i like to think that i’m just as smart as the next guy but the second someone asks me to describe something, my brain blue screens and i forget every word i’ve ever learned
I had steven johnson syndrome back when it was called steven johnson skin disease. I was 12 and it was still fairly new, it came about from an allergic reaction I had to some meds I was taking. The way it was explained to me was that basically your body thinks you have a chemical burn and so it sloughs off a few layers of skin. I had blisters EVERYWHERE, and my fingernails and toenails died and fell off (they haven't been the same since). Lasted about a month. I remember it was October because my mom draped me in a vampire cloak and set a bowl of candy outside of my door, told all the doctors and nurses that when they came in they had to grab some and give it too me as if to trick or treat lol. She was a good mom.
I have but the patient had that condition where the skin looks like tree bark and the plastic surgeons wanted to see if there were non surgical options before they went cutty-cutty
I have cellulitis and lymphedema. I was admitted for 4 days to the hospital because of an infection. I saw a dermatologist, podiatrist, GM doctor, hematologist and the medicine man. I had a rotation of doctors in and out of my room pretty well all day. Felt like a freaking V.I.P
The dermatologist I did my senior rotation under was excellent. He was clinically and academically excellent. Yes, I know, it's a lifestyle specialty. But it wasn't for him. I learned more in an hour from him than I did in a week from most other attendings. An excellent dermatologist is an impressive clinician, and they will come when called. I just wish there were more like that. The first patient I saw die was an 8 year old with Stevens Johnson. In the several weeks he was in the hospital his parents never visited, until the last day when his mother showed up. The chief of pediatrics threw her off the unit. Child neglect. At that point the child was within inches of dying, unconscious, and the nurses did more to comfort him than his mother did in the 8 years of his life.
Jesus christ, that hurt my heart... i hope she got charged with something. I don't think any of y'all could have kept me out of that room even for a second if my son was in there.
My mum had Steven's Johnson's syndrome and septicemia when she was in her late teens I'm so glad she survived it, I couldn't imagine what it's like but she is partially sighted cause of the blisters that formed on her eyes and scar eye tissue, she's honestly my hero and I'm so proud to call her my mum
I remember the one time the doctor I worked for realized that a patient was having Steven Johnson syndrome caused by a drug interaction. So he had me call the dermatologist so we could get them over for an emergency consult and I talked to the assistant and told them that it was sjs.... The dermatologist must have been right there cuz he snapped the phone away from her so fast I got so scared. The intensity in that doctors voice is something I will never forget. Bonus we got the patient in same day to see the dermatologist.
Actually I've had this experience once in my life , it was a Saturday and the dermatologist on call was in the ER , an extremely rare scene , he was like an exotic celebrity there. The patient had to be admitted and the Derma team had to actually do " Rounds " on their one and only inpatient patient 🤣
When I was in surgery, my unit cheif had a habit of admitting every case he saw, then not discharging them weeks after surgery, So we had patients all over the hospital, especially skin ward because it's always empty if not for us, So once in a while, there'd be a dermat case in the ward, we'd all scratch our head because we don't recognise the patient, why is he here? Who admitted them? Then we'd see dermat people coming for rounds and suddenly we realise it's their ward afterall...
@@phs125 Lol...my hospital's dermatology ward is also filled with medicine patients and the same scenario happens with us when we go and take rounds. We ask interns who is this guy? Is he our patient? What complaint was he admitted for? And then we see his file mentioning that he's under dermatology and we wonder if ever his doctors will come and see him. One of my seniors in medicine would ask of any complaints from these derma patients too since his consulting doctor might not come, so he might resolve his problems since he was on rounds anyway🤭🤭.
As someone who was struck with SJS and came into ER on a Saturday..I can confirm this is true. 😅 the dermatologist that came for me was still wearing his golf shoes
My mom had SJS and was in a coma for about 2 months due to the pain and how fast it was progressing. It was a very scary and terrible time, and I nearly lost my mother when she was all I had. I don't know what sort of angels worked in that hospital to identify what she had so quickly, but it was a weekend and we heard that same day she went to the hospital of what was affecting her. Truly a miracle that they did what they did, and I have my mom because of her own strong will and the doctor's quick intervention. I know there's not a lot you can do for it, once it's progressed as far as it did for my mom, but they really helped 17 year old me cope with it all, too
I had a patient who had Steven Johnson syndrome and it had me so sad because she is one of those cute old ladies. She said she wouldn’t wish it on her worst enemy.
I had SJS in September 2020 - it was horrifying- I still have PTSD from the whole situation. Thank you for bringing some awareness to this very serious condition.
If I could do it all over again I'd go into Dermatology. After tattooing for 22 years I've seen so many skin issues that could be treated, but are just allowed to run rampant. I guess I could start now and be the 60 year old new doctor. Lol
Well fyi bactrim is the most common drug related cause of SJS (as per the burn unit I was in) it’s how I got it too. I had a patient that got it from Tylenol. And another that got it from lamictal.
I had a patient who had a case of SJS so severe, that she lost both eyes. They had literally dissolved, & left her with just the sockets. She was only 6 y/o when it happened, way back in the 1950’s, & they didn’t realise what it was in time to save her sight…😢
As someone with recurring noniatrogenic SJS, I wish anyone had been this attentive to me. I literally got kicked out of the hospital system's immunology clinic by a woman who insisted I clearly just had syphilis, refused to order or help me find a third-party test for syphilis (I pursued it myself, and multiple tests have been negative), and gave me a lecture about wasting her time with my melting off face when they have patients who need shots for their mild animal allergies. I never got prescribed so much as an NSAID for pain from anyone 🙃
@@PavlinaStoyanova I'd imagine for some it's family pressure, but the biggest influence is probably the respect the public has for doctors and the power they have relative to their patients. Some medical professionals really do have an ego problem.
