be a fucking bumper pack of fun (also have ADHD, M.E/CFS & POTS).
I didn't no the NHS did test for spd.i have heds ADHD asperger's fybromyalgia CFS OCD but only found out at 43 the collegen us week threw us even in the brain awaiting to have upright MRI again have you found anything to help pain NHS been hopeless had to have private diagnosis.
Thr cutlery and crockery thing is the longest sensory issue (apart from light and noise) i can remember I've had. I have a lot of mugs because i have to have the right colour, shape, feel, size & vibe tgat matches what goes in them. I can absolutely do without them when im not in my own home, because ive learned to shove my sensory issues deep down, but as i let myself "bloom" i know that i feel physically sick if i cant use the correct mug/bowl/spoon. The breathing thing is a huge issue for me as well. Ive spent 20 years worrying I'll end up in a nursing home & forget to breathe & that's how ill go out lol.
'because ive learned to shove my sensory issues deep down,' I can totally relate, it would contribute to my overall overstimulation while away somewhere, in a weird not quite too much but huge also kind of way.
Damn this was validating! My fingers literally hurt if my nails grow over a certain length. Or don't know.. Is it one of those "feels like it's hurting when actually it's just being super aware of having nails"...? My ears hurt if it's windy, I get that "kind of headache" in certain lighting, and I can't sleep if I hear my heart beating or relax by focusing on my breathing because the whole sensation of existing in a body is just too much... I hadn't even thought that those were a Thing!! Most of my existence has been just trying to ignore that I have a body so that I can stay functional. Yeah, wonder why I have a problem with the whole mind-body-connection... And here I was thinking maybe I'm not really on the spectrum :D
Oh god yes. I’ve not heard others talk about this before. I’m in a group therapy thing atm and it always starts with a mindfulness meditation and thankfully it’s online so I can just not participate and they don’t know. If I focus on my breathing then I feel like I can’t breathe, if I focus on my body I feel paranoid about what could be wrong with my body. The only way I can deal with having a body is to dissociate from having a body. (It’s not body dysmorphia, I don’t relate to that.)
At the office: When I’m working at my desk, and a coworker’s phone message alert sounds off. 😖 It’s physically painful. I “suggest” they be more considerate, and they turn it on me, like I’m the problem. It’s literally a train horn sound. At home, one of my chickens whines, and it totally grated on my ear nubs. I need my tranquility.
I have been told that NTs can't hear the flourescent light buzz....has anyone noticed that if you put sunglasses on when its noisy, it becomes less noisy?
Sounds familiar. I know breathing issues and not finding a comfortable tongue position mainly from when I'm in bed and try to fall asleep. I already had problems falling asleep, because I started breathing manually or just didn't find a good position for my tongue and even woke back up, because I accidentally bit down on my tongue or stopped breathing in my sleep. I also know the forehead tension with sunlight, that becomes painful quickly.
I’ve always hated sitting with my feet on the ground; my legs need to be as close to my chest as possible, it used to drive my family crazy. I’m definitely hypermobile but I’m not sure that’s related!
The thing with the cutlery, same here. Also I need my nails to be so short cause otherwise it does feel so wrong like having something under my nails and 🏃🏻♀️
19:30 i'm autistic and because of my sensory issues I can't stand having short fingernails, especially when they're freshly cut. When i was little it was a problem because some people thought it was like being dirty, some kids were laughing at it and my mom was forcingly cutting my fingernails short. Now that I'm perceived as an adult woman people think it looks nice and they envy me because i have long, healthy and strong nails but i really don't like how feminine they look and i would like to have short nails more but I can't because of sensory issues
Tinted glasses have been very helpful for me with visual overstimulation, toning down the brightness and color contrast. I got them for out in public, but then my partner was showing me a visually busy movie and it was giving me a real headache till I put them on and it went away immediately. Like flares for my eyeballs, haha. Sensorily, I actually enjoy the sensation of wind, but especially if it's cold, it triggers my hyperPOTS to where my muscles are all in spasm so my chest locks up so tight I can't breathe till I get out of the wind.
