Mere bhi 14 saal ka beta tha ab nhi fir ladki hui uske baad dubara bacche ki 4mnth ka tha to test krwaya pet m cvs to wo bhi dmd affected tha usko abbort krwaya fir ivf se kiya ab beta hua h ab bs wo thik rhe
@@monikaranjan8303DMD ek ghatak bimari hai, jiska abhi tk koi ilaaj nhi hai, pr ise aage badne se roka ja skta hai, meri family me ek bachche ko hai jiska diagnosed delhi aiims me hua tha, pr hm agle hone wale bachche ko dmd se kaise bachaye, ye samajh me nhi aa rha h, maine chandigarh pgi me bhi consult kiya tha.. kya hm aage is baare me baat kr skte hai..
Sir mai dmd ka patient hu mera age 25 runing kar rha hai lekin an mujhe uthane baithane aur runing me bahut pareshani ho rhi hai titment bahut ho rha hai lekin koi asar nhi ho rha hai kya mai jindgi jee launga sir ya
mere bete ko dmd thaa...19 saal ki umr me bete ki death ho gyi...13 saal me bahut ilaaj krvaaya...lekin hum usse bcha nhi paaye...its very bad diseade😢
pregnancy egg sy hoti hai kis ovary sy egg aeya hai us sy koi farak nahi parya agar aap ka egg theek hai to in sha allah zaror pregnancy ho jaey ge or 2ndly her month alag ovary me egg banta hai so don't worry🙂
Aap khud ka Dmd carrier test kervaye, if aap ek dmd carrier hai toh hi aapka next bache ko dmd ho sakta hai. Uss case mein aap ivf with PGD-M testing kerva sakte hai. If aap carrier nahi hai, toh mostly aapke next bache ko nahi hoga
sir mere ghr me ek bachhe me is Bimari ke bare me pta Chala h .....iska koi ilaj batye please abhi wo 6 Sal Ka h.....delhi me koi achha hospital ho to...jaha hmko aram mile
सर मुझे muscular dystrophy है 12/13साल से मे 29साल का हु रोज penkilar medicin lini padti है kuch pakka ilaaj nahi है kya sir दुनिया में कोई रिसर्च या वैज्ञानिक नहीं हे क्या जो muscular diysrophy पे दवाई बना राहा हो विज्ञान इतना आगे गया कूच तो उपाय होगा सर
Mera bhai ka bhi mascular distrophy hai abhi wo 10 year ka hai aur Dr ne bola ki iska life 25 year hota hai kya yeah shi hai ya galat aap bta skte please
Sir mera pahla embro transfer fail ho gaya hai .mere 6 embryo freezing me rakhe hai ab dubara se embryo transfer ke 50 hajar rupaye mag rahe kya dusri bar me etna peda lagta hai sir repaly de
Hi sir ye bimari mujhe bhi age hai 27 sir mujhe DMD hoke 15 saal ho rahe hain is koi ilaz ho to bataiye sir ab main wheelchair pe aa chuki hun 😢🙏🏼please sir
बुध से ज्ञान मिला📘📒🌹📘📒 भीम से मिला संबिधान 📚📚🌹📖📖और भाग्य से समानता धर्म मिला 🌹🌹🇪🇺🇪🇺किस्मत से मिला हिंदुस्तान🇮🇳🇮🇳🌹🇮🇳🇮🇳जय भीम🙏 जय भारत 🙏जय संबिधान 🌹🌹🙏🙏🙏🙏🙏🙏
Mere bhi 2 bete hai pahla baccha thik hai dusre bete ko musculer distrophy ki bimari hai pahle yeh chalna firna uthna beithna bahut mushkil hota hai hame yeh baat Chennai ke dr ne batayi hamare niche se to dharti nikal gyi Aisha laga ab to ushka sab kuch band ho gya ab to apna khud ka kaam bhi nahin kr sakta Scholl bhi band ho gya
Kitni age hi apke bache ki ?mera v beta hai uski age 10 year hai .use v btaya gea k je problm hai hme to do din hue k pta chla hai.hme kuz v smj ni aa raha
@@hardeepkaur4148 hamne to haridwar me dr Deepak Kumar ko dikhaya abhi ushki medicine chal rahi hai aap unse baat karlo mujhe bhi abhi 3 month hua hai treatment start kiye aap bhi dikha lo ek baar
5 years ka tha tab pata chala humlog ko pahle to sab kuch karta tha sare sports khaelta tha lekin lock down ki wajah se ghar me beithe beithe legs me sujan aa gayi ab chal fir bhi nahin sakta school bhi nahi. Jata ishka koi medicine nahin hai lekin aayuvedic me ishka pakka ilaz to nahi. Kuch had tak shayad thik ho sakta hai main to itne salo se ro ro kr thak gayi lekin rone se koi fayda nahin hoga ab kuch karne ka time hai
Stem cell s kuch nhi hota hai tohde din aser rhta fr body vhi k Nhi yoga parnyam kro lom vilom or kapalbahti 2 hour or pihyso thrpy daliy Himachal solan m hospital h ise bimari vha jao 1 bar
Sir, .. Kahte hai female me muscular dystrophy nhi hoti, lekin meri beti ko hai. Abhi wo 26yr. ki hai.. Ab wo wheel chair dependent ho gayi hai,, aur gradually bimaari badti ja rahi h.. Physiotherapy hone k baad bhi badh rahi hai.. Bahut hi regret hota h usk liye..
