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Suprapubic Catheter care and maintenance
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- Опубликовано: 23 ноя 2020
- Live To Roll - Suprapubic Catheter care tips and maintenance
www.livetoroll...
Care tips
Clean every morning and nightOnly use baby wipes or soap and water ( no harsh cleaners near the catheter site and no alcohol because it irritates the skin)
I use gauze around the catheter site every day to keep it clean then remove it at night but use a wipe after removing it. I use a precut antimicrobial gauze pad. If I don't have an antimicrobial gauze I use a regular precut gauze with a small about of neosporin on the gauze around the catheter. This helps with limiting irritation and infections.
Catheter gets discolored at the site entry and inside the bladder
Flush the catheter every other day. Some need everyday or even multiple times a day.
I change mine every 3 weeks. I've met people that change it anywhere from every other week to every 3-4 months. You can use silicone longer than latex but for me the silicone is too ridgid and causes AD. Too long will make me bleed.
Site can become red and irritated. Even get infections at the site. Skin ulcers.
Good option for a quad. More independence
Weight can be an issue.
No issues for sex.
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Such a great attitude for having to deal with these everyday things. Your awesome!
I'm so happy I found your site. I've had a supre pubic for several months and not geting any instuctions on how to care for it. Thank you so much.. You have such good energy and attitude. I am truly blessed to have fond you.
I'm grateful you found the channel and it's helped. Please reach out with any questions or support and I'll do my best to assist. You can reach my on social media- @livetoroll. We have bladder discussions on the live shows which could be helpful to you, too.
Thanks so much for your advice. I'm so sorry your life is so difficult. You certainly project a cheerful attitude. You're an inspiration!
i'm going to need a supra pubic cath post-op soon and haven't found many resources oriented for wheelchair users. this is such a valuable resource and it's so relieving to hear advice from someone like me. thank you!!
Outstanding video, man - thanks so much for the info. I just got an spc about 2+ months ago and was told almost nothing about maintenance, but this video is gold and REALLY helped. I just subscribed and will be checking out your website shortly!
Almost exact same for me. Got the spc almost 3 months ago and they didn’t provide much help outside of the procedure. Really appreciate your video. What do you use over the gauze at the catheter site?
My mother is about to get one. Thank you for your tips and advice.
I hope it works out well for her. Please reach out any time if you guys needs support or advice here or on social media @livetoroll.
In a wheelchair due to a sct and have a spc. My catheter is still sore after 2 months. Trying had to keep it covered and clean. No leaking issues or clogging. Just burning and sore. Thank you for your videos.
That's awful, have you been able to get a followup from your healthcare team about the issues to figure things out?
I've been having issues with my catheter sticking and even got put under for a cystoscopy to take a look at why with no explanation. I might need to change catheter type.
My urologist was no help . I put lidocaine cream around it which helps a lot. Hope you find a catheter that works for you
Thanks!
Is there redness at the site?
If you have instagram or other social media- you can reach out to me there as well with questions @livetoroll and @shawnfluke for questions.
Sup, bro? Thanks for this, definitely needed it. I've had so many infections this year. I drink A SHIT LOAD of water. Drink green tea and take a cranberry tablet at night. Don't drink alcohol. Started using baby wipes after seeing one of your previous videos yet I've still been having them. Ended up in hospital after a nurse couldn't get my catheter out because I was spasming and it was grabbing onto the catheter and I got really bad autonomic dysreflexia. Been in a really shitty depressed headspace most of the year as a result. Bypassing urine, spasms and feeling like shit, can't spend time with my daughter or wife like I should/want. Anyhoo, that's my life story. haha. Thanks again, dude.
I feel ya! I take D-Manos, cranberry 4xs/day, and Trimethoprim. Trimethoprim is a preventative antibiotic...
Josh_Randall85, Do you wanna chat? I have some Tips that could help you possibly. Let me know. Thx!
What's up Josh! Sorry to hear you're having a lot of issues and hope everything gets figured out soon. I have had issues with the catheter getting clinched by my bladder spasms and not coming out. Do you take ditropan or myribetriq for bladder spasms?
I have a rough time every catheter change which I happen to have later today..I always bypass urine and get AD the whole day off the change. Taking a shower send to help me..I think the hot water or something but it always seems to help my urine leaking.
Feel free to message me on Instagram or email me if you have other questions or are having trouble with the catheter.
@@grantkitson5344 what kind of tips?
We got ZERO information about super pubic care and husband became septic with esbl in one week. In fact, we went in earlier in the day and they sent us home. Later that day, ER. Still no info on what to do for care after a 3 wk hospital stay and major pic line antibiotics. He has a continuous open wound around the super pubic and they offered ZERO info to husband when he went in today. He asked no questions. Grrr. I did not accompany him because I was sick and running a fever. Thank you for your information. I know now to call them and get more info and see about ordering monthly supplies through insurance.
