Why I Don't Wear Glasses or Get Surgery To Fix My Eyes
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- Опубликовано: 11 сен 2024
- #disabled #blind #albino #cure
It's been a long journey to learn to be comfortable in my own skin. As someone with some "correctable" vision issues, I often get asked why I don't just wear glasses or get surgery to fix my vision. Today let's explore why.
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Thumbnail Description: Tamara peering over a pair of sunglasses with a questioning look on her face. White text reads: Why I don't Wear Glasses or Want A Cure
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It's interesting how strangers don't think that we aren't smart enough to ask those same questions for ourselves, or at one time, tried to seek ways to "fix" our vision. Why they don't understand that we are content and even proud of our blindness is crazy. I have the coolest magic trick that only "I" can see haha. Awesome video!!
Thanks! I’m glad you enjoyed it! That’s something that I’ve always wondered too! The best I can come up with is that people sometimes don’t think before they say things or genuinely think that they are being helpful and don’t know that it comes across poorly.
My daughter is one of those who offers advice on how to "cure" my glaucoma. I tell her that I see my impending blindness as a blessing, not a curse. Some day I will not have to see the country I once loved, deteriorate into a third world hell hole. Although I will miss seeing beautiful women like Tamara.
This was a great video! I don't have extreme vision loss, just mild, but this video can definitely let people know that not everyone is seeking a cure for their vision loss. It's nice to hear that you feel comfortable with your vision loss, and you're willing to keep moving forward and doing what you love!
Thank you so much! I'm glad you enjoyed the video. :) If there is no solution, the only possibility is to just get on with life and make the best of it!
I agree with your viewpoint. Since we are on the subject I will share a bit of my journey. My blindness was a result of a brain aneurysm that was caused by having too high blood pressure for too long. During the event blood leaked into my eyes. The extra pressure caused one of my retina's to partially detach and put uneven wrinkles into each of them. The only way for me to survive at that point was some very delicate brain surgery. Since I was in a coma my wife made that decision for me.
It took over 5 weeks after that surgery for me to emerge from that coma and 2 more years to (mostly) recover from the damage that the aneurysm plus surgery caused. Five weeks of inactivity had caused my muscles to deteriorate. That and the damage to my brain (kind of like a stroke) took a year and a half of intense physical therapy to regain the ability to walk with a cane and I still to this day have to have weekly physical therapy to maintain what I regained.
My vision was another story. The blood in my eyes had clotted over the retinas and the vitreous in my eyes was cloudy. My medical team hadn't realized that I had been blinded (most people don't recover from the type of aneurysm I had) and didn't realize it until 3 days after I had awoken. I could barely perceive sunlight. No other source of light was bright enough.
Surgery to reattach the retina and the very delicate surgery of removing the clots from my retinas and replacing the vitreous with artificial vitreous was an 18 month process. When I awoke from surgery I could see again. Kind of...... My retinas had been wrinkled by the pressure and the shape of my eye had changed resulting in increased myopia. I was very near sighted and it was like looking through bunched up clear cellophane and I had lost some of my peripheral vision. After having no light perception for a year and a half the amount of light hitting my retinas was painful and I had to wear sunglasses even inside the house for about 6 months when it was discovered that the eye surgery had trigger cataracts that were developing at very high rate of speed. Over the next 18 months that were required for the cataracts to develop enough for surgery I lost most of the ability to detect light that I had regained. Cataract surgery after that made sunlight painful again and further modified my vision because they can't tell what the final shape of your eye will be until after it heals which results in a range of increased or decreased myopia that can't be predicted. On top of all that I had a complication that occurs in about 14% of all cataract surgeries that required additional laser surgery a few months later.
Through out this time I received unwelcome but well intentioned advice from many people. I took it in good part mainly because by this time I was happy to just be alive since only about 3% of people that suffer my type of aneurysm live through it.
Too long, didn't read - I wouldn't recommend brain surgery to anyone unless it was a required life saving procedure. Cataract surgery was quick, painless, and is pretty commonplace these days. I had the best surgeon within a 1,000 miles of my home so it went very well for me but the complications of a successful cataract removal have their own issues and are not to be taken lightly.
My goodness. It sounds like you have been through quite a lot on your vision loss journey! It’s always a winding road with a lot of bumps along the way to reach the best possible outcome and be at peace with who we are as we are. Thank you for sharing your experience. I hope you are well! 😊
You Rock little sister! I have a similar congenital visual problem called achromatopsia . I have almost no cones in my retinas but ai have rods for night vision . It appears that we have similar social /visual challenges. Cataract surgery did not take away any of my vision but it also didn’t help all that much. I use a white cane when outdoors a lot and people often think that I’m faking but life is too short for grief so I just take it on the chin..
I wish you a beautiful life because you are beautiful !
Hi Dennis.Thank you! One of my good friends has achromatopsia as well. We are constantly chatting about how many similarities we have despite the different diagnoses. :)
Hey Friend.you’ve been reading my mail! Love your posts. Keep on doing what you,’re doin.!
It amazes me how paralleled our low vis experiences are.
I hate it when my parents would suggest all kinds of diet advice for my skin condition just because it didn't heal in a day. They seem to think there should be a magic pill for any bodily issues.
They would get angry when I don't accept their advice with enthusiasm. 😞🤦♂️
Thanks for sharing your perspective. It's very interesting.
I'm sorry to hear you've had such a frustrating experience with your parents. Sadly for a lot of things there is no miracle cure, and if there is, it takes time. Wishing you the best!
