Parkinson's & A Visit To ER & Personal Update
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- Опубликовано: 19 июн 2024
- Watch the whole video!! At 5:20 or so you will see something crawling up the right side of my shirt and oh my goodness, you will see!!! This video is about a recent visit to the ER with Parkinson's and a life update since I haven't made a video in a couple of weeks. Also sharing a link to great PBS documentary about Parkinson's disease. What I am reminded of with this documentary is how different our Parkinson's expresses itself and yet how we understand each other, our struggles and symptoms despite.
Twitchy Woman:
twitchywoman.com/
Matter Of My Mind
www.pbs.org/independentlens/d...
I haven’t been on RUclips for awhile, as I have dizziness and shortness of breath to the point that I fell in the shower, and another episode of not being able to stand up, and being so dizzy. 911, and 2 trips by ambulance to the ER in the last 3 weeks. I was there 3 days each time, as it is related to my Tachycardia. Still going through tests, and have been taking a heart pill to better regulate my heart rate.
Spent 4 days each time in the hospital. Some wonderful nurses and doctors, as well as some disturbing experiences in the ER. BUT, I am glad to have learned a lot from others’ experiences , to get me better prepared for making sure that the staff are taking into account things that could be related to Parkinson’s.
I have read up on autonomic nervous system issues which can affect balance, breathing, and heart rate, and other things.
Take care. I so much benefit from everything you learn and share.
Debby, from San Leandro, CA
Oh Debbie, I am sorry to hear about your fall and what you are going through! I say it all the time but I am not a doctor...but there were a number of comments to my post about inner ear crystals, so I looked into it. It's called the Epley Maneuver and I have to say I am intrigued. I watched on video that had 2.2 million views and she said when you do at home you should not sleep laying flat for 24 hours and that would be tough for me. But I plan on doing some more research about it. I will post the link for you I read about it from Johns Hopkins. I wish you the answers and solutions you are looking for and for you to feel like your self again! ♥Take care and keep us posted!!
www.hopkinsmedicine.org/health/treatment-tests-and-therapies/home-epley-maneuver
I’m bummed to hear that you’re having such a rough time lately. I can completely relate, as I have been going through a bumpy patch as well. Here’s to a better day tomorrow.😊
The tides will turn my friend, they always do. It must be planetary or something because I know lot's of people right now who are going through some challenging times. Thank you ♥
I woke up Easter Sunday with dizziness. Not unusual so I tried to shake it off but as the morning went on it got worse. I tried going back to sleep, stretching, getting some fresh air but nothing helped and things were spinning so fast I couldn't see to dial my phone. I used my Alexa to call my ex wife. I told her I think I'm having a heart attack and she thought i was having a stroke. Went to the ER and after all the tests they said they find nothing wrong. I was diagnosed with PD 1.5 years ago. Finding it hard to deal with all this but finding I'm not alone in this battle. Thanks for sharing :)
Hi Bob....Thank you for sharing your story as well! You are definitely not alone and one of the brightest spots having Parkinson's is the people and having a community who understand the challenges 🥰
I’m 66 years old and diagnosed 2-1/2 years ago. Long before my diagnosis I was having regular issues with vertigo. Some not so bad, but many were awful episodes. My vertigo specialist never came up with a reason for the vertigo but said I had Ménière’s disease. After hearing from so many PD people I’m pretty sure it was early symptoms of Parkinson’s.
Thank you for your comment Jack! I had never experienced vertigo until after my diagnosis....well maybe once on a sail boat : )
Glad to hear you are better. I just watched the documentary. Thanks for sharing. Very informative and inspiring!
Thank you so much for the well wishes, your comment, and I am glad you liked the documentary!! 💕
Glad you got rid of that tic! 😱 I came off a hike with one burrowed in my neck and hubby pulled it out as I was freaking out. Luckily the whole thing came out and nothing was left under my skin.
The vertigo must really be frustrating, hope they can figure it out. Good old Parkinson’s…..just keeps sending us these gifts…..🤦♀️ Take care! I always look forward to your videos. ❤
Hi Carol!! So glad your hubby was able to pull it out with nothing left under the skin!! They are so scary and creepy, UGH!! I am feeling much better so I am hoping it was a one off like last time but we will see. Thank you as always for your comments, I look forward to them 💞
I appreciate that, and I just know if we lived a bit closer we would get together. I already think of you as a friend! We sure have a lot in common (even though I am old enough to be your mom ☺️)
@@carolbixby-mcdonald5660 Awe, I would love to get together sometime 🥰 Wishing you a lovely weekend!!
