I am being checked every year with a brain scan by the MS department of my local hospital because I have had servere attack like periods several time and have lesions in my brain. Not diagnosed though. Because of my son's B12 deficiency, which he started getting injections for in 2019, I looked into B12 deficiency and found out HOW similar the symptoms of MS and B12 deficiency are. I started taking high dosage B12 pills and started having B12 injections in 2020 and am now selfinjecting about twice a week and still take high dosage of 5000 mcg methylcobalamin lozenges. B12 made a dramatic difference to my symptoms, and I have not had a bad attack period since 2020. I have periods of diziness and/or brain fog but nothing with ataxia like gait, nocturnal bad vibration in head, shaking etc. etc. I find that potassium is ultra important too because B12 lowers it and enough methylfolate and lactoferrin+ vitamin C. I also take high dosage vitamin D3 with K2 some periods but that has not made the same difference at all as B12. I also have a very small amount of CBD oil 3% every night (since 2019) and a fair amount of magnesium. I eat quite a lot of fatty fish (canned sardines mostly).
What you are doing is great for the MS community. I would hate to be living with this condition before the internet was invented. I take Vitamin D, omega 3, coq10 and ALA. I get my omega 3 via fish oil but now i will need to have a look into flaxseed oil. Hopefully 1 day we will have a supplement that will stimulate the growth of new myelin.
Fish Oil may be equal if not better than flaxseed oil despite my personal biases. If I hear about a supplement proven to stimulate the growth of new myelin, I will definitely make a video on it :)
@@bnice2all I've never heard of that until now. Ive been taking ALA for well over a year now with metal fillings and haven't noticed any difference but i will need to now go and read about this.
@@bnice2all yeah theres loads of conflicting results online. If you believed everything online you wouldnt take or eat anything. I also read that ALA might actually help remove heavy metals from your system so who knows 🤷♂️
Just wondering if you found changes from using ALA. I have used it in the past, thinking it is diabetic neuropathy (still could also be) and had great results. Also had to reduce the insulin amounts. Germany does high does of Alpha Lipoic Acid with great success for treatment of diabetic neuropathy. I am also trying to learn more on Glutathion, since it is one big anti-inflammatory supplement. Even if they were to officially confirm the MS diagnosis next year (after next MRI), I could probably not afford the co-pay for a DMT. The biggest problem is the speed this is progressing now, within weeks to month less able to stand/walk and now my arms also get week. If I wait another year, it may not be reverseable. Some things have improved after a few month again, so it can not be loss of axons due to blood sugar levels. I also have cancer history and the tumor markers are up in the spinal fluid, but they ruled out brain tumors. Just one more reason why they take a diagnosis slow I suppose.
I was just diagnosed with MS this Wednesday. I was on Steroids for 3 days and now I wait to see what kind I have and what the plan is. It’s terrifying but I wanted to say thank you as I’ve enjoyed learning with your videos!
3:09 these studies don't seem to look at effect of vitamin D on progression of MS (e.g. Shayganeejad 2012), whereas the previous slide study showed a very strong effect of vitamin D on improved progression. So this meta analysis does in no way disprove that.
I am on the Coimbra Protocol (high-dose Vitamin D) for PPMS. Would love to hear your insight on the protocol. Greatly appreciate your efforts to educate us!!! Thank you!!
Rebecca Spain at the OHSU MS center has done some pretty promising work on ALA supplements in multiple sclerosis patients. She has performed multiple studies that have shown that ALA supplements decrease in brain atrophy in secondary progressive patients. You should check out her research if you haven't already.
I am very familiar with Dr. Spain (she interviewed me in 2012 when I applied for multiple sclerosis fellowship at OSHU!). Here is her publication on ALA in SPMS for anyone who wants to see: pubmed.ncbi.nlm.nih.gov/30477834/ There is evidence that it may be beneficial on walking performance in people with EDSS
Unofficially got my diagnosis last week, but the MS clinic will wait a year for anther MRI with a more advanced scanner, as I am also a diabetic. However, symptoms are left sided and improve over time, as well was told a positive Babinski test and a few other symptoms are not diabetic neuropathy (including left side of the face and spasms even in my mouth and MS hugs). Also the EMG confirmed sensory loss, weakness on my left side and damage to the long nerves in my left arm and leg (CNS), not peripheral like in just diabetic neuropathy. Likely both things going on, is the question. I understand why officially confirming MS is complicated, but it leaves me without treatment. So GP is on board with a naturpathic approach. Thinking of trying high doses of Alpha Lipoic Acid and Glutathion. Alpha Lipoic Acid in the past really help with pain in my foot and balanced my blood sugar levels even more. They are thankfully reasonably well controlled and so no other concerns with eyes and kidneys. My own MS patients often tell me (from nursing) that things started for them exactly the same way. Where as I never in 30 years of nursing have I seen a diabetic patient with these kind of symptoms, only nerve pain, loss of feeling and with that not healing wounds, but that is thankfully not the case for me. I had several emergency doctors, chiropractor and physiotherapist that said MS, of course only the MS neurologist can diagnose this officially. So IF the naturpatic supplements help, they may actually never diagnose this officially. BUT if this means I get out of the wheelchair again, it will be worth it;0)
I Take , vitamind d3 ,vitamin k2, hanfoil, msm , opc , magnesium , and a multivitamin concentrate "lavita" , maybe in Start with q10 too . Thank you for your Videos , greets from germany .