Love your honesty. I do pretty much the same as possible drone the female side. I clean every day with baby wipes and use peroxide when there is a lot of crud. I have a small hand fan I use when the area is a bit wetter than others and that has helped a lot. The woven gauze with all the loose threads is a real nuisance! Nasty threads get stuck in goo and really does not want to come out. I get more crud at the end of my 3 week changing cycle than any other time. On the whole though with the Supra bupic things are so much better.
Thanks for sharing the female perspective and that's interesting about the moisture.. great tip for women out there. Yes that's exactly the issue with that gauze and it sucks! I get the same with a little extra crud after having it a couple weeks.. But it is a better option for most quads.
It's great hearing from you and hope you're doing well!
You are great. Thanks for your generosity. I’m new to suprapubic. Have MS. Information was very helpful
Love your channel! Got a suprapubic catheter about 6 mths, ago and I'm still getting used to it...
Hi there, I just found your video while i was looking for information on how to apply Stoma Powder. I have MS and cannot move any of my limbs :( My caregiver Angel, true to her name, is helping me find a video and is typing this message :) We both are so enjoying your video and honestly love your attitude and candor on this subject. :) Have you ever used Stoma Powder or had Silver Nitrate applied around site? We just want to make sure we do it correctly. Thanks again for all your advice, We will definitely watch more of your videos. Please take care and also, we like your "Live to Roll" logo.
Hey Amy and Angel! I haven't actually used any stoma powder or silver nitrate so I can't really help with advice. I can ask a few people that I know who use it and see if they have any helpful information for you then get back to you. Thank you both for your support and feel free to contact me on Instagram, Facebook or email shawn@livetoroll.org if you have any questions or anything 😁
Great tips! Thanks for sharing!
Thank you SO much. This is so helpful.
Glad it was helpful!
i also have a superapubic cathater i have had it since 2017
I've had mine since 2005, what are your best tips for maintaining things?
@livetoroll, Sean. Our SP care regimen is near identical. I use a 2x2 for gauze though. I use alcohol on the outside end when changing bags. I change every 2 weeks...
Yes I definitely use alcohol on the tip of the bag when I change the catheter from bag to bag. Anytime I unhook the catheter I alcohol anything that's going to go back into the catheter. Sorry if I didn't mention that in the video but thanks for mentioning it!
Thanks!
Thank you for your support, it helps us keep our content free for the community. More informative bladder care content coming soon. :)
I just watched this video and it's awesome dude you are cool I've been a quadriplegic for 35 years next month and I've been looking for something like that kind of dressing for quite a while even if I have to pay out of pocket for do you know where I can get those I'm gonna ask my medical supply place I'm looking online but I can't find them holler back at me brother and God bless you man you're awesome!
Thanks dude I appreciate that! Wow 35 years next month.. do you celebrate your anniversaries?
I get mine from my home health agency but I found this when I searched antimicrobial gauze..
www.healthykin.com//p-1238-excilon-amd-antimicrobial-drain-sponges.aspx?gclid=CjwKCAjwrPCGBhALEiwAUl9X0-cIOss67GJJFcumXgX3uLRPfrtNyKCxXkiJW3awHPclyTuHwmrNMxoCwLMQAvD_BwE
Very informative 😊
Hi I’m T2 complete Paraplegic and been watching your videos from a long time. Recently I have decided to go suprapubic from urethra in dwelling catheter . It’s really changed a lot of things for me now. I use to have uti almost every other week. But now it’s just once in a every two month. Currently I’m using latex 20fr , I want to know which brand latex catheter you are using? Once again thank you for your valuable informations.
Hey Bud..i have to make a choice foley or suprapubic cath..?
For me- in the long term use Suprapubic was undeniably the right decision. What are the considerations for your case?
Hi Shaun. Another great video from live to roll.
Do you know the reason why you have ad and wet yourself when you do a catheter change.
The reason I ask is that I had my spc procedure done on 3 nov and had my 1st catheter change yesterday. I experienced the same issues that you described when you do a catheter change.
Thank you! I think the reason is just shock on the bladder but I'm not a doctor so I can't say for sure. I know a lot of people who have a SP and deal with the same issues. There a few ways to help it like a shower after, I also take extra D-mannose before and after the change but nothing fully makes it better. I just have to wait the first 24 hours out then it's typically ok.
Great job Shawn 👍 what I want to know is what catheter brand and etc.. you use?
I will put that on my website but I use a Bard catheter. 24f with a 10ml balloon. Like I said in the video I only use latex. No silicone. I have tried another brand catheter that was 24f with the 10-ml balloon and it actually did work fine but the Bard catheter is what I consistently use.
@@LiveToRoll thanks Shawn I’m always looking to improve my Suprapubic catheter experience! 😃👍
Hi great info I do not have the Suprapubic but I did have trouble with leakage and urgency I found a Company called Coloplast they make items for unary tract use I use an Item called an external catheter it's like a condom with a nipple on the end that you can connect to a leg or night bag this might be an item you can use on the days after you change your catheter maybe at all times any way I hope this is a help to you
Hi there!
