I was just diagnosed with oral allergy syndrome and I’m starting shots in a few weeks so I’m hoping to be able to eat without swelling soon. But this is helping me to live with my diagnosis.
I'm so glad it can help! The shots are definitely a process, and you will adjust to cooking foods and figuring out what works and what doesn't. (Though I fully admit I was whining last week because I couldn't eat peaches without cooking them. Then I cooked them anyway and they were tasty!) Here's to getting the medical support you need and starting that journey!
Ahh gosh, I'm so glad you've been able to access allergy shots and I hope they help for you! I'm about to go through a similar process of testing, but I'm fully expecting I have OAS. My doctor suggested he thinks I may also have MCAS, which adds a lot of other things into the mix as well, in addition to already having severe gluten sensitivity or possibly celiac :/ Happy to have found your channel, and I really feel your frustration with not being able to eat a lot of foods! I can't go to restaurants at all anymore, it's been a nightmare. Like you, I also have hypermobile joints and I really appreciated you including that bit of info about how you've reduced the swelling! Really hope the allergy shots help you out, best of luck
Oof yeah MCAS is intense, I'm glad you caught it and are working on OAS testing! (And I hate to add more to your plate but have you also been checked for POTS yet then? If you're also dealing with hEDS/hypermobility, apparently POTS, MCAS, and hEDS like to run in a pack, which I only know thanks to my PT.) And I've had to take a break from shots thanks to ~the world~, but I'm looking forward to restarting for sure!
@@DessertGeek Do you have another recent video update? I would love to hear an update!! I heard ibuprofen can really mess up your gut health and cause excess inflammation. I've also heard l-glutamine supplements can help with gut health and OAS.
Over the time of a decade, I cannot eat raw apples, stone fruits, kiwi, carrots, corn, celery, cherries, pears, and almonds. I can eat them cooked, except for almonds. I have recently learned to microwave an apple for 30 seconds and I can have a raw apple...
@@DessertGeek unfortunately I can’t since I have no health insurance. And allergists cost a lot of money. I just cope with cooked foods or like I’ve found microwaving some so I can actually eat it raw when I’m craving it
@@Gmrgrl-mb5np I hear that! We really need better health insurance for all yesterday. And even finding allergists who understand OAS is so tough. Here's to eating as safely as possible?
Cheers! And I'm glad you liked it! And seriously I hear that, it's so weird how shots don't actually slow down allergies, but I do wonder if there's a difference with year five. One way to find out!
I’ve had this since I was a child. All fruit would give me an itchy mouth/throat /lips. I refused to stop eating fruit and carried on and I’m 21 and barely ever have any reactions . I eat fruit all the time and have no problem
I'm glad to hear that! Thankfully OAS does have a low risk for increased anaphylaxis risk over time but it can happen (acaai.org/allergies/types/food-allergies/types-food-allergy/oral-allergy-syndrome) so you probably should still check with an allergist just in case if you haven't already? Especially since adult responses to things can differ so much. (Or it can change when you move. I had a lot of my pollen response start after college when I moved back to my home state.) Here's hoping you continue to stay safe!
Thanks for this video. I was diagnosed by my doctor as well as an allergist as having pollen eating. It didn’t affect my life too much at first but I’ve been getting reactions to slight amounts even when the food is cooked or put into other forms that should manipulate the protein structure enough that I should be fine eating it. I haven’t met anyone who has this syndrome so I was feeling screwed and option-less (as I wasn’t even told it was a food allergy that might need further measures taken if my reactions were severe enough, just told to cook fruits and veggies in the microwave 😭).
Sorry for not catching this sooner and I'm glad it helped! Though that is so frustrating to be told something so dismissive! (Also definitely try making things in pie form! There's something about pie crust + slow cooking + a bit of sugar that makes peaches safe for me, and cobblers, even low sugar versions, should get you a similar effect. Sauteeing doesn't always do enough for me, yet low and slow? Magic. Pot pies might also work great!) Here's hoping you can find an allergist who understands OAS coming up!
As an update since I've been getting asked, I've had to stop taking allergy shots as my clinic wasn't safe for my illness risk level with everything going on. I will be restarting OAS shots when it's safe for me to do so, as I was really liking the progress I was making, and I'll absolutely post an update video when that happens and more about what it's like!
I have had this since I was 10 years old, starting with Apples, and now I’m 21. Now I also get reactions to cherries, almonds, plums, kiwi, bananas, peaches, cucumber, carrots, green peppers, clementines, strawberries, blue berries and avocado (probably more :(). I have never had insurance so I have never gone to a doctor about it but I want to sooooo badly. No one ever believes me since my reactions are not too severe, it sucks!
