DISH Update 2022 Diffuse Idiopathic Skeletal Hyperostosis
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- Опубликовано: 3 янв 2022
- Diffuse idiopathic Skeletal Hyperostosis DISH arthritis Hyperostosis Back pain calcified ligaments Exercises for DISH causes of DISH supplements for DISH Food supplements for DISH drugs for DISH Vitamins for DISH Yoga exercises for DISH Stretching exercises for DISH
I was diagnosed over 25 years ago. Over the years I've tried to explain DISH to others. I used the medical terms and I've used visual aids. But the best description which people seem to grasp is when I tell them "the human body is made up of 206 bones. My skeleton is trying to form just one bone."
Hi David, my heart goes out to you, you must of been quite young? have you been checked for Ankylosing Spondilitis?
I've found that doing meditation to calm the mind can definitely help to relax tight muscles. This allows me to do some gentle stretching
Great video. Just diagnosed at 62. Had been suffering for years. GP just ignored. Finally went to a rheumatologist after statin reaction in my back was so severe. Got off statins, and pain went away, but went ahead and went to rheumotologist, had exama and xrays, and found out I have DISH. Also had kidney stones 3 times in two years previous. Rheumotolgist put me on gabopentin, and amazing relief. I can get in and out of the car now, for example, not feeling and moving like an old man. And neck is feeling much better. Had always been limber, until the pandemic and kidney stones. Did notice a bambooish type vertebrae before all this got chronic. Physical therapist had thought it was an edema. Was thinking about taking glucosamine and chondrotin, but reaearch tends to indicate ineffective.
Hi Gary,
Thank you so much for creating this channel and your videos, they are very helpful considering the lack of good information about DISH. I am female aged 54 (no metabolic issues other than slightly raised cholesterol which I’m working on), I was diagnosed in August 2022 after 2 years of not knowing and being misdiagnosed with axial-spa/AS as I am HLAb27 positive, it took a private mri scan and expert doctor to tell the difference between the two conditions. I found there was so much support for Ax-spa/AS but sadly very little for DISH and have been left alone to manage this difficult condition. It’s certainly a learning curve, it’s really helpful of you to share your insights!
Thanks again,
Lucie
I am 62 and was diagnosed 8 years ago. I always had a job that kept me active, but I also did prolonged repetitve heavy lifting for many years (Controversial cause) I've had high cholesterol my whole life and have been a little overweight, but that's it. Thank you for this channel, although I did physical therapy, I still need ideas!
Hi Kati, nice to hear from you. We all have our own theories on DISH but the disease is just bizzare! Just try to keep away from Carbs, keep your weight in check, move as much as possible, stretch, and if you need to use painkillers!
Good info Gary…THANK YOU!!!
Thanks. I’m 59 and was diagnosed a few years back. I do some very similar exercises every morning which help a lot. I also do meditation and intermittent fasting. The fasting I think not only helps with keeping my weight down but also seems to reduce inflammation in the joints. I also try not to drink too much and gave up caffeine a while back. My biggest temptation is sugar but I managed to reverse a type two diabetes diagnosis a few years back. My next challenge is to really kick my sugar and junk food habit permanently. Hopefully that’ll also help with gut health which seems to be a great benefit as you get older regardless of your health. Thanks again for taking the time to pass these tips and ideas onto other people. Very helpful. Cheers.
Hi Paul, good to see that you have some strategies that are working for you, good luck with defeating the sugar beast! Must admit i struggle with that one too.
@@garypul1245 Hi Gary, just an update on my sugar habit. I've managed to be 'sugar free' for over three weeks now and while the first week or so was difficult with cravings etc, I have to say that I notice a very significant reduction in my neck and back stiffness. I even had a few days last week where I couldn't do any stretching due to early morning commtiments. And normally this would mean I'd be totally seized up by mid afternoon. But this time, that hasn't happened. Obviously I'm not a medical expert and this is all purely personal and anecdotal. But I'm assuming getting rid of sugar has perhaps significantly reduced the inflamation in my joints. When I say, I'm sugar-free, I'm just talking about added empty sugars such as cakes, biscuiits, chocolate, sodas etc. I still have some fruit and some processed carbohydrate; though not that much and I've been avoiding white bread and too much pasta for a while now. So, it's sort of been a phased approach. But I have to say that so far I'm really very pleasantly surprised by the results. Anyway, if it does inspire you to try it yourself I'd be interested to see the results here on your channel. Cheers.
