My husband has had this horrible disease for 8 years. I have kept him home until recently. I’ve had to start thinking about putting him into a facility. This breaks my heart and if anyone could give me some words of wisdom and or encouragement I would love to hear.
Our family has just put our beautiful mum into full time care, and I have to say, it’s rough in many ways. But as we get to know the staff and the way that the nursing home functions, the more we are realizing what a relief it is. My Dad just can no longer meet the challenges of caring for his wife of nearly 60 years, and with the best will in the world, our family have been doing our best to help him, but we are scattered around Australia, so we’ve done our best to keep her at home, but the time has come for full time care. My advice is to remember that you have limits as a carer, and that getting that professional help is in no way a cop out. At first, it feels awful leaving your loved one with relative strangers, but they know what they’re doing, and there is a real comfort knowing that Mum is being looked after by a team of great people. It’s just a big change. But I would say, a very positive one. I hope you get the help and support you need. Much love to you.
My dad is just going through this with my mum. Lived together for 70 years. Dad has taken this literally day by day because that is the only way he could do it. He is struggling without my mum at home especially at nights. So my brothers and I call him at certain times of the night, before he goes to bed, so he’s got us to chat to during the lonely times. I’m not sure if you have children but that would be nice for them to do. If not, dad also has a few wee hobbies he keeps busy with when he is at home and not with mum. I think for him, it’s just the fact that he knows we are here for him, he’s taking it day by day and just dealing with it. It’s got to be done for their safety ASWELL as yours. It’s not something to feel guilty about either, as it comes down to doing the best for your loved one. And you can go and visit him! Spend more time with him in a rested capacity instead of being his caregiver. I hope you are ok. I am thinking about you and hope that everything works out for you. Just remember, you aren’t alone in this. My dad is going through the very same thing xxxxxxx❤❤
Get support. Surround yourself with people who can give you support or respite because your health will decline if you don’t take care of yourself as well.
My mother in law passed away in my arms 4-3-22 @ 7:35 pm with dementia that a evil disease she had it for 7 years,I feel empty and lost without her I excepted every stage of her life but the last stage number 7 was horrible but I never left her.Please keep her son my husband and I in your prayers.
Sending you so much love. You will forever be a part of the Careblazer family. Thank you for being there for your loved one when they needed you most. 💖
Oh wow! I have a 95 yr old MIL with Lewey Body. I'm her caregiver, and it's not easy. You did a beautiful thing! My MIL and I were not close but I realize now that she had early dementia, we didn't know. Two years ago we brought her to live with us but we didn't know the impact that this disease would have on our lives individually and as a couple. Thank you for sharing.
Thank you I was diagnosed at 60 with Pics and I'm going to be 65 in December and doing pretty well right now. I know now is the time to make plans for my care.
Also search "exercise and dementia"... There are studies that shows exercise helps keep dementia at bay... My mom has dementia so I try to research and see what can prevent dementia...
So sorry wouldn't wish but dementia diagnosis on my worst enemy, I'm a nurse's aide take care of all types of dementia cases. Please don't think I am being cure get a living will, when the time comes go on hospice have that in your will. Long term care facilities even the up scale places are at best adequate. I have dementia contingency plans all set up if this my fate. Enjoy the present as much as you can.
My mom had early onset symptoms in her early 50's (unable to organize her possessions and run her business very effectively). I think she got a formal diagnosis at like 65. She qualified for Medicaid at 68 and now lives in an assisted living facility. She still has trouble feeling like she's at home from time to time. She has good days (outgoing, happy and talkative) and bad days (feeling stressed and agitated, paranoid) but her grasp of reality has slipped a great deal since covid lockdowns. It is hard to prepare for what is coming our way. It sounds terrible but I hope she has a short time at the late stages of this horrible disease.
My mom has vascular dementia. She has been living with me for 8 months, and I just put her into care because I couldn't keep her safe anymore. I agree 100%. She is suffering so much...she does not have a good day. I wish I could offer her the same mercy my own elderly dogs received. It's terrible that our loved ones have to endure so much.
@@chairdewealth1663 how did you pay for the costs my mother has it she does not have her own home not much money in her bank account she fell for a scammer when his dad died and lost a lot of money she just found out this month im lucky my job is afternoons because of the kids husband works mornings and afternoons difficult to get different job around the kids i have health problem RA no problems yet so we fall out can not see i am so ill everyday wants me to work more like she used to be active mum all the time with lupus it is hard to get out of bed and wash my own hair cook dinner cant do gardening lighting does not like me at all. All she does is constantly have Zoom Chats with her lovely son so everyone thinks i do not like have sensitivity isues ie ME sound i know i wont have a fun time when i am her age she is 77 walking around coming in my house when ever they want to wind me up.
My husband has been living with dementia for 10 years now. I pray for his soul to be free from this awful existence. My heart is with all of you who are watching your loved one slowly slip away. ❤
@@chairdewealth1663I agree we are more humane with our own animals 😢my mom has No good days she’s living in a hell and wants to die every day. It has made me so horribly sick and tired absolutely nothing I can do about it
Its comforting to read the comments of so many who still engage in some way with their loved ones, enjoy that engagement, and have so much love. My mom was/is a narcissist, was abusive in different ways when I was child, and has never really changed. I have no desire to be around her for any length of time, and kept a safe distance as an adult. She has alienated her family and has no friends. How ironic that i now had to step in as her only child and help her get to a good assisted living facility, after helping her live alone remotely for over two years. I wish I had the loving the relationship that should exist between a child and mother. The best I can do is try to reduce some of her suffering, because regardless of whatever transpired no one should suffer alone from this horrible disease. That and make sure I have been a proper parent to my kids.
It is good you have stepped up for her, can you forgive her trespasses against you even tho she has not changed, forgiveness sets us free that's why so important in Lords prayer,
@@Christine-j7b Thank you for your kind comment. I have done the work to: 1- forgive myself and understand that all of the negative things had nothing to with me 2- understand this person has a sickness, they are not whole, and forgive them for their behavior and have a degree of empathy for their affliction 3- understand the person has been advised by people there is a problem, and the person is responsible for their own healing. Whatever they choose to do is entirely up to them The issue isnt with those who have been victimized by a narcissist, the issue is with the narcissist, the violator. If they never chose to address the issues they face, and remain toxic not only to others but themselves, those around them have no other choice but to protect themselves in a way that is healthy and avoids being re-victimized. Totally separate from forgiving. As for prayer, its useless without some type of action. Empty words, and thoughts. I believe in a god that expects us to be responsible. That would entail forgiveness, as you mention, but also knowing how to keep ourselves healthy in the face of the negativities life can present at times.
@@ktm4042 Thank you for your detailed reply, I agree , we can't change people they have to be willing to change. I too have had to love and let go to save my own health and well-being from someone that would swallow up my life, if I did not stick to boundaries. I have forgiven them and myself and I understand the trauma they faced as a child has caused a personality disorder that affects their relationships (BPD) it's very sad but I have had to go no contact , tough love.
One thing i wish someone who knows about alzheimers had told me was that when they start going backwards in age Don't think you can explain and catch them up. My mom thought i was her mother. I told her her mom died 50 years ago and I'm her daughter and reminded her of her great grandsons. Boy do i regret that. She looked horrified. I loved her dearly and i just didn't realize what it would be like for her. Once she thought someone on tv had a gun. They had a microphone. Once she thought someone outside was going to kill her. She even once thought i was. This just killed me because i loved her so much. She was my best friend and the best mom. One day she said after eating, I'll never eat again and she didn't. She lived 6 days with no food, no water, not talking, eyes closed. I wet her tongue with a sponge. It was excruciating for me. The nurse said she wasnt suffering but i had my doubts. I miss her every day. It's been almost three years. It was hard. I gave her enemas, i changed her diapers and loved her until the end. I will always love her.