I drink a half litre bottle of tonic water daily for the Quinine in it. And that drastically reduce spasms for me. When I've forgotten to drink it I really see a massive increase in some whole body spasms.
Thank you so much. Really enjoy listening to your videos. I am leaving with MS I am Kenyan of African descent. Due to use of Soludremol (My guess) I have IBS and SIBO and advice on what I can do... I have eliminated dairy and Legumes.
Awesome video Dr. Beaber.... What do you think about homemade kefir (milk or water)? I drink it in addition to the supplements you mentioned. Thanks again.
@@DrBrandonBeaber I believe I read somewhere about a Harvard study. I’ll look for it and send it to you. I don’t drink kefir for my MS; I do for the over all benefits. Thanks again for your respond.
@@DrBrandonBeaber This is an article about about the Harvard study in probiotics and MS. journals.sagepub.com/doi/full/10.1177/1352458517737390 The Harvard study talks about Visbiome (VSL3) a high potency probiotic... I couldn't find anything about kefir containing VSL3 or similar. Something else I found, is that not all "good bacteria" is good for MS patients, which makes me reconsider and look further into kefir. Thanks again for your time Dr. Beaber
Not all supplements are created equal. They don’t share the same absorption value, potency, or efficacy. R-lipoic acid, cod liver oil, flax seed to name a few are closer to their natural state and are better recognized by the body. The risks of where the products are derived and manufactured are to be considered .
Can you do an updated video about supplements and vitamins to take / avoid. Most of us with MS are on a b cell depleting treatment and vitamin a helps b cells so it's a bit of an issue navigating what to take and what not to take. Thanks so much.
There is evidence in vitamin D receptor knockout mice with experimental autoimmune encephalomyelitis that ultraviolet radiation between 300 and 315 nanometers in wavelength (within the UVB spectrum) is driving this effect! I talk a little bit about this in my video on sunlight in MS: ruclips.net/video/f0DqKB_L6-o/видео.html
Thank you so much for the reply. My wife has been diagnosed over 20 yrs and I am her caregiver. She has many challenges and I am always eager to learn more about MS. The name of the protocol is Calcium AEP for MS by Dr. Atkins and Dr. Nieper. I read it was designated as the official treatment for MS in Germany (whatever that means). Thanks again for your videos!
For some reason biotin 5000mcg give me an energy boost. I also notice green tea and collagen peptides gives me a little more strength in my legs. I’m asking what could be the reason? Dr. Beaber
Dr B, great informative video as always! Couple questions and couple video suggestions: Do you recommend fish oil supplement AND flax seed oil? Or just flax seed oil? If fish oil, what is your opinion on recommended dosage scale? Video suggestions: Mesenchymal stem cells for those who are not in progressive stage yet. Ursolic acid supplement
I would just suggest either Fish oil or flax oil oil since they achieve the same thing. OMS recommends people with MS to take 20 - 40 mls of flaxseed oil per day, but there is no real data on this. I'm going to do a video on video on Dr. Sadiq's study on Mesenchymal stem cells in progressive MS, but this is just a pilot unrandomized study. I'm not sure of any data on Relapsing MS, but I think the concept is the same. I would have to do some research on ursolic acid. I believe someone else asked me about that before, but I don't know too much about it.
www.pnas.org/content/117/16/9082/tab-article-info Above study for the ursolic acid. Interesting on lack of mesenchymal stem cell research on RRMS. The way I understand it can have both anti inflammatory and remyeliation properties.