I'm definitely over here rooting for you to get health insurance and I believe you! It sounds like you have a birch allergy at minimum for sure with that range, so on the plus side there's a good shot you'll be a candidate for allergy shots when you get there? (Clearly I am not a medical professional, this is not medical advice, more I was having luck with strawberries before I had to pause shots so hopefully you can have similar luck.) Best of luck and here's to all the cooked fruits and safe meals?
I heard allergy shots weren't that effective for oral allergy syndrome. I don't know. I had allergy shots years ago which helped my hayfever, but not my O.A.S.
I have oral allergy syndrome due to tree pollen allergies and it's been so hard because I react to peanuts, almonds, hazelnuts, walnuts, soy, avocado, wheat, carrot, potato, tomato, apples, apricots, bananas, cherries, some citrus fruits, kiwi, peaches, strawberry, legumes, one type of pepper (vegetable pepper, not seasoning lol), fig, plum, mango, pears, cumin, cilantro, parsley, parsnip, celery and raspberries. Soy and nuts have been the hardest to avoid along with strawberries, bananas, tomatoes, apples, and potatoes. On the bright side I'm eating healthier and eating high protein. I'm afraid to get allergy shots because of how bad my allergies have been lately. One waffle with soy in it and my "hay fever" aka severe tree pollen symptoms get activated for days. I do get worried with the oral allergy syndrome because although it's seen as more "mild" I get symptoms involving my throat so it freaks me out.
Oh no that's so tough! What did your allergy team say about shots though? Because it sounds necessary in your case, but I absolutely understand the risk concerns you're going through.
I get pain around my mouth whenever i eat certain foods. Not only around mouth on the left side, i also feel pain and discomfort near the nose and around eyes on the left side. I got MRI scan of my brain and neck as well as CT scans but no nerve damage or blood vessel issue came up. I get these problems only after eating certain foods and after drinking milk. I don’t get any itchiness around my mouth or any other symptoms (mentioned on google) for food allergies. No doctor has been able to identify what’s wrong with me. I get facial numbness as well around mouth which takes away my ability to make facial expressions and laugh properly. I get pressure inside my brain while laughing. I really don’t know what to do, i eliminated all food items from my diet that were giving me problems and i am feeling better but not completely fine. I still get these problems every now and then, may be there are more foods to discover that i am still allergic to! Can you provide any suggestion of what you think if it’s oral allergy syndrome or something else?
Oh no, you’re going through so much! I have some thoughts, but I am not a medical professional, so I can’t actually offer medical advice. (Basically I’m commenting only from my own experiences as a chronically ill person, and you should really still talk to an allergist and a physical therapist.) So what you described sounds honestly more like inflammation/irritation from something, allergies or otherwise, impacting your trigeminal nerve(s), along with almost certainly some seriously irritated neck/shoulder muscles? But there are a lot of possible reasons for stuff like that, from classical food allergies or OAS or even MCAS causing inflammation, to sleep apnea or poor sleep quality, misaligned neck vertebrae, classical or hypermobile Ehlers-Danlos Syndrome / EDS or hEDS/HSD, and/or temporomandibular joint disorder / TMJD, and that’s not even all the possible reasons. If I was in your shoes, in addition to an allergist I’d be getting evaluated by a physical therapist with training/specialization of the face and neck, ideally a hEDS + TMJD specialist if you can find one, just to cover bases. (I don’t necessarily think you’re hypermobile from your comment, more it could explain why folks are scratching their heads at your case. hEDS is often overlooked but wow can it do a lot to neck and shoulder muscles.) Best of luck?
@@DessertGeek thank you for replying! I will make an appointment with allergist as well. I got checked with gastrointestinal doctor before and he wrote some allergy tests like RAST, celiac and some other but all came negative. He told me to have skin prick test as well but i haven’t got that one yet. I will get appointment with allergist to have those tests as well. I went to physical therapist and he said he can fix issues if they are related to chewing. He did deep massage of jaw muscles and did some physiotherapy with jaw bones as well. But I didn’t get any benefit as i was not having problems related to jaw. I get pain even after drinking culprit foods so it’s not related to chewing at all. I suspect histamine intolerance as well so I will discuss everything with allergist.
@@jash2199 Dang! And yeah, I was thinking an overall head/jaw/neck PT, as there are some really weird neck problems you can get that impact a lot of muscle systems. (Like I do a ton of ab workouts for physical therapy for supporting my injured neck muscles.) And now I'm really wondering if you should look more into MCAS? I'm not versed in it, you should check out Joy Demorra / Bibliosphere on tumblr, she has MCAS and POTS and has been doing food allergy/intolerance tests. (As a heads up though her tumblr is NSFW as she's a romance writer and editor. But her chronic health info is frustratingly some of the best around, she's how I identified hEDS initially and found a specialist.) Here's hoping you figure it all out!