सर ऐसां कोइ इलाज नहीं है क्या जिस से distrophy protin तयार हो पाये body मे ओर muscular diysrophy वाले पेशंट ठिक हो पाये
Mere bhi 14 saal ka beta tha ab nhi fir ladki hui uske baad dubara bacche ki 4mnth ka tha to test krwaya pet m cvs to wo bhi dmd affected tha usko abbort krwaya fir ivf se kiya ab beta hua h ab bs wo thik rhe
Aap ne kaha se ivf kraya h please bataiye mere bhi beta ko h dmd dusra baccha abortion karna pra usme me dmd aaya tha cvs me
@@monikaranjan8303 m jaipur se hu to yhi se krwaya h
@@monikaranjan8303DMD ek ghatak bimari hai, jiska abhi tk koi ilaaj nhi hai, pr ise aage badne se roka ja skta hai, meri family me ek bachche ko hai jiska diagnosed delhi aiims me hua tha, pr hm agle hone wale bachche ko dmd se kaise bachaye, ye samajh me nhi aa rha h, maine chandigarh pgi me bhi consult kiya tha.. kya hm aage is baare me baat kr skte hai..
My son have a same problem sir and I’m looking for latest treatment if there is abele abele sir..
Kon sa treatment Kiya aap ne mam
Sir mere bro ka v eda hai please bateo ki eska ka treatment hai
Or kha par iska treatment hai
Kahan kiya bhai aap ne ilaj plzz
May be
Sir mere ghar me bhi hai DMD bimari iska ilaaj bataeye
Sir iska medicine Kia hai iska medicine bataiye
Sir there any treatment. I have DMD disease any treatment
Wahrguru ji
Sir aaplog sirf bimari bataoge ya uska upchar pe research v karoge
Enke pass kya 1984 se elaz hi nhi wrna hm abhage aaj rote nhi
Sir mere bete ko dmd ki bimari ho gaya hai iska koi ilaj ho to hame bataye
Sir mai dmd ka patient hu mera age 25 runing kar rha hai lekin an mujhe uthane baithane aur runing me bahut pareshani ho rhi hai titment bahut ho rha hai lekin koi asar nhi ho rha hai kya mai jindgi jee launga sir ya
Ma pakistan sa hu mujhy dmd bimari 1st class s Start huwi pr abhi mri age 18 s upr h ma runing nhi krskta or na uthskta bs
Nhi
Sir embryo transfer ke 25 days bad vi preganews me halka line aane ka Kya motlob he
mere bete ko dmd thaa...19 saal ki umr me bete ki death ho gyi...13 saal me bahut ilaaj krvaaya...lekin hum usse bcha nhi paaye...its very bad diseade😢
Sir left ovary me single egg h 22 mm ka. Kya left ovary se bhi pregnancy hoti h na ni?
