Hello, I just turned 60 and I’ve been searching 45 years to know what I have. I just discovered this a few weeks ago, I didn’t cry but jumped for joy because I finally understand and still don’t understand what this is. I thought I was deformed, it cost my marriages, never going bathing, dressing out in bathrooms, shy, ashamed, etc…. I’m at 160 lbs but always had the toughest time loosing weight. My legs are so ugly, my butt is big and my skin looks like it’s hanging, full of hail damage, as I call it. Thank you for helping me feel like I’m not alone, there is hope for all of us who suffer with this condition. 🙏🏻💖
There’s a good RUclips creator called “ STURDYWOMAN She gives lots of good advice and she looks like she’s made some great body changes with her lipidema
I HAVE BECOME WALKER / wheelchair bound. DI AND OF YOU HAVE SHARP PAINS ? IT FEELS LIKE I AM BEING “zapped “, by electric. I have them over my whole body. Please someone get back to me. I AM 80 yrs old. Thanks
I've been a nurse and a professor for over 20 years and i just heard of this 2 weeks ago. This is me. I am the visual poster child for lipedema! I'm so grateful to be connected to this knowledge now.
I read the title and started screaming "Where?" I am in agony and believe all people deserve to feel beautiful and should be able to move freely. Pain free is how we ought to be! Lipoedema is curable with fat removal. Why are American doctors not doing this? 😒 In high school I had a 24" waist and a 36" butt... Now I am significantly larger.. My thighs are huge and heavy, and so are my upper arms. I am in daily pain. NO ONE SHOULD EVER GET TO STAGE 3 MUCH LESS STAGE 4! In China you pay your doctor when your well... not when you need an intervention. Why are we not more aware of this disease? It was first mentioned in the 40's. Doctors should not be considered doctors if they ignore the Lymphatic system and know nothing about it... Sorry, just a bit bitter!
Lipedema is NOT curable. Fat "removal" surgery is mostly only cosmetic and has side effects like INCREASED edema from fluid. You can literally give yourself lymphedema on top of the lipedema you already had. Lymphedema is already a complication of late-stage lipedema, but why rush to get sicker?
Thank you for this! Very informative. It took 14 years for my diagnosis exactly! One day at a time I do all that I can to take care of myself. Lost the weight. Built my team. Loving myself and loving life. Thankyou for your contributions x
I remember when my mother unfortunately passed away, her body had gotten so thin from her disease, but her arms and thighs were still huge. When I first learned about lipedma, that was the first image that came to mind. The top of my arms and thighs NEVER thin out, and I'm so grateful for all the information starting to become available
I AM 80 yrs old. My mother look the same way and more. SHE ALSO HAD , PARKINSON AND GRAVE DISEASE. They gave her a morphine drip, passed on at 91 yrs. old. She raised 4 children, on her own. WORKED 6-7 days & nights. She was proud, AND REFUSED WELFARE.
WOW!!! Very impressive information all in one place!!! This is exactly what I need right now! I recently went to a free vein check clinic and asked evaluator if I could possibly also have one of the fat disorders. She said she didn’t think so but the person who was going to fit me for my compression could evaluate me for it. I made the appointment and have went just one time and seeing her has completely opened doors to discovery of more health issues I’ve been having. She suspects I have lipedema but isn’t for sure as yet. She did one lymphatic massage on one leg and next appt will have full massage and then be wrapped. Going to go twice a week for starters. After I have worn compression awhile vein clinic is sending me for a leg ultrasound to check the veins. Massage therapist said I will know everything I need to know about my leg conditions after the ultrasound. I am eating up all the information I can find! I am happy and excited that someone is listening to me no trying to help me. I feel God is really blessing me through this. I have a torn minicus and damage to same leg knee cap so now what I am pondering is if while starting this massage/wrapping/compression if I could also go ahead and see my orthopedic concerning my extremely painful knee. I cannot kneel on it due to the pain and yard work season is upon us! One of my passions for exercise. My ortho dr more then likely is not knowledgeable on fat disorders and surgery. I would love to be a part of a face to face support group that involved someone knowledgeable on lipidema. I am 64 years old and my body changed began with fibrocystic breast disease in my early twenties. I used to have problems GAINING a weight as had a fast metabolism and was always extremely thin. What a change. Looking for family involvement and had an aunt who had fat issues plus in immense pain. Also my maternal grandmother who was also a diabetic. In her last days she suffered miserably with huge legs. The word needs to get around about such conditions so people can get help. In my late thirties I asked my PC why I had nodules under my arms. She did all kinds of labs finding nothing more then high cholesterol and dismissed it after that. I now have nodules in my legs that are very painful to the touch. Thank you ladies for all you have done and gone through in bringing this information forward and to the light. May the good Lord continue to bless you and strengthen you as you work to support and inform all of the Lippy Ladies!!! 🦋
Thanks for sharing. Wishing you all the best. I, too, am new to the world of lipodema/with some lymphedema involvement I'm told. Wading through all the info. God bless us.