Ticks freak me out too ever since I got one stuck on the back of my neck and my Gran battled to get it out umpteen years ago. Horrible things! But you did make me laugh! Hope you don’t get any more dizzy spells.
I love a laugh and I am happy you had one! Also so happy I felt it, UGH, they are so creepy! Today I am doing better, thank you so much 🥰
Glad you are better today! I had Covid in Jan 2022 along with the rest of my family. My only symptom was severe vertigo….oh my gaaaad it was brutal. Struggled for weeks. I have heard that vertigo is a symptom of PD sometimes, too, so I’ve wondered if I might battle it again. So far, so good.
I too am glad I am feeling better....If it is a symptom of PD then the last time I had it was 3 years ago...once every 3 years I could handle. But it's not a good feeling to have. I had Covid once time only and for it was all fatigue...the worst fatigue ever!!! Thank you so much! 🥰
Brave post again, I have also had vertigo and you describe it very well unfortunately hope you feel better .
Thank you David! Feeling better thankfully….it’s not a good feeling!
Hey girl! I’m so happy you are feeling better ❤❤ great job battling through these tough times. MRI’s definitely scary! I only had one for pre dbs surgery which was canceled, but ya very loud and unnerving 😮. Just be you and do what you feel is right in your heart ❤🇨🇦👊🏽
Hey there mister…Thank you for the kind words and support!! 💕 Happy
to be feeling much better and I hope you’re doing good too!! 🥰
Had trouble with dizziness about 3 years before my PD Dx. Some other things, like messy handwriting, cropped up about the same time and I’m pretty sure that’s when the dopamine started taking a plunge. Hope everything worked out ok for you - and with tick situation … we get ‘em in Virginia this time of year, too.
Hi Ken! Dizziness is one of those difficult to attribute to a specific problem…is it blood sugar? Is it my medications? I’m feeling much better and oh my goodness the tick! They creep me out! Thank you for watching and your comment! 🥰
Oh gosh! We’re living in parallel realities my friend. So many ticks this year! I’ve found so many crawling around the house carried in by our sweet pup. Also, my imbalance and dizziness is off the charts the last 3 weeks, and OB just found a second fibroid, have an appointment to discuss surgery… my imbalance “dizziness” was my first symptom of PD, and is still the most debilitating symptom that I experience when it’s bad. Walking very slowly with a cane these days. Starting PT soon
Hi Dizzy! Always sorry to hear about the struggles, but they are real. And especially when it comes to walking because that is my biggest issue, even more than the tremor, so I get it. I will do an update video after my pelvic ultra sound....there is no information out there for us on this subject!! Thank you for sharing and your comment and oh my goodness we didn't talk about the ticks today, yeesh, they are so awful to find around the house. Talk soon ♥
Vertigo for1 yr then PDwas able to get rid vertigo still trying to get rid PD
@@ParkinsonsWigglesProject I just found a tick crawling on my arm in the freaking bathtub. WTF. 😳
@@DizzyRansmeier Oooooo Nooooo!!
Glad all turned out well. Vertigo is no fun. Mine was from an ear infection 😫. Be safe.😊
Thank you Roger!! Oh they stuck that thing in my ear, ouch 🥰
Neil Diamond 💎The Rock and Roll Hall of Famer announced in 2018 that he had Parkinson’s, which causes him tremors, slow movement. He is such a good person. It was a pleasure to meet him while I worked with a major airline before I retired. I will also never forget meeting Robin Williams. Such an unforgettable, wonderful person.
RIP. Robin.🕊🕊🌹🌹
Lucky you Roger for meeting two legendary and talented individuals!
Sorry about the vertigo. Your reaction to the tic was amusing...I probably would have ripped my shirt off right then and there.