@@paulmarshall2007 Wow! looks like you are making good progress. I have known for sure that Sugar is very bad for DISH sufferers but in this day and age so much food has sugar in it. For starters I keep away from the big hitters like Soda / fizzy drinks, pizza which is high on carbs, white bread...bad! but its hard to modify your diet with replacements but with some thought it can be done. Keep up the good work and let me know how you progress. cheers Gary
Thank you for your effort in bringing awareness about D I S H bone disease and how to live with it. I am 59 years old,I have been diagnosed as DISH bone disease patient by seeing my skeletal Xray and CT and my physician told that no specific treatment to cure this rare condition. While I am searching for any latest treatment for DISH, I saw your video, it is really very informative and helpful for me . Lots of regards from India.
Thank you for your comments, I hope you have some success in controlling your symptoms.
Great information. thank you.
I was just diagnosed 1 month ago. Thank you for putting out this video. What happened to me when I was 19 makes sense now. I was hit in the face and it dislocated my jaw. They did surgery and put in, on both side, metal implants to replace the disks that were damage. I built up a boat load of spurs all around my face and my mouth would not open. Had to have surgery again and have my face scraped and had radiation treatment. DISH makes since.
wow, that sounds quite traumatic, may have a bearing on your DISH DX
I have Dish. Thanks For your videos
Thanks for posting. I developed DISH at age 28, and I’m 36 now. Apparently taking Accutane (Isotretinoin) caused my DISH. Long term use of this acne drug is a known risk factor for the disease
Hi Cory, sorry to hear this, very young to get dx of DISH. I have heard that some acne drugs have been associated with DISH, makes you wonder what it is about the drug that causes DISH?
Hi Corry, sorry to hear that you have a DX so young. Just remember to keep mobile, stretch, do yoga and keep away from too much sugar and carbohydrates.
I was on the same medication and was Diagnosed a few years later after I was off of it
cory you are not alone i got it from achne drug too at age 26 was on it 6months tops i have had back pain ever since 43 now eager to find relief has ruined my life
Just found out I have dish yesterday. Appreciate your very informative videos
Hi Rick, sorry to hear that, but sometimes its good to know what you are dealing with. Its going to take some time to sink in but there is a lot you can do to slow the progession of this disease and hopefully you will find some help and tips in my videos. There is also a very good group on facebook. facebook.com/groups/DISHSUPPORT
Excellent stuff. Do you take more protein through out the day? Do you think if developing the muscles a bit more do you think in your opinion that it would help ? Also I think you are right with gut health. I believe all health starts with the gut. One think I think would help is eliminating all simple sugars and cut back on the majority of complex carbohydrates . To try to cut down on as much inflammation as possible. Would you agree? I think good fats would also be beneficial and fish oils. I am new to this disease and am starting to research it. My brother was just diagnosed with it a few months ago. And myself I am a personal trainer and trying to find a link to helping him. I started watching your videos and I like how you are combating the disease. any information or opinions in the questions I just asked would be greatly appreciate it. And one little tip that I learned is that if you're going to take magnesium take zinc with it it'll help it absorb faster. PS I think what saying about posture is very beneficial with anybody but more so with this disease. Thanks
Hi Joseph. Thank you for your in depth reply. I do not consciously think about Protein after my smoothie but I do try and keep away from refined sugars and carbohydrates because its these that I believe drives DISH. I'm not a muscle man, i only carry out my exercises in the morning but I know a lot of DISHERS gain benefit from strengthening and building muscle to support their body. Very interesting that your brother has DISH which underlines the possible genetic link? Gut health is mega important. There is more proof recently that the gut might be responsible for a number of diseases such as Parkingson's, MS and Chrones disease so loads of pre-biotics, fermented foods and soluble fibre to feed the gut. In terms of posture I think this has had a great influence in my disease. I am quite tall so I tend to "hinge" at the top of my thoracic spine and this is where most of my pain originates, I am also having problems with my neck. Good luck with your research, keep me informed of progress, one thing with DISH that you will learn is that nothing makes sense!
