My mothers hands got cold, eyes got glassy and she stopped talking completely. Her breathing started to get shallow, and we could see her chest going up and down. She had a little rattle in the back of her throat that she couldnt cough up. She passed 2 hours later with me holding her hand. I was her only caregiver for 10 years, and still was not prepared for this grief. I miss my mommy.
My mom had lots of sleeplessness at the end.........she was having visions and talking to people. It would take me 2 hours to feed her, she had difficulty swallowing. Even though she was eating, she dropped a lot of weight and got very weak. I was her only caregiver for 4 1/2 years. She was 93 years old when she passed.. It was hard work, but I always felt blessed to be caring for her. Yes, I saw the end was near, but was still in shock and devastated when she passed. It was later, when reflecting on prior experiences in my life, that I realized it was somewhat in preparation for this huge responsibility. Thank you Lord for giving me the opportunity,.♥♥♥
My dad is 80, he's been in a nursing home for 2 years. He stopped eating normal food and has been fed baby food now for 18 so months. My mom and I had to put him in a nursing home because he had 4 falls in 3 weeks and we couldnt pick him up, we had to keep calling the fire department. He also stopped walking, so we knew that was the end. He hasnt said anything but single words to us in 18 months, he looks frail...his hands are cold. He lost control of his bowels 2.5 years ago, he hasn't walked in 2 years. He can't even feed himself. I just wish it would end? I hate seeing him like this but I don't want him to die. It's so sad, from everything ive read he's at the final stage of dementia. He doesn't have any other conditions though, although it sounds as if those could happen quickly. They keep lowering his xanax dose at the nursing home, I assume because he's sleeping far too much. I don't know, I don't know who to talk to...I know he won't get better, Im just sad. He was my best friend for most of my life. He was a great dad and I wish I could have him back but I know I cant. Im sorry for writing so much. :( thanks for the video.
God bless you and your family. Sometimes we just have to let go because they’ll be no more suffering and that’s what you have to remember. And if you believe in God in heaven your father will feel wonderful I just said a prayer for you and your family.
You don't have to put your father in a nursing home. Medicare will pay for in home care. My parent's biggest fear is a nusing home, so we are currently hiring in home care.
My 95 year old mother spent the last 4 months of her life in a Care Home. She had been living on her own for the last 32 years since dad died. Mother was never ill whilst in her own home, but she got a chest infection in December 2022 and went downhill rapidly. Refusing to eat or drink, uncommunicative and bedbound. Mother had not spoken or opened her eyes for days and we were told that she was on palliative care. On December 30 , we were at her bedside and mother received the Last Rites-she was a strongly religious woman- and an injection to relieve her terminal agitation. Within 2 hours of these actions, mother had passed away. It was a relief and a blessing to have been with her on her final journey.
I saved this video a long time ago and forgot to watch it before my mom passed last week from dementia. I had ready many books on the end of life, but nothing remotely prepared me for the unsettling experience that it was. I hope it was more of an outlier situation and that other people have a more peaceful time.
I am currently caring for my husband with dementia and untreatable prostate cancer. He is on Hospice and during the nurse's visit today we discussed he was possibly beginning his transitioning. I worked as a caregiver for over 30 years and have seen many people pass away. I am learning it is much different when it comes to your own loved one. Praying for a smooth and peaceful transition although his presence will surely be missed.
I am 100% against euthanasia because the government/state has absolutely NO business getting involved in such a thing….HOWEVER…I fully support any individual who chooses suicide to avoid going through the horrific indignities and suffering that afflictions like dementia, cancer, etc., can cause.
In my personal case, here in Australia, my euthanasia will be an openly declared NILL BY MOUTH. Assuming that my dementia is able to decide this, at that time of my decline.
@@ohkay7418 One can do it to themself. Why involve the government or the state? Those entities should stay out of people’s business.That’s why I left the United States and moved to the Dominican Republic and obtained citizenship. Here in the DR it’s legal to buy any drug except opioids over the counter. If I wanted to end it, I’d buy barbiturates and take them at a time and place selected by me. That’s freedom, TRUE freedom.
My mother died age 95 on 2nd March 2023. She was bedbound for the last 3 weeks, having acquired a UTI and bowel obstruction. She was not able to express where her pain was and stopped eating and drinking. She did have terminal lucidity 3 days before she died, when she could talk and laugh and engage in conversation but she quickly declined again and started sleeping all the time. When her breathing became fast and shallow, the Nursing Home called the Dr and morphine was administered. She went unconscious and died 20 mins later. Rest in peace Mum. Love you
I'm so sorry for your loss. My mom passed 3 months after a stroke just as you describe. We had no idea she had dementia. She's no longer suffering but it was so painful to see her decline.
Finally a few answers to my questions. My da died march 15th 2021 I was his full time caregiver. Left my job to care for him. He had Deminta with other health issues. His death came so fast. With in 2 weeks. He just went down hill fast I never left his room but to go to the bathroom or sleep In my bed for a hour or 2 at night. My sister came down from Alaska tried to get me to rest and leave his room. I did get a little extra sleep while she watched over him. Just seeing him dying and knowing I could not fix him or heal him. I kept blaming my self for every little thing. He should not be taking this much liquid morphine like they want me to give him. He needs to wake up and drink something or eat I should have wake him and try to see if he can eat jello. Why is his body changing , what am I doing wrong. Then the day he died, I lost my mind could not stop cracking jokes I had so much peace, but when everyone was gone and the service was over and I come back home to his half empty room. My heart died and I can't breath. I wanted to go dig him up and bring him home. Questions about the changes that he went through the last 3 days of his life have bothered me then I saw this viedo, you answered. Gave me a little more peace. Thank you!
I am so so sorry for your loss. I know that morbid feeling of wanting to go bring them back home. It is so painful and distressing. Is there anything I can do to help you. Your message hurts my heart. Have you got support? 💕
Watching my father die from dementia was the worst thing ever. He lasted 12 days with no water, no food before he finally slipped away. He was basically skin over the bone by the end, did not even look like dad.
My wife has been keeping my cabbage body alive ever since she expressed interest caring for me, 32 years ago. So we married 30 years ago, Australia. ❤️ Thank you for your comment here. When my NIL BY MOUTH euthanasia time arrives, we expect my skin contact with the bedsheets to need Moisturizer, etc. Not sure if my bowel and bladder will have the contents coming out. When that happens, how often should the diapers be changed, of ever? We assume that fresh air and deodorant are needed, to hide the body odor?
my mother is enter the end stage of her life, shes stopped eating and cant stand on her own. The doctors are taking her off her medications this week. this video helped alot with my expectations of whats to come, thank you
My mom fully transitioned on the 16th this month and I’m just trying to understand her last moment. She had a burst of energy two weeks before her death we thought she was getting better.
@@8964michelle she was discharged from hospice and was trying to walk, she gained weight we was so excited we tried to get her physical therapy restarted but the nurses knew what was happening but didn’t have the heart to tell us. Then with the snap of your fingers she declined so fast we realized what was happening and the nurse’s confirmed it.
Wow, that is an interesting turn of events. Sorry for the loss of your mom. I haven’t heard of someone seemingly getting better like that and then going downhill shortly thereafter. My grandpa is currently in the end stage of his life with dementia and he’s exhibiting all of the symptoms discussed in this video. He became very restless and agitated and started acting erratically, which resulted in several bad falls and he hit his head. It’s hard to watch someone go through that. He has slowly declined over the last several years
As a nurse aid I have witnessed this many times and cringe when the family wants physical therapy. But I think of it this way maybe it is God's way of having the last couple of weeks enjoying life and family. Last shout before passing over. Saw this with my own sister it is heartbreaking.
