I’m gonna vent. I’m 41 & wrote my 4boys letters in case I die b4 this’s diagnosed. My cervical nodes swelled 1@ a time, 13mo’s ago. My parotid glands, then, submandibular. Lumps formed in my palate & 1 on my gum. Soft lumps developed inside my cheeks. Then white patches in my mouth & Red bumps under my tongue. My hairs falling out Hypothyroidism. Boney knots developed in both jaws, my R.shoulder, R.breast & along my R. sternum. My jaws are growing/ Face’s swelling. I don’t recognize myself! My eyes swelled & physically jiggle in their sockets. I developed tinnitus, blurry vision, cranial neuralgia (?) neurological symptoms & back pain. My collarbone thickened. Then nausea, weight loss & stool changes. They found cervical stenosis (c5 & 6) causing myelopathy. My Neurosurgeon did NOT mri all of my spine. I think there’s spots lower in my spine. He won’t fix the stenosis bc I’m ill w/ swollen lymph nodes. By the time this’s diagnosed I’ll be handicapped! My hands & feet stick & quit working intermittently. The back of my skulls under immense pressure. The bone crackles like rice crispies. The back of my necks liquidy & swollen. The electricity, pins & needles & violent rumbling in my body intensifies at night & im up all night. My R.breasts changing & liquidy. My implants are 10yrs old. Autoimmune & cancer runs bad in my fam. I’ve seen specialists, They’ll run 1-2 tests & pass me onto another doc or dismiss me altogether. ER found anemia, protein in my urine, high white counts & had the nerve to say my bloodwork’s fine & sent me home. Mammo showed a lump ultrasound wasn’t concerning but my breasts are dense. Pain radiates from my breast into my armpit. I can’t get a doc to do biopsies. My life’s reduced to laying in bed & doc apts. It’s demeaning begging docs who think ur a hypochondriac. I haven’t had 1 doc order extensive bloodwork, test CSF, MRI my breast, lower spine, do biopsies bone marrow or FNA. There’s a lot they’re not doing!! It’s hard to keep fighting when u keep hitting a brick wall. I’ve lost all faith in docs. It’s a lonely defeating place when ur so ill & the ones who’re supposed to help either, don’t believe u or wont do enough to disprove u. I pray to God everyday something gives bc I love life & I want to live! This’s taught me, we take so very much for granted.❤.
I have had several patients with similar situations who explant and still have problems with environmental toxins, mycotoxins, which contribute to your symptoms. Th it’s to do now would be to start with eating a high protein diet. Remove all processed foods. Cut out sugar unless it is from fruit or other foods. Do your best to get the best food possible. Quality of the food matters. Air quality matters. Sleep matters. I did a show on this recently. As you read this I hope this helps. None of these changes are dramatic but when done together with help.
Thank you!!
Thank you for being such a great physician & helping us thru such a hard time in our lives. And leading us to a place of healing & understanding ❤️🩹
I’m gonna vent. I’m 41 & wrote my 4boys letters in case I die b4 this’s diagnosed. My cervical nodes swelled 1@ a time, 13mo’s ago. My parotid glands, then, submandibular. Lumps formed in my palate & 1 on my gum. Soft lumps developed inside my cheeks. Then white patches in my mouth & Red bumps under my tongue. My hairs falling out Hypothyroidism. Boney knots developed in both jaws, my R.shoulder, R.breast & along my R. sternum. My jaws are growing/ Face’s swelling. I don’t recognize myself! My eyes swelled & physically jiggle in their sockets. I developed tinnitus, blurry vision, cranial neuralgia (?) neurological symptoms & back pain. My collarbone thickened. Then nausea, weight loss & stool changes. They found cervical stenosis (c5 & 6) causing myelopathy. My Neurosurgeon did NOT mri all of my spine. I think there’s spots lower in my spine. He won’t fix the stenosis bc I’m ill w/ swollen lymph nodes. By the time this’s diagnosed I’ll be handicapped! My hands & feet stick & quit working intermittently. The back of my skulls under immense pressure. The bone crackles like rice crispies. The back of my necks liquidy & swollen. The electricity, pins & needles & violent rumbling in my body intensifies at night & im up all night. My R.breasts changing & liquidy. My implants are 10yrs old. Autoimmune & cancer runs bad in my fam. I’ve seen specialists, They’ll run 1-2 tests & pass me onto another doc or dismiss me altogether. ER found anemia, protein in my urine, high white counts & had the nerve to say my bloodwork’s fine & sent me home. Mammo showed a lump ultrasound wasn’t concerning but my breasts are dense. Pain radiates from my breast into my armpit. I can’t get a doc to do biopsies. My life’s reduced to laying in bed & doc apts. It’s demeaning begging docs who think ur a hypochondriac. I haven’t had 1 doc order extensive bloodwork, test CSF, MRI my breast, lower spine, do biopsies bone marrow or FNA. There’s a lot they’re not doing!! It’s hard to keep fighting when u keep hitting a brick wall. I’ve lost all faith in docs. It’s a lonely defeating place when ur so ill & the ones who’re supposed to help either, don’t believe u or wont do enough to disprove u. I pray to God everyday something gives bc I love life & I want to live! This’s taught me, we take so very much for granted.❤.
I have had several patients with similar situations who explant and still have problems with environmental toxins, mycotoxins, which contribute to your symptoms. Th it’s to do now would be to start with eating a high protein diet. Remove all processed foods. Cut out sugar unless it is from fruit or other foods. Do your best to get the best food possible. Quality of the food matters. Air quality matters. Sleep matters. I did a show on this recently. As you read this I hope this helps. None of these changes are dramatic but when done together with help.