That's awful. I've been treated the same way. We shouldnt have to beg and advocate so hard for ourselves when we go to see a doctor/etc. For our issue. It's their job! But so many don't even listen. I left my old doctor when he kept rushing pregnant me out of his room, meanwhile I had hyperemesis gavidarum and preeclampsia. Which progressed to postpartum preeclampsia. He dismissed oth.
Yea I've been pushed away by doctors for almost ten years, before I was finally diagnosed with endometriosis. Some doctor really aren't meant to be one
When my 4 yo had SJS 27 years ago (a reaction to a cephalosporin given for a sinus infection) our pediatrician started him on pedi-prednisone, then immediately contacted our allergist/pulmonologist (both actually had experience with pediatric patients with SJS). For about a week i spoke every few hours with one or the other. We were so fortunate to already have a nebulizer (he also had asthma), a well stocked pharmacy, and amazing doctors. They did consult with the National Organization of Rare Diseases (NORD) and specialists in Boston. He was a kid who had a lot of allergic reactions so hives were pretty normal, but a passing comment by the pediatrician stuck with me and I had him seen as soon as I saw them spreading after Benedryl. He was sick for weeks but is 31 yo now and has had no long lasting effects (or memories about it). For those who work in the medical field - you absolutely DO make a difference. Thank you!!! ♥️
My dad had SJS after a course of antibiotics. Even the doctor that diagnosed him had to spend half an hour consulting a textbook to make sure he was correctly diagnosed. Not a joke though, if you ever get a severe rash and pain in your eyes see a doctor ASAP
Despite not having any medical background, other than spending time in hospitals as a patient, I love the little insight into the different dynamics going on behind the scenes.
During my PGY-1 in a heavily busy hospital in Caribbean where internal medicine unit gets 30-40 new admissions per call, you never see any dermatologist but in the rare occasion that you spot them, it’s always like watching celebrities all well dressed with yes “ High Heels”, perfect hair , perfume and all, just casually doing a round on that 1 or 2 patients while we in medicine are so stressed , and looking miserable. Makes me always wonder where I went wrong picking specialty 🤦🏾♂️.
Lol this story reminds me of my professor who took alot of education that dietitians take (or maybe she was one herself i forgot) but she was the most fabulous person in the whole faculty staff and I always admired how well she took care of herself. She taught me alot in the diet and nutrition therapy class she taught, more than any of my science professors. And though I got a C in her class, damn was I proud of it cause they have to learn a fuck ton of shit id never understand for my life
As someone who had TENS, 8 years later, I still have the local nurses bring it up and they tell me exactly what/where they were the day I came in as if it was 9/11. Can confirm it's not shit to fuck around with.
I believe I've the rare privilege of experiencing a Steven Johnson's Reaction. It really rather sucked! I spent 3 days in the ICU after being admitted with a fever of 105°. Over those next 3 days I had to wait for my eyesight to come back. They even told me later they almost sent me to the burn unit, and all because my dumbass body didn't like the sulfa based antibiotic I was taking at the time!
I had Stephen’s Johnson’s Syndrome when I was 10 caused by a reaction to sulfa meds. There was a sheer panic in the Children’s Hospital staff! I was hospitalized for 10 days and had many photos & visitors while I was being treated.
I went to so many ERs and drs to try to get help once. The last one finally called in a dermatologist. They knew right away what it was. I looked like I had 3rd degree burns all over my body. It started with my hands. They burned so bad I stuck them in ice water. They were red as tomatoes. Slowly the rest of my body did the same. I worked at hotels. People were afraid to even touch the pen I had touched. Turns out I had strep throat at one point. I guess not having tonsils I didnt notice. My throat had not been sore. The infection had gotten so bad it was killing my liver. Which in turn was causing my skin to die and peel off. It was one of the most horrific messed up illnesses I have ever had.
My baby sister had an SJS reaction to her Amoxicillin, she got sent to the nearest burn center (3 hours away) and it was treated just in time. It’s no joke.
I went to a hospital but no one ever knew what's wrong with my skin, and they sent me home saying that it was an allergic reaction. The next day I went to a dermatologist and she immediately just by seeing my skin knew it was Zona and just 1 week later I felt waaay better. Dermatologists are so great doctors I want to be one in the future ;)
SJS survivor here. My experience sucked. I was prescribed Bactrim for a sinus infection. After 9 of the 14 days of the script I developed a severe rash over about 70% of my body with the feeling of bugs crawling under my skin. I attempted an E.R. visit 2x in one week and was turned away. The 3rd attempt proved fruitful as a resident quickly identified my condition and sent me via ambulance to another hospital 2hrs away that had a burn unit. By this time I'd lost 40lbs and my skin started peeling. My eyes started to turn yellow and the dr had serious concerns of possible jaundice setting in. After wrapping my body in bandages, pumping me full of fluids, antibiotics, steroids, anti-inflammatories etc for a week, I was finally able to go home. Had a dermatologist consult ever been considered, I would've faired better and would have been treated sooner. Luckily I only lost my skin and damaged some nerve endings... and not my vision and all the other accompaniments of SJS.
I remember caring for a teen patient with SJS still as a student Nurse. Dressing his wounds....., was one of the most terrifying experiences I've come across. The worse part was he had his skin sloughing off ALL OVER HIS BODY. The only place he wasn't sloughing off were his palms, soles, back of thighs and bum, and to that I said he was lucky. It was like he was thrown into a fire, and lost his skin almost everywhere. He could hold pain when dressing other parts, but when dressing his private parts, it was excruciating for him, and my heart broke everytime. His scalp, eyelash, ears, face, arms legs, feet, toes, head... everywhere was affected. Was so happy when he got discharged, and he was looking so much better. He looked like he had vitiligo but no hair and was better. Another patient I saw, was a little girl. Around... 5-6ish, same as a student Nurse, admitted into Cher. It wasn't as bad, just had her skin slouching of and necrotised and some spots. Be cause of the location, she couldn't make it, and I was heart broken. Both cases were reactions to medications. Its a really severe condition.
