PPMD 2024 Annual Conference: Day 3 - What really Matters: A Town Hall on Life, Living, and Hope

Поделиться
HTML-код
  • Опубликовано: 22 окт 2024
  • What really Matters: A Town Hall on Life, Living, and Hope
    Rachel Callander, Patient Experience Advocate
    Jennifer Tullio, PPMD Parent Advocate
    Limca Jhaveri, PPMD Parent Advocate
    Jen Schwartz, PPMD Parent Advocate
    Clare Perrin, PPMD Parent & Advocate
    Chris Cate, PPMD Parent Advocate

Комментарии •

Следующие
Автовоспроизведение
Frank Wilczek | From Quarks to Galaxies: A tour through the forefront of modern physics | Full Video3:55:14Frank Wilczek | From Quarks to Galaxies: A tour through the forefront of modern physics | Full Video
Frank Wilczek | From Quarks to Galaxies: A tour through the forefront of modern physics | Full VideoThe Origins Podcast
Просмотров 246 тыс.
Solutions House NYC 2024: Radical collaboration? ACE Hub 2.0 is the answer!52:22Solutions House NYC 2024: Radical collaboration? ACE Hub 2.0 is the answer!
Solutions House NYC 2024: Radical collaboration? ACE Hub 2.0 is the answer!Solutions House
Просмотров 76
2024 Minnesota Meeting: Environmental Justice in the Great Lakes Region Panel Discussion47:412024 Minnesota Meeting: Environmental Justice in the Great Lakes Region Panel Discussion
2024 Minnesota Meeting: Environmental Justice in the Great Lakes Region Panel DiscussionMinneapolis Foundation
Просмотров 71
Jaylen Brown confronts Stephen A. over his 'unnamed source' from First Take | Stephen A. Smith Show12:17Jaylen Brown confronts Stephen A. over his 'unnamed source' from First Take | Stephen A. Smith Show
Jaylen Brown confronts Stephen A. over his 'unnamed source' from First Take | Stephen A. Smith ShowNBA on ESPN
Просмотров 879 тыс.
Tik Tok vs. YouTube Shorts Bingo26:54Tik Tok vs. YouTube Shorts Bingo
Tik Tok vs. YouTube Shorts BingoCrispy Concords
Просмотров 292 тыс.
MASSIVE *death themed* base game update for The Sims 426:12MASSIVE *death themed* base game update for The Sims 4
MASSIVE *death themed* base game update for The Sims 4lilsimsie
Просмотров 355 тыс.
Jason Demetriou on creating a competitive PNG | PNG Kumuls Press Conference | Fox League06:42Jason Demetriou on creating a competitive PNG | PNG Kumuls Press Conference | Fox League
Jason Demetriou on creating a competitive PNG | PNG Kumuls Press Conference | Fox LeagueFox League
Просмотров 30 тыс.
Flutter Engage3:58:21Flutter Engage
Flutter EngageFlutter
Просмотров 1,9 млн
🔥Google Cloud Platform Full Course | Google Cloud Platform Tutorial | Cloud Computing | Simplilearn3:51:00🔥Google Cloud Platform Full Course | Google Cloud Platform Tutorial | Cloud Computing | Simplilearn
🔥Google Cloud Platform Full Course | Google Cloud Platform Tutorial | Cloud Computing | SimplilearnSimplilearn
Просмотров 318 тыс.
Scientia Sexualis: Jennifer Doyle, Jeanne Vaccaro, & Amanda Sroka51:16Scientia Sexualis: Jennifer Doyle, Jeanne Vaccaro, & Amanda Sroka
Scientia Sexualis: Jennifer Doyle, Jeanne Vaccaro, & Amanda SrokaICA LA (Institute of Contemporary Art, Los Angeles)