pregnancy egg sy hoti hai kis ovary sy egg aeya hai us sy koi farak nahi parya agar aap ka egg theek hai to in sha allah zaror pregnancy ho jaey ge or 2ndly her month alag ovary me egg banta hai so don't worry🙂
sir pehela baccha affected ho to next ke normal bacche ke liye kya tretment hai
Aap khud ka Dmd carrier test kervaye, if aap ek dmd carrier hai toh hi aapka next bache ko dmd ho sakta hai. Uss case mein aap ivf with PGD-M testing kerva sakte hai. If aap carrier nahi hai, toh mostly aapke next bache ko nahi hoga
Plz aap se baat krni h ji plz
sir mere ghr me ek bachhe me is Bimari ke bare me pta Chala h .....iska koi ilaj batye please abhi wo 6 Sal Ka h.....delhi me koi achha hospital ho to...jaha hmko aram mile
ese bacche 18 years tak hi jite hai 😭
Aap Ganga ram me Dr ratna duaa puri se miliye.
Please help me with some urgent advice
Sir mujhe bhi Lgmd h ... Kya me baby plan kr skti hu
CAn I hve ur contact detail..
Bcz my sister having same issue
DMD ka koi ilaaj nahi hai apne bache ko khilao pilao our use achi life do 😔
Research is going to America
Physiotherapy or protein diet de kar v ham isko thoda control kar sakte h.
@arshad-malik4813abhi tk to nhi aayi
सर मुझे muscular dystrophy है 12/13साल से मे 29साल का हु रोज penkilar medicin lini padti है kuch pakka ilaaj nahi है kya sir दुनिया में कोई रिसर्च या वैज्ञानिक नहीं हे क्या जो muscular diysrophy पे दवाई बना राहा हो विज्ञान इतना आगे गया कूच तो उपाय होगा सर
Mera bhai ka bhi mascular distrophy hai abhi wo 10 year ka hai aur Dr ne bola ki iska life 25 year hota hai kya yeah shi hai ya galat aap bta skte please
@@sumankumari4457 maam mujhe bhi dmd hai mera bhi life khatra me hai
Aapka age kya hai
@@sumankumari4457 age19
@@sudhirkushwaha8555 oo bhagwan kre aap thik ho jau
Sir mayra ladkay ko DMD hi 10yare.ka.hi.kohi.elaj.batao.sir
Sir mera pahla embro transfer fail ho gaya hai .mere 6 embryo freezing me rakhe hai ab dubara se embryo transfer ke 50 hajar rupaye mag rahe kya dusri bar me etna peda lagta hai sir repaly de
Kahi 40 lgta h kahi 50 bt jha aapke embryo freez h wahi krwao sahi rhega
Sir Hamari family m do bacche kis Bimari Se pidit Hain
Hi sir ye bimari mujhe bhi age hai 27 sir mujhe DMD hoke 15 saal ho rahe hain is koi ilaz ho to bataiye sir ab main wheelchair pe aa chuki hun 😢🙏🏼please sir
My gf also have dmd 🥺 she's 21 she can't walk
@@comicera1808 kitna time hogya unhe DMD hoke
@@Meri_Aawaz_21 birth se 2 saal tak normal thi phir us time se abhi tak she's handicapped 🥺
Sir Mera beta mascular destropy hai...kay IVF karna Chari hu...IVF healthy babay hosakta hai kay
Kr lo ho jayega maine bhi kiya h mere bhi dmd tha jo ab nhi rha
Mere dono bhai ko ye bimari hai
India ki sabse Ghatak bilmari hai DMD 😭😭😭
Sir please help meri family me ek baccha hai
बुध से ज्ञान मिला📘📒🌹📘📒 भीम से मिला संबिधान 📚📚🌹📖📖और भाग्य से समानता धर्म मिला 🌹🌹🇪🇺🇪🇺किस्मत से मिला हिंदुस्तान🇮🇳🇮🇳🌹🇮🇳🇮🇳जय भीम🙏 जय भारत 🙏जय संबिधान 🌹🌹🙏🙏🙏🙏🙏🙏
Kitna karch ata hai is test me
Delhi me total 16se 17 hjar aata h mere do baar huye h
Comment ka jwab dijiye sir
SIR STEEM CELLS SE TK HO SKTA HAI HELP M
Is condition me hai mera bhai khud khusi krne ka mn karta hai
Bhai koi ilaj krawaya Aapne
Mere bachhe ka test hua 3 week k bad report denge Mera man marne ka kr rha hai kuch ek percent bhi ho to bachha lo mujhe mere bachhe ko