I relate in a way, and I’ve never heard anyone mention it before. I get the locked spasm muscles in the cold, it just hits me like a brick and I feel like I can’t breathe and it hurts my back so much.
Lol Dana, thebbreathing thing is awful. As well as the mouth thing. I experience both as well. The funny thing is in videos and stuff to help calm down and meditation it saus "focus on your breathing" it really makes me feel like im suffocating! And this supposed to calm me down?? XD As for the mouth thing I have some techniques I do, one is smiling. Smiling makes it so ur tounge doesnt touch your teeth. The other is gum, but if its way too bad then gum doesnt help. The other is putting like. Splints in my mouth basically. Like a tounge depressor or something to block it. Or popsicles bc u get one after and u can put ice in the sides of ur tounge for relief. Lol those are just things I do to help
Me being sad and then I notice I’m rocking back and forth like uh okay and then a lot of times, and with stronger emotions I’ll even notice my head start to pulse and then I think like wtf and it’s legit me holding my breath like you dummy you know you need to breathe like why would you do that as of you don’t already have chronic headaches/ migraine issues like yea let’s go and not breathe now because we are sad like yea that’s gonna work.. smh (which another thing I guess I like to do is lean to one side like when I’m watching something I’m leaning like as if I’m gonna lay down or something like why because I already have back and neck issues and it just makes it so much worse each time I do it) tbh I just call it human and I don’t know how to anymore like it’s the act of being human and I dunno I just wasn’t meant to be here or somethin because wow I dunno how to human correctly like how is it THIS hard like it should not be this hard like can we please get it together ..and in case you were wondering, the answer is no, ofc not like it’s always gonna be no for me because my body will not cooperate like we are not friends (but hey it’s fine like we will somehow make it work)
My ears hurt too and my dish set is like a clay material and it’s icky and I have seen things that just don’t look right and it really creeps me out like if it has holes and I can’t stand the smell of our dog even though she gets groomed I can smell her but my husband can’t. Everything I can smell and hear is something my husband can’t. I have to sit with my feet up on the chair or sofa.
I have three plastic spoons that came in a set of four bowls and another spoon, the fourth broke. I never use them in hot food, and I always use each one with a specific cold food. Red for yogurt, blue for ice cream (those can occasionally switch, however never with the green one) and the green one is solely for cereal.
Sometimes I notice everywhere that my clothes are touching my body and it is very annoying. It doesn't happen most of the time thankfully.
@@artemisXsidecross That is a doable solution!
As i was reading this i started noticing it
I can't stand wind! I feel battered by it and stop being able to think properly. I also get what I call 'ear freeze' when it's a cold wind, it's like brain freeze but in my ear tunnels.. I have to wear a hat or ear buds (flare-I love 'em) My friend also has this cold wind ear problem.
I feel attacked 😂 this video might as well have been about me. I hate it when my tongue feels too big for my mouth and I can’t get it to fit right. I didn’t know anyone else felt this way!
When I first started questioning if I was autistic, I assumed I didn't have sensory issues and that all my struggles were entirely normal. But I quite literally have chronic pain caused by sensory sensitivities! When I was little, the most physically painful sensory things for me were bright sunlight and showers (narrow shower jets felt like being stabbed with a million needles). Now it's loud, constant, unpredictable noise (barking dogs, concerts, people yelling/fighting outside my window, construction, etc.)
And the tongue thing! Oh god, the tongue thing. When I'm having an extra bad sensory day, which thankfully is very rare, I am unable to STOP thinking about how my tongue feels in my mouth. I can feel individual papillae brushing against my teeth and the roof of my mouth as well as my saliva shifting around. Eating on these days is near-impossible because any movement of my mouth makes me extremely nauseous.
This year I got myself a new showerhead specifically because the old one had such sharp and painful jets. Or actually I should use "old" and "new" the other way round because the painful one was modern and eco-friendly and stuff, and the one I replaced it with is an old really simple model.