About the end of life stage. Trust the hospice nurses! When they say something is normal at that point, or that at that stage their body knows how to die, they are not uncomfortable - just take a deep breath and trust they know what they are saying. When they quit eating/drinking it is because the body can no longer process those functions.
Dr Natalie I do appreciate your video I do feel bad for our LO just going through Daly confusion pain and suffering don't know what happiness is, very sad life Thank you stay safe
I'm very sorry to hear that you are struggling with fear. I'm reading this 1 year from when you posted so I pray that things are better in some respect. There are so many lessons to learn on how to treat and talk to your parent with dementia that I'm only just now, 2 years later in my case with my mother, beginning to understand. Give yourself a ton of grace because none of us navigate this journey perfectly. Each day is a new opportunity to handle things differently or from a fresh perspective. Sending prayers and hugs your way.
I hope your mom and you managed the time since you left the comment well. My father is almost 80 and I have been his caregiver for 4 years. He is bed ridden meanwhile and sleeps most of the time. But sometimes he has some good moments in the afternoon and even if it is just for some short exchange of words, we still have some memorable times together.
My mother is 101 & went into care this year, she was living on her own & couldn’t manage then her unit was deemed inhabitable so it was a blessing really. She is only taking minimal medication & still strong but her mind has wandered away somewhere which is hard to see.....
Wow, at 101 years old, she's doing great. My mom is 94 and was diagnosed 4 years ago. Her body is strong and healthy, but alas, her mind is not. Blessings!
Please allow me, my late Dad's side didn't know much about Aldzheimers or Hardening Of The Arteries, or even Cholesterol for that matter, and they made "Olde Bones". My late Mother died at 85 with Aldzheimers but the death certificate said Cardiac Arrest! I am 71 and still ride a motorcycle which I also like to drive fast! Unfortunately my wife is struggling with Dementia which was officially diagnosed three years ago! So now I am beginning to think that moving into a retirement home might be a good idea?!
My Mum was dignosed at age 72 with mild Alzheimers. By age 76, she was at a moderate stage and went into Dementia care. By age 78, she was then in an advanced stage, lost her mobility and speech. Now in a severe stage for the last 18 mnths and is 80 next March.
@@tinajohnson9867 Yes she was put on Donepezil. When she lost all mobility and swallowing issues they stopped it. Sadly since this post Mum passed away in March .
I'mma be honest here. It all depends on how you fight it. Its any other diseases. I know it could prevent a long life span. But you can extend it based on how you treat it.
Could you possibly add some context to that, please I'm trying to learn as much as I can my mom is 72 just diagnosed with early dementia, they want her to start a new drugs something to do with blood like it's iv, she only as of now has little memory loss, woukd like to extend her life as long as possible, while I slowly fall apart.
I talk with my mom about her dementia. It gives her a reason for her forgetfulness & calms her down. IS THERE A BOOK THAT PATIENTS CAN READ & HELP HER FEEL MORE INDEPENDENT.
You must enjoy the rest of your day and evening. Thankyou as always for all the information and I can tell you the whole happening is still absolutely a adjustment but I’m glad I came across your short talkings to us, just long enough to digest it!👌
I wonder if anyone saw the movie with Anthony Hopkins, which he just got an Oscar for, called The Father.....I had no idea it was about this disease...it is amazing...touching, sad, but people need to see this...even though it it hurts....the night of the Oscars a lot of celebrities were angry he won, saying he stole the Oscar, he did not deserve it!!!! First, it wasn’t promoted to the public, and obviously these people, being young, have no idea about this disease and how devastating it is for everyone in the family.....
There’s also a movie about dementia called “Still Alice” with Julianne Moore Alec Baldwin Kristen Stewart It’s a good movie…I think it might be on Netflix?
My stepfather, who is abusive, has vascular dementia. That 15 to 20 year possibility just hit me in the gut so hard. Í feel so hopeless for my mother who has no life because she chooses to take of him… I look after him to help her…
My father has dementia. He is 90 and also nearly completely deaf. My 91 year old wheelchair mother considers herself his primary caregiver, although she can barely take care of herself. They are in an independent living situation at a facility with stepped care. He has had this awful disease for about 6 years. She refuses to put him into memory care due to the cost, although she has been asked to by the facility several times. They have some help who comes in a couple of hours a day, but my mother has recently been reported to Adult Protective Services due to neglect of my father. She is going to end up getting him taken and put in a county- run facility if she doesn’t relinquish control, but refuses to. I have durable power of attorney for my father which I may need to activate. A sad situation.
Hey Natalie, I'm not a careblazer, I'm the one with the Alzheimer's and Vascular Dementia! I was diagnosed about 2 years ago with it and I'm on about 15 different medications, a couple of them are for Dementia, but most of them are for other things! I had my first heart attack last year, which I didn't know I was having, I went to the doctors because I didn't feel too great and he hooked me up to the heart monitor and it was fine but they also took blood and I got a phone call in the afternoon to say that I was having a heart attack and to get myself to the hospital right away, and a second heart attack on the 31rst of August there and I had an appointment already with the hospital and had tests to see how much damage was done! This time round my heart was damaged slightly and I'm now waiting on an appointment to go into hospital to get something done about it! This is slightly more, should I say complicated, because of the heart attack, but with that aside, I don't really feel that this Alzheimer's/Dementia is doing much to me at this early stage that is! My husband looks after me and I am 69 years of age, we both are actually, and we do everything together and we read a lot, watch programmes like what's going on with the universe etc,we like things that give us knowledge and we try to stay active as much as possible what with the old age aches and pains that go with that, but regarding the Alzheimer's and Vascular Dementia, how fast do you think it goes at my age?
If you wrote this, you are doing great! Stay very active, exercise using all of your positivity! If you doctor approves, start walking, get very comfortable sneakers.
Vascular dementia progresses faster than other types. I think the average is around five years from diagnosis but varies from person to person. Alzheimer's may be more like an average of 10 years and frontotemporal dementia around 8 years, just to give some comparison. Vascular dementia progresses at a different rate because of the way the brain is affected. With other types of dementia the brain slowly shrinks at due to build up of protein in the brain tissue, and with vascular dementia the brain is damaged more rapidly due to issues with blood vessels. This is an important topic to discuss with your doctor to plan your future care.
I hope you are doing well. Diet and exercise can probably help deter Alzheimer. MCT oil and coconut old might help. Do some research on that. Don't give up!
Mom is 86 and showed symptoms 15 years ago. 4 1/2 years ago is when stage 6/7 began and 7 months ago she no longer can walk and stand. She doesn't remember anything and only repeats a few words now.
Knowing what I know now my wife’s symptoms started really showing up 10 years ago her health has been bad for 30 plus years at times on up to 35 prescriptions at a time she was a heavy smoker had had at least 2 concussions just a case study of bad health . 4 years ago she had a bout of CO2 poisoning 3 days in ICU to bring her back came on a portable vent to keep her oxygen levels in ck but her brain had suffered a set back. Her confusion worsened about 4 months ago back in the ICU same thing blood gases all out of sorts and it’s been rapidly downhill ever since. There are times she can’t hold her body upright she slumps over to the side of her wheelchair or forward and can’t pull her self upright. I’ve caught her picking things up off the floor and try to eat them. She is supposed to keep her life 2000 portable vent on all the time but because she can’t remember what it is she ripes it off and throws it off. She’s been a DNR listed patient for years and when she was still able she made it clear no more ICU trips so I believe that her breathing is going to be her demise. My hands are tied at this point my goal now is to keep her as safe as I can keep her clean and as comfortable as possible.
Thank for all your help on your channel with your suggestions and help. My mom has advanced Parkinsons with dementia and I believe its Dewy dementia too now.
Please, please if you want to help someone who is caring for a dementia patient, please ask them what you can do as in, “I’m not doing anything this morning, can i pick you up something at the store “ or “I can sit with her tomorrow morning is you need time to do something else.” Don’t just go over and do something. They may have made other plans that you will be interfering with (among other things).