Просмотров 37
Optogenetics: Illuminating the Path toward Causal Neuroscience3:54:38Optogenetics: Illuminating the Path toward Causal Neuroscience
Optogenetics: Illuminating the Path toward Causal NeuroscienceHarvard Medical School
Просмотров 1,8 млн
Solutions House NYC 2024: Are We Measuring What Matters?39:15Solutions House NYC 2024: Are We Measuring What Matters?
Solutions House NYC 2024: Are We Measuring What Matters?Solutions House
Просмотров 83
Why Housing is Artificially Expensive and What Can Be Done About It (with Bryan Caplan)1:05:58Why Housing is Artificially Expensive and What Can Be Done About It (with Bryan Caplan)
Why Housing is Artificially Expensive and What Can Be Done About It (with Bryan Caplan)EconTalk
Просмотров 1,3 тыс.
PPMD 2024 Annual Conference: Day 3 - Clinical Trials: A Panel Discussion on the Developmental Path48:44PPMD 2024 Annual Conference: Day 3 - Clinical Trials: A Panel Discussion on the Developmental Path
PPMD 2024 Annual Conference: Day 3 - Clinical Trials: A Panel Discussion on the Developmental PathParent Project Muscular Dystrophy
Просмотров 101
Dawkins vs Peterson: Memes & Archetypes | Alex O’Connor Moderates | EP 4911:32:04Dawkins vs Peterson: Memes & Archetypes | Alex O’Connor Moderates | EP 491
Dawkins vs Peterson: Memes & Archetypes | Alex O’Connor Moderates | EP 491Jordan B Peterson
Просмотров 643 тыс.
Organizational Change Management Training: Everything You Need to Know About Change Management3:05:11Organizational Change Management Training: Everything You Need to Know About Change Management
Organizational Change Management Training: Everything You Need to Know About Change ManagementDigital Transformation with Eric Kimberling
Просмотров 232 тыс.
Whose prank is this?#斗罗大陆 #唐舞桐与唐老六 #小舞 #唐舞桐 #唐三 #唐老六00:35Whose prank is this?#斗罗大陆 #唐舞桐与唐老六 #小舞 #唐舞桐 #唐三 #唐老六
Whose prank is this?#斗罗大陆 #唐舞桐与唐老六 #小舞 #唐舞桐 #唐三 #唐老六Real Douluo Short Video
Просмотров 10 млн
▼ ЕДУ В ТИХОСРАНСК 💪37:00▼ ЕДУ В ТИХОСРАНСК 💪
▼ ЕДУ В ТИХОСРАНСК 💪Happy Wolf
Просмотров 375 тыс.
Ситуация Гриша, девочки!!!! #машмилаш01:00Ситуация Гриша, девочки!!!! #машмилаш
Ситуация Гриша, девочки!!!! #машмилашМАШ МИЛАШ
Просмотров 1,5 млн
Fake Referee Whistle Moments 😅00:38Fake Referee Whistle Moments 😅
Fake Referee Whistle Moments 😅LE FOOT EN VIDÉO
Просмотров 10 млн
МИЛАНА НЕКРАСОВА НЕ ЛЮБИТ ЦУЕФА? #янгер #shorts00:32МИЛАНА НЕКРАСОВА НЕ ЛЮБИТ ЦУЕФА? #янгер #shorts
МИЛАНА НЕКРАСОВА НЕ ЛЮБИТ ЦУЕФА? #янгер #shortsЯНГЕР
Просмотров 213 тыс.
ВЕНГАЛБИ ИНФОЦЫГАН? ЗАДЕРЖАНИЕ ЛИТВИНА / ГУСЕЙН ГАСАНОВ И ЕГО ПРОВАЛЬНЫЙ ПРОЕКТ27:44ВЕНГАЛБИ ИНФОЦЫГАН? ЗАДЕРЖАНИЕ ЛИТВИНА / ГУСЕЙН ГАСАНОВ И ЕГО ПРОВАЛЬНЫЙ ПРОЕКТ
ВЕНГАЛБИ ИНФОЦЫГАН? ЗАДЕРЖАНИЕ ЛИТВИНА / ГУСЕЙН ГАСАНОВ И ЕГО ПРОВАЛЬНЫЙ ПРОЕКТМинистерство Правды
Просмотров 505 тыс.
Handsoms😍💕00:15Handsoms😍💕
Handsoms😍💕Endless Love
Просмотров 7 млн
Why is it different from what I thought?00:15Why is it different from what I thought?
Why is it different from what I thought?小凉夫妇
Просмотров 1,5 млн