I understand the breathing thing. Sometimes I have to remind myself to blink ...
i have the same weird thing about breathing, actually a lot of these I relate to but the breathing thing is the worst it makes me feel like I can't breathe
I’m the same with some of those things Dana. The opposite with wind, I seek wind, I live for wind. But I get disordered breathing too, and that rightness and wrongness of eating implements. My nails have to be short but not too short but if they are a mum too long I can’t bear it. I got NHS funding for a sensory profile assessment and it was thorough and fascinating, wow, so much that explained a lot. They also helped put it into a plan to help me meet my needs. Fell like I’ve missed something but basically I completely relate to you. Oh and I have Hypermobility Spectrum Disorders) It doesn’t harm for you to look into it and bear it in mind if you develop more symptoms) I didn’t know til my late 30s, the symptoms got worse after my 30s, I had no idea that my thumbs were abnormal, I’ve now had both joints replaced 😂 like you say it is a common co-morbidity amongst other things and often it can be a fucking bumper pack of fun (also have ADHD, M.E/CFS & POTS).
I didn't no the NHS did test for spd.i have heds ADHD asperger's fybromyalgia CFS OCD but only found out at 43 the collegen us week threw us even in the brain awaiting to have upright MRI again have you found anything to help pain NHS been hopeless had to have private diagnosis.
Thr cutlery and crockery thing is the longest sensory issue (apart from light and noise) i can remember I've had. I have a lot of mugs because i have to have the right colour, shape, feel, size & vibe tgat matches what goes in them. I can absolutely do without them when im not in my own home, because ive learned to shove my sensory issues deep down, but as i let myself "bloom" i know that i feel physically sick if i cant use the correct mug/bowl/spoon.
The breathing thing is a huge issue for me as well. Ive spent 20 years worrying I'll end up in a nursing home & forget to breathe & that's how ill go out lol.
'because ive learned to shove my sensory issues deep down,' I can totally relate, it would contribute to my overall overstimulation while away somewhere, in a weird not quite too much but huge also kind of way.
Damn this was validating! My fingers literally hurt if my nails grow over a certain length. Or don't know.. Is it one of those "feels like it's hurting when actually it's just being super aware of having nails"...? My ears hurt if it's windy, I get that "kind of headache" in certain lighting, and I can't sleep if I hear my heart beating or relax by focusing on my breathing because the whole sensation of existing in a body is just too much... I hadn't even thought that those were a Thing!! Most of my existence has been just trying to ignore that I have a body so that I can stay functional. Yeah, wonder why I have a problem with the whole mind-body-connection... And here I was thinking maybe I'm not really on the spectrum :D
Oh god yes. I’ve not heard others talk about this before. I’m in a group therapy thing atm and it always starts with a mindfulness meditation and thankfully it’s online so I can just not participate and they don’t know. If I focus on my breathing then I feel like I can’t breathe, if I focus on my body I feel paranoid about what could be wrong with my body. The only way I can deal with having a body is to dissociate from having a body. (It’s not body dysmorphia, I don’t relate to that.)
At the office: When I’m working at my desk, and a coworker’s phone message alert sounds off. 😖 It’s physically painful. I “suggest” they be more considerate, and they turn it on me, like I’m the problem. It’s literally a train horn sound. At home, one of my chickens whines, and it totally grated on my ear nubs. I need my tranquility.
I have been told that NTs can't hear the flourescent light buzz....has anyone noticed that if you put sunglasses on when its noisy, it becomes less noisy?
Didn't no this Ile ask not now if they can lol I was told yesterday autistic s can see extra 12 colours
Sounds familiar.
I know breathing issues and not finding a comfortable tongue position mainly from when I'm in bed and try to fall asleep.
I already had problems falling asleep, because I started breathing manually or just didn't find a good position for my tongue and even woke back up, because I accidentally bit down on my tongue or stopped breathing in my sleep.
I also know the forehead tension with sunlight, that becomes painful quickly.
Hey, I'm late diagnosed myself. Your vibe reminds me sooooo much of my best friend who's like a real sister to me! I love your channel!
I’ve always hated sitting with my feet on the ground; my legs need to be as close to my chest as possible, it used to drive my family crazy. I’m definitely hypermobile but I’m not sure that’s related!
The thing with the cutlery, same here. Also I need my nails to be so short cause otherwise it does feel so wrong like having something under my nails and 🏃🏻♀️
I can't stand having my nails shorter than my fingers. I hate the way they press into my fingers.