Undergoing this end of life phase now, myself. Very surprised that there is so much taboo on terminal lucidity, still. Wondering how that might appear, when it happens to my current cabbage body. My mind is not yet a cabbage.
It is such a difficult time. Love and strength to you and your family. (Have a look at part 2 - I made the second video after mum passed and clarified some things.) Just be with your Dad and know that this is a moment of transformation. It’s not the end - your Dad will be free from the chains of this earthly prison soon and you will be together and reunited in some other form one day. He will always be with you. Lots of love, Jo
Mine too...he's in hospital now. He has lewy body disease and had a fall which landed him in hospital. I cant cope with his facial expressions, slumped body. 😭
I just want to say in this message to each and everyone one of you's that I am terribly sorry for your heartfelt loss. I am glad like many of you that your love ones are no longer suffering. But, sad because you have loss someone that meant a great deal to you! It probably never gets easier as the days, weeks and years pass as you no longer have that person along side you in the flesh sharing moments of life together. Rest assure that spirits of your love ones are always around watching and loving you from a far. They are thankful for you taking this unfortunate and brutal journey with them. This is a beast of a disease. I am sorry that your innocent family members had to encounter this. I know this first hand cause I am on this journey with my 83 year old mom right now and I am scared as hell. I want to hug you all! Thank you for sharing. May your love ones rest in peace. May god bless them and all of you's as well.
In the same boat with my mother. She is 84. We're in the last stages for sure. Not sure how long we will have her, but I feel it will not be more than a year. God be with you and your family.
Here in the UK the drug Donepezil is prescribed automatically with a dementia diagnosis . 2 of the main side affects of this drug are UTI’s and dizziness. The UTI’s are automatically treated with drugs that are anticholinergics ( bock the transmission of the neurotransmitter Acetylcholine) which increase dementia symptoms. Add to this the falls from dizzy spells and you have a compounded problem. This happened to my Dad. 2 years of falls and constant UTI’s. I took him off the drug. His urinary problems and falls cleared up and his dementia is the same as when he was on this drug. Our western system of medicine leaves a lot to be desired
I am so glad that I read your post. My mom was also prescribed Donepezil. She was having nightmares and up several times a night wandering the house. She was also falling a lot. I researched it and found that it is side effects from Donepezil. She also has a uti, which I didn't know was a side effect until I read your post. I took her off the meds and got her to the doctor for antibiotics. She is still healing from uti, but nightmares and wandering stopped. She is in the end stages of vascular dementia. I now do everything for her. I feel so badly for her and for anyone who has this horrible disease. Dementia takes a toll on its victims and their loved ones. Love to you ❤
Thank you for this information, it is better to have some idea of what may occur in this process. My brother and I found one consistency in caring for our mom and her Dementia, it is consistently inconsistent. (He and I are 24/7 caregivers in her home since Jan 2019 when our dad unexpected passed away). It is truly heartbreaking watching a parent go through this process.
thank you so much for this video, i just lost my sister September 10th 2021, she had vascular dementia , her health deteriorated to the point that she couldn't talk . walk. all she could do is make us understand in sign language what she wanted, i played all the hymns she loved to listen , and told her how much i loved her and if she wanted to go she could leave, a few days before she passed i told her and she started to cry,,i was her care giver, as a brother, its so hard for me to day to even write this, as i saw this beautiful woman detained , she was 77 years and 10 months old when she died,,,,
My deepest sympathies for your loss...my mother was diagnosed with dementia earlier this year. She has rapidly declined and has been hospitalized. Today we were told she has difficulty breathing. I've just come across this video to understand what is happening and I read your comment. Thank you for sharing your sister's story and again I'm so sorry for your loss.
@@winterblommetjie this video was so helpful;; to me to come to terms of me being the caregiver for my sister, to know that i did everything what was told in this video, my sister was in a christian long term care place, and they advice me to follow up with getting her finances in place, even try to get the funeral arrangement done in advance, try to play the music she like to liesen , and let her know if she want to go , that she doesn't have to hold on, the last 3 months seen my sister dying has been so horrible for me, its a slow good buy,, as a caregiver all you have is these horrible memorises to hold on to,, i am glad i did everything for her till the last, and please try to be there for your mother, she does not have a voice so you have to be her voice, and see that she is taken good care , by visiting her daily, that what i did,,, and believe me when i tell you that i have nothing but a peace of mind that i did everything for her, ,,,,.....this is a very long hard journey for you ,, try to get the help you need even counselling,, i hope that these tips will help you in your long journey in caring for your mother,,
Best video on this topic I've seen, thankyou for your experience and wisdom . My mom has all of the above symptoms and you have made it clear but comforting.
My Dad (stepdad, but to me he's my Dad) is suffering from White Matter Disease, and the changes are coming very fast now. He's 93. He broke his back two years ago when a small tree fell on him, and he's absolutely convinced that incident put him on a downhill slide physically. His personality has changed completely, and he has become a very unpleasant person. He doesn't remember so many things, and he lies now--which he never did before. It feels like Papa has died, and this other, new person has taken his place. This is all very painful, but we're going to take care of him at home until the end if possible. He deserves that. He was a great Dad. Thank you for this informative video. I recognize a lot of what you talked about in my Papa.
I lost my father due to dementia on 6th of May 2022 his decline was sudden and rapid starting from 22nd April till 6th of May 2022, though he was diagnosed with lewy body dementia the previous year I expected that he would live more 5-10 healthy years with it but in vain. I used to read the comments here before he passed away and his symptoms corroborated the comments and the video content, I was numb and helpless eventually after 3 days he passed away due to congestive heart failure and pleural effusion with edema of hands and feet. God forbid this disease to anyone it is worse than cancer, unbearable to see the last moments he used to crawl in the floor disoriented with shortness of breath, glassy teary eyed unresponsive to the environment.. I Believe he's in a better place now far away from the misery he suffered during his final days... Rest and Live in peace Detto 💖💖💖 from your Son Kaustav, your Daughter in law Parishmita and your Beloved Dog Bella...
Rest in peace to your dad, and my condolences to you and your family. 💜 I fear my mother at the age of 66, is going through this right now. I am scared and in denial. 🥺
Kaustav Iam so sad to hear of your loss of your dear father.My dear husband of 38 yrs died 25 Aug 23 from Lewy Body Dementia.Those very 3 words send chills thru my body.It is a cruel disease.Miss my hubby so much.😢
@kaustavdas1109 She is doing "well" right now. The doctor just told me recently to enjoy this time with her, because this is the end of her story, as she is in the advanced/severe stage. This was extremely upsetting for me because when I look at her, I don't see someone who's at the end. I'm devastated, but I'm doing my best to continue to care for her the best I can, and show her that I love her so much.💔
I’m 45 and have suffered from anorexia and depression for 28+ years. I am having a terrible time dealing with my dad (85) who is in the end stages. I don’t know how I am going to be able to handle him dying. I am so scared. 😢
My dear friend he is not going to die there isn't no such thing as death it's a birth he is going home there will be family and loved ones who passed before him waiting to take him to the next world God-bless you
I wonder how many of us entertain the thought or possibility of self dementia in our lives I'm sure we all visit that realm of consciousness . You are a charming speaker I am glad I stopped by here to listen to the basic realities ' because we truly never know regarding ourselves and others in our lives . I once visited an end of life facility it certainly was a wake up call and became a reality of mind ever since. It left me slightly shocked but definitely created an awareness of reality that I visit in thought at least a few times per month over the last 30 years ; since that day I visited that facility.