I started getting really weird food allergies last year after I turned 29. My doctors were not helpful. I had to do my own research/be my own advocate because my allergies went away in the winter, but came back in late February. I am not truly allergic to any foods (verified by blood test) and I'm hoping to get scheduled for a skin test, because that will probably be more way enlightening. :D
That’s such a bummer that your doctors weren’t helpful, and I know how tough and frustrating it is to be your own advocate. At the same time I’m so glad you’re figuring stuff out! And yeah, the skin test for tree pollen will likely be super enlightening based on that time frame alone. (Just in case, definitely ask what they’ll test for and also know you can make requests, as usually they test a good amount of stuff but it’s a wide coverage, not specific. You'd be surprised how much won't be tested for in round one of skin tests.) Best of luck with getting the answers you need!
Hi! So I had to stop due to the pandemic and dealing with health issues. (I haven't made an update video on that because, well, nothing to report and I can't restart yet.) I did start to see results though at ~6 months for strawberries, and I feel like it was helping for my base allergies in general. However, the impression I got from my allergist was that OAS response to shots was inconsistent, so I didn't go in expecting OAS to fully recover, more that I could get the most luck with grass and cat allergies which I need anyway. So yeah, expect slow results, and I hope it helps you out!
I'm glad it was helpful! And I was the same when I first got my diagnosis, but once I started talking to folks about OAS/FPS I met SO many people who had it but were undiagnosed, so you might be surprised?
I was just diagnosed with oral allergy syndrome and I’m starting shots in a few weeks so I’m hoping to be able to eat without swelling soon. But this is helping me to live with my diagnosis.
I'm so glad it can help! The shots are definitely a process, and you will adjust to cooking foods and figuring out what works and what doesn't. (Though I fully admit I was whining last week because I couldn't eat peaches without cooking them. Then I cooked them anyway and they were tasty!) Here's to getting the medical support you need and starting that journey!
Ahh gosh, I'm so glad you've been able to access allergy shots and I hope they help for you! I'm about to go through a similar process of testing, but I'm fully expecting I have OAS. My doctor suggested he thinks I may also have MCAS, which adds a lot of other things into the mix as well, in addition to already having severe gluten sensitivity or possibly celiac :/ Happy to have found your channel, and I really feel your frustration with not being able to eat a lot of foods! I can't go to restaurants at all anymore, it's been a nightmare. Like you, I also have hypermobile joints and I really appreciated you including that bit of info about how you've reduced the swelling! Really hope the allergy shots help you out, best of luck
Oof yeah MCAS is intense, I'm glad you caught it and are working on OAS testing! (And I hate to add more to your plate but have you also been checked for POTS yet then? If you're also dealing with hEDS/hypermobility, apparently POTS, MCAS, and hEDS like to run in a pack, which I only know thanks to my PT.) And I've had to take a break from shots thanks to ~the world~, but I'm looking forward to restarting for sure!
@@DessertGeek Do you have another recent video update? I would love to hear an update!! I heard ibuprofen can really mess up your gut health and cause excess inflammation. I've also heard l-glutamine supplements can help with gut health and OAS.
Over the time of a decade, I cannot eat raw apples, stone fruits, kiwi, carrots, corn, celery, cherries, pears, and almonds. I can eat them cooked, except for almonds. I have recently learned to microwave an apple for 30 seconds and I can have a raw apple...
That's a huge list! I'm definitely hoping you were able to go on allergy shots or sublingual treatments!
@@DessertGeek unfortunately I can’t since I have no health insurance. And allergists cost a lot of money. I just cope with cooked foods or like I’ve found microwaving some so I can actually eat it raw when I’m craving it
@@Gmrgrl-mb5np I hear that! We really need better health insurance for all yesterday. And even finding allergists who understand OAS is so tough. Here's to eating as safely as possible?
@@DessertGeek cheers to that!!!
Hey Mary, same here. The foods you list here are a foods giving cross reactivity from Birch Pollen allergy.
Thank you for this video.
I'm one year into allergy shots and discovering new allergies all of the time lol. Cheers to year five!!!
Cheers! And I'm glad you liked it! And seriously I hear that, it's so weird how shots don't actually slow down allergies, but I do wonder if there's a difference with year five. One way to find out!