Thank you so much for this video. I had a clinically isolated syndrome in September 2020. No lesions on two MRIs. However, my neurologist forbids the usage of vitamin D (mentioned that I had read about it on the web and he screamed at me for reading about MS :D). I am allowed to take vitamin B and C though. Is there a reason he is so against vitamin D?
very much enjoyed the graphs with each supplement. Im a visual learner. haha. Thank you for another great and informative video! I would be curious to know more about future neuroprotective agents/ medications and research associated with that. I read more about bexarotene this week, appears to have to many side effects. Im very curious to learn more about drug combo remyelination therapies. Like clementine with metformin and its potential for success. Happy Wednesday from cloudy and cold PA!.
I loved loved loved this video I’ve had ms since I was 19 and I’m 30 now and no doctor has ever gone into detail about supplements the way you just have Thank you so much 🥰
I eagerly look forward to your videos thank you! My question is… How high do you let someone’s blood B12 level remain at before possibly reducing or stop supplementation. 12 dose? My level stays around 1100 while on supplements… But if I stop it goes down. Do you suggest people just stay on it even if the level seems therapeutically high? Thanks 🌞
As far as I know, there is no specific toxicity with high doses of vitamin B12. Some people take a lower maintenance dose of B12 of 2500mcg once weekly.
@@DrBrandonBeaber There are several studies on ALA for MS and one is ongoing (to be presented at ECTRIMS 2024). One study found a 68% reduction of BVL compared to the control group (placebo).
Most of the "light" from the sun is invisible and near-infrared. That has biological effects different than UV rays and it normally penetrates clothing, flesh, and bone to a large degree, but most glass is opaque to it, meaning being outside provides it in winter while clothed as long as you are outside, while natural UV light exposure is always negligible in winter.
@@DrBrandonBeaber I just seek your advice about diet as I have just three small lesions on my left side of brain and 1 small on right side.I want to recover my Demyelination.
My neurologist recommends me to take 2000 IUs of vitamin D every day and I think my neurologist may change that amount but we shall see. Do you have any thoughts on how a healthy child can prevent getting MS? I'm not sure if MS is proven to be genetic but it's a worry that I have when I think of having children in the future.
MS is not genetic per-se, but there is some degree of risk that is hereditary. I have a video on this: ruclips.net/video/ZaJK6nFXV0w/видео.html There is no proven way to prevent MS, but taking vitamin D, eating a healthy diet, and getting ultraviolet exposure could be beneficial.
Look into Dr. Cicero Galli Coimbra. Brazilian neurologist releving individuals of their MS. Making lesions go away under high amounts of vitamin d3 and cofactors.
I would tell them the importance of getting adequate sunlight, exercise, water and healthy fats like wild caught salmon, nongmo flax seed oil and other high quality fish oil supplements..for life. Also, not to smoke. Those of us with a predisposition for MS should not smoke. Its common sense I know. But we arent like the people that can smoke until their 90 and have no major problems.
Turmeric for ms? Keep seeing it suggested but no neuros seem to cover it. Curious is methylation disorders common in ms? I take 2000mg Lmethyl folate daily.
There are some articles on tumeric, but I left it out just due to time constraints and tried to focus on supplements with the best evidence. I'm not aware of any specific evidence for L-methyl-folate in MS off the top of my head.
There is no way for me to give an evidence-based answer to this, but the supplement most associated with less disability in the HOLISM study (university of Melbourne) is flax seed oil. You can also use ground flax seed.
@@DrBrandonBeaber I believe that ground flaxseed is way more beneficial than whole flaxseed but they have a limited shelf life so I buy in seed for and grind 2-3 weeks supply at a time and store in the fridge. I use both ground flaxseed and flaxseed oil. I understand that you would have to consume platefuls of seeds to equal the 20-40ml of oil
@@DrBrandonBeaber I don't think ground flaxseed is a viable option if you are wanting to consume 20-40 ml of oil per day as recommended by Dr Jelenik BUT it is a very healthy supplement in it's own right. My main recommendation is rather than buying flaxseed in ground form, buy whole seeds , grind a small quantity at home at a time , and store in the refrigerator. Whole flax seed lasts for ages but once ground (like flax seed oil itself ) the shelf life is very short and needs to be stored in the fridge to retain freshness and used reasonably quickly.
Hello sir this Tarun from India, Karnataka im suffering from MS from 2019. I taken 3 days steroid from last 2 year, but it is not working, im suffering to difficulty in walking, balancing, now my doctor suggested to take Tysabri injection for 2 years, is it safe and correct method of MS treatment. Pls guide me.
My Neurologist had me take 300mg of Biotin 3x a day I felt no difference taking it than on a recent visit he told me to stop because he told the study failed.