My mother has vascular dementia,but apart from that she is physically fine ,apart from a small bed sore on her lower back,she sings loudly and repeats herself a lot,I am in a state of pure misery,with a sense of utter helplessness,my father wants her to end,he has had her put on a morphine injection unit,because he wants a quiet life,he decides everything as he is her next of kin,they made her come of olanzipan 3times and go cold turkey,stopping it immediately,that's why she hasn't been able to eat as her tongues swollen each time!he doesn't care,I believe he's told the district nurse a pack of lies about her condition!what can I do?!!!!!!!she is now almost continually unconscious!I feel it's wrong giving her the morphine!I am crying as I write this,she is my best friend and is the only one that gave me unconditional love,I am finished!my heart goes out to all of you that have lost or are losing a loved one,bless you all Marc.
I just don't know. My husband progressed slowly for 3 years, right after being diagnosed with dementia. In the last 3 months his mental decline has been rapid and noticed by everyone. He is extreemely paranoid. He cannot articulate thoughts. He needs help with most everything. He does dress himself, but it takes an hour to make a decision. It is taking almost every minute of every day to care for him. I don't know if he is considered in last stages. I was recently gone from the house for 2 weeks having neck surgery. The family members that stayed with him were yelled at and distrusted. He thought i had died or left him. It is just exhasting.
I feel for you Vicki. It is such a hard road to travel and I hate that you have to go through this with your husband. It truly is exhausting. The life of a caregiver!!! Make sure you find time for yourself and never feel guilty for putting your needs ahead of your husband. It really is critical that you do whatever you need to do to take care of YOU too. Sending you my heartfelt prayers for some relief, rest and peace. ~ Jo
Here in Australia, my cabbage body of the last 40 years had had the last 30 years being cared by a kind woman, now my wife. My body is similar to a babies body. Hopefully when my mind and emotions become also cabbage, we will be better prepared for this. Your comment and this RUclips production is helping is prepare for our future.
The video is helpful. Unfortunately, for me it comes too late as my husband passed last November. He had the restlessness and hallucinations in the weeks prior to death. I did not understand and thought it was just a new phase of dementia. I wish I had more patience at that time. But I kept going and he was able to remain at home with the family and his beloved dog.
So deeply sorry for your loss. Remember we do the best we can with what we have at the time. It’s all we can ever do and it’s more than enough. Lots of love to you ♥️
@@Brain_and_Beyond Very heart breaking because I feel helpless. My mom is very healthy her body and who knows how long she will live with this ugly illness. My emotions are like waves 🌊 never the same , sometimes I am strong sometimes I am so sad I cry for days .
@@yeseniasolis4042 I am so deeply sorry you and you’re Mum are going through this. It hurts me to read your comment because I know those feelings. I always wanted mum to be free - until she was! So many confusing, painful and conflicting emotions. I’m here if I can help x
Thank you for this video my mother died from dementia 1-19-23 she told me she could not swallow eventually she could not eat for about three weeks like the other comment she was skin over bones and didn't look like herself at all this video helped me understand why and the comment that I was not the only one thanks to both of you I feel much better now👃👃👃
Thank you. I'm watching BOTH parents (since 2016) now dying from their different dementias. Dad-vascular & cancer has lost a HUGE amt of weight recently & his breathing has changed! Mom (age-related dementia) who was ok, but still in end stage, seems to have declined rapidly at the same time lately...altho' she's not bed-bound as dad is, she just is "gone" lately, to my great sadness! Dad's not known me since 2020, but I still had mom which kept me going. Now, I am watching both dying seemingly together (which after 65+ yrs of marriage I pray they do go together). But oh my! ONLY 1 friend & I have seen them every week (me, from 5-7x's/wk at 1st when they knew me, to 3+x's/wk, & now they're so "gone" 2-3x's/wk as I ALWAYS have an emotional breakdown after seeing them that takes a day to recover from, b4 I can go back), no1 else, & I am 100% disabled & started as their PoA & only child 7 approx. yrs ago (feels like 100!)...& it feels like I'm dying with them this past yr! I can barely function or do much of anything anymore. Strangely, I started planting veggies (never being a gardener b4), & watching my seeds come to life has strangely given me a TINY bit of joy, as I cry daily watching mom & dad dying. I HATE this disease! It is so cruel! If you have siblings, children, etc., w/you, count your blessings. I'm going thru this SO ALONE! It is horrific! Thank you for this video. God bless all who are watching their loved one(s) dying too.
My heart hurts for you. I am so sorry you are going through this. I also started gardening recently (I am not very good at it) but I like watching the plants grow and produce flowers or fruit. I feel my Mum's spirt in the butterflies that visit and the breeze that touches my face. I, like you, have no friends and prefer to be alone. But I am not lonely. That's just my preference. If you are not already in my facebook group for carers, come join me there. We all look out for each other and we all understand. You don't have to be alone. x facebook.com/groups/FTDsupport
I sm not on Facebook unfortunately. I just don't have time. But thank you for your caring response. It helps. I just try to go 1 day @ a time. I'll be keeping you in my prayers. Thank you & my heart is with you. I'm very sorry for your loss.
I have 2 siblings but no help. I understand your pain. I am losing my mom to dementia and my 87 yr old dad is nearly deaf and blind and has horrible arthritis and barely moves. It is hard to be the parent of my parents. I feel like they are my children. I am not trying to be funny, I am serious. It is hard caring for 2 but you my friend have it very hard. You are now added to my prayers.
You are great and thanks for creating this video. my dad is unconscious for 3 days now. But due to covid doctors don't allow us to stay beside him. so sad...
What I discovered is that by the time I discovered an elderly friend of mine was badly emaciated, he likely developed dementia through prolonged malnutrition Plus, another thing people are discovering is if your brain doesn't have enough of a certain type of fat to function, it'll malfunction. It's been discovered that cholesterol lowering drugs can only be used for a certain amount of time before it starts harming your brain. Cholesterol can only be lowered so far before it affects your brain, causing your brain to malfunction. Don't take those cholesterol lowering drugs for too long , only use them for a very short time and then get off of them, even if you must bypass the doctor and just quit taking them Some patients have discovered their doctors don't really care about them if they're screaming at their patients as a way to try and control them. Sometimes, you'll find that doctors care more about money than they do about the health and well-being of their patients, and even the patients themselves. If you get a GOOD doctor, KEEP them and TREAT THEM WELL
My mom is going threw this she in her late Age of the 80 her dementia is getting worse and I feel sad for her I wish I could do more for her and she in the last stage of her dementia and she has good days and bad days my god bless her and I understand she is gods hands
My mom is at this stage. She was active, good health and had the best appetite. Three weeks ago she stopped eating and changed into a totally different person. Stopped speaking, only drinking liquids. Her decline has been quick and not stopping. For the past three nights she has been having headaches and screams out in pain. Could it be because of dehydration and not eating? She has no other symptoms but it is concerning since she had 3 previous strokes before dementia took over. These headaches has only been at night. My sister has been sleeping in her room with the fan on, but I told her mom does not like the fan, so she will keep it off and see if there is a change.
