My Special Needs Daughter Reina and the History of Her Conditions
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- Опубликовано: 2 окт 2024
- My daughter Reina is 13 years old. She has autism, ADHD, intellectual disability and Epilepsy.
She is also kind, funny, curious and loves to make new friends. This is the story of her history and her condition.
#specialneeds #specialneedsdad #specialneedschildren #specialneedsparenting #autism #autismawareness #autisticlife #autistic #autisticandproud #adhd #adhdkids #epilepsy #conditions #intellectualdisability
That’s the saddest thing a doctor out of no where could say just by watching her videos you can see her working her brain she can now talk and walk on her own she can communicate with sounds and words surgeries are one of the most hardest thing but she proven that she deserves as much as other in this world have no matter what ❤ you guys are doing amazing even if she can’t say it she grateful for how much you have done for her you guys have never gave up on her
Thank you!🙏
I felt knock backed when I heard it
@@ReinaAndFamilyi literally had to pause the video and think to myself if I was that doctor here is how I would tell the parent that there daughter has Epilepsy. Sir your daughter has Epilepsy and there is no cure for it however there are medications to stop them from happening and even surgeries but that is a last resort thing. I wouldn’t say the R word tho
Hi! I’m the same age as Reina and I truthfully think that Reina will have a great future ahead of her as long as she has good people supporting her. She doesn’t need to be as smart as other kids to be normal. She is smart in her own way and I’m sure she’s a very great friend. I hope she has no more health problems in her future and to continue to live a happy life!
Thank you for those kind words!
That doctor didn’t know a thing about reina! She is not the R word. She just sees the world uniquely. She has so much joy and love! I believe that Reina can do great things just in her timing. But maybe she is meant to teach you to slow down and enjoy the moments of joy
Exactly it's very outdated and to say that word is hurtful to people 😢many people with disabilities can be successful with lots of support and love ❤ 💗
It may well have been the proper term at the time. "Mental retardation" was for a very long time a medical term until it was used more widely to insult people. I'm sure in time "cancer" will be considered a slur as we call people who we do not like "a cancer".
Unconditional love is the best love to have. Congrats to you and your family.
I accidentally came onto Reina on FB and she just shines she is full of life and love for everyone one she meets, I admire your daughter so much I had no idea she was so sick. Reina you are so special and many people love you your a star honey thank you for sharing your life with us guys.❤️❤️
Beautiful story, incredible parenting.
Your an amazing father!! Reina might not always say it but im sure she’ll forever thank you for taking such good care of her❤
Thank you for those kind words!
This video is so real. Real emotions and really beautiful. Many blessings to Reina and the family. 🙏🏻
I am having trouble finding the right words to say, theres so much in this video that speaks about your character and fatherhood. Reina trusts her parents so much, and thats directly from your love and care. You took accountability and stayed honest about the negative feelings of raising a disabled child. But, youve gotten over the hurdle, and now love your family even more than you could imagine. Reina is really lucky having you as her parent, there isnt a single other person in this world that could do what you do for her. You remind me of my dad, I cant wait to be a father and raise my kid with as much love as i can. thank you for teaching Reina to be a shining ray of light. Hopefully i can do the same for my kid.
Sharing your story must have felt very vulnerable and I thank you for it . Reina is a amazing young girl 🫶🏽
It was a tough story to tell.
I'm new to your families channel, I'm happy I scrolled across a video reel on Facebook. Not saying my situation is related but my son started having seizures at 4 1/2 yrs old, he was delayed in speech at 3 yrs of age with a shorter word count than is expected. I immediately was in tears when you were sharing about that one event where seizures wouldn't stop. I had just witnessed him having a seizure in July and by October he had a seizure that would not stop. I carried him into the ER and got frustrated bc all they cared about was me filling out a form while I'm trying to hold my seizing child. I ran outside and called 911. They rushed him into the ambulance and couldn't help him and rushed him into the ER where they sedated him and life flighted him to a children's hospital. His seizures would affect his left side, jerk shaking, head was paralyzed facing the left, sometimes he would vomit during, he would be paralyzed after the convulsions stopped. Took him to a family doctor that helped me save my child's life. He went gluten free, dairy free and other things I eliminated. His allergy test showed many things he was allergic to, his white blood count stayed so high for many years, indicating infection, inflammation.. from 4 1/2 yrs of age to almost 11 yrs of age he suffered from noctural seizures.
Then to top it off blood work said highly allergic to beef. That was yrs later when Dr checked for that. Come to find out I do remember telling doctors that wouldn't listen to me that in July of when he started having seizures, I took him for a bluebonnet photo shoot. I regret that day and wish I had never took him. He came down with a horrible body rash. Now I'm getting him tested for alpha gal caused by a tick. Dr says he has celiac as well.
Strict diet for severe food allergies and a very low dose of keppra and vitamin d .
I've taken him to holistic Dr's as well as his reg Dr. He's growing and excelling in school and no longer has a special education IEP, that accommodates him into regular classes.
Thank you so much for sharing your story. I can’t imagine how tough the journey must’ve been. One of the hardest things is to watch your child suffer and there’s nothing you can do about it. You’re an amazing parent to advocate for your child like this!
