Thank you, Jennie and Dr Lambert for this interview. Dr Jack is our only knowagea le Lyme Literature Doctor here in Ireland. We are so lucky to have found him, When No One else realized the problems we have,trying to get diagnosed with Lyme and Co infections. Ann (lymechat -Eire)
Thanks Jennie for sharing your information with us. I’m hopeful I might finally get to the bottom of my M.E and fibromyalgia dx with some proper and appropriate testing! I’m preparing a letter as I write this. Years of being a pointless pin cushion on the NHS!
I had a tick bite and the bull rash, 15 years ago. I never knew at time that's what it was. I thought if the rash spreads will go to doctors. A week later rash disappeared. A month later I started feeling ill and shattered with a body rash. I then 6 months later had viral meningitis a few times. I never recovered from this so was eventually diagnosed with M.E. Many years later when Lyme was talked about did I realise I was bitten by a tick. I've had 2 Lyme tests in UK and say I haven't got it?
I had Lyme, I remember how my knees started filling up with fluid as soon as I had pain in my " calf muscles" i would start limping, and 2 days later my knee joints filled up with a lot of fluid. They needed to take it out both times. They did that both times without anesthesia, so I felt the needle every time they moved it around and it was the first time I cried out of physical pain in front of someone. They tested me and I had lyme. Treated me with 2 months of antibiotics. The synthoms were not present right away. It took a year for it to appeare. I was 26... I am 38 now and I hope it didnt cause damage in my muscles, cause after that nothing was the same. I hurt just by walking. Doctors always tell me that Lyme does not affect muscles, but in reality after I had lyme nothing was the same. My muscles acke and they literally tear the moment i move a certain way. I am active, i dont just sit in my office 8 hours a day. I have my own stand up desk, i walk around everyday. But, i wake up very slowly every day at 4.30 am to just use magnesium just to make sure i can get up from bed without pulling a muscle. Many times the pain renders me immobile. Brain MRIs came out ok, neck and heart also came ok. Still, my muscles lower back, back of my knees, shoulders joints, and calfs, never were the same. Thats my fuc@$%ing story. I hate it, and I hate that doctors disregard muscle complications from a disease that was in your body for a longgg time without being diagnosed. Is like, well if there are no studies that prove it, than is not possible.
I can relate to alot you have shared ❤️🩹 Can I ask where on your knee it filled with fluid? I'm due to be tested soon and both my knees fill this way too. It's the inside of my knees get swollen, hot and too sore to touch. I haven't connected this to possible lyme until now as o wait on results. Thanks for sharing ❤️🩹
It was the insise of my knees... fluid would start ro build up the moment i had a muscle issue in my calfs... just like when you get lets say punched in the face and then your eyes start to swell up? Cause everything is connected... my fluid in the knees started right in front of the knee cap. I live in Connetcicut. I suffer with it from day to day. I really believe it has left a mark in my muscles. I am going to a spine doctor next week cause the rheumatologist does not believe I have an inflamatory issue... they did an MRI on Saturday and today everything came out normal. STILL... the pain is there like a needle piercing my groin every day.
Ah yes I mean in the inner side of the leg/knee than the outer side of the knee. The part of the knees that face one another. It's sorta centralised only in the area of the knee. Ach sorry to hear. All the best for your next appointment pal
Brilliant.
Thank you, Jennie and Dr Lambert for this interview.
Dr Jack is our only knowagea le Lyme Literature Doctor here in Ireland.
We are so lucky to have found him, When No One else realized the problems we have,trying to get diagnosed with Lyme and Co infections.
Ann (lymechat -Eire)
Thanks Jennie for sharing your information with us. I’m hopeful I might finally get to the bottom of my M.E and fibromyalgia dx with some proper and appropriate testing! I’m preparing a letter as I write this. Years of being a pointless pin cushion on the NHS!
I was wondering why we haven’t heard from you. I hope for your quicker recovery.
Lovely content for ME community! Hello from the military 😁
I had a tick bite and the bull rash, 15 years ago. I never knew at time that's what it was. I thought if the rash spreads will go to doctors. A week later rash disappeared. A month later I started feeling ill and shattered with a body rash. I then 6 months later had viral meningitis a few times. I never recovered from this so was eventually diagnosed with M.E. Many years later when Lyme was talked about did I realise I was bitten by a tick. I've had 2 Lyme tests in UK and say I haven't got it?
I had Lyme, I remember how my knees started filling up with fluid as soon as I had pain in my " calf muscles" i would start limping, and 2 days later my knee joints filled up with a lot of fluid. They needed to take it out both times. They did that both times without anesthesia, so I felt the needle every time they moved it around and it was the first time I cried out of physical pain in front of someone. They tested me and I had lyme. Treated me with 2 months of antibiotics. The synthoms were not present right away. It took a year for it to appeare. I was 26... I am 38 now and I hope it didnt cause damage in my muscles, cause after that nothing was the same. I hurt just by walking. Doctors always tell me that Lyme does not affect muscles, but in reality after I had lyme nothing was the same. My muscles acke and they literally tear the moment i move a certain way. I am active, i dont just sit in my office 8 hours a day. I have my own stand up desk, i walk around everyday. But, i wake up very slowly every day at 4.30 am to just use magnesium just to make sure i can get up from bed without pulling a muscle. Many times the pain renders me immobile. Brain MRIs came out ok, neck and heart also came ok. Still, my muscles lower back, back of my knees, shoulders joints, and calfs, never were the same. Thats my fuc@$%ing story. I hate it, and I hate that doctors disregard muscle complications from a disease that was in your body for a longgg time without being diagnosed. Is like, well if there are no studies that prove it, than is not possible.
I can relate to alot you have shared ❤️🩹 Can I ask where on your knee it filled with fluid? I'm due to be tested soon and both my knees fill this way too. It's the inside of my knees get swollen, hot and too sore to touch. I haven't connected this to possible lyme until now as o wait on results. Thanks for sharing ❤️🩹
It was the insise of my knees... fluid would start ro build up the moment i had a muscle issue in my calfs... just like when you get lets say punched in the face and then your eyes start to swell up? Cause everything is connected... my fluid in the knees started right in front of the knee cap. I live in Connetcicut. I suffer with it from day to day. I really believe it has left a mark in my muscles. I am going to a spine doctor next week cause the rheumatologist does not believe I have an inflamatory issue... they did an MRI on Saturday and today everything came out normal. STILL... the pain is there like a needle piercing my groin every day.
Ah yes I mean in the inner side of the leg/knee than the outer side of the knee. The part of the knees that face one another. It's sorta centralised only in the area of the knee. Ach sorry to hear. All the best for your next appointment pal
Bio films in bladder??? Im trying allsorts fir this swiss bioenergetics biofilm disruptors
It sucks big-time