Local family shares experience with rare Angelman Syndrome

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  • Опубликовано: 8 фев 2025
  • February 15th is Angelman Syndrome Day in Minnesota, and a local family shares what it’s like for their 5-year-old daughter Rose who was diagnosed with the rare genetic disorder.
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Комментарии • 22

  • @brianlawson363
    @brianlawson363 2 года назад +25

    The beauty and joy that Rose gives is a gift for those of us who are not aware that we let sadness control our lives.

  • @BeautyWithShayOfficial
    @BeautyWithShayOfficial 6 месяцев назад +6

    Rose is beautiful in every way. I work in ABA and I have a client with Angelman Syndrome. He is the sweetest child I have ever met. 💙💙

  • @tanzilaleeya
    @tanzilaleeya Год назад +23

    I'm a single mum raising two little girls. My baby has angelman syndrome 😢

    • @Sophiesticateduhhuh
      @Sophiesticateduhhuh Год назад +6

      You will be ok mama, I promise ❤️‍🩹

    • @OpinionatedEmpath
      @OpinionatedEmpath Год назад +3

      I wanted to learn more about the syndrome and subhanAllah I saw this comment from you 😢

    • @くらく
      @くらく 6 месяцев назад +3

      god bless you , my big brother has the same... he's 20 years old now..trust me it gets better with time..they really deserve care and love ❤️

    • @JanikaHopkins
      @JanikaHopkins 2 месяца назад +1

      Same just found out my 3 year old little girl has

  • @gusruckus
    @gusruckus 11 месяцев назад +11

    Sad to share that this little girl passed away in her mothers arms this fall. Lots of love to the famiy💔💔💔
    -Gus

    • @gusruckus
      @gusruckus 11 месяцев назад

      @rickyanthony I'd like you to respect my privacy during this time.
      -Gus

    • @gusruckus
      @gusruckus 11 месяцев назад +2

      @rickyanthony You probably don't realize the grief you are causing here. It's not funny to me, and this isn't a hoax. We miss her. If you cared enough to do any amount of research here, you would know that AS can come with a number of complications. Also there is in fact a privacy concern. Please move on with your life and let this family grieve in peace.
      -Gus

    • @anonymous_dot_com2326
      @anonymous_dot_com2326 10 месяцев назад

      Gustavo?

    • @doomerists
      @doomerists 8 месяцев назад +2

      @rickyanthony what is wrong with you? this is a child that YOU DONT PERSONALLY KNOW.
      rest easy rose

  • @SixOhFive
    @SixOhFive Год назад +7

    It's a chromosome disorder actually

  • @onetwocue
    @onetwocue Год назад +3

    Joker had this right?

    • @Sophiesticateduhhuh
      @Sophiesticateduhhuh Год назад +1

      Bro what

    • @MrX-lk3ij
      @MrX-lk3ij 11 месяцев назад +2

      Nope. That's pseudobulbar affect. Very different from this.

  • @Krb1986
    @Krb1986 2 года назад +5

    👑👑👑👑👑👑

  • @ProudGoyim666
    @ProudGoyim666 5 дней назад +1

    Genetic roll of the dice can be unfortunate indeed. OoOoF.

  • @ProudGoyim666
    @ProudGoyim666 5 дней назад +1

    Always laughing and happy? UNHEARD OF IN AMERICA NOWADAYS!!!!!!! =D

  • @snorttroll4379
    @snorttroll4379 Месяц назад

    durrrr