Charles Bonnet Syndrome (CBS) | Bee's story
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- Опубликовано: 11 май 2016
- Charles Bonnet syndrome (CBS) is a common condition among people who have lost their sight. It causes people who have lost a lot of vision to see things that aren't really there, known as visual hallucinations. Read more on our website: rnib.in/1Ym2pl5
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this wonderful lady was one of my first school teachers, its so typical of her to continue to want to share and educate others. she has always been an inspiration. she was one of my grandmothers friends too so I new of her sight loss but not the CBS .
That's lovely - thank you for sharing, Carole.
One of the kindest people I've ever had the chance to meet. She was a fantastic teacher ❤️
She's beautiful 🥰
she is part of my neuropsychology lab, i'm so glad my professor decided to share this video with us. She is a wonderful strong woman and the way she talks is so captivating. Thank you so much for creating this video
Feel really bad for this lady! I wish the best for her!
Love the way this lady talks
She is like a story teller from old times
bee is such a sweetheart! thanks for sharing your story
This is so insane, the way she explain it is so accurate.
I'm about 7 years late to the party here, but I want to say how lovely Bee is and how much I'm rooting for her!
At 46 now, I look back at when my amazing grandmother was going through macular degeneration and at some point she began to comment occasionally about strange things she'd seen. Although we all knew about her vision loss and she was being treated for it, none of us were told to expect the chance of Charles Bonnet syndrome and so none of us were sure what to make of my grandmother's visions. I so wish we could have been more of a support in that area and that our doctor had known to prepare and offer support to her! What a shame. She got on with everything, but it saddens me to think that she bore this challenge essentially alone even among the company of family.
Thank you for the work you do and for sharing Bee with us! xo
Thank you for continuing to educate Aunty Barbara. You are a wonderful lady and teacher. So lovely to see and hear you. xx
Beautiful soul
I'm watching this for a school project. Her story inspires me a lot, and I decided to add her story to a part of my presentation.
My nan had this, she used to sit in her bed looking out the window laughing and giggling because the birds turned into naked men jumping around the trees
That's really specific
Okay play ..it's raining men
Bee is very much enjoying supporting and counselling fellow CBS suffers these days. Unstoppable even though she has completely lost her sight
Fantastic to hear this, Tim!
Thanks for sharing!
Hugely interesting account I would love to hear more descriptions of CBS hallucinations as my grandmother is blind and I feel this may happen to her
Hi there, you can find out more about CBS here: rnib.in/2C4MXYI. We really hope this helps you and your grandmother.
My mother had this on top of dementia and arthritis. It hasn't been easy on me. I'd like to take her to country with the remaining of her family there but it's a challenge financially.
I think my mother has it now.. 😟
Hi Sonny, we can absolutely support you and your mother. We can offer practical and emotional support and products to support with independent living. Call us on 03031239999 and press '3' to speak to one of our sight loss advisors or email us at helpline@rnib.org.uk.
it nevr gose away not evn when my eyes are closed
omg thank you
I had a blind patient once that complained of soil on her body and around her and she just sat there every morning whiping this “soil” away. I hadn’t heard of CBS so I thought she was just hallucinating because of her age and dementia.
Nessa so contact her and add it :)
Terrifying
you've got a fire channel. keep up the grind!
i can controle the elusanation what i think i see but it ceeps changing was diagnosed with stargarts when i was 9 and im now 29 the picture tays in the nidle of my vision just way way brighter colours.Thank you i thagt i was the only one that sees this i have been seeng what evr i think of for about15 years now
Woah:0
My husband has this.
what the reasons of this syndrom ? i hope your husband gets well asap :(
@@Hyman-vg7gj He has Usher’s Syndrome. He will not get well. There is no cure. He’s totally blind now and has lost a lot his hearing. We don’t know if he will lost all of hearing or not. It’s a wait and see situation.
@@HarrisInkwell 💔💔
@@Hyman-vg7gj Thank you 😊
See this kind of stuff under use of LSD, too.
Ikr, it sounds very psychedelic
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