I check all the boxes and I have died for 18 minutes of cardiac arrest and everything you are saying I have! I wasn't diagnosed until later in life. I was an athlete for years and although my picture shows a man, that's my husband. I have degenerative disc disease. I pitched an 80 mph softball 🥎 I retired years ago. I have Ulcerative Colitis. I am your poster child. 🤦🏽♀️
Thank you for this comprehensive video. I am a 66yo female just recently diagnosed. I was diagnosed with Lymphocytic colitis 10 years ago. I always complained that I felt like my whole body was inflamed. Over the years I developed Achilles tendonopathy, tore the meniscus in my knee and had small muscle tears in my shoulders. I had no idea that AS could have these effects. I could have cried when a diagnosis was made from the sheer relief that there was an underlying cause for my seemingly unrelated issues.
Autoimmune diseases can be extremely frustrating. Lymphocytic colitis is tough! But yes, not as big a relation as the other inflammatory colitis to AS-which makes it so much tougher for diagnosis. I’m glad you finally got one! So many treatments out there, I hope they work amazing for you.
Hi. I'm having these symptoms forever but the past 4 months got worse.. neck issue. Now lower back. Eyes. Chest bone.. my fingers..etc. I started martial arts 3-4 years ago and now I barley can do it. Which is killing me because muay Thai and Brazilian Jiu-jitsu became and judo a love affair to me. I can't stop doing them :(
If you have AS, I hope you are getting the correct medications for it. There are so many different options but it can take time to find the right combo.
@PlantForwardMD thank you. I'm waiting for diagnosis (well, 13 years ago I was told i have it but nothing happened other than keep having the symptoms). I don't like medication and I'd like tontry everything else before ki have to rely on it though.
I have been suffering from 13 yrs of ankolysing spondylitis. Sazz d3 is my medicine. Doctor... mostly I have pain while sleeping and early morning especially in hip side..can u please suggest some exercise...and also can i take push ups ?
Ssz is often not strong enough for AS. Many need more such as nsaids +/- biologics. I hope this has been evaluated especially important to determine is whether it is truly hip pain or is it more spinal pain that is referred to the hip.
I have a question that is slightly off topic but I have wondered about this for quite a long time. I have AS and a few other dx's. I have been on immune suppression for decades now. I have never really got much passed DMARDS. Like most people during this time I have had my fair share of opportunistic infections. I understand why that happens however even when I have had very serious infections confirmed for example kidney infections. (where the surgeon told me he drained purulent liquid out of my kidney, that was behind a large kidney stone, he was bypassing) Despite having all the other symptoms of fever it didn't register on a thermometer. This is quite a regular experience for me. I always just assumed it was because of the immune suppression. However when I tell all sorts of Dr's that my temps cannot be relied upon I get some pretty strange responses. So as a Rheumatologist is there any explanation you can give me for this? Obviously the lack of fever can be dangerous, especially when health professionals rely on those readings. Thanks so much.
Yes, immunosuppressants can sometimes prevent or mask a fever response. They can lower the body’s natural immune response, which may also affect how it reacts to infections.
If it is very early disease some people hold off on immunosuppressants but you would need an expert in AS to monitor because if the disease advances and you get erosions, those are not generally reversible. Good luck.
Thanks doctor, since I have AS in my 28 y.o, I need your update related this disease. I've been subscribed this channel as well
Thank you! Good luck to your 28yo 🙂
I check all the boxes and I have died for 18 minutes of cardiac arrest and everything you are saying I have! I wasn't diagnosed until later in life. I was an athlete for years and although my picture shows a man, that's my husband. I have degenerative disc disease. I pitched an 80 mph softball 🥎 I retired years ago. I have Ulcerative Colitis. I am your poster child. 🤦🏽♀️
You have been through a lot! Yes diagnosis unfortunately can be slow but glad you were able to be an athlete-And recover from a long cardiac arrest!
Thank you for this comprehensive video. I am a 66yo female just recently diagnosed. I was diagnosed with Lymphocytic colitis 10 years ago. I always complained that I felt like my whole body was inflamed. Over the years I developed Achilles tendonopathy, tore the meniscus in my knee and had small muscle tears in my shoulders. I had no idea that AS could have these effects. I could have cried when a diagnosis was made from the sheer relief that there was an underlying cause for my seemingly unrelated issues.
Autoimmune diseases can be extremely frustrating. Lymphocytic colitis is tough! But yes, not as big a relation as the other inflammatory colitis to AS-which makes it so much tougher for diagnosis. I’m glad you finally got one! So many treatments out there, I hope they work amazing for you.
I did not know that about back pain. Thank you
You are welcome
Hi. I'm having these symptoms forever but the past 4 months got worse.. neck issue. Now lower back. Eyes. Chest bone.. my fingers..etc. I started martial arts 3-4 years ago and now I barley can do it. Which is killing me because muay Thai and Brazilian Jiu-jitsu became and judo a love affair to me. I can't stop doing them :(
If you have AS, I hope you are getting the correct medications for it. There are so many different options but it can take time to find the right combo.
@PlantForwardMD thank you. I'm waiting for diagnosis (well, 13 years ago I was told i have it but nothing happened other than keep having the symptoms).
I don't like medication and I'd like tontry everything else before ki have to rely on it though.
I have been suffering from 13 yrs of ankolysing spondylitis.
Sazz d3 is my medicine. Doctor... mostly I have pain while sleeping and early morning especially in hip side..can u please suggest some exercise...and also can i take push ups ?
Ssz is often not strong enough for AS. Many need more such as nsaids +/- biologics. I hope this has been evaluated especially important to determine is whether it is truly hip pain or is it more spinal pain that is referred to the hip.
Thnak you
Dancing is good for the soul. Just keep it to what your back allows ❤️
Taken me 7 years to get a diagnosis.
That’s long… but unfortunately I am not surprised. Diagnosis for AS is notoriously delayed for so many. I hope you are doing well 🙏
@PlantForwardMD it's frustrating because I've had reactive arthritis in the past as well but they just did not join up the lines.
Understandable. And while some of these conditions have overlapping medications, reactive arthritis and AS don’t have as much.
I have a question that is slightly off topic but I have wondered about this for quite a long time. I have AS and a few other dx's. I have been on immune suppression for decades now. I have never really got much passed DMARDS. Like most people during this time I have had my fair share of opportunistic infections. I understand why that happens however even when I have had very serious infections confirmed for example kidney infections. (where the surgeon told me he drained purulent liquid out of my kidney, that was behind a large kidney stone, he was bypassing) Despite having all the other symptoms of fever it didn't register on a thermometer. This is quite a regular experience for me. I always just assumed it was because of the immune suppression. However when I tell all sorts of Dr's that my temps cannot be relied upon I get some pretty strange responses. So as a Rheumatologist is there any explanation you can give me for this? Obviously the lack of fever can be dangerous, especially when health professionals rely on those readings. Thanks so much.
Yes, immunosuppressants can sometimes prevent or mask a fever response. They can lower the body’s natural immune response, which may also affect how it reacts to infections.
@@PlantForwardMD Thanks so much Dr.
Is gymn weights good for spine just 2kgs pull downs as I want to build back muscles to support spine
weight loading exercises are ok just have to be very careful with form. Better to start with lower weights and go up from there.
hello mam I have AS and taking sulfasalazine from 5 months but my father is suggesting me to shift to Homeopathy, Is it a good option mam ?
If it is very early disease some people hold off on immunosuppressants but you would need an expert in AS to monitor because if the disease advances and you get erosions, those are not generally reversible. Good luck.