Thank you. I'm just learning what's wrong with my legs. I'm so embarrassed by them. I don't wear shorts and I live in Florida. I won't date. I've been single for a long time. I use to have nice legs and butt when I was younger but I do recall they were thicker than the rest of me. I've always had hormonal issues. My legs are heavy and thick and it's getting harder and harder to walk. I bought a mini trampoline to help me move since I haven't exercised in quite awhile since my knees and ankles go out on me. Hopefully the trampoline will help. I just put it up. If not, I'll be looking into liposuction. Hopefully my doctor will be on board. Good luck to all.
I have found quite a bit of relief from using my lympholene daily. I started with just 3 minutes and now I go from 10 to 20 minutes. I also have an elliptical that I need to use.
I just got diagnosed with lipedema. I am so glad to watch your video today! I recently got a Lifepro vibration plate on Amazon and am liking it. I am hoping at some point to get a Lympha Press, if needed for me. I also need to buy some compression leggings and arm sleeves. I have type 2 diabetes and am on Mounjaro and am starting to lose weight which is helping, too. Thanks so much ladies for this video! So helpful! I am stage 2 lipedema and do not want it to get worse. I love swimming and it is summer now. I know it makes my arms and legs feel better, too.
PLEASE RECOMMEND DOCTORS WHO UNDERSTAND LIPEDEMA !!!!!! i live in the New york city area. I am desperate to connect with Doctors etc who can help me , im 68 and this started growing in the Last year! HELP ME HELP ME
Thank you so much for all of this. I have lymph swelling on both legs and now wear foot to knee Velcro bandages and am walking and have lost 13 K I now weigh 60k but still feel so heavy and so so so sore after walking. I am doing the breathing. Also my skin on my legs is like a snake and rough. If I exfoliate my legs bleed. If I brush my legs bleed. I have now found a nourishing crème and am using it twice a day and if I miss out one session the roughness comes back. I have had here TIA a with falls causing concussion. I have a monitor in my heart now to check on me. Oh well I try my best but just do not know where to find this type of help here in Israel. I do go to a therapist and she is great. I am now trying to get into a swimming program with a physiotherapist. I am trying to find out about those pumps and am looking for my lymph at age massage on my legs. I do do very light drainage with my hands twice a day. My legs don’t look anything these women you have shown TG but just don’t want to get worse. I also have fibromyalgia. Just lying here with my legs raised filled with hope to find all the help I need.
My doctor recommends going to lymphedema clinic. Unfortunately the Toledo area is short on certified therapists. There is a 2 to 3 month wait to see a therapist. In the meantime I am trying to find ways to help myself.
Dear Doctor, In India, chennai From Pharm products company Having the medicine for actue and chronic inflammation edema and also for lympedema, Tablet LYMPEDIM 200mg 💼, also , this tablet recognized by most of the Doctors, And this will help ful to deserve patients
How do you get a doctor to listen to you?? THEY KEEP telling me all they can do is send me to a plastic surgeon.. I don't get it. Looking at the project list now.. hope I can find someone local.
The reason they will do that is they know there is no cure, the only solution is liposuction. You can reduce the swelling by lifestyle changes and methods like compression clothing or manual lymphatic drainage but it won’t help with the disordered fat
I heard you can dry brush to help with lymph drainage. Is that correct? And if I massage and dry brush the back of my thighs to get lymph fluid moving, where does that fluid drain to since it’s my thighs?