I’ve had this since I was a child. All fruit would give me an itchy mouth/throat /lips. I refused to stop eating fruit and carried on and I’m 21 and barely ever have any reactions . I eat fruit all the time and have no problem
I'm glad to hear that! Thankfully OAS does have a low risk for increased anaphylaxis risk over time but it can happen (acaai.org/allergies/types/food-allergies/types-food-allergy/oral-allergy-syndrome) so you probably should still check with an allergist just in case if you haven't already? Especially since adult responses to things can differ so much. (Or it can change when you move. I had a lot of my pollen response start after college when I moved back to my home state.)
Here's hoping you continue to stay safe!
Thanks for this video. I was diagnosed by my doctor as well as an allergist as having pollen eating. It didn’t affect my life too much at first but I’ve been getting reactions to slight amounts even when the food is cooked or put into other forms that should manipulate the protein structure enough that I should be fine eating it. I haven’t met anyone who has this syndrome so I was feeling screwed and option-less (as I wasn’t even told it was a food allergy that might need further measures taken if my reactions were severe enough, just told to cook fruits and veggies in the microwave 😭).
Sorry for not catching this sooner and I'm glad it helped! Though that is so frustrating to be told something so dismissive! (Also definitely try making things in pie form! There's something about pie crust + slow cooking + a bit of sugar that makes peaches safe for me, and cobblers, even low sugar versions, should get you a similar effect. Sauteeing doesn't always do enough for me, yet low and slow? Magic. Pot pies might also work great!) Here's hoping you can find an allergist who understands OAS coming up!
I plan on starting allergy shots in two weeks and this was very helpful. Thanks for posting.
Glad I could help, and best of luck with allergy shots! I hope they're effective for your allergies!
As an update since I've been getting asked, I've had to stop taking allergy shots as my clinic wasn't safe for my illness risk level with everything going on. I will be restarting OAS shots when it's safe for me to do so, as I was really liking the progress I was making, and I'll absolutely post an update video when that happens and more about what it's like!
I have had this since I was 10 years old, starting with Apples, and now I’m 21. Now I also get reactions to cherries, almonds, plums, kiwi, bananas, peaches, cucumber, carrots, green peppers, clementines, strawberries, blue berries and avocado (probably more :(). I have never had insurance so I have never gone to a doctor about it but I want to sooooo badly. No one ever believes me since my reactions are not too severe, it sucks!
I'm definitely over here rooting for you to get health insurance and I believe you! It sounds like you have a birch allergy at minimum for sure with that range, so on the plus side there's a good shot you'll be a candidate for allergy shots when you get there? (Clearly I am not a medical professional, this is not medical advice, more I was having luck with strawberries before I had to pause shots so hopefully you can have similar luck.) Best of luck and here's to all the cooked fruits and safe meals?
I heard allergy shots weren't that effective for oral allergy syndrome. I don't know. I had allergy shots years ago which helped my hayfever, but not my O.A.S.
I have oral allergy syndrome due to tree pollen allergies and it's been so hard because I react to peanuts, almonds, hazelnuts, walnuts, soy, avocado, wheat, carrot, potato, tomato, apples, apricots, bananas, cherries, some citrus fruits, kiwi, peaches, strawberry, legumes, one type of pepper (vegetable pepper, not seasoning lol), fig, plum, mango, pears, cumin, cilantro, parsley, parsnip, celery and raspberries. Soy and nuts have been the hardest to avoid along with strawberries, bananas, tomatoes, apples, and potatoes. On the bright side I'm eating healthier and eating high protein. I'm afraid to get allergy shots because of how bad my allergies have been lately. One waffle with soy in it and my "hay fever" aka severe tree pollen symptoms get activated for days. I do get worried with the oral allergy syndrome because although it's seen as more "mild" I get symptoms involving my throat so it freaks me out.
Oh no that's so tough! What did your allergy team say about shots though? Because it sounds necessary in your case, but I absolutely understand the risk concerns you're going through.
@@DessertGeek I haven't talked to them yet but i think they'll agree
I get pain around my mouth whenever i eat certain foods. Not only around mouth on the left side, i also feel pain and discomfort near the nose and around eyes on the left side. I got MRI scan of my brain and neck as well as CT scans but no nerve damage or blood vessel issue came up. I get these problems only after eating certain foods and after drinking milk. I don’t get any itchiness around my mouth or any other symptoms (mentioned on google) for food allergies. No doctor has been able to identify what’s wrong with me. I get facial numbness as well around mouth which takes away my ability to make facial expressions and laugh properly. I get pressure inside my brain while laughing. I really don’t know what to do, i eliminated all food items from my diet that were giving me problems and i am feeling better but not completely fine. I still get these problems every now and then, may be there are more foods to discover that i am still allergic to! Can you provide any suggestion of what you think if it’s oral allergy syndrome or something else?