Two years since this comment was posted. The mother had strokes, which then caused headaches. Headaches are expected after strokes and traumatic brain injury. With my severe Traumatic Brain Injury for the past 40 years here in Australia, I have learnt hour to avoid the headaches. Sleep, as soon as the headache symptoms appear. We my cabbage body affected my brain, with my age now, hopefully the headaches will not return.
Since working in aged care i can honestly say watching someone slowly decline and then die slowly becoming bed bound with bed sores etc allowing this to happen to someone with no choice is completely messed up, I hope VAD is available for dementia patients in Australia in the near future because I certainly wouldn’t want to go out this way, it’s very cruel, it’s far from beautiful.
Retired into the Australian Capital Territory for the last 25 years. We have been dealing with my cabbage body for the last 40 years now. Your comment, this video etc are needed and valued, in this education process. Hopefully our various Australian organizations will improve these End Of Life processes.
i was not prepared.. i feel stupid i didnt understand it was going to end so quickly yet looking back in the last 6months it was clear i just didnt understand or realise the sudeness from not eating,, not drinking,,, eyes not opening...the death rattle :( wish i had prepared more for the signs.
My mom is 79 years old and was diagnosed with Alzheimer’s in 2017. During the last couple years she has declined drastically. Within the last 6 months she has gotten scared to walk down stairs, sit, and leans either to one side or backwards when walking. She also has rigid arms and closes her fist very tight. Her speech is garbled and no more than a few words a day at max. I’m trying to determine what stage she is at, from what i have read online it seems like last stage. Thank you
My moms mother has dementia and is now since really bad, now asking for her long dead husband. Even though I don’t know her very well, it’s scary to hear the conversation my mom has with her on the phone. And it makes it scarier that every female on my mom’s side that she knows of has had dementia. So me and her likely will too..
Dragon Drawings This is a worry I have too as my Grandmother and Mother both had Alzheimer's. I had 3 days in hospital age 58 with Transient Global Amnesia but thankfully it was a one-off. Am now 65 yrs old. My mother showed Alz symptoms from about age 81. The first sign was that she started walking, leaning over to one side and that got a lot worse so she needed a frame to walk with.
Please please please watch Dr. Berg's videos on health and nutrition. You will be surprised at what vitamin deficiencies and foods can cause in a person's body. My mother's side has all kinds of different dementias but they all had terrible lifestyles that may have contributed. I am fighting it right now. I am 54 and will do my best to keep myself healthy. Watching my mom suffer with this disease is just heartbreaking. God Bless!!
My father died with vascular dementia.For me its worst than cancer.Now my mother has the same thing.😢.She is getting more sick and Im becoming more scared.I feared my fathers death.But for some reason its like i have this strange fear that im alone in the world.I have know other way of explaining my fear Its horrible.I never thought I would be going through this for the second time.😢😢😢
My dad passed with Dementia during C19. He had a litany of health conditions and my nephew told me how he was going downhill. I see this video and I understand the process. What do I do if I’m next in line for dementia since i already have PTSD, cognitive impairment and memory loss?
Very good questions. Not being alive, is the standard part of every "life". Hopefully this video, comments and others, will help better educate myself and others here. Now intending to create more educational material in these areas.
I’m sorry your mother is also suffering from this disease. May you both find courage and peace to deal with all that comes with this illness. My mum is soon to grow her wings - I pray for her freedom soon. God bless, Jo ❤️
Im trying to be aware of whats coming but I just dont know how to prepare myself for her death.I feel like I dont know how to be prepared.All i know is im scared😢😢😢
I do have a comment. My mother was hospitalized for ....UTI yeast. Not uncommon but still, and because our governor banned hospital visitation, I had no way to feed her. She may not have eaten during her stay. But more so upon coming home is that she is not pushing out BMs. I have had to sort of help get the BM out... its caused some issues. Is this part of dying?
Not necessarily but without a medical assessment I can not say. Constipation is common in older people - Possibly add some high fibre to her diet, increase fluids, and consider medications that may be contributing to this. Prune or pear juice is a natural laxative but I would want to have her checked. Sorry you are having to go though this with your mum x
Perhaps he doesn't want people staring at him during possible death throes while he makes his exit, and letting this final memory of him be the strongest one, and possibly traumatic, overshadowing all the good memories of his life. I'm with him on that.
@@helenpearson7782 My comment was as an old person who has lost already the significant people in his life and who expects to die unlamented and unwept over anyways. Young people probably would want their loved ones close at hand for reassurance, out of fear of dying.
I pray that God will send His angels to minister to those who are at the end of their life in this body and help them to pass over peacefully amen .God is good He sent His only begotten Son to die for the Sin of the world and He overcame death so that we may have eternal life.
What you need to do my friends is get 5010 mil sleeping tablets get repaired for your old age now You can just go bad with a bottle of wine with 50 sleeping tablets and you will be on the other side quicker than you think Amen
My mothers hands got cold, eyes got glassy and she stopped talking completely. Her breathing started to get shallow, and we could see her chest going up and down. She had a little rattle in the back of her throat that she couldnt cough up. She passed 2 hours later with me holding her hand. I was her only caregiver for 10 years, and still was not prepared for this grief. I miss my mommy.
My heart goes out to you
Sending warm hugs to you🤗
💔😥
My mom had lots of sleeplessness at the end.........she was having visions and talking to people. It would take me 2 hours to feed her, she had difficulty swallowing. Even though she was eating, she dropped a lot of weight and got very weak. I was her only caregiver for 4 1/2 years. She was 93 years old when she passed.. It was hard work, but I always felt blessed to be caring for her. Yes, I saw the end was near, but was still in shock and devastated when she passed. It was later, when reflecting on prior experiences in my life, that I realized it was somewhat in preparation for this huge responsibility. Thank you Lord for giving me the opportunity,.♥♥♥
I am losing my mother right now. She is 93 and I'm next to her in the hospital. We said goodbye yesterday.....
My dad is 80, he's been in a nursing home for 2 years. He stopped eating normal food and has been fed baby food now for 18 so months. My mom and I had to put him in a nursing home because he had 4 falls in 3 weeks and we couldnt pick him up, we had to keep calling the fire department. He also stopped walking, so we knew that was the end. He hasnt said anything but single words to us in 18 months, he looks frail...his hands are cold. He lost control of his bowels 2.5 years ago, he hasn't walked in 2 years. He can't even feed himself. I just wish it would end? I hate seeing him like this but I don't want him to die. It's so sad, from everything ive read he's at the final stage of dementia. He doesn't have any other conditions though, although it sounds as if those could happen quickly. They keep lowering his xanax dose at the nursing home, I assume because he's sleeping far too much. I don't know, I don't know who to talk to...I know he won't get better, Im just sad. He was my best friend for most of my life. He was a great dad and I wish I could have him back but I know I cant. Im sorry for writing so much. :( thanks for the video.
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God bless you and your family. Sometimes we just have to let go because they’ll be no more suffering and that’s what you have to remember. And if you believe in God in heaven your father will feel wonderful I just said a prayer for you and your family.
Same with my dad. Sadly died 2 years ago. I miss him so much.
You don't have to put your father in a nursing home. Medicare will pay for in home care. My parent's biggest fear is a nusing home, so we are currently hiring in home care.