@@dishdiseasesimplified4728 thank you for your reply . I may have confused you in my comments. I myself do not have dish just my brother. I just trying to help but you got me to thinking. Out of 9 in our family , 5 have been diagnosed with osteoporosis and other the degenerative disease of the spine. So maybe genetic to some degree. Also my family have long torso's and tend to slouch over. Me myself notice this situation when I was younger so I always try to work on my posture because I thought most of the pain they had in their back may have been through this.
I hope to Converse with you on progresses and such and hope you the best and looking forward to your videos and comments.thank you for your time and help. Keep up the good fight.and thank you again
i thought the same thing about muscle growth Joseph. but its hard after fourties (where I belong). Plus question for both of you... have u seen "the game changer" in netflix? this documentary claims that vegan diet is very antiinflamation diet. any thoughts?
I just got diagnosed with it by taking Acitretin a retinoid I took for skin cancer.
You been missing in action for a while but another solid video with good info.
I'm surviving! will try and give a update soon!
Thank you for this video and information. I'm 40 years old and recently diagnosed with DISH. I've been in treatment for pain for about 8 years and have a few different Spinal conditions and now DISH. 😢
Hi Deidre, thank you dropping by and I am sorry that you have been dx at such a young age. One positive spin is that you still have time to make some big changes in your life to influence the progession of DISH. If you are overweight change your diet to exclude or reduce processed food, beige food, cakes, white bread, artifical sweeteners, soda and get to your ideal BMI. If you have high blood pressure it could be reduced by losing weight and doing more non impact exercise or if it is stubborn use medication to lower it. Try and get some exercise routine into your life and join a yoga or pilates class. Make sure you carry out gentle stretching everyday. If you are a diabetic losing weight and cutting out sugar and processed food may reduce your sugar levels and thus become non diabetic. If you are in a lot of pain use Naproxen for inflammation and Paracetamol for pain. If you get muscle spasms get your doctor to prescribe Baclofen which reduces the muscle tension. Depending on how much you want to commit to these changes will influence greatly how your DISH progresses. I wish you all the luck for your journey and you can always come back and ask questions if you want to. regards Gary
@dishdiseasesimplified4728 thank you very much Gary!
Hi Gary,
Thanks for these videos, they are very informative. You don’t appear to have been on here for a while & I’m wondering how you’re getting on with the condition at the moment?
Regards
Neil
Hi Neil, Yes I'm surviving, like most DISH sufferers I have good and bad days. The bad Days seem to be getting longer and the good days shorter! but I'm still doing my yoga moves, still making my morning smoothies and I just try and put on a smile on my face and carry on. Hope your Ok and finding your own way to deal with DISH.
@@garylowther941 Hi Gary, thanks for the prompt reply. I only got my diagnosis yesterday so will I’m a in a bit of shock. I’ll follow your advise on yoga and physio plus give the smoothies a whirl & hopefully stay away from the tablets!
@@neiledgar9458 Hi Neil, Diet makes a massive difference, If you are overweight try going on a none carb diet, keep away from carbonated drinks, junk food and take aways, exercise moderately, keep your stress levels down and try and keep a positive mind!
Hi Gary, yes I’m a bit on the chunky side but have lost over 2 stone which has made me generally feel a whole lot better. I’ve ditched plenty of bad stuff from my diet so that should hopefully help. I drive up to 50K miles a year & I think that hasn’t helped matters. That has now dropped a lot but I feel stiff & sore when I get home. The exercises my physio has given me is keeping me as flexible as possible. My posture has certainly improved..I’m trying to stay positive & will seek help if necessary. Thanks for your time.
FWIW my mom also had parathyroid issues that caused too much calcium buildup and she had her parathyroid removed . I have never had that problem, levels normal, but I do have DISH. I
Hi Minna, my sister had to have some of her parathyroid removed because she had a buildup of Calcium in her blood but she does not have DISH whereas I have DISH but no Thtroid problems so quite baffling!
@@garylowther941 I am wondering since DISH is a buildup of new bone whether we may be generating more calcium but it's not staying in the blood. Not a doctor. It was just curious because you don't hear about hyperparathyroidism that much.
Your video is great. I am 70 years old,just diagnosed with Dish within last 3 monthsYour explanation of Dish is good. I need to lose weight. What type of diet do you recommend? I do take, Vit d and k daily, zinc, and if I remember a probiotic. I try to walk,which is hard to do. I will check out a psyio therapist.
