Local family shares experience with rare Angelman Syndrome
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- Опубликовано: 8 фев 2025
- February 15th is Angelman Syndrome Day in Minnesota, and a local family shares what it’s like for their 5-year-old daughter Rose who was diagnosed with the rare genetic disorder.
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The beauty and joy that Rose gives is a gift for those of us who are not aware that we let sadness control our lives.
👑
Rose is beautiful in every way. I work in ABA and I have a client with Angelman Syndrome. He is the sweetest child I have ever met. 💙💙
I'm a single mum raising two little girls. My baby has angelman syndrome 😢
You will be ok mama, I promise ❤️🩹
I wanted to learn more about the syndrome and subhanAllah I saw this comment from you 😢
god bless you , my big brother has the same... he's 20 years old now..trust me it gets better with time..they really deserve care and love ❤️
Same just found out my 3 year old little girl has
Sad to share that this little girl passed away in her mothers arms this fall. Lots of love to the famiy💔💔💔
-Gus
@rickyanthony I'd like you to respect my privacy during this time.
-Gus
@rickyanthony You probably don't realize the grief you are causing here. It's not funny to me, and this isn't a hoax. We miss her. If you cared enough to do any amount of research here, you would know that AS can come with a number of complications. Also there is in fact a privacy concern. Please move on with your life and let this family grieve in peace.
-Gus
Gustavo?
@rickyanthony what is wrong with you? this is a child that YOU DONT PERSONALLY KNOW.
rest easy rose
It's a chromosome disorder actually
Joker had this right?
Bro what
Nope. That's pseudobulbar affect. Very different from this.
👑👑👑👑👑👑
Genetic roll of the dice can be unfortunate indeed. OoOoF.
Always laughing and happy? UNHEARD OF IN AMERICA NOWADAYS!!!!!!! =D
durrrr