Thank you for sharing your story!! As a mom with 2 special needs kids, I always say the universe put them in our life to make us better!! They are angels on earth
Yes they are!
Reina is a beautiful intelligent little girl!! She is such a blessing from God. You are wonderful parents!!
You are a great dad ❤ she has a beautiful soul
WHY WOUKD A DOCTOR WOULD SAY THAT BRO WHEN I SEE THAT DOCTOR I WOULD FIGHT HIM LIKE RENIA IS SO SMART
i wish the best for her ❤
I wanted to take a moment to acknowledge the incredible journey you are on and the unwavering love and strength you show every day as a father. Your daughter, who faces challenges with autism, ADHD, and intellectual disabilities, is incredibly fortunate to have you by her side.
You have demonstrated a remarkable level of bravery and dedication, never once showing embarrassment or hesitation in embracing her uniqueness. Instead, you have become her strongest advocate and caretaker, ensuring she receives the love, support, and understanding she needs to thrive.
The courage and resilience you exhibit are truly inspiring. Your ability to see beyond the labels and focus on your daughter's potential, joy, and individuality speaks volumes about your character. You have created a nurturing environment where she feels valued and loved, which is the greatest gift any parent can give.
Your journey is not an easy one, and it is filled with both triumphs and challenges. Yet, you face each day with a sense of purpose and determination that is nothing short of heroic. The way you balance patience, strength, and compassion is a testament to your exceptional character.
Please know that your efforts do not go unnoticed. You are a role model not only to your daughter but to everyone who witnesses your dedication. You are helping to break down barriers and change perceptions about what it means to be a parent of a child with special needs.
Thank you for being a shining example of what it means to love unconditionally. Your bravery and steadfast support make a profound difference in your daughter's life, and your story is an inspiration to many.
I’m speechless. Thank you so much for your kind words. Being a dad to Reina has certainly been a rollercoaster. I’m so happy that I now get to share my experiences with the world!
Came across the IG account a few days ago and just loved seeing Reina enjoy Garfield. It was an educational experience for me, as well, to not only learn they do have special screenings in places for those who may need a calmer movie going environment, but to get to see someone like Reina be who they are, with your wonderful parenting helping her through life.
There's a spark in her that's just amazing, and it instantly shows. There's no other way to describe it.
Much love from Memphis.
Hi! I just came across one of your reels and came in here. My brother in law is 15 and has some similarities with Reina's story. He has seizures, maturational delay and a physical disability which left one of his arms paralyzed. I really see the effort you guys put with Reina and it made me cry of happiness. You're an amazing parents and overall she's a very good girl, going at her own pace and just being a happy and fun kiddo. I hope Reina keeps growing and being as cool as she already is. Sending lots of love from Argentina 🙌🏻🫶🏻🇦🇷
You are doing the best thing for Reina .
She's doing daily activities her vocab is very good and when she is calm she can express how she is feeling. You learnt the difference of her calmness and stressed stages. Please stop saying in front of her her condition of high anxiety because she is listening. Unfortunately girls do have high anxiety and they find it hard to express. My daughter is 24 and still finds it hard. Ive just learnt to read her signs to preempt her behaviour.
Also its hard because they look normal till they talk loudly or have a meltdown and people judge the child .
Learning to say please is tricky but sometimes if they say please and explain they have a disability people who are not ignorant will understand.
Especially during covid when the world was crazy i got a facemask that explained she had a disability and to be patient.
Also now they are introducing a sunflower lanyard that highlights to people you have an invisible disability and to be aware not ignorant
What kind of doctor says something like that?!
Also, kudos to your family for being there for her. I can tell that you're amazing parents. Reina is such a ray of sunshine
This is so beautiful 😢you’re such a great father
Thank you!
Hi,I’m 26 with Dyslexia,Devolpmental Delay both diagnosed that when I was young,might have more,but the more I grow up I find myself having,ADHD,I don’t have much too do,I definitely get bored so often,I’ve also got more anxious,so I understand,Renia on new places,but this is not exactly what I want to say,Please if you can,tell her that she is awesome! Because this is the second video I saw,you’re also doing a good job being her dad! 🥺 I’m planning on seeing more awesome videos with her in them! Thank you so much for sharing!
& oh yeah,people like to stare,it bugs me but with seeing,Renia not give a care,she’s so awesome!
Thank you so much for your kind words! We will keep making videos and share Reina’s life!
Do doctors still use the R word? 13 years ago? When you said that. I dropped
It was about 9 years ago and yes i did too.
I love the LA Metro trains too! Reina seems like a lovely girl. You have a beautiful family ❤
brought me to tears, such a beautiful video and love learning new things thank you ❤
Thank you!🙏
Hi there. I'm also the same age as Reina, and she seems so happy and carefree. I found you guys on Instagram, and followed you to youtube.thanks for being such a great parent 3
Awesome! Thank you so much!
