Epidermolysis bullosa (EB) is the name for a group of rare inherited skin disorders that cause the skin to become very fragile. EB is usually diagnosed in babies and young children, as the symptoms can be obvious from birth. But some milder types of EB may not be diagnosed until adulthood.
很有意义的纪录片，加油，坚持下去。
Epidermolysis bullosa (EB) is the name for a group of rare inherited skin disorders that cause the skin to become very fragile.
EB is usually diagnosed in babies and young children, as the symptoms can be obvious from birth. But some milder types of EB may not be diagnosed until adulthood.
如果有担心的在国外的孕妈可以找自己医生，在怀孕两个月后询问怎样在胚胎上查这个基因组缺陷