I can feel nail varnish and I hate it. It feels hot. I gave up trying to have nice nails - more trouble than it’s worth.
Also I agree with your roommate about the tea temperature 😆 I only enjoy it if it's too hot
haha the roommate appearance was great, and it's great to have a face to Mr. Nice Roommate :D
10:30 I get this about silence. It's deafening and so unnatural.
And fingernails! I bit mine for years and when I stopped I realised I actually hated the feeling of having them.
@@tomdg13 Same.
I managed to stop biting my nails when I first got nail clippers, it was the feeling of them being too long that made me compulsively bite them.
19:30 i'm autistic and because of my sensory issues I can't stand having short fingernails, especially when they're freshly cut. When i was little it was a problem because some people thought it was like being dirty, some kids were laughing at it and my mom was forcingly cutting my fingernails short. Now that I'm perceived as an adult woman people think it looks nice and they envy me because i have long, healthy and strong nails but i really don't like how feminine they look and i would like to have short nails more but I can't because of sensory issues
Tinted glasses have been very helpful for me with visual overstimulation, toning down the brightness and color contrast. I got them for out in public, but then my partner was showing me a visually busy movie and it was giving me a real headache till I put them on and it went away immediately. Like flares for my eyeballs, haha. Sensorily, I actually enjoy the sensation of wind, but especially if it's cold, it triggers my hyperPOTS to where my muscles are all in spasm so my chest locks up so tight I can't breathe till I get out of the wind.
I relate in a way, and I’ve never heard anyone mention it before. I get the locked spasm muscles in the cold, it just hits me like a brick and I feel like I can’t breathe and it hurts my back so much.
Lol Dana, thebbreathing thing is awful. As well as the mouth thing. I experience both as well.
The funny thing is in videos and stuff to help calm down and meditation it saus "focus on your breathing" it really makes me feel like im suffocating! And this supposed to calm me down?? XD
As for the mouth thing I have some techniques I do, one is smiling. Smiling makes it so ur tounge doesnt touch your teeth.
The other is gum, but if its way too bad then gum doesnt help. The other is putting like. Splints in my mouth basically. Like a tounge depressor or something to block it. Or popsicles bc u get one after and u can put ice in the sides of ur tounge for relief. Lol those are just things I do to help
i hate eating off paper plates with plastic utensils, everything tastes wrong, like is it even worth eating if i have to eat like this? haha
Me being sad and then I notice I’m rocking back and forth like uh okay and then a lot of times, and with stronger emotions I’ll even notice my head start to pulse and then I think like wtf and it’s legit me holding my breath like you dummy you know you need to breathe like why would you do that as of you don’t already have chronic headaches/ migraine issues like yea let’s go and not breathe now because we are sad like yea that’s gonna work.. smh (which another thing I guess I like to do is lean to one side like when I’m watching something I’m leaning like as if I’m gonna lay down or something like why because I already have back and neck issues and it just makes it so much worse each time I do it) tbh I just call it human and I don’t know how to anymore like it’s the act of being human and I dunno I just wasn’t meant to be here or somethin because wow I dunno how to human correctly like how is it THIS hard like it should not be this hard like can we please get it together ..and in case you were wondering, the answer is no, ofc not like it’s always gonna be no for me because my body will not cooperate like we are not friends (but hey it’s fine like we will somehow make it work)
Yes, the breathing and the tongue posture!!!
Jeez.... I hope you feel safe with him as your roommate.... :/
15:20 can also add a splash of cold water
This was incredibly interesting! Never knew of these kinds is sensory issues (am nt but I follow many autistic content creators).
Lovely ❤ being OCD don't help 😅
What the heck is he wearing? Is he little red riding hood!
My ears hurt too and my dish set is like a clay material and it’s icky and I have seen things that just don’t look right and it really creeps me out like if it has holes and I can’t stand the smell of our dog even though she gets groomed I can smell her but my husband can’t. Everything I can smell and hear is something my husband can’t. I have to sit with my feet up on the chair or sofa.
Volume is too low
So turn it up
You are very quiet in this video.