2 Minute Mechanisms: omaveloxolone
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- Опубликовано: 22 фев 2023
- FARA's Mission is to marshal and focus the resources and relationships needed to cure Friedreich's Ataxia (FA) by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.
Friedreich’s Ataxia is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's Ataxia.
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Hi I'm 24, I have AF and u am from Spain. My dream is be curate from ataxia. And you fara are my heroes. I'm whishing omevaloxone too
Hi I'm also suffering from freidrich ataxia
Dose it work I mean this treatment 😊
Hi,
I am Sakib Hossain Hridoy. I have FA, and i am from Bangladesh. suffering form FA last two years. Please help me who to i get omaveloxolone.
i have fa, but am not great with the science of it. This really helps thanks
Hi I have FA and I think it's kinda fun. This seems pretty legit. Looking forward to trying this. Thanks, FARA! See you at the RideAtaxia in Florida :)
Have u tried this treatment and does it work?
There is talk around about safety for the cardiac side, but are there any benefits? I think so, because if the mitochondria work better, they will do so everywhere and if there is a neurological benefit there must also be a cardiac benefit, right?
Hi I'm suffering from FA since three years waiting for omaveloxolone.....I'm from India
Please help me
Iam also suffering from frda...
Iam too waiting for this
My both children are diagnosed with FA.. Omaveloxolon has been a great hope for me😭 did you guys get any further updates??
@@bishnugiri5665 yeah it costs more than 2.5 lack dollers
Per annum
@@gowrishankar1367 that's way more higher price, isn't it🥺
Are you having this treatment?