I did try using condom catheters early on in my injury, but they didn't work for me back at the time. I had thought of trying them again a few years ago.
I'm now married, and my wife changes my suprapubic at home and then gets me in the shower, and it has pretty much stopped leaks on the day of my change. I also make sure to use bags with the anti reflux chamber as they seem to not put pressure on my bladder as well. I do keep male urinary guards on hand for just in case.
I really appreciate you taking the time to suggest this. An open discussion with advice helps everyone.
Hope all is going well for you. :)
Hi! Thanks for this video. My mother just got a superpubic catheter place today. I'll be doing a lot of the care. Where do you buy y our supplies? Thanks in advance.
Hey I'm sorry for the late reply! I hope everything went well with your mother's suprapubic catheter. I actually get my supplies from a home health agency that changes my catheter. If you need to buy them you might need a prescription from her doctor for a few things like the gauze and saline. The bags you can buy online at most medical supply websites and the syringes to flush you can get on Amazon. Hope that helps a little but you can contact me if you'd like and I can try to get your some links and info.
How often do you shower? I am also in a wheelchair and I usually only shower about every four or five days but I might need to shower more often when I get the SPC. Or can I just do a sponge baths around that area?
I shower 4 times a week so pretty much every other day but once a week I do back to back days. The days I don't shower I make sure I clean the area well, morning and night.
Just found ur channel. Researching the supra pubic. Wondering why w/the catheter still pee on yourself. Catheter doesn't prevent that? Thx 4 ur honesty.
My bladder is very sensitive so the changes and it causes my bladder to spasm and leak urine for a period after I change it.
@@LiveToRoll Thank you for the explanation.
Is there and way you can put links of where you get your gauze and the stuff you irrigate with plzzzz
I actually get everything through my home health agency that changes the catheter every three weeks. If you don't have a home health agency then try medial supply company. You might need a prescription for both the gauze and the irrigation supplies but your doctor should be able to supply that with no problem.
Hi I'm looking after a client who has a suprapubic catheter. Should I close the catheter value so the bag can't be used to let his body pee through his penis when he takes a shower ? I've been told this keeps his penis working and prevents complications if the penis is not used for Extended periods ?
jeez your friend really let things get out of hand
I'm not sure what that means lol
So I need some advice I am considering super pubic catheter I have cerebral palsy and Use intermittent Cath throughout the day up To seven time’s Driving me nuts seems like it’s all I do
I do get AD When my bladder gets too full I had Botox Injection it’s helped the spasms a lot! But I have a limited hand function and so coordination is difficult and dealing with straight Cath . So I’m thinking that this might make things easier for me I hope! Any thoughts?
Curious to know how sensation is or pain for people that have full sensation in their abdomen where the super pubic enters?Thanks for any replies ! Any other thoughts or anything you can add would be great thanks everybody good or bad please
Hey Matt yeah I'm sure it's hard cathing that often during the day especially with limited hand function. The suprapubic is a good option for quads with limited hand function and can give more independence. It definitely has pros and cons but it's not too bad an option. I'm not sure about the feeling though if you have full sensation since my sensation is lower. It can cause discomfort when it's changed so I'd talk to you doctor and see. The other con is having a bag on all the time and the catheter but you get used to it pretty quick. The main thing I really don't know about is your sensation level and how much discomfort you'd be in but the procedure is pretty simple and done in a day plus you can remove it anytime and it will heal back to normal. Hope that helps a little but definitely talk to your doctor/urologist to decide what's best.
@@LiveToRoll thanks, my plan is to talk to my dr about it again
I hope it's a possibility for me. Cathing many times a day is no life.
the botox does help though.
@@LiveToRoll I am sure I will come up with more questions. thank you for the help
How do you remove hair from around site without irritation?
I use a small hair trimmer. I have a manscape trimmer that works well to trim the area. You can also use a "bikini trimmer" or anything made for sensitive skin.
How often do u change your bag. I've had a bag since August
Hey sorry about the late reply but it's been busy with the holidays.
I change my bag every 3 weeks but can do 4 weeks if needed. Others I know only change every 6-8 weeks so it can depend on how you're feeling with it after a while.
Dad's urologist advised him to change it every 2 weeks.
Hi I get a lot of UTI's
And setament build up do you?
I used to. I use trimethoprim, a preventative antibiotic, once a day. Without it I get cray UTI and sediment...
I do get a lot of sediment in my urine and do get UTI's a couple of times a year. I used to get blockages in the catheter from sediment but in with flushing regularly and using a big catheter (24f) I have not gotten one in several years.
As a preventative I take D-mannose and a RX called methenamine (hiprex) which is a preventative abiotic.
@@1hipcrip771 hi would my dr have to prescribe it or can I get it over the counter??
@@LiveToRoll would I need to get a prescription or can I buy it?
The D-mannose is available to buy anywhere but the methenamine is a prescription so you'll need to talk to your doctor.