Hi... Marfan Am from India ..am marfan's patient. am not getting info about marfan's in hindi language and here no more research on that... but its a serious desease....i would like to do work on marfan's awareness...so please guide me ..
Aep Saepul Barkah @ am tall with long hands and legs, i lost my left eye vision because of Glaucoma and have done surgery in right eye for dislocation of lense in 2012, recently I suggest a surgery for aortic root dilation . This are my symptoms...
You should search more info. About marfan on Wikipedia. Its very detailed and easy to understand..and many videos are available on RUclips please do watch..
@@kunaljadhav136 at what age will the symptoms be felt? My newborn baby is suspected of being Marfan by a doctor. long and crooked fingers. can my baby grow normally? there is no history in my family who has marfan
Aep Saepul Barkah : there is no single symptoms to identify a disease, you should search Ghent criteria to identify the Marfan or go through the genetic tests.... there is one more disease named as loyz dietz ( plz conform spelling) syndrome which has nearly same symptoms to marfan...but in that eyes are not infected...in my case i diagnosed at the age of 15 but that time we we were not aware about these disease hence we didn't take it seriously..... now at the age of 26 i diagnosed with aortic root dilation...
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you guys are the heroes no one talks about. Thank you Alex Pitcher for all your hard work.
So Losarton being prescribed to Marfan patients now, 2021?
i have marfans and two bar put in my back
Hi... Marfan
Am from India ..am marfan's patient.
am not getting info about marfan's in hindi language and here no more research on that... but its a serious desease....i would like to do work on marfan's awareness...so please guide me ..
आपने क्या लक्षण देखा है? मेरे बच्चे को मारफान के साथ निदान किया गया था
Aep Saepul Barkah @ am tall with long hands and legs, i lost my left eye vision because of Glaucoma and have done surgery in right eye for dislocation of lense in 2012, recently I suggest a surgery for aortic root dilation .
This are my symptoms...
You should search more info. About marfan on Wikipedia. Its very detailed and easy to understand..and many videos are available on RUclips please do watch..
@@kunaljadhav136 at what age will the symptoms be felt? My newborn baby is suspected of being Marfan by a doctor. long and crooked fingers. can my baby grow normally? there is no history in my family who has marfan
Aep Saepul Barkah : there is no single symptoms to identify a disease, you should search Ghent criteria to identify the Marfan or go through the genetic tests.... there is one more disease named as loyz dietz ( plz conform spelling) syndrome which has nearly same symptoms to marfan...but in that eyes are not infected...in my case i diagnosed at the age of 15 but that time we we were not aware about these disease hence we didn't take it seriously..... now at the age of 26 i diagnosed with aortic root dilation...
Oh get on with it