There is unfortunately a recent large randomized trial on biotin 300mg showing no benefit. I only showed some of the data here because of time constraints. I have a separate video on biotin if you want to learn more about it: ruclips.net/video/CS6CWPBHKGM/видео.html
It depends on the substance. For vitamin D: 40 I.U. = 1 mcg 400 I.U. = 10 mcg 1000 I.U. = 25 mcg 50,000 I.U = 1250 mcg or 1.25 mg (milligram) You can convert ng/mL to nmol/L here www.endmemo.com/medical/unitconvert/Vitamin__D.php
Depending where you live (geographically) and how much sun exposure you have. Here where I live in the U.S. I would personally take vitamin D3 50,000iu weekly.
me got MS with 34, do you want to hear what the hospital says after the force emergency treatment in Berlin: i shall not take Vitamin D. No i want to know how much Vitamin D im allowed to take. I take 10000 the hell out 5 days during whole winter and in summer instead i take the sunlight from germany lol. Is this the poor strategy, that every doctor talks about vitamin D and the few experts not, so that the patients are frightened out with errors in vitamin D treatment, like they did with me by not acting up today lol? in my eyes it is to make the patients dependent from cheap drugs and the whole universe of disadvantages lol. Lets continue what brother internet and google have in reserve. Never be treated by hospital alone.
![3 Natural Home Remedies [MULTIPLE SCLEROSIS CURE?] MD Specialist Explains](/img/1.gif)
I am being checked every year with a brain scan by the MS department of my local hospital because I have had servere attack like periods several time and have lesions in my brain. Not diagnosed though. Because of my son's B12 deficiency, which he started getting injections for in 2019, I looked into B12 deficiency and found out HOW similar the symptoms of MS and B12 deficiency are. I started taking high dosage B12 pills and started having B12 injections in 2020 and am now selfinjecting about twice a week and still take high dosage of 5000 mcg methylcobalamin lozenges. B12 made a dramatic difference to my symptoms, and I have not had a bad attack period since 2020. I have periods of diziness and/or brain fog but nothing with ataxia like gait, nocturnal bad vibration in head, shaking etc. etc. I find that potassium is ultra important too because B12 lowers it and enough methylfolate and lactoferrin+ vitamin C. I also take high dosage vitamin D3 with K2 some periods but that has not made the same difference at all as B12. I also have a very small amount of CBD oil 3% every night (since 2019) and a fair amount of magnesium. I eat quite a lot of fatty fish (canned sardines mostly).
I diagnosed MS.My olegoclonal band test didn't show any band in my CSF.Next week I have the appointment with doctor
Tes nouvelles
What you are doing is great for the MS community. I would hate to be living with this condition before the internet was invented. I take Vitamin D, omega 3, coq10 and ALA. I get my omega 3 via fish oil but now i will need to have a look into flaxseed oil. Hopefully 1 day we will have a supplement that will stimulate the growth of new myelin.
Fish Oil may be equal if not better than flaxseed oil despite my personal biases. If I hear about a supplement proven to stimulate the growth of new myelin, I will definitely make a video on it :)
@@bnice2all I've never heard of that until now. Ive been taking ALA for well over a year now with metal fillings and haven't noticed any difference but i will need to now go and read about this.
@@bnice2all yeah theres loads of conflicting results online. If you believed everything online you wouldnt take or eat anything. I also read that ALA might actually help remove heavy metals from your system so who knows 🤷♂️
@@bnice2all thanks for the lions mane tip. I will look into this now.
Just wondering if you found changes from using ALA. I have used it in the past, thinking it is diabetic neuropathy (still could also be) and had great results. Also had to reduce the insulin amounts. Germany does high does of Alpha Lipoic Acid with great success for treatment of diabetic neuropathy. I am also trying to learn more on Glutathion, since it is one big anti-inflammatory supplement. Even if they were to officially confirm the MS diagnosis next year (after next MRI), I could probably not afford the co-pay for a DMT. The biggest problem is the speed this is progressing now, within weeks to month less able to stand/walk and now my arms also get week. If I wait another year, it may not be reverseable. Some things have improved after a few month again, so it can not be loss of axons due to blood sugar levels. I also have cancer history and the tumor markers are up in the spinal fluid, but they ruled out brain tumors. Just one more reason why they take a diagnosis slow I suppose.
I was just diagnosed with MS this Wednesday. I was on Steroids for 3 days and now I wait to see what kind I have and what the plan is. It’s terrifying but I wanted to say thank you as I’ve enjoyed learning with your videos!