I ended up getting a wicked rash when I started lamictal. I already the risks, particularly about SJS, but I was still relatively calm. However, the reaction of the emerg physician scared the bejesus out of me.
I have Steven Johnson syndrome when I take Bactrim. Which is conveniently a medication given for skin and allergy reactions. Every time I tell my medical team of my reaction to the med they are like well that really sucks man. 😂
As a dermatologist I can tell you that we would LOVE IT if consults were like this! It’s just that often times when we arrive to see the patient for r/o SJS, it turns out to be good old psoriasis.
My husband had stephens johnsons syndrome from zyban in 1999. It was crazy. He spent a week in thw hospital, and many weeks recovering at home. It was hell
Bruh one time I had this insanely rare rash (not the time I had poison ivy snd they thought it was SJS) and I bounced around to derms for months and they all kept telling me “um yeah I don’t really know what it is but it should get better and not worse” (it just kept getting worse) and they finally did a biopsy and were like 🤷🏼♀️ I guess it’s STREP THROAT. Bruh.
If they are on the on call sheet and they don’t show up, they could get into some trouble if care isn’t given. If they want privileges to practice, call is often required.
I had Stevens Johnson Syndrome - that was a nightmare. They could really only manage the symptoms…it took months and months before my mouth and lips healed.
Soooooo true! 😅 I worked outpatient wound care in a small town and did very few inpatient consults. It's never an emergency and if it is you likely need general surgery 1st and then come see me in the office monday! 🤣🤣
I had SJS about 4 years ago. None of the doctors in the hospital had ever seen a live case. Every infection disease specialist & dermatologist in the area was called in. They were sending pictures to the Mayo Clinic, Dartmouth & Mass General. The treatment is similar to treating burns. I was on the burn unit for 3 weeks, had to be sedated for bandage changes & debriding. It was horrible.
I’m a retired pediatric ICU nurse. I cared for a toddler with Stephen’s Johnson. She was so sick and was in so much pain. Her lips were the worst, looked like she had been burned. She did recover very well. I cried tears of joy when she was able to drink from a cup.
"How did you get this number?" Words spoken by every specialty not forced to BE in the hospital over the weekend! My orthopedic surgeon took two hours to come in and help my foot remain attached to my leg. But when my daughter's eye bulged out her head I think they had to request a space shuttle to get him back from Mars! NEVER get sick or injured over the weekend people!
My cousin had Steven Johnson syndrome caused by ibuprofen and the hospital didn’t recognize it was SJS because it was so rare, and so they kept giving her more ibuprofen to help with the fever, pain etc and when they finally realized, her eyes were bleeding and her skin was legit peeling off. Crazy
I am loving your videos!! It is amazing how the dynamics between different departments and between doctors and nursing personnel are the same across the globe 😂
SJS/TEN is one of those things you only need to see once for it to stick. One of the many reasons it's so important to warn stubborn patients about the dangers of taking others' antibiotics.
This is so true. I can't count how often I had an outbreak of "???!!!!" The derm office would give me an appointment 6 months later by then I was treated by PCP or Immunology and would be without rash. The derm would say "the next time the rash etc appears see me immediately. Next flare up front desk refuses to even ask the doc OR they've quit to make piles of $$$$ with cosmetic medicine. You can see rheumatologists but line up 6 of them and they'll all disagree and tell me to use lotion after a shower.
Yeah, specialists don't like coming in on the weekend. At the ER with a miscarriage, ultrasound shows that it's a tubal pregnancy. They called the OB, he didn't come. They sent me home and said "be sure to see your doctor on Monday. If it ruptures you could die." Also a friends husband was having a heart attack, cardiologist said he'd be there after the holiday weekend. He died 2 days before. Begged my friend to sue, do something legal, but she was too grief stricken. Did I mention we're in Florida?
As a medic, I've seen so many cases of SJS and toxic epidermal necrolysis on airevacs. Such an awful condition. My hypochondriac roommate even likely gave sjs to himself by constantly badgering doctors to give him ABX that it probably started lysing. He was in the trauma hospital's burn ward for a week and he still has the trademark trash scars, years later.
My ears started to get ungodly super itchy for no reason and for a long time we couldn't figure out what it was. My doc and me mum couldn't really figure it out, although we suspected it was psoriasis. We told our family doc that a couple of times but he kinda brushed it off. He gave me antibiotic cream, and a different cream with steroids in it. None of them really worked although the steroid cream helped a little. It wasn't until our second visit or so when we happened to mention the magic words "My grandma had it"/"we have family history" that the doc even entertained the idea of it. Set us up with a dermatologist and we were at that appointment for like .2 seconds. We saw the derm, told him we suspected it was psoriasis due to our family history(now that we'd learned the trick) and he took one look at the inside of my ears and went "Yep! That looks like psoriasis alright!" Sent us off with a prescription for my ears and also my scalp as apparently it's common to have an itchy scalp as well. Specialty Doctors aren't just specialty for a reason. Thanks dermatology! Now if only I kept up with my med routine...
Ok I’ve actually had Steven Johnson Syndrome and no dermatologist saw me! After staying in hospital to remove allergen from system I was sent to a level 2 burn unit. Then rehab center for wound care. I’m still trying to get a referral to a dermatologist because my skin is still totally wakadoo 4 yrs later
I was in the ICU for SJS, they flew in a special dermatologist from 1,500 miles away. Saw many dermatologist, they were never able to determine what it was exactly but not SJS took years of medical care to resolve fully. Fun times in 2nd grade
Psoriasis, TEN and SJ syndrome are some of them. Usually you can delay the consultation for office hours if the skin area involved is manageable and the patient is in stable condition. Sometimes, sporadic cases of Leprosy are considered to be worthy of urgent consultation 😅
I had S.J.S. and my doctor was called in from a game of golf and was mad until he saw me and was then excited as I was his second patient with it The nurse thought I had shingles or mezels so he didn't know until he saw me and then it clicked
😂😂 I was diagnosed with SJS-TEN once in 2007 and remember about 10 different doctors checking in to verify it. Ended up being in the hospital for months.