You are such an incredible father! Reina is beautiful and joyful :) All the best for you and your family
Oh my heart, Reina is such a sweetiepie! 😊 I'm sure you don't need advice from a stranger but many parents don't know about the services that are available to people with disabilities - my friend's brother just started getting aid from the OPWDD (I'm in NY) and he's 53. They had no idea the program existed and only applied three years ago. I'm sure there's an equivalent program where you live!
Yes we have all the available government programs. But some of those we definitely didn’t learn about until years later.
Thank you for sharing her story with us, knowing what she has had to go through makes your video worthwhile. Every time I watch a Reina video she makes me smile. Her curiosity, bravery and her can do attitude are the greatest. Be proud of the daughter your raising, regardless of her disabilities, she looks happy and loved. Be proud that you're doing the best you can. Know she's proud of having such a caring dad. She cant express it but know she does.#reinarocks
Your words are very touching and kind. Thank you so much!
Thank you for sharing your story! I follow you on Instagram. As a fellow special needs mom, your story bought tears to my eyes.
Hi Reina and Dad, it’s me Penelope. Remember me? Thanks for explaining Reinas story!
Of course!!
You and your wife are wonderful parents! I can imagine how heartbreaking and frustrating it is not having answers or solutions.
I have three disabled cousins in one family. Each child was progressively more impaired than the first. They were all born deaf. The youngest one is in her 60's and they are all still living. Their parents got them into programs at United Cerebral Palsy which did such wonderful things for them except for the youngest who is so impaired that she has been in a nursing home since childhood. The twp older girls now live in a group home and have a lot of family visits. They are both in their 70's. The oldest one just retired and doesn't want to participate in programs anymore but the middle lady still does, she works and earbs money in the program. I don't know if UCP is available in your area but it would be worth looking into. It gives their lives structure, they often went on vacations to Disney etc.
Thank you so much for this info. We will look into it.
God bless you!! Wish u all the happiness in the world. ❤
Just came, from ur guys TikTok video!
Yay!
What Truly Makes You A Man Is Not The Ability To Make A Child,
It's The Courage To Raise To One!!💚💚
Respect To You Sir!🫡🫡
You are a FANTASTIC Daddy. I watch all your IG stories and just found you on RUclips . Bravo Dad! ❤
Wow, 🙏
Dad, I'm so proud of you and Mom. You guys are doing better than "great" with Reina. She receives so much love, care, attention, and opportunities to expore...you guys are exceptional.
To the beautiful soul called Reina. Sweet girl you are a 🌟 you beam so bright that so many of us around the world can see you. We are attracted to your light, you fill us with joy, you're funny, kind, and adventurous. We are grateful that your parents share you with us. We love you dearly, keep moving forward, nothing is ever what it seems to be. 💛
One more thing Dad, (if you haven't already) look into brain gym exercises by Paul E. Dennison. Listen to Carla Hannaford's talks or books about the body and movement building the brain. And, how brain gym workouts have changed the lives of neurotypical & neurodivergent ppl, old & young ppl, speech delayed children, alzheimer's and dementia patients...literally everyone benefits from these simple movements. Look into it, sending love.
Awww thank you so much for all of your kind words! 😭
I love the story about Reina and you dad, keep up the great work dad.
Thank you!🙏
siezures can cause damage..have you trie\d medical marajuana it has proved affective for epilepsy while other drugs have failed
I just found your channel and this was the first video I saw. I just have to say Reina is BEAUTIFUL, her smile is contagious and she’s so sweet! Following your channel!
You are such an amazing dad and Reina is so sweet and she's a bundle of joy!!Your family is so full of love for eachother!!:))I am so sorry you had to go through such a terrible experience with that doctor!!:(
Wishing nothing but the best for you all!!
She’s so cute. We have the same name except mine spelt different like Reigna
Never change ms Reina that dr who called her the r word is a joke
Reina seems so sweet.
She’s fabulous! What is there to be embarrassed about? Woohoo, Reina!
New subscriber to your channel :)
Darling girl! I love her happy spirit!❤
I was listening to her story and was flabbergasted when I heard the R word come out from a doctor, who says that abt a child? Who even says that to a parent- Reina is such a beautiful little girl and I’m glad that you’re letting her experience all the fun in the world with no shame, she overcame all the challenges and hardships that people staring or pointing won’t overcome everything she achieved, it tears me up that u we’re holding ur little girl while she was having a seizure, no parent should experience that, I know she’ll be loved by not only her parents but most of the people who watched this video! Much love to u and Reina🩷
Awww thank you so much for your kind words! We have been through a lot but Reina makes it all worth it!
#1 father 😊❤
I know that it's so hard to have seizuteacher.S and all that because my brother went through it.When he got in a car accident, he lived many years in a nursing home.I hope she lives a good and happy life
NAHH WHAT DID THE DOCTOR JUST SAY
she sp king
Thank you allowing us all to know Reina’s story. I can’t imagine recording this wasn’t easy so I thank you again. Also please please give Reina a high five from me!! 🫶🏾🫶🏾 I’m an LA native hope to someday bump into Reina and Dad (and shy mom) 🤗
Read the New Testament brother.... full of examples of God's healing power and miracles 🙏❤