Eat healthy and sleep
Hi,how are you? How your life is going! Hope it’s going good, i have been diagnosed 5 months ago now i’m on tecfidera pills
Hi girl! I understand how you feel! Don’t give up, drink your medicine and supplements,especially Q10(for vitality)!
Thank you for the video. I appreciate the information and also appreciate you stating any conflict of interest you may have. Not everyone does that.
:) Thanks
3:09 these studies don't seem to look at effect of vitamin D on progression of MS (e.g. Shayganeejad 2012), whereas the previous slide study showed a very strong effect of vitamin D on improved progression. So this meta analysis does in no way disprove that.
I am on the Coimbra Protocol (high-dose Vitamin D) for PPMS. Would love to hear your insight on the protocol. Greatly appreciate your efforts to educate us!!! Thank you!!
I actually did already make a video on the Coimbra protocol: ruclips.net/video/XPWNc0f2iHE/видео.html
Dr. Brandon I'll bet you got straight A's in chemistry 👍
I'll bet he did too.
Sunlight and I don’t get along. 😢 I get red, itchy and blotchy when exposed to long periods of sunlight so 50,000 vitamins D pills for me
Thanks for such a great overview!! I am going to try adding some Magnesium to my diet. Cramping after physical exercise is a huge problem for me!!
Linseed oil is a player for Fishoil, but it cant activate all its positive components without fishoil, so i take both.
Way to follow the biochemistry. The 50 ng/ml-100 ng/ml is needed for the transcription of glutathione regulating enzymes. TNF- alpha is downregulated
Rebecca Spain at the OHSU MS center has done some pretty promising work on ALA supplements in multiple sclerosis patients. She has performed multiple studies that have shown that ALA supplements decrease in brain atrophy in secondary progressive patients. You should check out her research if you haven't already.
I am very familiar with Dr. Spain (she interviewed me in 2012 when I applied for multiple sclerosis fellowship at OSHU!). Here is her publication on ALA in SPMS for anyone who wants to see: pubmed.ncbi.nlm.nih.gov/30477834/ There is evidence that it may be beneficial on walking performance in people with EDSS
I always enjoy your videos Dr Brandon,thankyou for the great information.
Thanks Robert. It's always great to see your comments here.
@@DrBrandonBeaber Thankyou Brandon, I did have one question. When would be the best time of the day to take zinc and magnesium ?
What a great Dr. you are! thanks for the clear explanations! it's such a pleasure learning from you!
Thanks for the kind works Anne.
Given your username, maybe you would appreciate this video: ruclips.net/video/CkorVoNQhTc/видео.html
Could you please tell how would curcumin fare against ms..thanks
Sir, what is your opinion on UVB lamps?
Thank you for everything you do for us 🙏🏻
Unofficially got my diagnosis last week, but the MS clinic will wait a year for anther MRI with a more advanced scanner, as I am also a diabetic. However, symptoms are left sided and improve over time, as well was told a positive Babinski test and a few other symptoms are not diabetic neuropathy (including left side of the face and spasms even in my mouth and MS hugs). Also the EMG confirmed sensory loss, weakness on my left side and damage to the long nerves in my left arm and leg (CNS), not peripheral like in just diabetic neuropathy. Likely both things going on, is the question. I understand why officially confirming MS is complicated, but it leaves me without treatment. So GP is on board with a naturpathic approach. Thinking of trying high doses of Alpha Lipoic Acid and Glutathion. Alpha Lipoic Acid in the past really help with pain in my foot and balanced my blood sugar levels even more. They are thankfully reasonably well controlled and so no other concerns with eyes and kidneys. My own MS patients often tell me (from nursing) that things started for them exactly the same way. Where as I never in 30 years of nursing have I seen a diabetic patient with these kind of symptoms, only nerve pain, loss of feeling and with that not healing wounds, but that is thankfully not the case for me. I had several emergency doctors, chiropractor and physiotherapist that said MS, of course only the MS neurologist can diagnose this officially. So IF the naturpatic supplements help, they may actually never diagnose this officially. BUT if this means I get out of the wheelchair again, it will be worth it;0)
Take your meds
Thank you. It is my understanding from over the years that mag oxide is very poorly absorbed and there are much better forms for MS.
I Take , vitamind d3 ,vitamin k2, hanfoil, msm , opc , magnesium , and a multivitamin concentrate "lavita" , maybe in Start with q10 too . Thank you for your Videos , greets from germany .