Haha! Would be a way to get lots of views 🥰
So glad to hear it wasn't anything serious! Next time we talk, remind me to tell you about my experience from "giving" too much of myself and how I handled it. I'm a super empathetic person so I have to be careful not to get my energy zapped. When I'm in the MRI, I keep my eyes closed and then when the noise starts, I mentally put myself in a nightclub and the noise is like EDM. ha ha ha! I would have died if I saw a tick on me! lol
You made me laugh! Strangely it does have some qualities of EDM :) My eyes were closed and I was breathing deep. The tick was creepy crazy for sure, and when I watched the replay I didn't know that I would see it crawling up my shirts. Next time we talk for sure I would love to know how you handled giving too much of yourself....I could use some tips ♥
I had an ER visit last year for dizziness after a heavy gym workout. I initially thought it was a heart issue, but it turned out to be dehydration. ER doctor told me that dehydration is number one cause of dizziness. He told me a PwP must be aware to stay hydrated especially if you have BP fluctuations. Feel better!
Yes!! They said I wasn't dehydrated but wanted to give me IV fluids...I declined but had to have the thing in my arm for the contrast during the CT scan. It's so important to stay hydrated!! I am feeling better so far, so thank you ♥
My Parkinson’s journey began with a stay in the hospital due to severe vertigo. It was finally diagnosed as “vestibular neuritis” which is an infection on the vestibular nerve in the ear. After MRI CAT SCAN blood work, pt they could not find anything else. I did PT after being released my balance returned to normal but the tremors began and 6 months later on my 50th birthday I was diagnosed with PD. All my doctors said the vertigo was not related to PD it just was strange timing, coincidence. The good thing was that the vertigo introduced me to an amazing neurologist who is now my primary neurologist. Hope you feel better soon.
Hello and thank you for sharing your story!! Having an "amazing" neurologist is, well, amazing. It makes all the difference and is so important! I reassure people all the time, good doctors are out there🥰
Sorry to hear about the vertigo, Jenn. When I had that it was due to low blood pressure. Carbodopa-Levodopa can cause this. My neurologist recommended wearing compression socks and adding a lot of salt to my diet. It worked!
Thank you Anthony for your comment and sharing what worked for you!! Adding salt to your diet isn't something you hear often I would think but it's great that you found a solution because vertigo is no fun!
I often get vertigo in heavy pollen times. The first couple of times, I ended up in an ER also. The ER staff told me people often present to the ER thinking they are having a heart attack or stroke.
And yep! Saw the tick, climbing up your shoulder during the video. Apperantly, you couldn't hear me trying to get you attention. 🙂
Vertigo is a tricky one and one of the nurses, because I felt so lucid and clear, I asked could someone be having a heart issue and be so clear and she said people present in a million ways. I didn't hear you, lol! But am so glad I felt it!! Thank you🥰
I found your channel just recently. I have had PD for 31 years, dx at 35. Things like vertigo and confusion can indicate autonomic disfunction, which is a part of ongoing PD. Blood pressure regulation is compromised, leading to BP too high or low. Medication can be very effective but can take a while to get right. The biggest risk is low BP leading to falls. I hace found learning to play a musical instrument to be very beneficial in combating general PD problems. Any sort of drum is a great first choice. My second favourite would be a fretless string instrument such as a cello or fretless bass guitar. i play, rather poorly, about 30 different instruments.
Thank you for sharing your story and thoughts! I am with you on the musical instrument, so good for the brain, listening to music that we love too! 🥰
I have vestibular neuritis, which I’m sure to some may present as vertigo, it’s different testing (a VNG). Yes. It has further interfered with balance, gait, eye tracking etc. I’m currently in PT for it. If your symptoms persist it may be worth an ask.
Thank you Sonya! 💕 I hope your PT is helping you feel better!! I have to make an appointment with my MDS.
It’s a frustrating situation…. So often it’s only possible to tell you what you DON’T have and not what you DO have.
Well said!! And so frustrating....They gave me a prescription for vertigo again but didn't say that was what I had?!?
Has anyone mentioned the Epley maneuver it Hass to do with your inner ear and realigning the little rocks that help us with our balance I had horrible vertigo one time and that cured me they just manipulate your head and get the rock back in the right place it sounds so funny
Exactly.
Tough part is getting to the right doctor to discover this "fix"
So many comments about the Epley maneuver and it working. I haven’t done yet but am feeling better. After all the comments I looked into it and was like wow, very interesting! I had never heard of it or the crystals in the ear 🥰
Stay tick free.😂 Hope you feel better soon 💕
Thank you!! 🙃♥
Hoping all is well. It's been awhile since a video. 👍🙏🏻
I am getting better....just made another update video, it's been rough but I am turning the corner I hope 🥰 Thanks Roger!