Oh no, you’re going through so much! I have some thoughts, but I am not a medical professional, so I can’t actually offer medical advice. (Basically I’m commenting only from my own experiences as a chronically ill person, and you should really still talk to an allergist and a physical therapist.)
So what you described sounds honestly more like inflammation/irritation from something, allergies or otherwise, impacting your trigeminal nerve(s), along with almost certainly some seriously irritated neck/shoulder muscles? But there are a lot of possible reasons for stuff like that, from classical food allergies or OAS or even MCAS causing inflammation, to sleep apnea or poor sleep quality, misaligned neck vertebrae, classical or hypermobile Ehlers-Danlos Syndrome / EDS or hEDS/HSD, and/or temporomandibular joint disorder / TMJD, and that’s not even all the possible reasons. If I was in your shoes, in addition to an allergist I’d be getting evaluated by a physical therapist with training/specialization of the face and neck, ideally a hEDS + TMJD specialist if you can find one, just to cover bases. (I don’t necessarily think you’re hypermobile from your comment, more it could explain why folks are scratching their heads at your case. hEDS is often overlooked but wow can it do a lot to neck and shoulder muscles.) Best of luck?
@@DessertGeek thank you for replying! I will make an appointment with allergist as well. I got checked with gastrointestinal doctor before and he wrote some allergy tests like RAST, celiac and some other but all came negative. He told me to have skin prick test as well but i haven’t got that one yet. I will get appointment with allergist to have those tests as well. I went to physical therapist and he said he can fix issues if they are related to chewing. He did deep massage of jaw muscles and did some physiotherapy with jaw bones as well. But I didn’t get any benefit as i was not having problems related to jaw. I get pain even after drinking culprit foods so it’s not related to chewing at all. I suspect histamine intolerance as well so I will discuss everything with allergist.
@@jash2199 Dang! And yeah, I was thinking an overall head/jaw/neck PT, as there are some really weird neck problems you can get that impact a lot of muscle systems. (Like I do a ton of ab workouts for physical therapy for supporting my injured neck muscles.) And now I'm really wondering if you should look more into MCAS? I'm not versed in it, you should check out Joy Demorra / Bibliosphere on tumblr, she has MCAS and POTS and has been doing food allergy/intolerance tests. (As a heads up though her tumblr is NSFW as she's a romance writer and editor. But her chronic health info is frustratingly some of the best around, she's how I identified hEDS initially and found a specialist.) Here's hoping you figure it all out!
@jash2199 Hey, I landed here by accident but I have the same symptoms and curious to know if you’ve had any breakthroughs. Cheers!
I started getting really weird food allergies last year after I turned 29. My doctors were not helpful. I had to do my own research/be my own advocate because my allergies went away in the winter, but came back in late February. I am not truly allergic to any foods (verified by blood test) and I'm hoping to get scheduled for a skin test, because that will probably be more way enlightening. :D
That’s such a bummer that your doctors weren’t helpful, and I know how tough and frustrating it is to be your own advocate. At the same time I’m so glad you’re figuring stuff out! And yeah, the skin test for tree pollen will likely be super enlightening based on that time frame alone. (Just in case, definitely ask what they’ll test for and also know you can make requests, as usually they test a good amount of stuff but it’s a wide coverage, not specific. You'd be surprised how much won't be tested for in round one of skin tests.) Best of luck with getting the answers you need!
Seems like you have a pollen allergy. You might want to ask about birch tree allergy it does trigger OAS. Good luck pal
Hey! I was just wondering if you've seen or experienced any success in these past 2 years. I'm all new to this and I'm doing drops.
Hi! So I had to stop due to the pandemic and dealing with health issues. (I haven't made an update video on that because, well, nothing to report and I can't restart yet.) I did start to see results though at ~6 months for strawberries, and I feel like it was helping for my base allergies in general. However, the impression I got from my allergist was that OAS response to shots was inconsistent, so I didn't go in expecting OAS to fully recover, more that I could get the most luck with grass and cat allergies which I need anyway. So yeah, expect slow results, and I hope it helps you out!
Wow...this is interesting information, quite new to me. Thank you very much.
Thanks! I definitely feel like oral allergy syndrome isn't discussed nearly enough, so it's great to get the word out!
I was diagnosed with food pollen syndrome two years ago, this was very helpful I haven’t met anyone with this.
I'm glad it was helpful! And I was the same when I first got my diagnosis, but once I started talking to folks about OAS/FPS I met SO many people who had it but were undiagnosed, so you might be surprised?