My 95 year old mother spent the last 4 months of her life in a Care Home. She had been living on her own for the last 32 years since dad died. Mother was never ill whilst in her own home, but she got a chest infection in December 2022 and went downhill rapidly. Refusing to eat or drink, uncommunicative and bedbound. Mother had not spoken or opened her eyes for days and we were told that she was on palliative care. On December 30 , we were at her bedside and mother received the Last Rites-she was a strongly religious woman- and an injection to relieve her terminal agitation. Within 2 hours of these actions, mother had passed away. It was a relief and a blessing to have been with her on her final journey.
I saved this video a long time ago and forgot to watch it before my mom passed last week from dementia. I had ready many books on the end of life, but nothing remotely prepared me for the unsettling experience that it was. I hope it was more of an outlier situation and that other people have a more peaceful time.
I am currently caring for my husband with dementia and untreatable prostate cancer. He is on Hospice and during the nurse's visit today we discussed he was possibly beginning his transitioning. I worked as a caregiver for over 30 years and have seen many people pass away. I am learning it is much different when it comes to your own loved one. Praying for a smooth and peaceful transition although his presence will surely be missed.
My thoughts and prayers are with you at this difficult time x 💔
I am 100% against euthanasia because the government/state has absolutely NO business getting involved in such a thing….HOWEVER…I fully support any individual who chooses suicide to avoid going through the horrific indignities and suffering that afflictions like dementia, cancer, etc., can cause.
In my personal case, here in Australia, my euthanasia will be an openly declared NILL BY MOUTH. Assuming that my dementia is able to decide this, at that time of my decline.
Slippery slope, because government & insurance will get involved.
Where there is money.They are involved.
I have no intention to live like this. I will not live not knowing what happened to me. There r many states and countries that will do it for you
@@ohkay7418
One can do it to themself. Why involve the government or the state? Those entities should stay out of people’s business.That’s why I left the United States and moved to the Dominican Republic and obtained citizenship.
Here in the DR it’s legal to buy any drug except opioids over the counter. If I wanted to end it, I’d buy barbiturates and take them at a time and place selected by me. That’s freedom, TRUE freedom.
My mother died age 95 on 2nd March 2023. She was bedbound for the last 3 weeks, having acquired a UTI and bowel obstruction. She was not able to express where her pain was and stopped eating and drinking. She did have terminal lucidity 3 days before she died, when she could talk and laugh and engage in conversation but she quickly declined again and started sleeping all the time. When her breathing became fast and shallow, the Nursing Home called the Dr and morphine was administered. She went unconscious and died 20 mins later. Rest in peace Mum. Love you
So deeply sorry for your loss. There is no substitute for a mother and when we lose them, it is a loss like no other. Rest in Peace to our Mums x
@@Brain_and_Beyond Thank you so very much for your condolences 😍😍😍
I'm so sorry for your loss. My mom passed 3 months after a stroke just as you describe. We had no idea she had dementia. She's no longer suffering but it was so painful to see her decline.
Finally a few answers to my questions. My da died march 15th 2021 I was his full time caregiver. Left my job to care for him. He had Deminta with other health issues. His death came so fast. With in 2 weeks. He just went down hill fast I never left his room but to go to the bathroom or sleep In my bed for a hour or 2 at night. My sister came down from Alaska tried to get me to rest and leave his room. I did get a little extra sleep while she watched over him. Just seeing him dying and knowing I could not fix him or heal him. I kept blaming my self for every little thing. He should not be taking this much liquid morphine like they want me to give him. He needs to wake up and drink something or eat I should have wake him and try to see if he can eat jello. Why is his body changing , what am I doing wrong. Then the day he died, I lost my mind could not stop cracking jokes I had so much peace, but when everyone was gone and the service was over and I come back home to his half empty room. My heart died and I can't breath. I wanted to go dig him up and bring him home. Questions about the changes that he went through the last 3 days of his life have bothered me then I saw this viedo, you answered. Gave me a little more peace. Thank you!
I am so so sorry for your loss. I know that morbid feeling of wanting to go bring them back home. It is so painful and distressing. Is there anything I can do to help you. Your message hurts my heart. Have you got support? 💕
Watching my father die from dementia was the worst thing ever. He lasted 12 days with no water, no food before he finally slipped away. He was basically skin over the bone by the end, did not even look like dad.
My wife has been keeping my cabbage body alive ever since she expressed interest caring for me, 32 years ago. So we married 30 years ago, Australia. ❤️
Thank you for your comment here.
When my NIL BY MOUTH euthanasia time arrives, we expect my skin contact with the bedsheets to need Moisturizer, etc.
Not sure if my bowel and bladder will have the contents coming out. When that happens, how often should the diapers be changed, of ever?
We assume that fresh air and deodorant are needed, to hide the body odor?
As a carer for my mother in this situation - this is a Beautiful video - Thank you 🙏
My mom is going through these last stages . I agree on being aware of what’s coming
You and me both
@@Marine_That_Loves_Jesus
My mom died july 9
@@yeseniasolis4042 I'm so sorry
@@yeseniasolis4042 I’m so sorry for your loss….my mom is very close … final days. I hope you are doing ok. 🙏
I do believe my beloved Mom is moving into this stage very upsetting and hurtful.
my mother is enter the end stage of her life, shes stopped eating and cant stand on her own. The doctors are taking her off her medications this week. this video helped alot with my expectations of whats to come, thank you
My mom fully transitioned on the 16th this month and I’m just trying to understand her last moment. She had a burst of energy two weeks before her death we thought she was getting better.
That happens a lot 😢
@@8964michelle she was discharged from hospice and was trying to walk, she gained weight we was so excited we tried to get her physical therapy restarted but the nurses knew what was happening but didn’t have the heart to tell us. Then with the snap of your fingers she declined so fast we realized what was happening and the nurse’s confirmed it.
Wow, that is an interesting turn of events. Sorry for the loss of your mom. I haven’t heard of someone seemingly getting better like that and then going downhill shortly thereafter. My grandpa is currently in the end stage of his life with dementia and he’s exhibiting all of the symptoms discussed in this video. He became very restless and agitated and started acting erratically, which resulted in several bad falls and he hit his head. It’s hard to watch someone go through that. He has slowly declined over the last several years
As a nurse aid I have witnessed this many times and cringe when the family wants physical therapy. But I think of it this way maybe it is God's way of having the last couple of weeks enjoying life and family. Last shout before passing over. Saw this with my own sister it is heartbreaking.
Undergoing this end of life phase now, myself.
Very surprised that there is so much taboo on terminal lucidity, still.
Wondering how that might appear, when it happens to my current cabbage body. My mind is not yet a cabbage.
My Dad passed away 3 weeks ago. While he did not have dementia, I wish I had seen this video a couple of months ago. Thank you 🙏
Thank you. My dad is close and I really appreciate you letting me know what to look for.
It is such a difficult time. Love and strength to you and your family.
(Have a look at part 2 - I made the second video after mum passed and clarified some things.)
Just be with your Dad and know that this is a moment of transformation. It’s not the end - your Dad will be free from the chains of this earthly prison soon and you will be together and reunited in some other form one day. He will always be with you.
Lots of love, Jo
Mine too...he's in hospital now. He has lewy body disease and had a fall which landed him in hospital. I cant cope with his facial expressions, slumped body. 😭
I just want to say in this message to each and everyone one of you's that I am terribly sorry for your heartfelt loss. I am glad like many of you that your love ones are no longer suffering. But, sad because you have loss someone that meant a great deal to you! It probably never gets easier as the days, weeks and years pass as you no longer have that person along side you in the flesh sharing moments of life together. Rest assure that spirits of your love ones are always around watching and loving you from a far. They are thankful for you taking this unfortunate and brutal journey with them. This is a beast of a disease. I am sorry that your innocent family members had to encounter this. I know this first hand cause I am on this journey with my 83 year old mom right now and I am scared as hell. I want to hug you all! Thank you for sharing. May your love ones rest in peace. May god bless them and all of you's as well.