Your defiantly in our prayers. So sorry 🙏🏻🙏🏻@ParkinsonsWigglesProject
MJ and I say hi. Ew the tick!! Noooo 😮
Hi!! Ticks are totally Ewwwww!! But you two are the best ♥
Hi 👋 ugh that’s a lot of stress. I hate MRI’s
Super stressful and I’m with you on the MRI, so intense and not a fan!
Um, you can’t kill a tick by stepping on it.
I had both an MRI and a SPECT scan to confirm PD. Nerve wracking to say the least.
Especially wearing Birkenstocks 🥰 Once I turned of the video I stomped again because it was still crawling on the floor....you are right! I am not a bug killer, I am a save the spiders kind of woman and put em outside. One of my exceptions are ticks...but I will never forget this lesson. We didn't have a fire going so no popping it into the fire, I read rubbing alcohol will kill em. Thank you Oswald!!
Vertigo is so disruptive. Did anyone check your ears? There is a flipping maneuver that has always worked for me to send the "rocks" out of the canal fluid. Stops the spinning quickly if you can figure out which ear is the problem.
The documentary was interesting, and balanced, even with a lot of focus on DBS. While watching it occurred to me that I'll probably never be eligible if it ever came to that because of a titanium aneurysm clip on the carotid artery behind my left eye. On the positive side, no brain surgery for me ever again!.😅
They checked my ears with that probe thing, didn't like that feeling either. I will finish the documentary tonight, only got about 15 minutes in. DBS makes me nervous, but I know it works for some people, just don't think it's for me. I totally understand why you wouldn't want to have another brain surgery 🥰
@@ParkinsonsWigglesProject The DBS success rate has me concerned too, considering the very real risks of this invasive procedure.
So, it's somewhat good news for you that those brain scans didn't turn up anything related to your vertigo, but leaves you still searching for an answer. Same for me too--the expensive MRI didn't point to the reason for vertigo, but did discover the aneurysm, which led to surgery in 2002, which probably has greatly extended my timeline. And for that I am reminded again to be grateful for the vertigo, crazy as that sounds!. Best to you with this challenge. 😙
@@PLSRubyforestStudio Not crazy at all!! Yes it helped you discover an aneurism and no doubt extended your timeline!! And yes the scans were looking for clots or anything that could be causing my dizzyness. I am feeling better today, but it's still there just a little. I am intrigued by the Epley Maneuver that many commenters have talked about. Thank you for sharing your story ❤
? Please call? What is going on?
bonjour Jennifer
Bonjour Mike!
I’ve struggled with extreme dizziness and imbalance that keeps me from walking for two years. Not vertigo. Neurologist keeps saying it’s PD.
Physical therapy hasn’t helped. It’s going to undo me.😢 I’m 74. At the age when doctors start to just phase out interest in me.
Oh Lynn it breaks my heart to you feel your doctors are losing interest in you....and that dizziness and imbalance has kept you from walking for so long!! ♥Do you feel it only when standing? Mine was worse when I laid down or looked down then looked up. In another comment someone mentioned vertigo being a symptom of PD...no doubt it's most likely PD related.
You might have BPPV vertigo, which is caused by loose crystals in your inner ear. While there's no "cure" per se, there's a fairly easy at-home maneuver that will solve the vertigo. I've had this vertigo problem for years and just do this maneuver several times in a row, and the problem goes away for months until another crystal forms. I was diagnosed with PD 6 years ago but BPPV vertigo has nothing to do with Parkinson's in my case.
@@grannyelizabeth I have tinnitus as well. They gave a quick look in my ears and didn't see anything but it very well could be connected to my having vertigo. Thank you! ♥
They would not see the crystals (rocks) by looking in your ear as they are in your inner ear. There are many RUclips videos on the Epley maneuver - it's very easy to do at home and it's worth checking out. (You might have to do it a couple times.)
I enjoy your posts!
@@grannyelizabeth Thank you! I will look for some videos and let you know 🥰
Have a glas of Guinness.
LOL!! Goodness I would love to but I've been Guinness free since Monday. I am missing me Guinness (in an Irish accent I say) 🙃
Did you take the jab
What jab?
@@ParkinsonsWigglesProject the covid jabs.My sister in law got them and then got parkinsons
@@kathleenessig541 I was diagnosed in 2013, long before the covid vaccine was developed. I have gotten all my shots and will continue to do so.