Basically it goes to your lymphatic system which goes into your blood which is subsequently filtered by your kidneys and you pee it out as good old regular water
Keto means putting your body in a state of ketosis. This can mean different things for different people. Done people can beer in ketosis with under 50 carbs, others need to go under 10. It varies greatly. Best to just research the many many keto people on RUclips and make the effort to eat quality higher quality fat, low carb whole foods
I went to a cardiologist because I suspected this was a cardiovascular or lymphatic disorder and I wasn’t wrong for doing so because he was immediately able to diagnose me even though I couldn’t even properly describe my symptoms and he got me the necessary tests to check if my lymphatic and cardiovascular system was working properly. And after confirming everything was fine on that regard, he informed me on the diagnosis and kindly told me to lose my extra weight (which was 40-45 lbs from my starting weight) at my own pace for us to see how much of the fat was irregularly restored and we could talk about next steps (I guess he meant liposuction)
Different body types store more or less fat in different areas. Lose fat & be at ideal weight, eat a carnivore diet, stop being addicted to carbohydrates. I have observed this for decades in family members.
You’re so confidently and horribly misinformed, it’s hilarious ngl. Lipedema fat tissue is quite literally impossible to lose. The body is unable to access the disordered fat cells and break them down due to it also being a connective tissue disorder where the said tissue is too loose. You can reduce the swelling and fluid retention that comes with it (which can be a lot of what’s visible) and prevent the progression of the disease but it’s currently incurable and can only be ridden off by liposuction
I tend to be a medical talk junkie. If it had not been for a video regarding lipedema popping up on my feed, I would have still been questioning key componants the medical community has ignored in my mother for over 70 years. She was the only obese child in her family. She has had the classic bat wings, heavy thighs, cuffs, connective tissue and chronic pain her entire life. She never brought sugary foods in our home. She remainrd obese on the so called health foods doctors & health associations told her to eat. Wheat breads, Shred of Wheat, oatmeal & a banana. She loved her veggies,she walked, she swam & she could never get below 250. I now know this is also my story & can see it in my slim daughter & her hypermobility daughter. My son also carries the Marfan gene, a connective tissue issue. I found out over a decade ago how healing removing grains, seed oils pufas, sugars, etc., could be. Yet, those foods are still touted as health foods😢 Keto saved my life a long time ago. If I would have listened to doctors then, I probably wouldn't have made it this far. Thankfully, one of the top Lipedema specialists happens to be less than an hour away. Now to start this journey❤
![It's NOT Obesity, it's Lipedema [with Siobhan Huggins]](http://i.ytimg.com/vi/PdG0It_WlTk/mqdefault.jpg)
![It's NOT Obesity, it's Lipedema [with Siobhan Huggins]](/img/tr.png)
![Megan Thee Stallion - Bigger In Texas [Official Video]](http://i.ytimg.com/vi/QxTkZTLWdo4/mqdefault.jpg)
Hello, I just turned 60 and I’ve been searching 45 years to know what I have. I just discovered this a few weeks ago, I didn’t cry but jumped for joy because I finally understand and still don’t understand what this is. I thought I was deformed, it cost my marriages, never going bathing, dressing out in bathrooms, shy, ashamed, etc…. I’m at 160 lbs but always had the toughest time loosing weight. My legs are so ugly, my butt is big and my skin looks like it’s hanging, full of hail damage, as I call it. Thank you for helping me feel like I’m not alone, there is hope for all of us who suffer with this condition. 🙏🏻💖
There’s a good RUclips creator called “ STURDYWOMAN
She gives lots of good advice and she looks like she’s made some great body changes with her lipidema
Me too
i hope you can find treatments that work great for you !
Good description, same here, did not know this is a thing!
I HAVE BECOME WALKER / wheelchair bound. DI AND OF YOU HAVE SHARP PAINS ?
IT FEELS LIKE I AM BEING “zapped “, by electric. I have them over my whole body. Please someone get back to me. I AM 80 yrs old. Thanks
I've been a nurse and a professor for over 20 years and i just heard of this 2 weeks ago. This is me. I am the visual poster child for lipedema! I'm so grateful to be connected to this knowledge now.
I read the title and started screaming "Where?" I am in agony and believe all people deserve to feel beautiful and should be able to move freely. Pain free is how we ought to be!