I drink a half litre bottle of tonic water daily for the Quinine in it. And that drastically reduce spasms for me. When I've forgotten to drink it I really see a massive increase in some whole body spasms.
I take a very low dosage CBD oil 3%, get rid of spasms. Potassium takes the rest. Nigella oil is also an antispasmodic.
Thank you so much.
Really enjoy listening to your videos.
I am leaving with MS I am Kenyan of African descent.
Due to use of Soludremol (My guess) I have IBS and SIBO and advice on what I can do...
I have eliminated dairy and Legumes.
How about a study of the fecal matter to see what bacteria is present
Awesome video Dr. Beaber.... What do you think about homemade kefir (milk or water)? I drink it in addition to the supplements you mentioned.
Thanks again.
I'm not too familiar with this. Are you aware of any articles on kefir and MS?
@@DrBrandonBeaber I believe I read somewhere about a Harvard study. I’ll look for it and send it to you. I don’t drink kefir for my MS; I do for the over all benefits.
Thanks again for your respond.
@@DrBrandonBeaber a friend mine told me it's supposed to help your gut bacteria.
@@DrBrandonBeaber This is an article about about the Harvard study in probiotics and MS. journals.sagepub.com/doi/full/10.1177/1352458517737390 The Harvard study talks about Visbiome (VSL3) a high potency probiotic... I couldn't find anything about kefir containing VSL3 or similar. Something else I found, is that not all "good bacteria" is good for MS patients, which makes me reconsider and look further into kefir.
Thanks again for your time Dr. Beaber
Instead of Magnesium oxide can Magnesium Glycinate be used instead?
This is an alternative.
It works better. So does citrate and especially malate. Oxide is the worst form.
Not all supplements are created equal. They don’t share the same absorption value, potency, or efficacy. R-lipoic acid, cod liver oil, flax seed to name a few are closer to their natural state and are better recognized by the body.
The risks of where the products are derived and manufactured are to be considered .
This is a fair point. In the methods section of the article, they generally describe the source of the supplement.
Great video. Thanks for reviewing the literature too
Can you do an updated video about supplements and vitamins to take / avoid. Most of us with MS are on a b cell depleting treatment and vitamin a helps b cells so it's a bit of an issue navigating what to take and what not to take. Thanks so much.
Thanks for the video suggestion. Vitamin A is not thought to negate the effect of b-cell depleting medications.
@@DrBrandonBeaber Excellent, thank you.
What is your opinion on vegan omega 3 supplements from algae, dr?
Another great video thanks. Do you know what it is about sunlight that makes it good for MS is it UVB.
could be nitric oxide from UVA, would be nice if some research is being done :)
There is evidence in vitamin D receptor knockout mice with experimental autoimmune encephalomyelitis that ultraviolet radiation between 300 and 315 nanometers in wavelength (within the UVB spectrum) is driving this effect! I talk a little bit about this in my video on sunlight in MS: ruclips.net/video/f0DqKB_L6-o/видео.html
Thanks
@@DrBrandonBeaber interesting stuff, thanks so much for being a guiding light within the MS field :)
Great video ! Do you recommend certain vitamins together for beneficial absorption of these vitamins? Thank you very much
There is a MS supplement regimen by Dr. Napier (Germany): calcium AEP, I believe? Any experiences/studies concerning that approach? Thank you.
I'm not familiar with this. I would have to look into it.
Thank you so much for the reply. My wife has been diagnosed over 20 yrs and I am her caregiver. She has many challenges and I am always eager to learn more about MS. The name of the protocol is Calcium AEP for MS by Dr. Atkins and Dr. Nieper. I read it was designated as the official treatment for MS in Germany (whatever that means). Thanks again for your videos!
Thank you for the video. I would like to hear your opinion on the Coimbra Protocol.
You're in luck. I already made a video on that topic: ruclips.net/video/XPWNc0f2iHE/видео.html
For some reason biotin 5000mcg give me an energy boost. I also notice green tea and collagen peptides gives me a little more strength in my legs. I’m asking what could be the reason? Dr. Beaber
Dr B, great informative video as always!
Couple questions and couple video suggestions:
Do you recommend fish oil supplement AND flax seed oil? Or just flax seed oil? If fish oil, what is your opinion on recommended dosage scale?
Video suggestions:
Mesenchymal stem cells for those who are not in progressive stage yet.