Hi Dr Natalie, my sister has Alzheimer's disease diagnosed at age 57, stage 4 in August 2018. She had multiple head injuries over the years and stopped working early. I'm age 63 now and her 24-7 carer, who gave up work 2 years ago to care for her. I'm using my savings to support myself and am exhausted . Sorry I sound selfish and wicked but how long can we estimate her lifespan? Maybe 6 years together, according to some calculations. Thank you.
You don't sound selfish. You sound caring and overwhelmed. My mom died at 82 with alzheimers. I'm 63 and now I have mild alzheimers. I loved my mom dearly. I took care of her at home until she died. I know this is extremely hard. And if your own health is poor, it's worse. Get some family, spiritual or counseling health and advice. Since I know how hard it is, I would rather go to a rest home when I can't care for myself. I can't drive, but other than that I care for myself. God is a great help to me. The answer is in Acts chapter 2. God bless you.
Thank you so much for your help. My mom's got dementia but the doctor won't tell her she thinks everything she sees and hears is real and it's not. She can hardly Drive well other doctors have revoked her driver's license but she continues to get new doctors and have it reinstated through pity. Her providers think she's just having a bad day, but no, those are the days when she's having good days. She continually gets in these rages of anger over nothing, and then she gets so angry, I rent a room from her, I am calling the police and having you removed, you *******, she says to me. She's really unsafe, her hygiene is atrocious but won't let me help! When I go places after cleaning it's like a 6-year-old I come back and she made a big mess because she says, next time maybe you'll hurry it up getting home. If I want to live here with her in this home, I don't know what would become of her. I really need some direction. Lots and lots of medical issues, time in trouble swallowing and breathing as of late. Dear God, I need some help of what I should do. Thank you, Cheryl. and thank you so much, you are so helpful as I am not trained in the medical field at all, and I hold your videos close to my heart, to help me through these tough times.🥰
There's also a support group on Facebook called Molly's Movement (if you're on facebook) They're a great group to get info from. Best of luck to you and your family.
If I am diagnosed with dementia I am checking out the same day. I know I can't wait. I've seen Alzheimer patients and it is horrific beyond words. The fear, paranoia, confusion, anxiety, anguish and pain is beyond description. Not to mention what it does to everyone around you, who care for you. The years drag on. If you have no serious medical issues aside from dementia, you can linger anywhere from five years to twenty. At the end, if a physical ailment doesn't get you, you'll simply forget how to eat and drink. Nurses, doctors, If they are kind, will then let nature take its course, but remember, for nursing homes in particular, you are a cash cow and they will do everything humanly possible to keep you alive. No matter what.
Might not be the same day but real soon after. I know how families suffer when their loved one can’t recognize them. That’s got to be worse than the physical loss of that person.
My mom got frontotemporal dementia at age 64. She had a heart attack at age 62, and got a advanced heart surgery. after that she got back to work to soon. She got burned out, but then she was not “herself” So after a pet scan they said she got ftd. But they also said she had damage in central parts of the brain, is that common? My world fall apart. I’m losing my only family and best friend, When I’m needing her the most. Iam the only child and Only caregiver. I am total burned out and have trauma and ptsd from before and in this process. How could I manage this? Only I this 6 months she has got so much worse. I miss her so much, and this is totally unbearable. I don’t have any family, siblings or father. I am alone in this What should I do? My own live is non existent, I can t work, or take care Of my own home. I don’t feel joy in anything. I’m missing going out and meet people. I can’t focus or even see My favorite series. I am in the mental stage that’s called Crisis. I have a few friends that are my only trust in this. Family are not there for us, they actually “disappearing” How on earth can I handle this? Any tips? How long time Do I have with her? Before she she is “gone” Please, anyone that want to Give me some advice or own experience. I appreciate everything 🙏💝
HI Astral, This is Trisha. Dr. Natali's social media manager. I'm sorry to hear about your situation;. Here is a RUclips video she made that I hope can help you with your situation. 💖 ruclips.net/video/hJb7zZHuSVo/видео.html
Hi Astral, We are so glad you are here as part of this community. Wishing you all the best on your caregiving journey. 💖 Sending you love and strength!
The cause of death is either from the brain, heart or lungs. So in layman's terms, most people die from a stroke, heart attack, pneumonia, or for example a kidney infection that goes septic in blood causes organs to fail. Or a cut gets staph which lives on our skin inside it, in it, but gets infected and turns into a deadly staph infection that gets in blood causes sepsis poison of blood, causes organs to fail. If not treated in time, death may occur. Usually, patient will have high fever, unbearable or just stabbing stomach pain, or cramping, not be able to use restroom, lower stabbing midback pain, may be delirious, pain in calves from lactic acid may need to be blood tested they almost missed sepsis in me once had I not fought for a blood test. I have P.O.T.S. which doesnt show my heart rate elevated sitting down in pain or laying down so they didnt believe me. Few hospitals understand P.O.T.S. or care. It sucks. But it could be life or death. It's an autonomic disease that affects my entire body, and I'm now disabled from it. I was a Funeral Director so I studied alot of anatomy and stages of disease and death. I miss helping people. Earlier in my life I was a CNA, and in high school I volunteered and met with a few elderly people. One lady in particular, I visited even after until she passed away which broke my heart, she had no one. But she opened the first modeling school in Chicago, and met Al Capone!
My mother in law was healthy with alheimers and one day she hurt her toe and just stopped walking when she got out of hospital. After that she was wheelchairs/ bed found for 1.5 years . She ended up with a bedsore and sepsis. If it wasn’t that it would’ve been aspiration pneumonia or choking . She quit eating and we gave her liquids. But she had so much excess stuff “ pocketed” in her mouth
Dementia affects the immune system so the patient is more likely to have another serious illness develop to which they may succumb. However if no other medical conditions then the dementia patients usually die when they stop swallowing well, and inhale matter into the lungs, causing pneumonia. A feeding tube will not prevent this since the patient will still inhale saliva and still gets pneumonia. So the answer to the question is that the dementia patients usually die from pneumonia.
@@Dinngg0 yes that is a excellent point I forgot to mention. Most Parkinsons patients neurological and autonomic systems are basically powering down as the brain cells are dying off. That's why they almost always towards the end choke and cough everytime they eat. The even will have coughing fits and cough up phlegm, and have more problems breathing and sometimes forget how to breathe, or as end up with pneumonia, or COPD.
My 89 y.o. mother was diagnosed with Alzheimer's a few years ago. She has no short-term memory and refuses to take her medication. Hopefully, she's otherwise healthy and in top shape, swims laps every mornings and walks kilometers in the neighborhood without getting lost. She's always hungry an, therefore, eats enough. I'm thinking that maybe she wouldn't live longer in a hospice where she'd be forced medicated but lose her freedom to go out for long walks. I wish she was taking her meds, especially since she becomes upset/ aggressive when reminded... She also doesn't want help from anyone. Nurses do not want to go over her place any longer. I am using very twisted reasons when I want to help her with her laundry or groceries so that she accepts it. Unfortunately, she hasn't planned anything while it was time. One sister is being abusive financially and physically, but I have no legal right to check her finances. My mother's vulnerability to being abused is the main reason i wish she lived in a safer place than her home... I can only witness what will happen next without any legal power to decide for her. In cases similar to my mother's, if your loved one accepts minimum help and is not being abused, staying home until the end is the ideal scenario, even with dementia.
My husband is 63 diagnosed with Ftd firstly then because of bad balance and tremors etc and mri showed borderline Lewy body dementia. His pysic meds were reduced and since then his tremors and balance much improved. He has a long history of bi polar disorder he’s very luicid but his thoughts and observations of situations and people are very much distorted he cannot make decisions or follow instructions has very high levels of anxiety and constantly watches the clock. Are these signs of either of these dementias. 😢
I thought I had dimentia but I didn't, I had ADHD. my father was diagnosed in his 50s...that's when mine started. My dad is in his late 80s now. He walks around just fine without assistance or anything else. I think my father was misdiagnosed with dimentia when he really had ADHD. He has age related dimentia now but all these years he had ADHD not dimentia.