Lipoedema is curable with fat removal. Why are American doctors not doing this? 😒
In high school I had a 24" waist and a 36" butt... Now I am significantly larger.. My thighs are huge and heavy, and so are my upper arms. I am in daily pain.
NO ONE SHOULD EVER GET TO STAGE 3 MUCH LESS STAGE 4! In China you pay your doctor when your well... not when you need an intervention.
Why are we not more aware of this disease? It was first mentioned in the 40's. Doctors should not be considered doctors if they ignore the Lymphatic system and know nothing about it... Sorry, just a bit bitter!
They are there just aren't many and you have top pay a ton
In China they take your organs without your permission.
@@wifeyb.9779 👍
Lipedema is NOT curable. Fat "removal" surgery is mostly only cosmetic and has side effects like INCREASED edema from fluid. You can literally give yourself lymphedema on top of the lipedema you already had. Lymphedema is already a complication of late-stage lipedema, but why rush to get sicker?
@@robinlillian9471 Certainly. With each surgery, the risk of lymph damage increases. The aggressive suction of liposuction doesn't seem helpful.
Thank you for this! Very informative. It took 14 years for my diagnosis exactly! One day at a time I do all that I can to take care of myself. Lost the weight. Built my team. Loving myself and loving life. Thankyou for your contributions x
I remember when my mother unfortunately passed away, her body had gotten so thin from her disease, but her arms and thighs were still huge. When I first learned about lipedma, that was the first image that came to mind. The top of my arms and thighs NEVER thin out, and I'm so grateful for all the information starting to become available
I AM 80 yrs old. My mother look the same way and more. SHE ALSO HAD , PARKINSON AND GRAVE DISEASE. They gave her a morphine drip, passed on at 91 yrs. old. She raised 4 children, on her own. WORKED 6-7 days & nights. She was proud, AND REFUSED WELFARE.
This was such a wonderful presentation. It’s so lonely going to a md and being told to just stop eating and lose weight!
Drs can be cruel..one told me to lose 50 lbs or I will be dead in a yr...he had 0 idea what I have....or how to be caring and helpful
WOW!!! Very impressive information all in one place!!! This is exactly what I need right now! I recently went to a free vein check clinic and asked evaluator if I could possibly also have one of the fat disorders. She said she didn’t think so but the person who was going to fit me for my compression could evaluate me for it. I made the appointment and have went just one time and seeing her has completely opened doors to discovery of more health issues I’ve been having. She suspects I have lipedema but isn’t for sure as yet. She did one lymphatic massage on one leg and next appt will have full massage and then be wrapped. Going to go twice a week for starters. After I have worn compression awhile vein clinic is sending me for a leg ultrasound to check the veins. Massage therapist said I will know everything I need to know about my leg conditions after the ultrasound. I am eating up all the information I can find! I am happy and excited that someone is listening to me no trying to help me. I feel God is really blessing me through this. I have a torn minicus and damage to same leg knee cap so now what I am pondering is if while starting this massage/wrapping/compression if I could also go ahead and see my orthopedic concerning my extremely painful knee. I cannot kneel on it due to the pain and yard work season is upon us! One of my passions for exercise. My ortho dr more then likely is not knowledgeable on fat disorders and surgery. I would love to be a part of a face to face support group that involved someone knowledgeable on lipidema. I am 64 years old and my body changed began with fibrocystic breast disease in my early twenties. I used to have problems GAINING a weight as had a fast metabolism and was always extremely thin. What a change. Looking for family involvement and had an aunt who had fat issues plus in immense pain. Also my maternal grandmother who was also a diabetic. In her last days she suffered miserably with huge legs. The word needs to get around about such conditions so people can get help. In my late thirties I asked my PC why I had nodules under my arms. She did all kinds of labs finding nothing more then high cholesterol and dismissed it after that. I now have nodules in my legs that are very painful to the touch. Thank you ladies for all you have done and gone through in bringing this information forward and to the light. May the good Lord continue to bless you and strengthen you as you work to support and inform all of the Lippy Ladies!!! 🦋
Thanks for sharing. Wishing you all the best. I, too, am new to the world of lipodema/with some lymphedema involvement I'm told. Wading through all the info. God bless us.