Ursolic acid supplement
I would just suggest either Fish oil or flax oil oil since they achieve the same thing. OMS recommends people with MS to take 20 - 40 mls of flaxseed oil per day, but there is no real data on this. I'm going to do a video on video on Dr. Sadiq's study on Mesenchymal stem cells in progressive MS, but this is just a pilot unrandomized study. I'm not sure of any data on Relapsing MS, but I think the concept is the same. I would have to do some research on ursolic acid. I believe someone else asked me about that before, but I don't know too much about it.
www.pnas.org/content/117/16/9082/tab-article-info
Above study for the ursolic acid.
Interesting on lack of mesenchymal stem cell research on RRMS. The way I understand it can have both anti inflammatory and remyeliation properties.
Fish oil or omega 3 Milk
Black seed oil is better
Trying the Black Seed oil. I meant the reply to Layla.
Thank you so much for this video. I had a clinically isolated syndrome in September 2020. No lesions on two MRIs. However, my neurologist forbids the usage of vitamin D (mentioned that I had read about it on the web and he screamed at me for reading about MS :D). I am allowed to take vitamin B and C though. Is there a reason he is so against vitamin D?
Sounds familiar
D helps me
Just make sure to always always have enough magnesium and K2 with your vitamin D3, and vitamin A might be a good idea too.
Thanks,greetings from Belgium.
useful information - thank you, doctor....
Thanks Rajen.
very much enjoyed the graphs with each supplement. Im a visual learner. haha. Thank you for another great and informative video! I would be curious to know more about future neuroprotective agents/ medications and research associated with that. I read more about bexarotene this week, appears to have to many side effects. Im very curious to learn more about drug combo remyelination therapies. Like clementine with metformin and its potential for success. Happy Wednesday from cloudy and cold PA!.
I loved loved loved this video I’ve had ms since I was 19 and I’m 30 now and no doctor has ever gone into detail about supplements the way you just have
Thank you so much 🥰
Thanks Mrs. Carter. I'm glad you enjoyed it.
I eagerly look forward to your videos thank you! My question is… How high do you let someone’s blood B12 level remain at before possibly reducing or stop supplementation. 12 dose? My level stays around 1100 while on supplements… But if I stop it goes down. Do you suggest people just stay on it even if the level seems therapeutically high? Thanks 🌞
As far as I know, there is no specific toxicity with high doses of vitamin B12. Some people take a lower maintenance dose of B12 of 2500mcg once weekly.
Hi Dr Brandon Where to get CLEMASTINE? it is sold out in the US so where? please
I believe it is available only by prescription in the US.
Discontinued in Canada according to pharmacist :-(
What's your opinion on alpha lipoic acid?
The research is more in diabetic neuropathy (none specifically in MS as far as I can find), but some people find it to be helpful.
@@DrBrandonBeaber There are several studies on ALA for MS and one is ongoing (to be presented at ECTRIMS 2024). One study found a 68% reduction of BVL compared to the control group (placebo).
Berberine seems to help me with fatigue.
Dr Brandon
What about als?
I would have to do some research on this topic. There are neuromuscular disease specialists who would know much more about this than me.
Great video
Most of the "light" from the sun is invisible and near-infrared. That has biological effects different than UV rays and it normally penetrates clothing, flesh, and bone to a large degree, but most glass is opaque to it, meaning being outside provides it in winter while clothed as long as you are outside, while natural UV light exposure is always negligible in winter.
Dr Brandon I want to send you my MRI scan.How could I share to you?
Sorry but I would not be able to help you personally.
@@DrBrandonBeaber I just seek your advice about diet as I have just three small lesions on my left side of brain and 1 small on right side.I want to recover my Demyelination.
My neurologist recommends me to take 2000 IUs of vitamin D every day and I think my neurologist may change that amount but we shall see. Do you have any thoughts on how a healthy child can prevent getting MS? I'm not sure if MS is proven to be genetic but it's a worry that I have when I think of having children in the future.
MS is not genetic per-se, but there is some degree of risk that is hereditary. I have a video on this: ruclips.net/video/ZaJK6nFXV0w/видео.html There is no proven way to prevent MS, but taking vitamin D, eating a healthy diet, and getting ultraviolet exposure could be beneficial.
Look into Dr. Cicero Galli Coimbra.
Brazilian neurologist releving individuals of their MS. Making lesions go away under high amounts of vitamin d3 and cofactors.
I would tell them the importance of getting adequate sunlight, exercise, water and healthy fats like wild caught salmon, nongmo flax seed oil and other high quality fish oil supplements..for life. Also, not to smoke. Those of us with a predisposition for MS should not smoke. Its common sense I know. But we arent like the people that can smoke until their 90 and have no major problems.
