Hi David, I always look forward to Thursdays when you upload your new videos 😄 I have definitely noticed changes in my eyesight, especially in the last year or so. I have been wearing bifocals for 10 years now and, even though I have new lenses, I have a hard time focusing at ANY distance. In my research on Parkinson's I have learned that some of us may actually develop a tremor in our eyes, just like the ones in our hands and legs. This can make it terribly hard to focus become our eyes are constantly moving. I can also sympathize with the limits that Parkinson's puts on your life, especially when it comes to interacting with people from outside your immediate family. I have about a 3 hour time limit until I am wiped out and seek that dark, quiet place to decompress. Anxiety is becoming my newest companion and I wear myself out just dreading upcoming appointments and social gatherings. You are SO right when you say that there isn't any other disorder that comes with such a multitude of random yet connected symptoms. Thanks for helping move all of us a little bit further on our Parkinson's journey, you are a great source of information and inspiration!!
Hi Jeannine, I always look forward to your comments 😀. It's crazy that we can develop a tremor in our eyes, I suppose we could develop one in any muscle. Sorry to hear that anxiety is a growing symptom in your life, for me it is the most difficult one to manage. Thank you for your kind words and encouragement.
Wow! I didn’t realize so many people with PD had these type of vision problems. I do have a little trouble seeing well at night, however, it’s really not as severe as some of the things that you are describing. I guess I should count my blessings!
I'm so sorry for what you're going through. I was recently diagnosed with Parkinson's and just wanted to tell you how much I appreciate you making these videos and sharing your experiences.
Hi ##. Thank you. I’m sorry you were also diagnosed with Parkinson’s disease but I am glad you found this channel. Thank you for letting me know the videos are helpful if there is a topic you are curious about let me know and I will do my best to make it into a broadcast.
My vision has gotten slightly worse in the past year…probably due to a healthy mix of aging and PD. I do believe I’ve experienced tremors in my eyes, like your friend mentioned. My eyeballs feel like they’re moving side to side very quickly and then my vision goes haywire. It really sucks how many symptoms are associated with PD. Thanks for the conversation.
Hi Michele. Tremors in the eyes, that would have to be terrifying especially if you were driving at the time. There are so many symptoms. On the bright side though, we will never run out of things to talk about😀. Thanks for being a part of the conversation.
@@Michele2Alpha check out "ocular flutter" and see if that's what you're experiencing. What you describe sounds like what I've experienced...it hadn't occurred to me to think about it as an eye tremor but that's a good way to describe it.
My hubby and I sleep separately as well. Sometimes I move around a lot/kick and sometimes he snores. I am a light sleeper, so, it's worked out nicely though. Hope you are liking your new camera! I can definitely tell when my eyes are tired, and need a time out from reading or watching. Thanks for another insightful video!
Thanks for the feedback Jennifer. Sleeping separate is not fun, but it's a reality I have to accept. I love my new camera, but it's got a lot of different settings I need to figure out. I prefer to use a camera vs a phone, I personally find it a lot easier and more versatile.
Hello David, I have worn glasses since I was 13 years old. I also wear contact lenses. For obvious reasons it has become a challenge to put them in. And if that wasn't enough--some of the medications I take cause dry mouth. Well let me tell you if you get dry mouth you can bet you have dry eyes, too. I also don't share a bedroom with my spouse. I have trouble sleeping and I am constantly disturbing him and keeping him from getting enough sleep. He still is working and requires a good night rest so I let him sleep uninterrupted. You said a mouth full: PD changes how you live. It sure does. Thanks for the video.
Hi Ann. Oh my goodness, dry eyes and contact lenses. I just don't see that being a good pair. It's unfortunate we have to have a separate bedroom than our spouse, it's the quiet times and the talking each other to sleep that I miss the most. If we could turn back time.
Hi, My Life with Parkinson's Disease. Good name 😀 Sorry to hear you have to consider separate bedrooms. That was, and still is, a difficult thing to accept.