There are many fb groups for lipedema women! Thousands of women discuss everything there
Thank you. I'm just learning what's wrong with my legs. I'm so embarrassed by them. I don't wear shorts and I live in Florida. I won't date. I've been single for a long time. I use to have nice legs and butt when I was younger but I do recall they were thicker than the rest of me. I've always had hormonal issues. My legs are heavy and thick and it's getting harder and harder to walk. I bought a mini trampoline to help me move since I haven't exercised in quite awhile since my knees and ankles go out on me. Hopefully the trampoline will help. I just put it up. If not, I'll be looking into liposuction. Hopefully my doctor will be on board. Good luck to all.
Ditto
I have found quite a bit of relief from using my lympholene daily. I started with just 3 minutes and now I go from 10 to 20 minutes. I also have an elliptical that I need to use.
WHAT IS A LYMPHEPOLINE?
@@Pamela-hr9zi hope it’s going better for you, have you tried the vibration plate and then using compression?
I just got diagnosed with lipedema. I am so glad to watch your video today! I recently got a Lifepro vibration plate on Amazon and am liking it. I am hoping at some point to get a Lympha Press, if needed for me. I also need to buy some compression leggings and arm sleeves. I have type 2 diabetes and am on Mounjaro and am starting to lose weight which is helping, too. Thanks so much ladies for this video! So helpful! I am stage 2 lipedema and do not want it to get worse. I love swimming and it is summer now. I know it makes my arms and legs feel better, too.
To my body: “I want to be your friend!” I burst into tears when I heard it!!!
Thank you! 🥰
I'm sure my grandmother had this. She had not much help from doctors :(
I use a vibration platform for pain. 15 min per day.
I am so incredibly Grateful for you ladies💖💖💖
I live in Utah and can’t find one doctor that knows about Lipedema.
PLEASE RECOMMEND DOCTORS WHO UNDERSTAND LIPEDEMA !!!!!!
i live in the New york city area.
I am desperate to connect with Doctors etc who can help me ,
im 68 and this started growing in the Last year!
HELP ME HELP ME
Unfortunately, the only physicians sympathetic to lipedema are surgeons who want to perform surgery on you. It's always all about the money.
Dr Jaimie Schwartz- Beverly Hills. He not only does liposuction, but does manual extraction on nodules too large to go through liposuction cannula.
I am a new subscriber! Thanks again ladies!
Thank you so much for all of this. I have lymph swelling on both legs and now wear foot to knee Velcro bandages and am walking and have lost 13 K I now weigh 60k but still feel so heavy and so so so sore after walking. I am doing the breathing. Also my skin on my legs is like a snake and rough. If I exfoliate my legs bleed. If I brush my legs bleed. I have now found a nourishing crème and am using it twice a day and if I miss out one session the roughness comes back. I have had here TIA a with falls causing concussion. I have a monitor in my heart now to check on me. Oh well I try my best but just do not know where to find this type of help here in Israel. I do go to a therapist and she is great. I am now trying to get into a swimming program with a physiotherapist. I am trying to find out about those pumps and am looking for my lymph at age massage on my legs. I do do very light drainage with my hands twice a day. My legs don’t look anything these women you have shown TG but just don’t want to get worse. I also have fibromyalgia. Just lying here with my legs raised filled with hope to find all the help I need.
My doctor recommends going to lymphedema clinic. Unfortunately the Toledo area is short on certified therapists. There is a 2 to 3 month wait to see a therapist. In the meantime I am trying to find ways to help myself.
Thanks very much!!!!👏 helping me alot. THANKS Beatrice from Australia
Just trying to find a doctor to diagnose it, is torture!
I think I have this I'm devastated 😢
How often do you suggest using the pneumatic pump at home?
THANK YOU. FOR ADVISE ON LIPEDEMA
With stage 2 lipodema would a top quality massage chair help reduce the condition?
Dear Doctor, In India, chennai From Pharm products company Having the medicine for actue and chronic inflammation edema and also for lympedema, Tablet LYMPEDIM 200mg 💼, also , this tablet recognized by most of the Doctors,
And this will help ful to deserve patients
I’m just wondering who in the world has insurance that actually, meaningfully covers half of these recommendations.
No one
Wow the legs in the beginning could be mine.
Most doctors don't have a clue
Thank you!!!
How do you get a doctor to listen to you?? THEY KEEP telling me all they can do is send me to a plastic surgeon.. I don't get it. Looking at the project list now.. hope I can find someone local.