Diet is important. your parents were right
Such a good video! Strangers who offer unsolicited advice is disconcerting.
You can say that again! :)
I am legally blind also but not the same as u. The only thing I can agree is that surgery will not help my vision when it come to the movement. I have been told several times to get the surgery. But I refuse because it won't help. It is only cosmetic in my case. I will not go under the knife just to look " more normal ". Its nice to know I am not alone.
I think you have a very healthy attitude about yourself. Not compromising your integrity or body to suit someone else’s idea of what we should look like. :)
I'll try not to make this too long but I have congenital cataracts had it all my life obviously and I went to seven eye operations as shall we say a kids age 6 months to 13 years. Fast forward to getting jobs and working in the workday world constantly I always had to prove myself no matter what job it was but I survived and I did it. Matter of fact I retired from national geographic society. Now on top of the control cataracts I now have glaucoma so the little vision that I do have I'm starting to lose it. And yes I go through the same thing you do people asking shall we say stupid questions. But we go on. I've been told I should write a book. Yeah sure anyway thank you! Thank you for putting yourself out there.
It sounds like you have had a very complicated an iterating life. I remember my parents reading me lots of National Geographic articles growing up. They were really cool. I'm glad you found the content interesting. It can certainly be a struggle always feeling like you need to prove yourself. Best of luck to you on your vision loss journey. We've got a great community here if ever you run into specific issues I and the folks who hang out here are always happy to help out as best we can. :)
The one thing I get all the time is people recommending glasses that are supposed to help people with color blindness. I know it is a bit silly after all this time, but each time someone tells me I should try them I can't help feeling a bit of a pang of sadness and longing. Of course I would have tried something like that by now if I could. Of course I would love to have my color vision. Just like you articulated in this video, I appreciate that people are being helpful, but honestly, assuming that I haven't already looked at every avenue with the help of a medical professional is a bit insulting. Not to mention, the only thing mentioning a potential cure does is remind me that there is no cure, which never crosses my mind in my daily life until someone mentions it. I do not in any way resent people for trying to offer advice, but I would ask them to think about how hurtful recommending something to a person that does not have curable vision loss can be. As usual, this was a great topic to touch on!
You make a really good point! Like you I also would have done anything to fix my vision if there was a solution early on. And it does sometimes hurt me to know that others will always see me as different or that I’m always missing out on something. Like you I feel doubly reminded of this in those moments where people are trying to tell me that I need to be fixed with x y or z supplements or cures.
I hate when people say how their glasses help them so they don’t understand why mine don’t
I know exactly what you mean. It always feels a little ignorant to me. I know people probably don’t mean anything by it, but i always think - don’t you think I would have tried glasses if I could?
Hi Tamara!, So very true. I got optic neuritis in both eyes, never got my full vision back, then I became nearsighted and my vision just got worse, as I developed a neurological condition later in life. Can't remember how many times, I got asked, can't you operate, take some medication. Said the same thing, if I could, I would have done. Then get people saying, you can see things sometimes. I used to train martial arts, for years before losing my eyesight, it has helped me as I have learned with sight where my body was in the space around me, if you understand what I mean and it has helped to a great deal after losing my sight. It sounds like a DC comic film., i know, but I think that the other Senses become hightened to a certain degrees, like hearing, touch, vibrations, feeling of heat, sound and Coldness. Have you experienced, that you other Senses help you? Thank you for sharing. I don't feel alone, anymore, as I have done for years. Kind regards Tony from Scandinavia
I attribute the same extra sensory awareness (not ESP lol) to my years and years in dance and musical theatre classes. It takes a lot of practice but you learn to rely on the subtle things and it helped me a great deal when I couldn't see as well! I would say my ears are definitely my biggest asset. From hearing spaces to reflective sounds, I would say it is a little like passive echolocation. Nothing I was ever formally trained to do, but something that I just picked up with all of those other life experiences.
@@UnsightlyOpinions Hi Tamara, wow, you have danced, amazing!, then you really understand, in what I mean. Yes, hearing is my best sense too, that and feeling sound vibrations/resonace around me. Thank you, Im really impressed and feel real comfort in hearing, how you have it, and how you cope too. Thank you for sharing Tamara, it means alot. Kind regards Tony from Scandinavia
To be honest it’s not that I don’t want better vision or that I wouldn’t take it it’s that many people including eye doctors don’t seem to understand that if you change one part of the eye the rest doesn’t change or something else changes or leaves with it I found that out the hard way when I got cataracts in both eyes. I could no longer see how many steps in a stairs if the ground changed and my already poor distance vision was so bad things I could notice before (depending on the light) like people coming out of cars or working in their lawns as I walked by completely vanished from my vision. I got both cataracts out and they said my vision should come back but “time would tell” it’s been two years and while my vision is no longer cloudy I lost all remaining distance vision due to making the preference of near vision in my new lens however my depth perception never came back to normal so I gather that before I had cataracts something in that lens must have been doing something right. I also still have issues like the rainbow discs that were supposed to leave whenever my vision was in direct light or it was to dark they said that would leave in a few months after surgery but it never did. I was also pushed into getting surgery for nystagmus but I said no and according to my last doctor that was a good choice on my end because my nystagmus isn’t in a set pattern so they wouldn’t have even known which vessels to cut. Vision is just way more complicated I think then people give it credit for. I was 20 when I found I had cataracts so that was kinda weird too I have ocular albinism though so just wonder if maybe that had something to do with it.