In the same boat with my mother. She is 84. We're in the last stages for sure. Not sure how long we will have her, but I feel it will not be more than a year. God be with you and your family.
My mum was 90 when she passed away after a long, hard, road due to breaking her hip. It was a great honour to be with her in the last days
Here in the UK the drug Donepezil is prescribed automatically with a dementia diagnosis . 2 of the main side affects of this drug are UTI’s and dizziness. The UTI’s are automatically treated with drugs that are anticholinergics ( bock the transmission of the neurotransmitter Acetylcholine) which increase dementia symptoms. Add to this the falls from dizzy spells and you have a compounded problem. This happened to my Dad. 2 years of falls and constant UTI’s. I took him off the drug. His urinary problems and falls cleared up and his dementia is the same as when he was on this drug. Our western system of medicine leaves a lot to be desired
I am so glad that I read your post. My mom was also prescribed Donepezil. She was having nightmares and up several times a night wandering the house. She was also falling a lot. I researched it and found that it is side effects from Donepezil. She also has a uti, which I didn't know was a side effect until I read your post. I took her off the meds and got her to the doctor for antibiotics. She is still healing from uti, but nightmares and wandering stopped. She is in the end stages of vascular dementia. I now do everything for her. I feel so badly for her and for anyone who has this horrible disease. Dementia takes a toll on its victims and their loved ones. Love to you ❤
Thank you for this information, it is better to have some idea of what may occur in this process. My brother and I found one consistency in caring for our mom and her Dementia, it is consistently inconsistent. (He and I are 24/7 caregivers in her home since Jan 2019 when our dad unexpected passed away). It is truly heartbreaking watching a parent go through this process.
Sending you my love and prayers for strength and peace as it is truly a heart breaking and challenging road for caregivers. x Jo
@@Brain_and_Beyond Thank you so much.
thank you so much for this video, i just lost my sister September 10th 2021, she had vascular dementia , her health deteriorated to the point that she couldn't talk . walk. all she could do is make us understand in sign language what she wanted, i played all the hymns she loved to listen , and told her how much i loved her and if she wanted to go she could leave, a few days before she passed i told her and she started to cry,,i was her care giver, as a brother, its so hard for me to day to even write this, as i saw this beautiful woman detained , she was 77 years and 10 months old when she died,,,,
My deepest sympathies for your loss...my mother was diagnosed with dementia earlier this year. She has rapidly declined and has been hospitalized. Today we were told she has difficulty breathing. I've just come across this video to understand what is happening and I read your comment. Thank you for sharing your sister's story and again I'm so sorry for your loss.
@@winterblommetjie this video was so helpful;; to me to come to terms of me being the caregiver for my sister, to know that i did everything what was told in this video, my sister was in a christian long term care place, and they advice me to follow up with getting her finances in place, even try to get the funeral arrangement done in advance, try to play the music she like to liesen , and let her know if she want to go , that she doesn't have to hold on, the last 3 months seen my sister dying has been so horrible for me, its a slow good buy,, as a caregiver all you have is these horrible memorises to hold on to,, i am glad i did everything for her till the last, and please try to be there for your mother, she does not have a voice so you have to be her voice, and see that she is taken good care , by visiting her daily, that what i did,,, and believe me when i tell you that i have nothing but a peace of mind that i did everything for her, ,,,,.....this is a very long hard journey for you ,, try to get the help you need even counselling,, i hope that these tips will help you in your long journey in caring for your mother,,
Best video on this topic I've seen, thankyou for your experience and wisdom . My mom has all of the above symptoms and you have made it clear but comforting.
My Dad (stepdad, but to me he's my Dad) is suffering from White Matter Disease, and the changes are coming very fast now. He's 93. He broke his back two years ago when a small tree fell on him, and he's absolutely convinced that incident put him on a downhill slide physically. His personality has changed completely, and he has become a very unpleasant person. He doesn't remember so many things, and he lies now--which he never did before. It feels like Papa has died, and this other, new person has taken his place.
This is all very painful, but we're going to take care of him at home until the end if possible. He deserves that. He was a great Dad.
Thank you for this informative video. I recognize a lot of what you talked about in my Papa.
I have no intention of living like this. I will not live not knowing that has happened to me
Thank You for giving a high level of understanding.
My mom died on July 9 /21 in 4 days she started to having hard time breathing and on the 4 th day she went home with Jesus .
I lost my father due to dementia on 6th of May 2022 his decline was sudden and rapid starting from 22nd April till 6th of May 2022, though he was diagnosed with lewy body dementia the previous year I expected that he would live more 5-10 healthy years with it but in vain. I used to read the comments here before he passed away and his symptoms corroborated the comments and the video content, I was numb and helpless eventually after 3 days he passed away due to congestive heart failure and pleural effusion with edema of hands and feet. God forbid this disease to anyone it is worse than cancer, unbearable to see the last moments he used to crawl in the floor disoriented with shortness of breath, glassy teary eyed unresponsive to the environment.. I Believe he's in a better place now far away from the misery he suffered during his final days... Rest and Live in peace Detto 💖💖💖 from your Son Kaustav, your Daughter in law Parishmita and your Beloved Dog Bella...
Rest in peace to your dad, and my condolences to you and your family. 💜 I fear my mother at the age of 66, is going through this right now. I am scared and in denial. 🥺
Kaustav Iam so sad to hear of your loss of your dear father.My dear husband of 38 yrs died 25 Aug 23 from Lewy Body Dementia.Those very 3 words send chills thru my body.It is a cruel disease.Miss my hubby so much.😢
@@jbligengirlsad to know, is she reviving?
@kaustavdas1109 She is doing "well" right now. The doctor just told me recently to enjoy this time with her, because this is the end of her story, as she is in the advanced/severe stage. This was extremely upsetting for me because when I look at her, I don't see someone who's at the end. I'm devastated, but I'm doing my best to continue to care for her the best I can, and show her that I love her so much.💔
@@jbligengirl glad to hear that. Spend as much time with her, for this will the memories to cherish forever.
I’m 45 and have suffered from anorexia and depression for 28+ years. I am having a terrible time dealing with my dad (85) who is in the end stages. I don’t know how I am going to be able to handle him dying. I am so scared. 😢
My dear friend he is not going to die there isn't no such thing as death it's a birth he is going home there will be family and loved ones who passed before him waiting to take him to the next world God-bless you
God help 🙏❤
Hold on tight to your happy memories and take comfort from them. Your loved one will always be in your heart.
Big hugs, love and prayers
Delia UK❤
I wonder how many of us entertain the thought or possibility of self dementia in our lives I'm sure we all visit that realm of consciousness . You are a charming speaker I am glad I stopped by here to listen to the basic realities ' because we truly never know regarding ourselves and others in our lives . I once visited an end of life facility it certainly was a wake up call and became a reality of mind ever since. It left me slightly shocked but definitely created an awareness of reality that I visit in thought at least a few times per month over the last 30 years ; since that day I visited that facility.
Beautiful comments about death at the end of the video; thank you.