Me calling the detmatologist: please I have an infection thats ruining my face for life please help as soon as possible it's causing great distress... Dermatologist: alright is 5 months from now at 8 am a good time for you? Me:scratches face to oblivion
I also had a suspicion for SJS from my dr while taking an antibiotic. I had a skin rash and sudden high fever and called him to tell him thinking he would just tell me to stop taking the antibiotic and switch to another. He said: ‘go to the ER now’. When I asked why and he said possible SJS and I googled it I got terrified. He said: ‘don’t even wait for an ambulance to come’ (in my country they take forever if they don’t deem the case serious enough) ‘just grab a taxi’. It turned out I had something else but I after this experience I am much more mindful of the possibility of this syndrome when taking medications
“My attending said you have to come in” hahaha it’s like “mom said you have to”
I use that a lot! Works wonders!
🤣😂🤣
Il
My attending said it's my turn on the xbox
@@prophetoftru7h My attending said EAT the Xbox
I like how the derma faculty was so easygoing till he heard SJS. It's the only time I saw the derma get serious.
Absolutely right!
And it was the only time I have seen a dermatology patient on my ICU.
Is it contagious?
@@Witchy-Wonderland No it's not contaigous, but it is very serious. My brother gets it.
When I had SJS, I went in to see an allergist. The shock and fear in his eyes were my first clue what I was in for😂
“Isn’t it Saturday?” The life of speciality doctors on call lol
More than 4k liked and not one single comment how 😲
@@yogarcia6066 wow indeed
because is there a need to comment more on something so true
It sucks to suck
Except cardiology
"Describe the rash"
As a derm myself, my favorite weapon
i like to think that i’m just as smart as the next guy but the second someone asks me to describe something, my brain blue screens and i forget every word i’ve ever learned
Error 404, rash description not found
😰😰
Rashes.... So much description and I thought all looks the same. How do they tell the difference?
@@shanamustafa6967 very difficult sometimes
I had steven johnson syndrome back when it was called steven johnson skin disease. I was 12 and it was still fairly new, it came about from an allergic reaction I had to some meds I was taking. The way it was explained to me was that basically your body thinks you have a chemical burn and so it sloughs off a few layers of skin. I had blisters EVERYWHERE, and my fingernails and toenails died and fell off (they haven't been the same since). Lasted about a month. I remember it was October because my mom draped me in a vampire cloak and set a bowl of candy outside of my door, told all the doctors and nurses that when they came in they had to grab some and give it too me as if to trick or treat lol. She was a good mom.
Awww your mom!!!! ❤
"was a good mum"????
That's not a good mom, that's a fucking fantastic mom
@@melvynkhor9717 she unfortunately passed away almost 10 years ago from a pulmonary embolism :/
@@hiimsoandso582 I'm sorry for your loss
Fiction. Nobody has ever seen a dermatologist in the hospital.
I have but the patient had that condition where the skin looks like tree bark and the plastic surgeons wanted to see if there were non surgical options before they went cutty-cutty
I did and he was so stylish. I knew I was experiencing and anomaly. It was an amazing experience!
I have cellulitis and lymphedema. I was admitted for 4 days to the hospital because of an infection. I saw a dermatologist, podiatrist, GM doctor, hematologist and the medicine man. I had a rotation of doctors in and out of my room pretty well all day. Felt like a freaking V.I.P
They're easy to spot! The only physician with high heels on
I have actually seen one. He broke his leg.
"So I got good news and bad news."
"What's the good news?"
"We're naming a skin condition after you."
“and the bad news?”
“we’re naming a skin condition after you”
@@misseselise3864 ""Why is that a such bad thing?"
"It's an incurable STD."
@@JuMiKu The bad thing is it’s completely new and you have no options. That was the joke
The dermatologist should have replied: "If it's wet, keep it dry. If it's dry keep it wet. If it's not there to begin with, cut it off."
Wise words from Dr House.
The way he said ‘how did you get this num ber?’ Lmfao i love it
🤣🤣🤣
My favorite part! 😂
YES!
As a medical negotiator, i get this question from doctors and their billers ALL the time. YOU listed it in the NPI registry lol
The dermatologist I did my senior rotation under was excellent. He was clinically and academically excellent. Yes, I know, it's a lifestyle specialty. But it wasn't for him. I learned more in an hour from him than I did in a week from most other attendings. An excellent dermatologist is an impressive clinician, and they will come when called. I just wish there were more like that. The first patient I saw die was an 8 year old with Stevens Johnson. In the several weeks he was in the hospital his parents never visited, until the last day when his mother showed up. The chief of pediatrics threw her off the unit. Child neglect. At that point the child was within inches of dying, unconscious, and the nurses did more to comfort him than his mother did in the 8 years of his life.
😥
I want to die hearing this. This poor child
Jesus christ, that hurt my heart... i hope she got charged with something. I don't think any of y'all could have kept me out of that room even for a second if my son was in there.
🙁😢😥
@@Speed001 when your child is dying, nothing comes before that.
As a dermatologist, I wholeheartedly agree that these reactions are spot-on. Hahaha!
My husband had/has Dermatitis Herpetiformis, I begged him to go to the ER before we figured it out and got Dapsone. 🤣 He could've made someone's day
ER doc here !!! Sooo true last time I called Derm and since it was interesting, they sent the First year to do a Biopsy ! jajajja so accurate !
I bet they had to do it again.
Jajajja-patients deserve better
@@paxundpeace9970 Not sure they got good samples and they had follow up set up !
@@KiKiQuiQuiKiKi what are we, your slaves?
@@pffa9675 you sound like an angsty teenager lol.