I got a brain mri in 2007 for some balance issues, I was told I had a few mini strokes but also had some white stuff in my brain, early stages dementia, that was 14 years ago, since then I have smoked cannabis everyday and it appears to help with my confusion and memory, I was wondering has anyone else has tried cannabis for their condition and at what point should I get anoher brain mri to see the progression of the condition, I was consuled by 2 PCP about sending my prognosis to the DMV, so I stopped even talking about my condition and fired the last one who threatened me about the dmv......
Is it good to have a early stage person to watch your videos to quickly educate them?? So they will better understand needed treatment and living changes
My mom was diagnosed with dementia 3 years ago when she was 80. She turns 83 in September. She lives in a nursing home with memory care. One doctor thinks she may have lewy body. I visited her today and for the first time she couldn't remember my name. It broke my heart. Does this mean she has processed to serve stage now?
My husbands diagnosis after pet scan was lewy body variant of Alzheimer's. I would like to hear how you define this. His Dr.did her best but i am still confused. Thank you and thank you for being here.
Hello Careblazers, I have posted a comment before however I have more questions. My mother, who is 67 now was diagnosed with dementia about 2years ago. My family & I have been learning how to care give for her. I have studied psychology/human behavior and now the doctors are doing more tests on her brain to rule out that she has dementia. The symptoms that my mother has points towards dementia. I wanted to know what else is there that has the same symptoms of dementia? I've researched/studied different outcomes however all of her symptoms point to having dementia. Why would her doctors want to do more tests to rule dementia out when they diagnosed her 2 years ago??
My great grandma and grandma on my mom's side either passed away from or currently are suffering from Alzeimers Disease..I hate this disease so much..my grandma is in mild approaching moderate Alzheimer's stage as of May 2022.. having officially been diagnosed with it as of March 6,2022..my grandma is so mad that we took her car keys just 2 weeks ago..
MY mom HAS HAD IT for 4 yrs now cries alot to just die..sees people who have passed has her good days but boy lately getting upset screaming she wants to go home she has vas.dementia she lives in uk I am in NY its heart breaking her legs are huge and weeping now A white spot on her tounge they wanted to biopsy I said she 88 let it be
I have a question, what if your loved one is showing signs of dementia but refuses to see a doctor about it? I have noticed changes in my mother in the last 4 years and she doesn't have a primary care doctor (thinks her gyno & bone doctor are primary care doctors) and I have a lot of trouble sitting there in denial pretending like everything is okay (which is what she prefers) when other people around her have noticed the changes as well. She doesn't think she has an issue, and believes that my concerns are me out to get her and out of malicious intent. Do you have any advice about this? I am really needing some guidance because I care about her and want her to be checked out :(
How do you account for learning that your loved one has had dementia and resulting brain damage for some years before a diagnosis was made? Presumably, you estimate the start of the time-to-live span from some point in the past? My wife had an MRI following her first obvious stroke. The doctors could see the damage from the stroke, but much more damage from what they eventually labelled "vascular dementia".
My husband has been Dx’d with frontotemprol Dementia this summer. My children are wondering if this is genetic and they are at risk. My husband was a heavy beer drinker for a number of years . Could this have caused his dementia? He is 67. Family hx, father had stroke then developed dementia.
Frank Brecht Have your children look into the work of Dr. Daniel Amen. There is a lot that we can do through diet and lifestyle to support brain health and avoid what is considered familial dementia. Best of luck!
My husband he's suffer from the same demencia since 2017 and he's doctor tell me it came whit he's gene's the mother's had demencia my husband is 62 years now.
My mum has just been diagnosed with Alzheimer’s dementia I’ve moved her in with my children and I. I thought it was a much better option than a home. She is 72. I’ve been extremely stressed and my memory has recently been a huge concern. I’m only 51. Getting a spec scan this week. I’m hoping I havnt got it 😥
@@shetlandannegair thank you Anne. Mums in respite for another week (2nd time in 3 years ) she loves it there and I’m healing after cutting my finger and an operation. I hope it is just stress. The scan to find out was delayed till next week so will wait for that test which will put my mind to rest either way. Thank you for your reply. I’m so very concerned.
I think you are probably suffering from stress and that is making you forgetful,I find it very hard to focus most of the time because my wife is constantly distracting and demanding attention,and that is affecting my memory like you, sometimes as long as she is safe in her environment, I find it beneficial to just ignore for a while and go off out in the Garden, potter about and practise some deep breathing and switch off for a while, and love yourself, otherwise you will end up suffering more than the person you are caring for,as they will have forgotten all about your inattention in five minutes.
@@persephone608 thank you Peter I will do this rather than constantly have my mind on my Mum. I think that’s very wise. It has taken up far too much headspace and I have to get used to re organising my focus and thinking. Thank you so much for your reply. Yes that’s true my innatention doesn’t seem to bother her at all. She potters about and reads n does puzzles and is perfectly happy 😱 which is confusing because I am not. Re focus and me time. Thank you 😊
@@persephone608 Peter the scan was negative 🎉 I am much relieved and I’ve started pottering in the garden and shifting my focus. Memory still a minor concern but the pressure seems to have eased since finding out that dementia isn’t the cause.
Most all,people have dementia now during COVID. It could be for a day then the next day perfectly normal. Blame it on this horrible COVId. Very true so do not think you have denentia
Duh! Everything you spoke about is well known. It would be more helpful if you spoke about distinct stages that the patient is in, and concerning the age that they were diagnosed in that certain stage. Also, information concerning an MRI at the stage thery are at. That would give the caregiver a lot more information concerning their own lives on how they can afford to take care of their parent. All the information you give is pretty darn useless and very generic..
My husband has had this horrible disease for 8 years. I have kept him home until recently. I’ve had to start thinking about putting him into a facility. This breaks my heart and if anyone could give me some words of wisdom and or encouragement I would love to hear.
You have to think of both of you....and 24hr care for your husband and your safety xxxxx
Our family has just put our beautiful mum into full time care, and I have to say, it’s rough in many ways. But as we get to know the staff and the way that the nursing home functions, the more we are realizing what a relief it is. My Dad just can no longer meet the challenges of caring for his wife of nearly 60 years, and with the best will in the world, our family have been doing our best to help him, but we are scattered around Australia, so we’ve done our best to keep her at home, but the time has come for full time care. My advice is to remember that you have limits as a carer, and that getting that professional help is in no way a cop out. At first, it feels awful leaving your loved one with relative strangers, but they know what they’re doing, and there is a real comfort knowing that Mum is being looked after by a team of great people. It’s just a big change. But I would say, a very positive one. I hope you get the help and support you need. Much love to you.
My dad is just going through this with my mum. Lived together for 70 years. Dad has taken this literally day by day because that is the only way he could do it. He is struggling without my mum at home especially at nights. So my brothers and I call him at certain times of the night, before he goes to bed, so he’s got us to chat to during the lonely times. I’m not sure if you have children but that would be nice for them to do. If not, dad also has a few wee hobbies he keeps busy with when he is at home and not with mum. I think for him, it’s just the fact that he knows we are here for him, he’s taking it day by day and just dealing with it. It’s got to be done for their safety ASWELL as yours. It’s not something to feel guilty about either, as it comes down to doing the best for your loved one. And you can go and visit him! Spend more time with him in a rested capacity instead of being his caregiver. I hope you are ok. I am thinking about you and hope that everything works out for you. Just remember, you aren’t alone in this. My dad is going through the very same thing xxxxxxx❤❤
Get support. Surround yourself with people who can give you support or respite because your health will decline if you don’t take care of yourself as well.