My mother has vascular dementia,but apart from that she is physically fine ,apart from a small bed sore on her lower back,she sings loudly and repeats herself a lot,I am in a state of pure misery,with a sense of utter helplessness,my father wants her to end,he has had her put on a morphine injection unit,because he wants a quiet life,he decides everything as he is her next of kin,they made her come of olanzipan 3times and go cold turkey,stopping it immediately,that's why she hasn't been able to eat as her tongues swollen each time!he doesn't care,I believe he's told the district nurse a pack of lies about her condition!what can I do?!!!!!!!she is now almost continually unconscious!I feel it's wrong giving her the morphine!I am crying as I write this,she is my best friend and is the only one that gave me unconditional love,I am finished!my heart goes out to all of you that have lost or are losing a loved one,bless you all Marc.
I just don't know. My husband progressed slowly for 3 years, right after being diagnosed with dementia. In the last 3 months his mental decline has been rapid and noticed by everyone. He is extreemely paranoid. He cannot articulate thoughts. He needs help with most everything. He does dress himself, but it takes an hour to make a decision. It is taking almost every minute of every day to care for him. I don't know if he is considered in last stages. I was recently gone from the house for 2 weeks having neck surgery. The family members that stayed with him were yelled at and distrusted. He thought i had died or left him. It is just exhasting.
I feel for you Vicki. It is such a hard road to travel and I hate that you have to go through this with your husband. It truly is exhausting. The life of a caregiver!!! Make sure you find time for yourself and never feel guilty for putting your needs ahead of your husband. It really is critical that you do whatever you need to do to take care of YOU too. Sending you my heartfelt prayers for some relief, rest and peace. ~ Jo
Here in Australia, my cabbage body of the last 40 years had had the last 30 years being cared by a kind woman, now my wife.
My body is similar to a babies body.
Hopefully when my mind and emotions become also cabbage, we will be better prepared for this.
Your comment and this RUclips production is helping is prepare for our future.
The video is helpful. Unfortunately, for me it comes too late as my husband passed last November. He had the restlessness and hallucinations in the weeks prior to death.
I did not understand and thought it was just a new phase of dementia. I wish I had more patience at that time. But I kept going and he was able to remain at home with the family and his beloved dog.
So deeply sorry for your loss. Remember we do the best we can with what we have at the time. It’s all we can ever do and it’s more than enough. Lots of love to you ♥️
My mom has had hallucinations for about 8 months .
@@yeseniasolis4042 So sorry to hear this - it must be so hard to see your Mum going through this. How are you coping?
@@Brain_and_Beyond
Very heart breaking because I feel helpless. My mom is very healthy her body and who knows how long she will live with this ugly illness. My emotions are like waves 🌊 never the same , sometimes I am strong sometimes I am so sad I cry for days .
@@yeseniasolis4042 I am so deeply sorry you and you’re Mum are going through this. It hurts me to read your comment because I know those feelings. I always wanted mum to be free - until she was! So many confusing, painful and conflicting emotions. I’m here if I can help x
Thank you for this, bless you and your Mum
Thank you. Mum passed soon after I made this. Thanks for your blessings 💕
@@Brain_and_Beyond I’m so sorry! I believe my daddy is advancing. Thank you this video helped.
Thank you for this video my mother died from dementia 1-19-23 she told me she could not swallow eventually she could not eat for about three weeks like the other comment she was skin over bones and didn't look like herself at all this video helped me understand why and the comment that I was not the only one thanks to both of you I feel much better now👃👃👃
This happened to my grandma. I wish I had more time with her. I miss her dearly.
Thank you. I'm watching BOTH parents (since 2016) now dying from their different dementias. Dad-vascular & cancer has lost a HUGE amt of weight recently & his breathing has changed! Mom (age-related dementia) who was ok, but still in end stage, seems to have declined rapidly at the same time lately...altho' she's not bed-bound as dad is, she just is "gone" lately, to my great sadness! Dad's not known me since 2020, but I still had mom which kept me going. Now, I am watching both dying seemingly together (which after 65+ yrs of marriage I pray they do go together). But oh my! ONLY 1 friend & I have seen them every week (me, from 5-7x's/wk at 1st when they knew me, to 3+x's/wk, & now they're so "gone" 2-3x's/wk as I ALWAYS have an emotional breakdown after seeing them that takes a day to recover from, b4 I can go back), no1 else, & I am 100% disabled & started as their PoA & only child 7 approx. yrs ago (feels like 100!)...& it feels like I'm dying with them this past yr! I can barely function or do much of anything anymore. Strangely, I started planting veggies (never being a gardener b4), & watching my seeds come to life has strangely given me a TINY bit of joy, as I cry daily watching mom & dad dying. I HATE this disease! It is so cruel! If you have siblings, children, etc., w/you, count your blessings. I'm going thru this SO ALONE! It is horrific! Thank you for this video. God bless all who are watching their loved one(s) dying too.
My heart hurts for you. I am so sorry you are going through this.
I also started gardening recently (I am not very good at it) but I like watching the plants grow and produce flowers or fruit. I feel my Mum's spirt in the butterflies that visit and the breeze that touches my face. I, like you, have no friends and prefer to be alone. But I am not lonely. That's just my preference. If you are not already in my facebook group for carers, come join me there. We all look out for each other and we all understand. You don't have to be alone. x
facebook.com/groups/FTDsupport
I sm not on Facebook unfortunately. I just don't have time. But thank you for your caring response. It helps. I just try to go 1 day @ a time. I'll be keeping you in my prayers. Thank you & my heart is with you. I'm very sorry for your loss.
I have 2 siblings but no help. I understand your pain. I am losing my mom to dementia and my 87 yr old dad is nearly deaf and blind and has horrible arthritis and barely moves. It is hard to be the parent of my parents. I feel like they are my children. I am not trying to be funny, I am serious. It is hard caring for 2 but you my friend have it very hard. You are now added to my prayers.
You are great and thanks for creating this video. my dad is unconscious for 3 days now. But due to covid doctors don't allow us to stay beside him. so sad...
What I discovered is that by the time I discovered an elderly friend of mine was badly emaciated, he likely developed dementia through prolonged malnutrition
Plus, another thing people are discovering is if your brain doesn't have enough of a certain type of fat to function, it'll malfunction.
It's been discovered that cholesterol lowering drugs can only be used for a certain amount of time before it starts harming your brain. Cholesterol can only be lowered so far before it affects your brain, causing your brain to malfunction. Don't take those cholesterol lowering drugs for too long , only use them for a very short time and then get off of them, even if you must bypass the doctor and just quit taking them
Some patients have discovered their doctors don't really care about them if they're screaming at their patients as a way to try and control them. Sometimes, you'll find that doctors care more about money than they do about the health and well-being of their patients, and even the patients themselves.
If you get a GOOD doctor, KEEP them and TREAT THEM WELL
Much appreciation for this information.
Thank you!
I'm the primary caregiver of my nearly 84 year old grandmother whom I call Grammy..I HATE Alzheimer's. It's heartbreaking.
My mom is going threw this she in her late Age of the 80 her dementia is getting worse and I feel sad for her I wish I could do more for her and she in the last stage of her dementia and she has good days and bad days my god bless her and I understand she is gods hands
My grandma is dying now my heart is broken seeing her leaving us oh god
Great information. Thank you.
My mom is at this stage. She was active, good health and had the best appetite. Three weeks ago she stopped eating and changed into a totally different person. Stopped speaking, only drinking liquids. Her decline has been quick and not stopping. For the past three nights she has been having headaches and screams out in pain. Could it be because of dehydration and not eating? She has no other symptoms but it is concerning since she had 3 previous strokes before dementia took over. These headaches has only been at night. My sister has been sleeping in her room with the fan on, but I told her mom does not like the fan, so she will keep it off and see if there is a change.