LMAOOO I was raised by a Derm. Can confirm. He got called 4 times that I remember my ENTIRE childhood
My mum had Steven's Johnson's syndrome and septicemia when she was in her late teens I'm so glad she survived it, I couldn't imagine what it's like but she is partially sighted cause of the blisters that formed on her eyes and scar eye tissue, she's honestly my hero and I'm so proud to call her my mum
SJS is a very very horrible condition. 🤦
I remember the one time the doctor I worked for realized that a patient was having Steven Johnson syndrome caused by a drug interaction. So he had me call the dermatologist so we could get them over for an emergency consult and I talked to the assistant and told them that it was sjs.... The dermatologist must have been right there cuz he snapped the phone away from her so fast I got so scared. The intensity in that doctors voice is something I will never forget. Bonus we got the patient in same day to see the dermatologist.
Actually I've had this experience once in my life , it was a Saturday and the dermatologist on call was in the ER , an extremely rare scene , he was like an exotic celebrity there.
The patient had to be admitted and the Derma team had to actually do " Rounds " on their one and only inpatient patient 🤣
Lol
Out of curiosity, what did the patient have?
Ooo I'd like to know what they had also!
Wanna know what did he have
When I was in surgery, my unit cheif had a habit of admitting every case he saw, then not discharging them weeks after surgery,
So we had patients all over the hospital, especially skin ward because it's always empty if not for us,
So once in a while, there'd be a dermat case in the ward, we'd all scratch our head because we don't recognise the patient, why is he here? Who admitted them? Then we'd see dermat people coming for rounds and suddenly we realise it's their ward afterall...
@@phs125 Lol...my hospital's dermatology ward is also filled with medicine patients and the same scenario happens with us when we go and take rounds. We ask interns who is this guy? Is he our patient? What complaint was he admitted for? And then we see his file mentioning that he's under dermatology and we wonder if ever his doctors will come and see him. One of my seniors in medicine would ask of any complaints from these derma patients too since his consulting doctor might not come, so he might resolve his problems since he was on rounds anyway🤭🤭.
Derm starts laughing when he thought he was joking about being seen today (on the weekend)!😆
As someone who was struck with SJS and came into ER on a Saturday..I can confirm this is true. 😅 the dermatologist that came for me was still wearing his golf shoes
My mom had SJS and was in a coma for about 2 months due to the pain and how fast it was progressing. It was a very scary and terrible time, and I nearly lost my mother when she was all I had.
I don't know what sort of angels worked in that hospital to identify what she had so quickly, but it was a weekend and we heard that same day she went to the hospital of what was affecting her. Truly a miracle that they did what they did, and I have my mom because of her own strong will and the doctor's quick intervention. I know there's not a lot you can do for it, once it's progressed as far as it did for my mom, but they really helped 17 year old me cope with it all, too
awe! i’m glad! i hope u && ur mom stay healthy && happy
I had a patient who had Steven Johnson syndrome and it had me so sad because she is one of those cute old ladies. She said she wouldn’t wish it on her worst enemy.
My experience...i hung vancomycin and 5 mins alter ye called tell ling me I gave him a rash...😅
How is every video that this guy makes so spot on? Every. Single. Video.
I had SJS in September 2020 - it was horrifying- I still have PTSD from the whole situation. Thank you for bringing some awareness to this very serious condition.
If I could do it all over again I'd go into Dermatology. After tattooing for 22 years I've seen so many skin issues that could be treated, but are just allowed to run rampant. I guess I could start now and be the 60 year old new doctor. Lol
Never too late as long as you are alive.
Don't even dare to try it.
They ain't working weekends.
oh derm will come in for a few select diagnosis, if in a small hospital would need to transfer out anyway most likely for higher level of care needed.
I didn't know what SJS is and I googled it and now I feel scarred for life
Same. Omg
My mum had it it's unreal honestly it's so bad and rare
Sjs has left me scared for life mentally and physically 😔
Same😣
Well fyi bactrim is the most common drug related cause of SJS (as per the burn unit I was in) it’s how I got it too. I had a patient that got it from Tylenol. And another that got it from lamictal.
I had a patient who had a case of SJS so severe, that she lost both eyes. They had literally dissolved, & left her with just the sockets.
She was only 6 y/o when it happened, way back in the 1950’s, & they didn’t realise what it was in time to save her sight…😢
These are always so accurate 😭
Hi FootDoc Dana, love your videos!🙌👍😄Slay queen!👑👠
I literally stan that you're a Doc Schmidt fan too!😀😃
As someone with recurring noniatrogenic SJS, I wish anyone had been this attentive to me. I literally got kicked out of the hospital system's immunology clinic by a woman who insisted I clearly just had syphilis, refused to order or help me find a third-party test for syphilis (I pursued it myself, and multiple tests have been negative), and gave me a lecture about wasting her time with my melting off face when they have patients who need shots for their mild animal allergies.
I never got prescribed so much as an NSAID for pain from anyone 🙃
Omg that's so awful.... I'm so sorry
How do people like that even decide on medicine, its so awful - our job IS to help people
@@PavlinaStoyanova I'd imagine for some it's family pressure, but the biggest influence is probably the respect the public has for doctors and the power they have relative to their patients. Some medical professionals really do have an ego problem.
That's awful. I've been treated the same way. We shouldnt have to beg and advocate so hard for ourselves when we go to see a doctor/etc. For our issue. It's their job! But so many don't even listen. I left my old doctor when he kept rushing pregnant me out of his room, meanwhile I had hyperemesis gavidarum and preeclampsia. Which progressed to postpartum preeclampsia. He dismissed oth.