Hi Lynn, sorry to hear of your diagnosis. A diet I would recommend (which i try to adopt not always succesfully) is the none "beige" diet. So cut down on carbs such as bread and pasta, keep well away from carbonated drinks and POP, concentrate on vegetables and lean meat such as Chicken and fish, and try not to eat processed food and take aways. I know that might make your diet boring but it is the best way to loose weight with mild exercise thrown in. Good luck!
Thyroid and parathyroid are two very different things.
I am taking collagen with vit c and hyaluronic acid. I was wondering about the collagen and if it could make things worse potentially but making tissue more robust? It’s my understanding with DISH the ligament has ossified? I’m just now learning about my condition. Have you researched much about hyaluronic acid supplementation? I think it’s what adds lubrication to the tissues. Just some thoughts. That is for making this I just subscribed!
Hi Caroline, thanks for dropping by and I am sorry that you have a diagnosis of DISH. I haven't done much research on hyaluronic acid but i believe that collegen supplementation is a good strategy. Its the ligaments that start to harden in DISH and anything you can do to keep those ligaments both stretched and supple by adding collegen supplementation is a good thing. Make sure the collegen contains type II that is the one for ligaments. Good luck!
@@garypul1245 thank you for the reply! Yes I am only 38 and have had this condition for over 10 years. But only just recently got an official diagnosis. Trying to move as much as possible within my limitations. It’s my understanding that proper movement can do the most for the ligaments.
Great video! Thanks. Can I suggest maybe mentioning how much viD and K2...I think the recommended id 4000iu Vit D3....90 micrograms of Vit K2. Also I think it would be good to emphasise doing the yoga and stretches very slowly within your range.
Hope this helps....we are all in this together eh?
Hi Bill, I'm thinking about a video to answer all of these questions! The Vit D I take is id 1000iu and the K2 from "Natto"
@@dishdiseasesimplified4728 .. my research had suggested D3.. 4000iu….K2 micro grams ?
@@billchambers4614 Hi Bill, Taking 4000 D3 made me feel sick so I have stuck with 1000. The K2 is 100ug with Natto.
I've been told I've got it. I'm sure it osteoarthritis, going for second orthopaedic
DISH can be DX sucessfully by having plain X rays and a good Rheummy looking at the results.
Just found you. What is your opinion of Ring Dinger by a Houston or Dallas Texas, USA?
@@barbarabowman9238 hi Barbara, i had never heard of a ring dinger! Thank you for bringing it to my attention. They are correct, Gravity is our worst enemy, if we lived in Space we would not get DISH! However my position with chiropractors is to proceed with caution. It depends where you are in the progression of the disease. If you have any impingment on the spinal cord you should not be manipulated period. Howwever if there is no stenosis then mild manipulation of the joints could be beneficial. Make sure you check with your doctor before you proceed with any form of chiropractic manipulations. Regards gary
@dishdiseasesimplified4728 Thank you for your quick response.
I am years into this disease, only diagnosed over a year ago.
The pain is outrageous. I have been on 2400 mg gabapentin since 2016, vicodin, 800 ibrophen, baclofen, and blood pressure meds since Dec 2015.
Over the counter liquid gel NSAID.
I am in bed close to 20 hours a day. 30 minutes doing dishes is about all I can handle.
I have had the right side thorasic pain for 30 years ... after having my gall bladder removed. I have an abundance of bone spurs throughout my body. 3 achillies tendon heel surgeries because of bone spurs penetrating my achillies. They were cut and reattached 2009 both back heels, 2015 left foot achillies cut and reattached after removing another bone spur.
I had teeth removed and now have bone spurs in my mouth.
My spine is riddled with bone spurs. I am 66 years old.
No doctor has an answer for me.
Thank you for your time.
NEW Jersey, USA
@@barbarabowman9238 hi Barbara, i'm so sorry to hear about the how this disease has affected you. I wish i could offer you more but like you I am frustrated with both the disease and what lack of help is out there. Try and remain positive and i wish you all the very best wishes in your journey.
@@dishdiseasesimplified4728 Thank you for your time and understanding 🙏
will sleeping on a hard bed help in case of DISH?
If you mean sleeping on a hard bed, no is the answer, it will cause you a lot of pain, you do not want a very soft bed either. There are some Hybrid matresses that have good independant springs with a memory foam topper which i find is the best