Do not feel guilty, you need some quality time with him. There is a point in life it’s very difficult to take care of a pt with this illness.
My mother in law passed away in my arms 4-3-22 @ 7:35 pm with dementia that a evil disease she had it for 7 years,I feel empty and lost without her I excepted every stage of her life but the last stage number 7 was horrible but I never left her.Please keep her son my husband and I in your prayers.
So sorry for your loss... God bless you and your husband for taking care of her. Now you need to take care of yourself.
Sending you so much love. You will forever be a part of the Careblazer family. Thank you for being there for your loved one when they needed you most. 💖
God bless your family ❤
Oh wow! I have a 95 yr old MIL with Lewey Body. I'm her caregiver, and it's not easy. You did a beautiful thing! My MIL and I were not close but I realize now that she had early dementia, we didn't know.
Two years ago we brought her to live with us but we didn't know the impact that this disease would have on our lives individually and as a couple. Thank you for sharing.
Thank you I was diagnosed at 60 with Pics and I'm going to be 65 in December and doing pretty well right now. I know now is the time to make plans for my care.
good luck
I believe our optimistic beliefs can heal us!
May God be with you. My mom has it and I wonder what would happen for people who are alone with nobody to o take care? I think God takes care. 💕🙏
Also search "exercise and dementia"... There are studies that shows exercise helps keep dementia at bay... My mom has dementia so I try to research and see what can prevent dementia...
So sorry wouldn't wish but dementia diagnosis on my worst enemy, I'm a nurse's aide take care of all types of dementia cases. Please don't think I am being cure get a living will, when the time comes go on hospice have that in your will. Long term care facilities even the up scale places are at best adequate. I have dementia contingency plans all set up if this my fate. Enjoy the present as much as you can.
My mom had early onset symptoms in her early 50's (unable to organize her possessions and run her business very effectively). I think she got a formal diagnosis at like 65. She qualified for Medicaid at 68 and now lives in an assisted living facility. She still has trouble feeling like she's at home from time to time. She has good days (outgoing, happy and talkative) and bad days (feeling stressed and agitated, paranoid) but her grasp of reality has slipped a great deal since covid lockdowns. It is hard to prepare for what is coming our way. It sounds terrible but I hope she has a short time at the late stages of this horrible disease.
My mom has vascular dementia. She has been living with me for 8 months, and I just put her into care because I couldn't keep her safe anymore. I agree 100%. She is suffering so much...she does not have a good day. I wish I could offer her the same mercy my own elderly dogs received. It's terrible that our loved ones have to endure so much.
@@chairdewealth1663 how did you pay for the costs my mother has it she does not have her own home not much money in her bank account she fell for a scammer when his dad died and lost a lot of money she just found out this month im lucky my job is afternoons because of the kids husband works mornings and afternoons difficult to get different job around the kids i have health problem RA no problems yet so we fall out can not see i am so ill everyday wants me to work more like she used to be active mum all the time with lupus it is hard to get out of bed and wash my own hair cook dinner cant do gardening lighting does not like me at all. All she does is constantly have Zoom Chats with her lovely son so everyone thinks i do not like have sensitivity isues ie ME sound i know i wont have a fun time when i am her age she is 77 walking around coming in my house when ever they want to wind me up.
My husband has been living with dementia for 10 years now. I pray for his soul to be free from this awful existence. My heart is with all of you who are watching your loved one slowly slip away. ❤
@@chairdewealth1663I agree we are more humane with our own animals 😢my mom has No good days she’s living in a hell and wants to die every day. It has made me so horribly sick and tired absolutely nothing I can do about it
Its comforting to read the comments of so many who still engage in some way with their loved ones, enjoy that engagement, and have so much love. My mom was/is a narcissist, was abusive in different ways when I was child, and has never really changed. I have no desire to be around her for any length of time, and kept a safe distance as an adult. She has alienated her family and has no friends. How ironic that i now had to step in as her only child and help her get to a good assisted living facility, after helping her live alone remotely for over two years. I wish I had the loving the relationship that should exist between a child and mother. The best I can do is try to reduce some of her suffering, because regardless of whatever transpired no one should suffer alone from this horrible disease. That and make sure I have been a proper parent to my kids.
It is good you have stepped up for her, can you forgive her trespasses against you even tho she has not changed, forgiveness sets us free that's why so important in Lords prayer,
@@Christine-j7b Thank you for your kind comment. I have done the work to:
1- forgive myself and understand that all of the negative things had nothing to with me
2- understand this person has a sickness, they are not whole, and forgive them for their behavior and have a degree of empathy for their affliction
3- understand the person has been advised by people there is a problem, and the person is responsible for their own healing. Whatever they choose to do is entirely up to them
The issue isnt with those who have been victimized by a narcissist, the issue is with the narcissist, the violator. If they never chose to address the issues they face, and remain toxic not only to others but themselves, those around them have no other choice but to protect themselves in a way that is healthy and avoids being re-victimized. Totally separate from forgiving.
As for prayer, its useless without some type of action. Empty words, and thoughts. I believe in a god that expects us to be responsible. That would entail forgiveness, as you mention, but also knowing how to keep ourselves healthy in the face of the negativities life can present at times.
@@ktm4042 Thank you for your detailed reply, I agree , we can't change people they have to be willing to change. I too have had to love and let go to save my own health and well-being from someone that would swallow up my life, if I did not stick to boundaries. I have forgiven them and myself and I understand the trauma they faced as a child has caused a personality disorder that affects their relationships (BPD) it's very sad but I have had to go no contact , tough love.
Narcissism is a mental illness as well. There is, as well as dementia, no cure.😢
One thing i wish someone who knows about alzheimers had told me was that when they start going backwards in age Don't think you can explain and catch them up. My mom thought i was her mother. I told her her mom died 50 years ago and I'm her daughter and reminded her of her great grandsons. Boy do i regret that. She looked horrified. I loved her dearly and i just didn't realize what it would be like for her. Once she thought someone on tv had a gun. They had a microphone. Once she thought someone outside was going to kill her. She even once thought i was. This just killed me because i loved her so much. She was my best friend and the best mom. One day she said after eating, I'll never eat again and she didn't. She lived 6 days with no food, no water, not talking, eyes closed. I wet her tongue with a sponge. It was excruciating for me. The nurse said she wasnt suffering but i had my doubts. I miss her every day. It's been almost three years. It was hard. I gave her enemas, i changed her diapers and loved her until the end. I will always love her.
What a lovely daughter your mother had god bless you stay strong and take care
😢
About the end of life stage. Trust the hospice nurses! When they say something is normal at that point, or that at that stage their body knows how to die, they are not uncomfortable - just take a deep breath and trust they know what they are saying. When they quit eating/drinking it is because the body can no longer process those functions.
This is the kind of well thought out and knowledgeable answer that i have been looking for. Thanks. (A caregiver)
Your videos are informative and comforting; such a blessing!
Thank you Dr. Natalie,you always have wonderful,helpful information.This is a question many of us want to know but afraid to ask.
Dr Natalie I do appreciate your video I do feel bad for our LO just going through Daly confusion pain and suffering don't know what happiness is, very sad life
Thank you stay safe
My mom has Dementia. She is 78 years old. She has been diagnosed a few months ago. She lives with me. I’m scared.
I'm very sorry to hear that you are struggling with fear. I'm reading this 1 year from when you posted so I pray that things are better in some respect. There are so many lessons to learn on how to treat and talk to your parent with dementia that I'm only just now, 2 years later in my case with my mother, beginning to understand. Give yourself a ton of grace because none of us navigate this journey perfectly. Each day is a new opportunity to handle things differently or from a fresh perspective. Sending prayers and hugs your way.
I hope your mom and you managed the time since you left the comment well. My father is almost 80 and I have been his caregiver for 4 years. He is bed ridden meanwhile and sleeps most of the time. But sometimes he has some good moments in the afternoon and even if it is just for some short exchange of words, we still have some memorable times together.