Yea I've been pushed away by doctors for almost ten years, before I was finally diagnosed with endometriosis. Some doctor really aren't meant to be one
When my 4 yo had SJS 27 years ago (a reaction to a cephalosporin given for a sinus infection) our pediatrician started him on pedi-prednisone, then immediately contacted our allergist/pulmonologist (both actually had experience with pediatric patients with SJS). For about a week i spoke every few hours with one or the other. We were so fortunate to already have a nebulizer (he also had asthma), a well stocked pharmacy, and amazing doctors. They did consult with the National Organization of Rare Diseases (NORD) and specialists in Boston. He was a kid who had a lot of allergic reactions so hives were pretty normal, but a passing comment by the pediatrician stuck with me and I had him seen as soon as I saw them spreading after Benedryl. He was sick for weeks but is 31 yo now and has had no long lasting effects (or memories about it). For those who work in the medical field - you absolutely DO make a difference. Thank you!!! ♥️
I'm so happy your son did well, what an awful time for you.
@@katherineg9396 - every parent has their challenges. Luckily we had so many wonderful medical professionals to help us get through ours. ♥️ ♥️
"you have to understand that whatever you will say will have consequences" 😂😂
My dad had SJS after a course of antibiotics. Even the doctor that diagnosed him had to spend half an hour consulting a textbook to make sure he was correctly diagnosed. Not a joke though, if you ever get a severe rash and pain in your eyes see a doctor ASAP
I hope your dad's ok.
Mine started with petechiae red blisters in my mouth and a sore tongue.
my dad got it from an allergic reaction to Bactrum. apparently it was the sulphur in it that triggered it
Despite not having any medical background, other than spending time in hospitals as a patient, I love the little insight into the different dynamics going on behind the scenes.
I worked as a receptionist for dermatology for 2 years in Australia and this is SO ACCURATE.
During my PGY-1 in a heavily busy hospital in Caribbean where internal medicine unit gets 30-40 new admissions per call, you never see any dermatologist but in the rare occasion that you spot them, it’s always like watching celebrities all well dressed with yes “ High Heels”, perfect hair , perfume and all, just casually doing a round on that 1 or 2 patients while we in medicine are so stressed , and looking miserable. Makes me always wonder where I went wrong picking specialty 🤦🏾♂️.
Lol I would never have matched into a derm residency so I'm not even mad
It's not a matter of picking.. but matching
Lol this story reminds me of my professor who took alot of education that dietitians take (or maybe she was one herself i forgot) but she was the most fabulous person in the whole faculty staff and I always admired how well she took care of herself. She taught me alot in the diet and nutrition therapy class she taught, more than any of my science professors. And though I got a C in her class, damn was I proud of it cause they have to learn a fuck ton of shit id never understand for my life
Don’t worry you never would have matched anyway. More applicants than there are spots
As someone who had TENS, 8 years later, I still have the local nurses bring it up and they tell me exactly what/where they were the day I came in as if it was 9/11. Can confirm it's not shit to fuck around with.
I believe I've the rare privilege of experiencing a Steven Johnson's Reaction. It really rather sucked!
I spent 3 days in the ICU after being admitted with a fever of 105°. Over those next 3 days I had to wait for my eyesight to come back. They even told me later they almost sent me to the burn unit, and all because my dumbass body didn't like the sulfa based antibiotic I was taking at the time!
We had an SJS patient in the burn unit I floated to.
"Your words have consequences, and I need you to understand that." I love it so much~ XD The intensity!
Pulling rank always works !
Once i tought i can leave the military and the ranks well behind.
Sorry, what do you mean by pulling rank?
@@MrLegendra : Yes , when you tell someone a staffman wants the consult , the consultant listens and does the consult . No different than the army .
@@MrLegendra Pulling rank is referring, to the military ranks that someone higher up has the first choice.
I got Stevens Johnson Syndrome when I was 15 and to this day every nurse that hears about it gets absolutely thrilled when they find out
These are so funny! And I'm learning a lot just by watching them! You & Dr Glock.💘
I had Stephen’s Johnson’s Syndrome when I was 10 caused by a reaction to sulfa meds. There was a sheer panic in the Children’s Hospital staff! I was hospitalized for 10 days and had many photos & visitors while I was being treated.
I went to so many ERs and drs to try to get help once. The last one finally called in a dermatologist. They knew right away what it was. I looked like I had 3rd degree burns all over my body. It started with my hands. They burned so bad I stuck them in ice water. They were red as tomatoes. Slowly the rest of my body did the same. I worked at hotels. People were afraid to even touch the pen I had touched. Turns out I had strep throat at one point. I guess not having tonsils I didnt notice. My throat had not been sore. The infection had gotten so bad it was killing my liver. Which in turn was causing my skin to die and peel off. It was one of the most horrific messed up illnesses I have ever had.
That sounds terrible. Hope you are doing better now.
My baby sister had an SJS reaction to her Amoxicillin, she got sent to the nearest burn center (3 hours away) and it was treated just in time. It’s no joke.
I appreciate you bringing light to this. I was hospitalized with SJS nearly 11 years ago. It was a very painful and scary experience.
He’s so calm when he says “How did you get this number?” 😂😂😂😂 I’ve only seen SJS once and it was nastyyyyy
I went to a hospital but no one ever knew what's wrong with my skin, and they sent me home saying that it was an allergic reaction.
The next day I went to a dermatologist and she immediately just by seeing my skin knew it was Zona and just 1 week later I felt waaay better.
Dermatologists are so great doctors I want to be one in the future ;)
SJS survivor here. My experience sucked. I was prescribed Bactrim for a sinus infection. After 9 of the 14 days of the script I developed a severe rash over about 70% of my body with the feeling of bugs crawling under my skin. I attempted an E.R. visit 2x in one week and was turned away. The 3rd attempt proved fruitful as a resident quickly identified my condition and sent me via ambulance to another hospital 2hrs away that had a burn unit.
By this time I'd lost 40lbs and my skin started peeling. My eyes started to turn yellow and the dr had serious concerns of possible jaundice setting in.