Turmeric for ms? Keep seeing it suggested but no neuros seem to cover it. Curious is methylation disorders common in ms? I take 2000mg Lmethyl folate daily.
There are some articles on tumeric, but I left it out just due to time constraints and tried to focus on supplements with the best evidence. I'm not aware of any specific evidence for L-methyl-folate in MS off the top of my head.
Do in your opinion if I take D3k2
I was taken off my vit D 50,000 per week. N started doing a D3/K2 vit on 3:13 ce a day
Is it better to buy an OMEGA 3 supplement or a COMBO of OMEGA 3-6-9 ?
There is no way for me to give an evidence-based answer to this, but the supplement most associated with less disability in the HOLISM study (university of Melbourne) is flax seed oil. You can also use ground flax seed.
Flaxseed oil? I have a tea spoon of crushed flax seeds almost every day with my cereal, would that be just as good?
no linseed oil is only a sideplayer besides fishoil, and fishoil is more bioavailable than capusles
I think this is okay. I personally just add ground flax seed to oatmeal.
@@DrBrandonBeaber I believe that ground flaxseed is way more beneficial than whole flaxseed but they have a limited shelf life so I buy in seed for and grind 2-3 weeks supply at a time and store in the fridge. I use both ground flaxseed and flaxseed oil. I understand that you would have to consume platefuls of seeds to equal the 20-40ml of oil
@@msb2456 Thanks for sharing. Maybe grinding flaxseed is not a practical option then.
@@DrBrandonBeaber I don't think ground flaxseed is a viable option if you are wanting to consume 20-40 ml of oil per day as recommended by Dr Jelenik BUT it is a very healthy supplement in it's own right. My main recommendation is rather than buying flaxseed in ground form, buy whole seeds , grind a small quantity at home at a time , and store in the refrigerator. Whole flax seed lasts for ages but once ground (like flax seed oil itself ) the shelf life is very short and needs to be stored in the fridge to retain freshness and used reasonably quickly.
Thank you!
Hello sir this Tarun from India, Karnataka im suffering from MS from 2019. I taken 3 days steroid from last 2 year, but it is not working, im suffering to difficulty in walking, balancing, now my doctor suggested to take Tysabri injection for 2 years, is it safe and correct method of MS treatment. Pls guide me.
Try taking vitamin d3 supplement and CoQ10 in the form of ubidecarenone. Hope that helps!
i dont agree with the outdated Vitamin D levels 100 ng/ml are completely okay, liver is perfect
My Neurologist had me take 300mg of Biotin 3x a day I felt no difference taking it than on a recent visit he told me to stop because he told the study failed.
There is unfortunately a recent large randomized trial on biotin 300mg showing no benefit. I only showed some of the data here because of time constraints. I have a separate video on biotin if you want to learn more about it: ruclips.net/video/CS6CWPBHKGM/видео.html
Dr Eric Berg says he takes 50K d3 daily!
how do i convert IU number to nmol/l or similar ? 10 000 IU is how much nmol/l ?
It depends on the substance. For vitamin D:
40 I.U. = 1 mcg
400 I.U. = 10 mcg
1000 I.U. = 25 mcg
50,000 I.U = 1250 mcg or 1.25 mg (milligram)
You can convert ng/mL to nmol/L here www.endmemo.com/medical/unitconvert/Vitamin__D.php
@@DrBrandonBeaber thank you
Hello sir
I am MS patient since 2009
My age is 29 years
I am taking cholecalciferol 60k capsule once a month
Is that fine or should i increase it
I can't give you personal advice, but generally speaking, daily or weekly dosing is recommended to avoid swings in vitamin D levels.
Depending where you live (geographically) and how much sun exposure you have. Here where I live in the U.S. I would personally take vitamin D3 50,000iu weekly.
You forgot BCAA
me got MS with 34, do you want to hear what the hospital says after the force emergency treatment in Berlin: i shall not take Vitamin D. No i want to know how much Vitamin D im allowed to take. I take 10000 the hell out 5 days during whole winter and in summer instead i take the sunlight from germany lol. Is this the poor strategy, that every doctor talks about vitamin D and the few experts not, so that the patients are frightened out with errors in vitamin D treatment, like they did with me by not acting up today lol? in my eyes it is to make the patients dependent from cheap drugs and the whole universe of disadvantages lol. Lets continue what brother internet and google have in reserve. Never be treated by hospital alone.
take MSM and not too few
I take MSM too 🙂
Beaber fever! 😁
I’m on ocrevus. What do you think about benfotiamine?
All the B's a re super important for any neurological disease. Especially B1, B2, B6 and B12.