The reason they will do that is they know there is no cure, the only solution is liposuction. You can reduce the swelling by lifestyle changes and methods like compression clothing or manual lymphatic drainage but it won’t help with the disordered fat
Do insurances cover these pumps?
Hello Shosh, I know exactly what you mean when you say that your skin feels like a snake,What is the name of the cream that you use😢
How do I reach you ? I live in India, what are my chances of getting diagnosed and treated?
I heard you can dry brush to help with lymph drainage. Is that correct? And if I massage and dry brush the back of my thighs to get lymph fluid moving, where does that fluid drain to since it’s my thighs?
There are many videos on dry brushing and how it works
Dry brushing makes you visit bathroom more often. That is how and where that fluid goes. Keep on dry brushing and good luck! 😊
Basically it goes to your lymphatic system which goes into your blood which is subsequently filtered by your kidneys and you pee it out as good old regular water
What keto diet is recommended?
Keto means putting your body in a state of ketosis. This can mean different things for different people. Done people can beer in ketosis with under 50 carbs, others need to go under 10. It varies greatly. Best to just research the many many keto people on RUclips and make the effort to eat quality higher quality fat, low carb whole foods
DRY. BRUSHING..
I WOULD LIKE TO USE IT
OILS.
NERVIOUS SYSTEM
MY. QUESTION
IS...KNEE. INJURY. AND. PAIN
WITH LEPEDEMA
WHAT. IS USEFUL OF TOOLS
ELIZABETH. KNEE INJURY. AND HAVE LEDEDEMA. WHST CAN I USE TO TEDUCE. PAIN AND SWELLING UNDER THE. KNEE
What kind of a doctor is knowledgable about this? An endocrinologist? Who?
I heard a vascular specialist. I called an office and they confirmed that they could diagnose that if I came in. Hope this helps
I went to a cardiologist because I suspected this was a cardiovascular or lymphatic disorder and I wasn’t wrong for doing so because he was immediately able to diagnose me even though I couldn’t even properly describe my symptoms and he got me the necessary tests to check if my lymphatic and cardiovascular system was working properly. And after confirming everything was fine on that regard, he informed me on the diagnosis and kindly told me to lose my extra weight (which was 40-45 lbs from my starting weight) at my own pace for us to see how much of the fat was irregularly restored and we could talk about next steps (I guess he meant liposuction)
Different body types store more or less fat in different areas. Lose fat & be at ideal weight, eat a carnivore diet, stop being addicted to carbohydrates. I have observed this for decades in family members.
The tissue being removed by surgeries isn't fat. Thoughts?
Would you explain further? @@azsunburns
Carnivore is bad for some people as it can lead to methanogen SIBO and histamine intolerance, which increases inflammation.
You’re so confidently and horribly misinformed, it’s hilarious ngl. Lipedema fat tissue is quite literally impossible to lose. The body is unable to access the disordered fat cells and break them down due to it also being a connective tissue disorder where the said tissue is too loose. You can reduce the swelling and fluid retention that comes with it (which can be a lot of what’s visible) and prevent the progression of the disease but it’s currently incurable and can only be ridden off by liposuction
Another company with a new angle on how to make money off of desperate people.
I tend to be a medical talk junkie. If it had not been for a video regarding lipedema popping up on my feed, I would have still been questioning key componants the medical community has ignored in my mother for over 70 years.
She was the only obese child in her family. She has had the classic bat wings, heavy thighs, cuffs, connective tissue and chronic pain her entire life.
She never brought sugary foods in our home. She remainrd obese on the so called health foods doctors & health associations told her to eat.
Wheat breads, Shred of Wheat, oatmeal & a banana. She loved her veggies,she walked, she swam & she could never get below 250.
I now know this is also my story & can see it in my slim daughter & her hypermobility daughter. My son also carries the Marfan gene, a connective tissue issue.
I found out over a decade ago how healing removing grains, seed oils pufas, sugars, etc., could be. Yet, those foods are still touted as health foods😢
Keto saved my life a long time ago. If I would have listened to doctors then, I probably wouldn't have made it this far.
Thankfully, one of the top Lipedema specialists happens to be less than an hour away.
Now to start this journey❤