Mere bhi 2 bete hai pahla baccha thik hai dusre bete ko musculer distrophy ki bimari hai pahle yeh chalna firna uthna beithna bahut mushkil hota hai hame yeh baat Chennai ke dr ne batayi hamare niche se to dharti nikal gyi Aisha laga ab to ushka sab kuch band ho gya ab to apna khud ka kaam bhi nahin kr sakta Scholl bhi band ho gya
Kitni age hi apke bache ki ?mera v beta hai uski age 10 year hai .use v btaya gea k je problm hai hme to do din hue k pta chla hai.hme kuz v smj ni aa raha
@@hardeepkaur4148 hamne to haridwar me dr Deepak Kumar ko dikhaya abhi ushki medicine chal rahi hai aap unse baat karlo mujhe bhi abhi 3 month hua hai treatment start kiye aap bhi dikha lo ek baar
Konse test se pkka pta chlta hai k j probkem hai? Plz btayen🙏
CPK blood test
5 years ka tha tab pata chala humlog ko pahle to sab kuch karta tha sare sports khaelta tha lekin lock down ki wajah se ghar me beithe beithe legs me sujan aa gayi ab chal fir bhi nahin sakta school bhi nahi. Jata ishka koi medicine nahin hai lekin aayuvedic me ishka pakka ilaz to nahi. Kuch had tak shayad thik ho sakta hai main to itne salo se ro ro kr thak gayi lekin rone se koi fayda nahin hoga ab kuch karne ka time hai
M suffering from SMA TYPE 3
AND M GOING TO MARRIAGE WITH GIRL WITHOUT ANY PHYSICALLY PROBLEM
IF I HAVE KIDS IN FUTURE THEN WILL THEY BE OF SMA?
Yes
Iska ilaj hai to btaiye please sir
No treatment
Stem cell s kuch nhi hota hai tohde din aser rhta fr body vhi k
Nhi yoga parnyam kro lom vilom or kapalbahti 2 hour or pihyso thrpy daliy Himachal solan m hospital h ise bimari vha jao 1 bar
Ap gy ho
Mujhe bhi hai or meri zindagi narak se battar ho chukki hai mujhe samaj nhi aata jindaa rahu ya khud khushi karlu
Hosla rkho bhai bgvan priksha le rhe h meri sister ke do ladhke h dono ko dmd h
Mere bhai aap jaisa mera bhi haal hai kya kare hum bhi dmd se garasit hai
Sir hamare bete ko bhi h😢😢😢😢
Sir मेरे बेटे को भी DMD hai
सर इसकी जांच कहां पर होती है गर्भ में बच्चा सही है या नहीं इस में कितना खर्च आता है ट डीएमडी
14 hajjar rupe delhi hospital sir ganga ram hospital. Genetic department
Bhai lukhnow pgi me bhi hota hai
Karnataka me
Gentic counseling उस जांच का नाम
गर्भ के तीसरे महीने में होती है AIIMS में
Gene therapy to stop the progression
Sir aapka contact no. Do. Aapse dmd ke related janna he. Please
यह तो हम भी जानते हैं
Do you have any treatment for this disease?
If not then don't post such videos for money.
Sir mere bete ko DMD h
hello
mere bete ko bhi dmd he sir
India ka doctor forgner per depand rahata hai
Good
Pls mnu v dso may baby ke j porlm hai
Ye lut rhe hai sirf paisa jante hai
Sir, .. Kahte hai female me muscular dystrophy nhi hoti, lekin meri beti ko hai. Abhi wo 26yr. ki hai.. Ab wo wheel chair dependent ho gayi hai,, aur gradually bimaari badti ja rahi h.. Physiotherapy hone k baad bhi badh rahi hai.. Bahut hi regret hota h usk liye..
From?
Female ko bhi hoti hai bahut rare case mein :(
Sir mere mister ko Becker muscular dystrophy hai age 55 year hai wo chal nahi paate hai kya karu
@@KiranSingh-gp3yq nutrition try kro
@@bantygarg7 wo to khana bhi kam kar diye unse khana hota hi nahi sirf liquid hi lete hai
Adress aur contact no dijiye