After wrapping my body in bandages, pumping me full of fluids, antibiotics, steroids, anti-inflammatories etc for a week, I was finally able to go home.
Had a dermatologist consult ever been considered, I would've faired better and would have been treated sooner. Luckily I only lost my skin and damaged some nerve endings... and not my vision and all the other accompaniments of SJS.
I am a resident in the UK. OMG I love your short videos. I swear they represent the story of my life as a trainee 😂😂😂😂
This is weird, however I am so happy you said SJS!! I got SJS when I was 16. Still living with the affects from it 15 years later 😅
I remember caring for a teen patient with SJS still as a student Nurse. Dressing his wounds....., was one of the most terrifying experiences I've come across. The worse part was he had his skin sloughing off ALL OVER HIS BODY.
The only place he wasn't sloughing off were his palms, soles, back of thighs and bum, and to that I said he was lucky. It was like he was thrown into a fire, and lost his skin almost everywhere.
He could hold pain when dressing other parts, but when dressing his private parts, it was excruciating for him, and my heart broke everytime. His scalp, eyelash, ears, face, arms legs, feet, toes, head... everywhere was affected.
Was so happy when he got discharged, and he was looking so much better. He looked like he had vitiligo but no hair and was better.
Another patient I saw, was a little girl. Around... 5-6ish, same as a student Nurse, admitted into Cher. It wasn't as bad, just had her skin slouching of and necrotised and some spots. Be cause of the location, she couldn't make it, and I was heart broken.
Both cases were reactions to medications. Its a really severe condition.
Did the guys D survive
My wife had SJS progress to TENS. It was horrific. Derm really are life savers.
I ended up getting a wicked rash when I started lamictal. I already the risks, particularly about SJS, but I was still relatively calm. However, the reaction of the emerg physician scared the bejesus out of me.
I have Steven Johnson syndrome when I take Bactrim. Which is conveniently a medication given for skin and allergy reactions. Every time I tell my medical team of my reaction to the med they are like well that really sucks man. 😂
Hmm Bactrim is an antibiotic, not used to treat allergic reactions.
@@skiaddict767 i think they meant to say used to treat skin infections
As a dermatologist I can tell you that we would LOVE IT if consults were like this! It’s just that often times when we arrive to see the patient for r/o SJS, it turns out to be good old psoriasis.
1st medical job was in derm for 2 years, when I moved i was so confused about work on the evenings and weekends. What a wake up lol.
Seems like these derma ppl have a chill life no matter what the country... 😂😂😂
I had that after an allergic rxn to antibiotic with sulfa and also alleve. Scary nasty shuz. Glad we caught it ASAP!
Skin is scary. Give me a cardiology or nephrology consult any day, no sweat. But I have to plan out and rehearse if I'm calling derma.
My husband had stephens johnsons syndrome from zyban in 1999.
It was crazy. He spent a week in thw hospital, and many weeks recovering at home.
It was hell
"But usually not the scalp." 💀
Bruh one time I had this insanely rare rash (not the time I had poison ivy snd they thought it was SJS) and I bounced around to derms for months and they all kept telling me “um yeah I don’t really know what it is but it should get better and not worse” (it just kept getting worse) and they finally did a biopsy and were like 🤷🏼♀️ I guess it’s STREP THROAT. Bruh.
You should visit a cardiologist, what it, scarlet syndrome?
Scarlet fever. Your heart valves could have scar tissues, doesn’t hurt to check out 👍🏽RN here
If they are on the on call sheet and they don’t show up, they could get into some trouble if care isn’t given. If they want privileges to practice, call is often required.
I've had SJS before. Shit was ROUGH, but we caught it early thankfully.
I had Stevens Johnson Syndrome - that was a nightmare. They could really only manage the symptoms…it took months and months before my mouth and lips healed.
I have a exam in 20 mins and this is exactly what I need to calm my nerves.
Yo how did you ? Hope you got a good mark
@@theyoutubelover7428 I did okay. Thank you. I'll find out in 5-6 weeks. Lol.
As someone who had SJS recently, this is really hilarious
Soooooo true! 😅 I worked outpatient wound care in a small town and did very few inpatient consults. It's never an emergency and if it is you likely need general surgery 1st and then come see me in the office monday! 🤣🤣
I had SJS about 4 years ago. None of the doctors in the hospital had ever seen a live case. Every infection disease specialist & dermatologist in the area was called in. They were sending pictures to the Mayo Clinic, Dartmouth & Mass General. The treatment is similar to treating burns. I was on the burn unit for 3 weeks, had to be sedated for bandage changes & debriding. It was horrible.
Every doctor who's on call and refuses to do their job is earning a special place in hell, I fucking hate dealing with them.
You always get me at the end with those bangers! 😂🤣😂🤣 Cellulitis...HAAAAAAAHAAAHAAAAA
I’m a retired pediatric ICU nurse. I cared for a toddler with Stephen’s Johnson. She was so sick and was in so much pain. Her lips were the worst, looked like she had been burned. She did recover very well. I cried tears of joy when she was able to drink from a cup.
I was half expecting him to say “Oh sure I’ll just get someone to do an autopsy on Monday” lol
They answered the page!!???
Ha ha I still remmember in Grey's anatomy how they barch in dermatology and they got so exited 🤣🤣🤣🤣🤣
"How did you get this number?" Words spoken by every specialty not forced to BE in the hospital over the weekend! My orthopedic surgeon took two hours to come in and help my foot remain attached to my leg. But when my daughter's eye bulged out her head I think they had to request a space shuttle to get him back from Mars!
NEVER get sick or injured over the weekend people!
My cousin had Steven Johnson syndrome caused by ibuprofen and the hospital didn’t recognize it was SJS because it was so rare, and so they kept giving her more ibuprofen to help with the fever, pain etc and when they finally realized, her eyes were bleeding and her skin was legit peeling off. Crazy
I am loving your videos!! It is amazing how the dynamics between different departments and between doctors and nursing personnel are the same across the globe 😂
I love hearing from Docs outside the US how their practices compare to ours; makes me laugh when they're alike.