@@LifewithParkinsons Nah, between my restless legs and her wacky schedule, it’s probably for the best. Oh yeah, and my constipation ALWAYS decides to go through at 3am. So now I gotta get up, go down to use the downstairs bathroom cuz I’ll be damned if I’m gonna wake her up with my grunts upstairs….lol
I'd be interested in hearing more about your eye experiences. You recently mentioned knowing you needed a certain scan and that scan revealed an issue. What scan was it? How could you tell you needed it? I'm like you - grew up with 20/20 so trips to the eye doctor aren't something I'm very familiar with.
Hi K M. It's an OCT scan. Here is the link. www.optometrists.org/general-practice-optometry/guide-to-eye-exams/eye-exams/what-is-an-oct-eye-exam/ Basically my eyes were getting sore and tired like before. Hope that helps😀
Hi, I went to see an ophthalmologist who didn't mention any sort of syndrome but said to come back if the problem gets worse it's mostly blurred vision and depth perception when I am OFF or stressed out
Hi David....i was also sent to a specialist because of a bubble in one eye. The Dr. is treating me for macular degeneration and giving me shots of Aylea. I started once a month and just moved to 12 weeks. I'm wondering now if I even need the shots. Have you ever been told you have macular degeneration? I enjoy your videos! Thank you for sharing with us.
Hi Sharon. I have not been told I have muscular degeneration. Lol. I was telling the truth I have not been to an optometrist in three years I really do need to go back and get my bubbles checked. I’m glad you enjoy the videos, I look forward to making them every week. Thank you for watching.
Hi David, I always look forward to Thursdays when you upload your new videos 😄 I have definitely noticed changes in my eyesight, especially in the last year or so. I have been wearing bifocals for 10 years now and, even though I have new lenses, I have a hard time focusing at ANY distance. In my research on Parkinson's I have learned that some of us may actually develop a tremor in our eyes, just like the ones in our hands and legs. This can make it terribly hard to focus become our eyes are constantly moving. I can also sympathize with the limits that Parkinson's puts on your life, especially when it comes to interacting with people from outside your immediate family. I have about a 3 hour time limit until I am wiped out and seek that dark, quiet place to decompress. Anxiety is becoming my newest companion and I wear myself out just dreading upcoming appointments and social gatherings. You are SO right when you say that there isn't any other disorder that comes with such a multitude of random yet connected symptoms. Thanks for helping move all of us a little bit further on our Parkinson's journey, you are a great source of information and inspiration!!
Hi Jeannine, I always look forward to your comments 😀. It's crazy that we can develop a tremor in our eyes, I suppose we could develop one in any muscle. Sorry to hear that anxiety is a growing symptom in your life, for me it is the most difficult one to manage. Thank you for your kind words and encouragement.
Wow! I didn’t realize so many people with PD had these type of vision problems. I do have a little trouble seeing well at night, however, it’s really not as severe as some of the things that you are describing. I guess I should count my blessings!
Hi Jeremy. Yes, counting your blessings is always a good thing to do. We probably all need to do that once in a while.
Im seventy five years old I was diagnosed with PD about twenty years ago. i like "WHY IS EVERYTHING SO HARD"... thank you 😊😊😊
Hi Stan. Thanks for the positive feedback. Yes, why is everything so hard???😀😁😊
I'm so sorry for what you're going through. I was recently diagnosed with Parkinson's and just wanted to tell you how much I appreciate you making these videos and sharing your experiences.
Hi ##. Thank you. I’m sorry you were also diagnosed with Parkinson’s disease but I am glad you found this channel. Thank you for letting me know the videos are helpful if there is a topic you are curious about let me know and I will do my best to make it into a broadcast.
@@LifewithParkinsons - Thank you
Hey big guy thank you for the video ❤️
No problem 👍
My vision has gotten slightly worse in the past year…probably due to a healthy mix of aging and PD. I do believe I’ve experienced tremors in my eyes, like your friend mentioned. My eyeballs feel like they’re moving side to side very quickly and then my vision goes haywire. It really sucks how many symptoms are associated with PD. Thanks for the conversation.