My mother is 101 & went into care this year, she was living on her own & couldn’t manage then her unit was deemed inhabitable so it was a blessing really. She is only taking minimal medication & still strong but her mind has wandered away somewhere which is hard to see.....
Wow, at 101 years old, she's doing great. My mom is 94 and was diagnosed 4 years ago. Her body is strong and healthy, but alas, her mind is not. Blessings!
Please allow me, my late Dad's side didn't know much about Aldzheimers or Hardening Of The Arteries, or even Cholesterol for that matter, and they made "Olde Bones". My late Mother died at 85 with Aldzheimers but the death certificate said Cardiac Arrest!
I am 71 and still ride a motorcycle which I also like to drive fast! Unfortunately my wife is struggling with Dementia which was officially diagnosed three years ago! So now I am beginning to think that moving into a retirement home might be a good idea?!
My Mum was dignosed at age 72 with mild Alzheimers. By age 76, she was at a moderate stage and went into Dementia care. By age 78, she was then in an advanced stage, lost her mobility and speech. Now in a severe stage for the last 18 mnths and is 80 next March.
Was your mom put on the medication?
@@tinajohnson9867 Yes she was put on Donepezil. When she lost all mobility and swallowing issues they stopped it.
Sadly since this post Mum passed away in March .
Thanks for your reply. So sorry to hear about your mom. :(
I'mma be honest here. It all depends on how you fight it. Its any other diseases. I know it could prevent a long life span. But you can extend it based on how you treat it.
Could you possibly add some context to that, please I'm trying to learn as much as I can my mom is 72 just diagnosed with early dementia, they want her to start a new drugs something to do with blood like it's iv, she only as of now has little memory loss, woukd like to extend her life as long as possible, while I slowly fall apart.
N A C helps
I talk with my mom about her dementia. It gives her a reason for her forgetfulness & calms her down. IS THERE A BOOK THAT PATIENTS CAN READ & HELP HER FEEL MORE INDEPENDENT.
You must enjoy the rest of your day and evening. Thankyou as always for all the information and I can tell you the whole happening is still absolutely a adjustment but I’m glad I came across your short talkings to us, just long enough to digest it!👌
Thank you for your clearly information,i am here for my brother in law 65 years old who diagnosed as a dementia
Thank you for that information, my brother pass with dementia ,he was only 56 years old but he was diagnosed about 7 years ago.😥😥❤️
Sorry for your loss, my mom is 56 with dementia, diagnosed several years ago. 🙏🏾
Excellent video! Thanks Dr Natalie!!
I wonder if anyone saw the movie with Anthony Hopkins, which he just got an Oscar for, called The Father.....I had no idea it was about this disease...it is amazing...touching, sad, but people need to see this...even though it it hurts....the night of the Oscars a lot of celebrities were angry he won, saying he stole the Oscar, he did not deserve it!!!! First, it wasn’t promoted to the public, and obviously these people, being young, have no idea about this disease and how devastating it is for everyone in the family.....
There’s also a movie about dementia called “Still Alice” with Julianne Moore
Alec Baldwin
Kristen Stewart
It’s a good movie…I think it might be on Netflix?
Thank you for this information, it really does help to know.
Thanks for all your information .it really helps me as a caregiver for my husband
My stepfather, who is abusive, has vascular dementia.
That 15 to 20 year possibility just hit me in the gut so hard. Í feel so hopeless for my mother who has no life because she chooses to take of him… I look after him to help her…
My dad had vascular and passed away after 5 years
You answered this so clearly!
Thank you Dr Natalie!! 🌿🌷
My father has dementia. He is 90 and also nearly completely deaf. My 91 year old wheelchair mother considers herself his primary caregiver, although she can barely take care of herself. They are in an independent living situation at a facility with stepped care. He has had this awful disease for about 6 years. She refuses to put him into memory care due to the cost, although she has been asked to by the facility several times. They have some help who comes in a couple of hours a day, but my mother has recently been reported to Adult Protective Services due to neglect of my father. She is going to end up getting him taken and put in a county- run facility if she doesn’t relinquish control, but refuses to. I have durable power of attorney for my father which I may need to activate. A sad situation.
Hey Natalie, I'm not a careblazer, I'm the one with the Alzheimer's and Vascular Dementia! I was diagnosed about 2 years ago with it and I'm on about 15 different medications, a couple of them are for Dementia, but most of them are for other things! I had my first heart attack last year, which I didn't know I was having, I went to the doctors because I didn't feel too great and he hooked me up to the heart monitor and it was fine but they also took blood and I got a phone call in the afternoon to say that I was having a heart attack and to get myself to the hospital right away, and a second heart attack on the 31rst of August there and I had an appointment already with the hospital and had tests to see how much damage was done! This time round my heart was damaged slightly and I'm now waiting on an appointment to go into hospital to get something done about it! This is slightly more, should I say complicated, because of the heart attack, but with that aside, I don't really feel that this Alzheimer's/Dementia is doing much to me at this early stage that is! My husband looks after me and I am 69 years of age, we both are actually, and we do everything together and we read a lot, watch programmes like what's going on with the universe etc,we like things that give us knowledge and we try to stay active as much as possible what with the old age aches and pains that go with that, but regarding the Alzheimer's and Vascular Dementia, how fast do you think it goes at my age?
If you wrote this, you are doing great! Stay very active, exercise using all of your positivity! If you doctor approves, start walking, get very comfortable sneakers.
Vascular dementia progresses faster than other types. I think the average is around five years from diagnosis but varies from person to person. Alzheimer's may be more like an average of 10 years and frontotemporal dementia around 8 years, just to give some comparison.
Vascular dementia progresses at a different rate because of the way the brain is affected. With other types of dementia the brain slowly shrinks at due to build up of protein in the brain tissue, and with vascular dementia the brain is damaged more rapidly due to issues with blood vessels. This is an important topic to discuss with your doctor to plan your future care.
I hope you are doing well. Diet and exercise can probably help deter Alzheimer. MCT oil and coconut old might help. Do some research on that. Don't give up!
Mom is 86 and showed symptoms 15 years ago. 4 1/2 years ago is when stage 6/7 began and 7 months ago she no longer can walk and stand. She doesn't remember anything and only repeats a few words now.
Knowing what I know now my wife’s symptoms started really showing up 10 years ago her health has been bad for 30 plus years at times on up to 35 prescriptions at a time she was a heavy smoker had had at least 2 concussions just a case study of bad health . 4 years ago she had a bout of CO2 poisoning 3 days in ICU to bring her back came on a portable vent to keep her oxygen levels in ck but her brain had suffered a set back. Her confusion worsened about 4 months ago back in the ICU same thing blood gases all out of sorts and it’s been rapidly downhill ever since. There are times she can’t hold her body upright she slumps over to the side of her wheelchair or forward and can’t pull her self upright. I’ve caught her picking things up off the floor and try to eat them.
She is supposed to keep her life 2000 portable vent on all the time but because she can’t remember what it is she ripes it off and throws it off. She’s been a DNR listed patient for years and when she was still able she made it clear no more ICU trips so I believe that her breathing is going to be her demise. My hands are tied at this point my goal now is to keep her as safe as I can keep her clean and as comfortable as possible.
Thank for all your help on your channel with your suggestions and help. My mom has advanced Parkinsons with dementia and I believe its Dewy dementia too now.
Please, please if you want to help someone who is caring for a dementia patient, please ask them what you can do as in, “I’m not doing anything this morning, can i pick you up something at the store “ or “I can sit with her tomorrow morning is you need time to do something else.”
Don’t just go over and do something. They may have made other plans that you will be interfering with (among other things).
Hi Dr Natalie, my sister has Alzheimer's disease diagnosed at age 57, stage 4 in August 2018. She had multiple head injuries over the years and stopped working early. I'm age 63 now and her 24-7 carer, who gave up work 2 years ago to care for her. I'm using my savings to support myself and am exhausted . Sorry I sound selfish and wicked but how long can we estimate her lifespan? Maybe 6 years together, according to some calculations. Thank you.