Two years since this comment was posted.
The mother had strokes, which then caused headaches. Headaches are expected after strokes and traumatic brain injury.
With my severe Traumatic Brain Injury for the past 40 years here in Australia, I have learnt hour to avoid the headaches. Sleep, as soon as the headache symptoms appear.
We my cabbage body affected my brain, with my age now, hopefully the headaches will not return.
Since working in aged care i can honestly say watching someone slowly decline and then die slowly becoming bed bound with bed sores etc allowing this to happen to someone with no choice is completely messed up, I hope VAD is available for dementia patients in Australia in the near future because I certainly wouldn’t want to go out this way, it’s very cruel, it’s far from beautiful.
Retired into the Australian Capital Territory for the last 25 years. We have been dealing with my cabbage body for the last 40 years now.
Your comment, this video etc are needed and valued, in this education process.
Hopefully our various Australian organizations will improve these End Of Life processes.
At this time, my mom has these systems. Very useful information.
My fiance's grandma is no longer eating or drinking. She still recognises people and has her personality. It is hard for us to understand.
I’m sorry to hear this. Peace and strength to you and your fiancée.
My husband was a doctor and he once told me it was a relatively peaceful way to die, two years ago, he passed away that way.
Euthanasia, using the Nil By Mouth method. My current cabbage body will choose that way of exciting, when my brain starts to turn to cabbage.
i was not prepared.. i feel stupid i didnt understand it was going to end so quickly yet looking back in the last 6months it was clear i just didnt understand or realise the sudeness from not eating,, not drinking,,, eyes not opening...the death rattle :( wish i had prepared more for the signs.
My Dad in 2018, my Grandmother today😭
I’m so sorry for your losses 😥
My mom is 79 years old and was diagnosed with Alzheimer’s in 2017. During the last couple years she has declined drastically. Within the last 6 months she has gotten scared to walk down stairs, sit, and leans either to one side or backwards when walking. She also has rigid arms and closes her fist very tight. Her speech is garbled and no more than a few words a day at max. I’m trying to determine what stage she is at, from what i have read online it seems like last stage. Thank you
Sounds like she had had at least one stroke. My car accident 40 years ago, here in Australia, created these same symptoms.
My moms mother has dementia and is now since really bad, now asking for her long dead husband. Even though I don’t know her very well, it’s scary to hear the conversation my mom has with her on the phone. And it makes it scarier that every female on my mom’s side that she knows of has had dementia. So me and her likely will too..
Dragon Drawings This is a worry I have too as my Grandmother and Mother both had Alzheimer's. I had 3 days in hospital age 58 with Transient Global Amnesia but thankfully it was a one-off. Am now 65 yrs old. My mother showed Alz symptoms from about age 81. The first sign was that she started walking, leaning over to one side and that got a lot worse so she needed a frame to walk with.
Please please please watch Dr. Berg's videos on health and nutrition. You will be surprised at what vitamin deficiencies and foods can cause in a person's body. My mother's side has all kinds of different dementias but they all had terrible lifestyles that may have contributed. I am fighting it right now. I am 54 and will do my best to keep myself healthy. Watching my mom suffer with this disease is just heartbreaking. God Bless!!
@@rachaelstephens209 very good to know! I will take a look, cause dementia is another of my bigger fears
@@DragonDrawingsMightyE-Lord I truly hope it helps. 🙏
My father 80 yrs ols is at early stage of dementia, at times accuse me of stwaling his gold etc. He is still able yo walk, eat n bath himself.
My father died with vascular dementia.For me its worst than cancer.Now my mother has the same thing.😢.She is getting more sick and Im becoming more scared.I feared my fathers death.But for some reason its like i have this strange fear that im alone in the world.I have know other way of explaining my fear
Its horrible.I never thought I would be going through this for the second time.😢😢😢
Thank you, it’s so on point
Thank you for your comment and sorry for your experience that possibly bought you here 🙏
My pa is going through this and we are close , was told not to call the home because he’s not the best on the phone and I’m not ready to say goodbye
how long does agonal breathing last?
My dad passed with Dementia during C19. He had a litany of health conditions and my nephew told me how he was going downhill. I see this video and I understand the process. What do I do if I’m next in line for dementia since i already have PTSD, cognitive impairment and memory loss?
Very good questions. Not being alive, is the standard part of every "life".
Hopefully this video, comments and others, will help better educate myself and others here.
Now intending to create more educational material in these areas.
Thank you xx
You are so welcome
They are not transitioning to the next life. They die. Ecclesiastes
9 :5-6.
Madam what about your mother health? Please tell me, my mother also suffering for ftd for last 10 year.
I’m sorry your mother is also suffering from this disease. May you both find courage and peace to deal with all that comes with this illness. My mum is soon to grow her wings - I pray for her freedom soon. God bless, Jo ❤️
Im trying to be aware of whats coming but I just dont know how to prepare myself for her death.I feel like I dont know how to be prepared.All i know is im scared😢😢😢
My dad is also going through the end of life prosses 😥🙏 xx
How do we find the Facebook page?
facebook.com/groups/FTDsupport
Frontotemporal Dementia (FTD) Support Group Australia (and beyond!)
Hope that helps : )
Jo
I do have a comment. My mother was hospitalized for ....UTI yeast. Not uncommon but still, and because our governor banned hospital visitation, I had no way to feed her. She may not have eaten during her stay. But more so upon coming home is that she is not pushing out BMs. I have had to sort of help get the BM out... its caused some issues. Is this part of dying?
Not necessarily but without a medical assessment I can not say. Constipation is common in older people - Possibly add some high fibre to her diet, increase fluids, and consider medications that may be contributing to this. Prune or pear juice is a natural laxative but I would want to have her checked. Sorry you are having to go though this with your mum x
I've seen many people die. None of them have been beautiful experiences,
This is happening to my grandma right now.
She is hooked up on oxygen, and I can’t do anything but watch her suffer…. 💔
This is so hard.
My grandmother is going through the same thing right now, may God give your family strength
Thank you.
My loved one said he wanted to be alone to die. I’m still trying to understand why.
Perhaps he doesn't want people staring at him during possible death throes while he makes his exit, and letting this final memory of him be the strongest one, and possibly traumatic, overshadowing all the good memories of his life. I'm with him on that.
@@stephenvanwoert2447 Thank you from the male point of view. I hadn’t thought of that being a female I would prefer someone to be with me.
@@helenpearson7782 My comment was as an old person who has lost already the significant people in his life and who expects to die unlamented and unwept over anyways. Young people probably would want their loved ones close at hand for reassurance, out of fear of dying.
Nevermind.
I pray that God will send His angels to minister to those who are at the end of their life in this body and help them to pass over peacefully amen
.God is good He sent His only begotten Son to die for the Sin of the world and He overcame death so that we may have eternal life.
My grandma just died from this
Fix your audio, get a video production person to fix it
What you need to do my friends is get 5010 mil sleeping tablets get repaired for your old age now You can just go bad with a bottle of wine with 50 sleeping tablets and you will be on the other side quicker than you think Amen
Sorry, but please throw that mic 🎤 in the garbage it's really not that great. That's the truth !!!!!!
Thanks for the honesty
There is no medicine,but love and attention is all what they need 🥲🙏❤️