Hi Michele. Tremors in the eyes, that would have to be terrifying especially if you were driving at the time. There are so many symptoms. On the bright side though, we will never run out of things to talk about😀. Thanks for being a part of the conversation.
@@LifewithParkinsons so true! You’re welcome!
@@Michele2Alpha check out "ocular flutter" and see if that's what you're experiencing. What you describe sounds like what I've experienced...it hadn't occurred to me to think about it as an eye tremor but that's a good way to describe it.
@@KMx108 thank you!
We all love you!
Thank you Angela I really appreciate the kind words and comments. 😀😊😎
My hubby and I sleep separately as well. Sometimes I move around a lot/kick and sometimes he snores. I am a light sleeper, so, it's worked out nicely though. Hope you are liking your new camera! I can definitely tell when my eyes are tired, and need a time out from reading or watching. Thanks for another insightful video!
Thanks for the feedback Jennifer. Sleeping separate is not fun, but it's a reality I have to accept. I love my new camera, but it's got a lot of different settings I need to figure out. I prefer to use a camera vs a phone, I personally find it a lot easier and more versatile.
Hello David, I have worn glasses since I was 13 years old. I also wear contact lenses. For obvious reasons it has become a challenge to put them in. And if that wasn't enough--some of the medications I take cause dry mouth. Well let me tell you if you get dry mouth you can bet you have dry eyes, too. I also don't share a bedroom with my spouse. I have trouble sleeping and I am constantly disturbing him and keeping him from getting enough sleep. He still is working and requires a good night rest so I let him sleep uninterrupted. You said a mouth full: PD changes how you live. It sure does. Thanks for the video.
Hi Ann. Oh my goodness, dry eyes and contact lenses. I just don't see that being a good pair. It's unfortunate we have to have a separate bedroom than our spouse, it's the quiet times and the talking each other to sleep that I miss the most. If we could turn back time.
I hear ya! I figure I’m another month away from sleeping in separate bedrooms!
Hi, My Life with Parkinson's Disease. Good name 😀
Sorry to hear you have to consider separate bedrooms. That was, and still is, a difficult thing to accept.
@@LifewithParkinsons Nah, between my restless legs and her wacky schedule, it’s probably for the best.
Oh yeah, and my constipation ALWAYS decides to go through at 3am. So now I gotta get up, go down to use the downstairs bathroom cuz I’ll be damned if I’m gonna wake her up with my grunts upstairs….lol
Sounds like an exciting night life😀 lol.
I'd be interested in hearing more about your eye experiences. You recently mentioned knowing you needed a certain scan and that scan revealed an issue. What scan was it? How could you tell you needed it? I'm like you - grew up with 20/20 so trips to the eye doctor aren't something I'm very familiar with.
Hi K M. It's an OCT scan. Here is the link.
www.optometrists.org/general-practice-optometry/guide-to-eye-exams/eye-exams/what-is-an-oct-eye-exam/
Basically my eyes were getting sore and tired like before.
Hope that helps😀
Question are you getting irlen syndromes? or just blurry vision from being tired?
Hi, I went to see an ophthalmologist who didn't mention any sort of syndrome but said to come back if the problem gets worse it's mostly blurred vision and depth perception when I am OFF or stressed out
@@LifewithParkinsons Ah, well thank you for taking time to reply, and hope your doing well.
Hi David....i was also sent to a specialist because of a bubble in one eye. The Dr. is treating me for macular degeneration and giving me shots of Aylea. I started once a month and just moved to 12 weeks. I'm wondering now if I even need the shots. Have you ever been told you have macular degeneration? I enjoy your videos! Thank you for sharing with us.
Hi Sharon. I have not been told I have muscular degeneration. Lol. I was telling the truth I have not been to an optometrist in three years I really do need to go back and get my bubbles checked. I’m glad you enjoy the videos, I look forward to making them every week. Thank you for watching.