You don't sound selfish. You sound caring and overwhelmed. My mom died at 82 with alzheimers. I'm 63 and now I have mild alzheimers. I loved my mom dearly. I took care of her at home until she died. I know this is extremely hard. And if your own health is poor, it's worse. Get some family, spiritual or counseling health and advice. Since I know how hard it is, I would rather go to a rest home when I can't care for myself. I can't drive, but other than that I care for myself. God is a great help to me. The answer is in Acts chapter 2. God bless you.
Very informative, Natali😍 thank you for this video..
Thank you so much for your help. My mom's got dementia but the doctor won't tell her she thinks everything she sees and hears is real and it's not. She can hardly Drive well other doctors have revoked her driver's license but she continues to get new doctors and have it reinstated through pity.
Her providers think she's just having a bad day, but no, those are the days when she's having good days. She continually gets in these rages of anger over nothing, and then she gets so angry, I rent a room from her, I am calling the police and having you removed, you *******, she says to me.
She's really unsafe, her hygiene is atrocious but won't let me help! When I go places after cleaning it's like a 6-year-old I come back and she made a big mess because she says, next time maybe you'll hurry it up getting home. If I want to live here with her in this home, I don't know what would become of her. I really need some direction. Lots and lots of medical issues, time in trouble swallowing and breathing as of late.
Dear God, I need some help of what I should do. Thank you, Cheryl.
and thank you so much, you are so helpful as I am not trained in the medical field at all, and I hold your videos close to my heart, to help me through these tough times.🥰
There's also a support group on Facebook called Molly's Movement (if you're on facebook) They're a great group to get info from. Best of luck to you and your family.
Thanks for sharing!!!
If I am diagnosed with dementia I am checking out the same day. I know I can't wait. I've seen Alzheimer patients and it is horrific beyond words. The fear, paranoia, confusion, anxiety, anguish and pain is beyond description. Not to mention what it does to everyone around you, who care for you. The years drag on. If you have no serious medical issues aside from dementia, you can linger anywhere from five years to twenty. At the end, if a physical ailment doesn't get you, you'll simply forget how to eat and drink. Nurses, doctors, If they are kind, will then let nature take its course, but remember, for nursing homes in particular, you are a cash cow and they will do everything humanly possible to keep you alive. No matter what.
God forbid 😢
Might not be the same day but real soon after.
I know how families suffer when their loved one can’t recognize them.
That’s got to be worse than the physical loss of that person.
I found the information you provided very helpful.
Thanks
Thank you 💖
my mom is 91 with vascular dementia, i wish there were medications to help with this
seems like there wóuld be a call for it
My husband is 79 years old and suffering from Dementia and is bed-ridden had many complications
Thank you this was a question I wanted an answer to.
My mom got frontotemporal dementia at age 64. She had a heart attack at age 62, and got a advanced heart surgery. after that she got back to work to soon.
She got burned out, but then she was not “herself”
So after a pet scan they said she got ftd.
But they also said she had damage in central parts of the brain, is that common?
My world fall apart. I’m losing my only family and best friend,
When I’m needing her the most.
Iam the only child and
Only caregiver.
I am total burned out and have trauma and ptsd from before and in this process.
How could I manage this?
Only I this 6 months she has got so much worse.
I miss her so much, and this is totally unbearable.
I don’t have any family, siblings or father.
I am alone in this
What should I do?
My own live is non existent,
I can t work, or take care
Of my own home.
I don’t feel joy in anything.
I’m missing going out and meet people.
I can’t focus or even see
My favorite series.
I am in the mental stage that’s called Crisis.
I have a few friends that are my only trust in this.
Family are not there for us, they actually “disappearing”
How on earth can I handle this?
Any tips? How long time
Do I have with her?
Before she she is “gone”
Please, anyone that want to
Give me some advice or own experience.
I appreciate everything 🙏💝
HI Astral, This is Trisha. Dr. Natali's social media manager. I'm sorry to hear about your situation;. Here is a RUclips video she made that I hope can help you with your situation. 💖 ruclips.net/video/hJb7zZHuSVo/видео.html
Hi Astral, We are so glad you are here as part of this community. Wishing you all the best on your caregiving journey. 💖 Sending you love and strength!
What is the cause of death in a person with dementia, if she’s generally healthy?
The cause of death is either from the brain, heart or lungs. So in layman's terms, most people die from a stroke, heart attack, pneumonia, or for example a kidney infection that goes septic in blood causes organs to fail. Or a cut gets staph which lives on our skin inside it, in it, but gets infected and turns into a deadly staph infection that gets in blood causes sepsis poison of blood, causes organs to fail. If not treated in time, death may occur. Usually, patient will have high fever, unbearable or just stabbing stomach pain, or cramping, not be able to use restroom, lower stabbing midback pain, may be delirious, pain in calves from lactic acid may need to be blood tested they almost missed sepsis in me once had I not fought for a blood test. I have P.O.T.S. which doesnt show my heart rate elevated sitting down in pain or laying down so they didnt believe me. Few hospitals understand P.O.T.S. or care. It sucks. But it could be life or death. It's an autonomic disease that affects my entire body, and I'm now disabled from it. I was a Funeral Director so I studied alot of anatomy and stages of disease and death. I miss helping people. Earlier in my life I was a CNA, and in high school I volunteered and met with a few elderly people. One lady in particular, I visited even after until she passed away which broke my heart, she had no one. But she opened the first modeling school in Chicago, and met Al Capone!
My mother in law was healthy with alheimers and one day she hurt her toe and just stopped walking when she got out of hospital. After that she was wheelchairs/ bed found for 1.5 years . She ended up with a bedsore and sepsis. If it wasn’t that it would’ve been aspiration pneumonia or choking . She quit eating and we gave her liquids. But she had so much excess stuff “ pocketed” in her mouth
Dementia affects the immune system so the patient is more likely to have another serious illness develop to which they may succumb. However if no other medical conditions then the dementia patients usually die when they stop swallowing well, and inhale matter into the lungs, causing pneumonia. A feeding tube will not prevent this since the patient will still inhale saliva and still gets pneumonia. So the answer to the question is that the dementia patients usually die from pneumonia.
@@Dinngg0 yes that is a excellent point I forgot to mention. Most Parkinsons patients neurological and autonomic systems are basically powering down as the brain cells are dying off. That's why they almost always towards the end choke and cough everytime they eat. The even will have coughing fits and cough up phlegm, and have more problems breathing and sometimes forget how to breathe, or as end up with pneumonia, or COPD.
My mum has had vascular dementia for about 3 or 4 years
Thank you very informative
Glad it was helpful! 💖
Thank-you for this helpful information.
Glad it was helpful! 💖
My 89 y.o. mother was diagnosed with Alzheimer's a few years ago. She has no short-term memory and refuses to take her medication. Hopefully, she's otherwise healthy and in top shape, swims laps every mornings and walks kilometers in the neighborhood without getting lost. She's always hungry an, therefore, eats enough. I'm thinking that maybe she wouldn't live longer in a hospice where she'd be forced medicated but lose her freedom to go out for long walks. I wish she was taking her meds, especially since she becomes upset/ aggressive when reminded... She also doesn't want help from anyone. Nurses do not want to go over her place any longer. I am using very twisted reasons when I want to help her with her laundry or groceries so that she accepts it. Unfortunately, she hasn't planned anything while it was time. One sister is being abusive financially and physically, but I have no legal right to check her finances.
My mother's vulnerability to being abused is the main reason i wish she lived in a safer place than her home... I can only witness what will happen next without any legal power to decide for her.
In cases similar to my mother's, if your loved one accepts minimum help and is not being abused, staying home until the end is the ideal scenario, even with dementia.