This is hilarious! I checked Wikipedia too xD
SJS/TEN is one of those things you only need to see once for it to stick. One of the many reasons it's so important to warn stubborn patients about the dangers of taking others' antibiotics.
This is so true. I can't count how often I had an outbreak of "???!!!!" The derm office would give me an appointment 6 months later by then I was treated by PCP or Immunology and would be without rash. The derm would say "the next time the rash etc appears see me immediately. Next flare up front desk refuses to even ask the doc OR they've quit to make piles of $$$$ with cosmetic medicine. You can see rheumatologists but line up 6 of them and they'll all disagree and tell me to use lotion after a shower.
Me: *has a sever rash around my eye*
My dermatologist: "well I'll see you in 3 weeks, I'm going on a vacation"
Yeah, specialists don't like coming in on the weekend. At the ER with a miscarriage, ultrasound shows that it's a tubal pregnancy. They called the OB, he didn't come. They sent me home and said "be sure to see your doctor on Monday. If it ruptures you could die."
Also a friends husband was having a heart attack, cardiologist said he'd be there after the holiday weekend. He died 2 days before. Begged my friend to sue, do something legal, but she was too grief stricken.
Did I mention we're in Florida?
WTF was the _on-call_ cardiologist doing on vacation??
As a medic, I've seen so many cases of SJS and toxic epidermal necrolysis on airevacs.
Such an awful condition. My hypochondriac roommate even likely gave sjs to himself by constantly badgering doctors to give him ABX that it probably started lysing. He was in the trauma hospital's burn ward for a week and he still has the trademark trash scars, years later.
Had a patient we thought had TEN that was later confirmed. Tried to consult Derm.... Still had to wait for after the weekend 😩
My ears started to get ungodly super itchy for no reason and for a long time we couldn't figure out what it was. My doc and me mum couldn't really figure it out, although we suspected it was psoriasis. We told our family doc that a couple of times but he kinda brushed it off. He gave me antibiotic cream, and a different cream with steroids in it. None of them really worked although the steroid cream helped a little. It wasn't until our second visit or so when we happened to mention the magic words "My grandma had it"/"we have family history" that the doc even entertained the idea of it. Set us up with a dermatologist and we were at that appointment for like .2 seconds. We saw the derm, told him we suspected it was psoriasis due to our family history(now that we'd learned the trick) and he took one look at the inside of my ears and went "Yep! That looks like psoriasis alright!" Sent us off with a prescription for my ears and also my scalp as apparently it's common to have an itchy scalp as well. Specialty Doctors aren't just specialty for a reason. Thanks dermatology! Now if only I kept up with my med routine...
Ok I’ve actually had Steven Johnson Syndrome and no dermatologist saw me! After staying in hospital to remove allergen from system I was sent to a level 2 burn unit. Then rehab center for wound care. I’m still trying to get a referral to a dermatologist because my skin is still totally wakadoo 4 yrs later
I was in the ICU for SJS, they flew in a special dermatologist from 1,500 miles away. Saw many dermatologist, they were never able to determine what it was exactly but not SJS took years of medical care to resolve fully. Fun times in 2nd grade
My sister had this after being given Ibprofen when she was 2. She was in the children's ICU for weeks and has permanent scaring.
Dude I need a dermatologist because of a reaction I've been having. I scheduled like 3 months ago, still another month to my appointment
Wait! There are dermatology emergencies?
Wow! Didn't know you needed a dermatologist for that.
Yup SJS is dermatologic emergency. 🤣🤣🤣🤣
There are actually a few Derm emergencies and SJS is one of them.
Psoriasis, TEN and SJ syndrome are some of them.
Usually you can delay the consultation for office hours if the skin area involved is manageable and the patient is in stable condition.
Sometimes, sporadic cases of Leprosy are considered to be worthy of urgent consultation 😅
@@rosedawn8046 i didn't know leprocy cases still emerged.
"how did you get this number?" I'm dead. 🤣🤣🤣
I am a pharmacist and got every bit of that joke 🤣🤣
I had S.J.S. and my doctor was called in from a game of golf and was mad until he saw me and was then excited as I was his second patient with it The nurse thought I had shingles or mezels so he didn't know until he saw me and then it clicked
Oh I like the glasses good addition
😂😂
I was diagnosed with SJS-TEN once in 2007 and remember about 10 different doctors checking in to verify it.
Ended up being in the hospital for months.
Me calling the detmatologist: please I have an infection thats ruining my face for life please help as soon as possible it's causing great distress...
Dermatologist: alright is 5 months from now at 8 am a good time for you?
Me:scratches face to oblivion
Oh it took me about 8 months to get into Derm when I had first got psorisis in my scalp. It was so painful.
I feel you, man
Yeah, I had a nephrologist's office scheduled an appt 6months out. I couldn't believe it.
I don't know how I ended up on this channel but I swear before I heard his voice I thought it was Kevin McKidd from "Rome" doing a gig as a doctor.
Actually tears! 🤣🤣🤣🤣🤣🤣 OMG! 🤣🤣🤣🤣 "How'd you get this number?"
I also had a suspicion for SJS from my dr while taking an antibiotic. I had a skin rash and sudden high fever and called him to tell him thinking he would just tell me to stop taking the antibiotic and switch to another. He said: ‘go to the ER now’. When I asked why and he said possible SJS and I googled it I got terrified. He said: ‘don’t even wait for an ambulance to come’ (in my country they take forever if they don’t deem the case serious enough) ‘just grab a taxi’. It turned out I had something else but I after this experience I am much more mindful of the possibility of this syndrome when taking medications
Are we sure on the punctuation for "Stephen's Johnson Syndrome" in the captions? Because... uhhhhh....
I was just looking up why it was called that. Unfortunately, you're right