Thank you i enjoyed your input.
My mom was diagnosed at 67 died at 76.
I'm 66 and this scares me.
My husband is 63 diagnosed with Ftd firstly then because of bad balance and tremors etc and mri showed borderline Lewy body dementia. His pysic meds were reduced and since then his tremors and balance much improved. He has a long history of bi polar disorder he’s very luicid but his thoughts and observations of situations and people are very much distorted he cannot make decisions or follow instructions has very high levels of anxiety and constantly watches the clock. Are these signs of either of these dementias. 😢
I thought I had dimentia but I didn't, I had ADHD. my father was diagnosed in his 50s...that's when mine started. My dad is in his late 80s now. He walks around just fine without assistance or anything else. I think my father was misdiagnosed with dimentia when he really had ADHD. He has age related dimentia now but all these years he had ADHD not dimentia.
My husband has late stage and has had dementia for about 15 years..
I got a brain mri in 2007 for some balance issues, I was told I had a few mini strokes but also had some white stuff in my brain, early stages dementia, that was 14 years ago, since then I have smoked cannabis everyday and it appears to help with my confusion and memory, I was wondering has anyone else has tried cannabis for their condition and at what point should I get anoher brain mri to see the progression of the condition, I was consuled by 2 PCP about sending my prognosis to the DMV, so I stopped even talking about my condition and fired the last one who threatened me about the dmv......
Is it good to have a early stage person to watch your videos to quickly educate them?? So they will better understand needed treatment and living changes
My mom was diagnosed with dementia 3 years ago when she was 80. She turns 83 in September. She lives in a nursing home with memory care. One doctor thinks she may have lewy body. I visited her today and for the first time she couldn't remember my name. It broke my heart. Does this mean she has processed to serve stage now?
How could someone with Dementia live alone?
Thank you.
My husbands diagnosis after pet scan was lewy body variant of Alzheimer's. I would like to hear how you define this. His Dr.did her best but i am still confused. Thank you and thank you for being here.
My dad had that. Paranoia, hallucinations fear that someone was taking his money delusions…
Two of my friend's father who had dementia, live up to 84 and 85 respectively
Both my grandma and my neighbour, old lady lived up to 100.
Could you give your opinion on calcification of the brain?
Hello Careblazers, I have posted a comment before however I have more questions. My mother, who is 67 now was diagnosed with dementia about 2years ago. My family & I have been learning how to care give for her. I have studied psychology/human behavior and now the doctors are doing more tests on her brain to rule out that she has dementia. The symptoms that my mother has points towards dementia. I wanted to know what else is there that has the same symptoms of dementia? I've researched/studied different outcomes however all of her symptoms point to having dementia. Why would her doctors want to do more tests to rule dementia out when they diagnosed her 2 years ago??
Delirium has the same symptoms.
Dr. Natalie, isn't it compliations of some else and not dementia that ends someone's life?
My great grandma and grandma on my mom's side either passed away from or currently are suffering from Alzeimers Disease..I hate this disease so much..my grandma is in mild approaching moderate Alzheimer's stage as of May 2022.. having officially been diagnosed with it as of March 6,2022..my grandma is so mad that we took her car keys just 2 weeks ago..
MY mom HAS HAD IT for 4 yrs now cries alot to just die..sees people who have passed has her good days but boy lately getting upset screaming she wants to go home she has vas.dementia she lives in uk I am in NY its heart breaking her legs are huge and weeping now A white spot on her tounge they wanted to biopsy I said she 88 let it be
I would like to expand on that -
How long does someone with dementia live when they transition to a nursing home.
She’s 90
I have a question, what if your loved one is showing signs of dementia but refuses to see a doctor about it? I have noticed changes in my mother in the last 4 years and she doesn't have a primary care doctor (thinks her gyno & bone doctor are primary care doctors) and I have a lot of trouble sitting there in denial pretending like everything is okay (which is what she prefers) when other people around her have noticed the changes as well. She doesn't think she has an issue, and believes that my concerns are me out to get her and out of malicious intent. Do you have any advice about this? I am really needing some guidance because I care about her and want her to be checked out :(
What about vascular dementia
Great job as always, Thank you.
How do you account for learning that your loved one has had dementia and resulting brain damage for some years before a diagnosis was made? Presumably, you estimate the start of the time-to-live span from some point in the past?
My wife had an MRI following her first obvious stroke. The doctors could see the damage from the stroke, but much more damage from what they eventually labelled "vascular dementia".
God Bless all 🙏🏾♥️
I appreciate the information.
Are all dementias progressive? My loved one has Korsakoff syndrome
i have a question. My friend who is 12 has dementia.
Will he live more than 20 years?
What ? 12 years old ????
This is what I want to know as my Grammy (mom's mom) is in the 4th stage of Alzheimer's as of September 2024.
My mom has 10 years so far, she could eat,,,no walk. No talk
My husband has been Dx’d with frontotemprol Dementia this summer. My children are wondering if this is genetic and they are at risk. My husband was a heavy beer drinker for a number of years . Could this have caused his dementia? He is 67. Family hx, father had stroke then developed dementia.
Frank Brecht Have your children look into the work of Dr. Daniel Amen. There is a lot that we can do through diet and lifestyle to support brain health and avoid what is considered familial dementia. Best of luck!
My husband he's suffer from the same demencia since 2017 and he's doctor tell me it came whit he's gene's the mother's had demencia my husband is 62 years now.
My mum has just been diagnosed with Alzheimer’s dementia I’ve moved her in with my children and I. I thought it was a much better option than a home. She is 72.
I’ve been extremely stressed and my memory has recently been a huge concern. I’m only 51. Getting a spec scan this week. I’m hoping I havnt got it 😥
It could just be stress, maybe you could ask at the doctor's surgery for some help with your mum? Hope everything turns out okay for you!
@@shetlandannegair thank you Anne. Mums in respite for another week (2nd time in 3 years ) she loves it there and I’m healing after cutting my finger and an operation. I hope it is just stress. The scan to find out was delayed till next week so will wait for that test which will put my mind to rest either way. Thank you for your reply. I’m so very concerned.
I think you are probably suffering from stress and that is making you forgetful,I find it very hard to focus most of the time because my wife is constantly distracting and demanding attention,and that is affecting my memory like you, sometimes as long as she is safe in her environment, I find it beneficial to just ignore for a while and go off out in the Garden, potter about and practise some deep breathing and switch off for a while, and love yourself, otherwise you will end up suffering more than the person you are caring for,as they will have forgotten all about your inattention in five minutes.
@@persephone608 thank you Peter I will do this rather than constantly have my mind on my Mum. I think that’s very wise. It has taken up far too much headspace and I have to get used to re organising my focus and thinking. Thank you so much for your reply. Yes that’s true my innatention doesn’t seem to bother her at all. She potters about and reads n does puzzles and is perfectly happy 😱 which is confusing because I am not. Re focus and me time. Thank you 😊
@@persephone608 Peter the scan was negative 🎉 I am much relieved and I’ve started pottering in the garden and shifting my focus. Memory still a minor concern but the pressure seems to have eased since finding out that dementia isn’t the cause.
So, the answer is “It depends.”
My neighbour seems to have had it for 20 years. She must be approaching 80 yrs old now. I hope I don’t have to put up with her for much longer.
😂😂😂
Thank you 🙏🏻
Good video but honestly it's just so depressing
😭😭😭🙏🏽
Most all,people have dementia now during COVID. It could be for a day then the next day perfectly normal.
Blame it on this horrible COVId. Very true so do not think you have denentia
How unfortunate
Duh! Everything you spoke about is well known. It would be more helpful if you spoke about distinct stages that the patient is in, and concerning the age that they were diagnosed in that certain stage.
Also, information concerning an MRI at the stage thery are at. That would give the caregiver a lot more information concerning their own lives on how they can afford to take care of their parent. All the information you give is pretty darn useless and very generic..