I have the Mediterranean variant, the most severe. I live in the United States, and many doctors don't know about this. I had to learn all I could on my own.
How did you find which variant you have? I'm in the army and all they told me is I can't take motrin. Nothing else. I've looked it up myself and realized how crazy this is.
@@doncaba7117 what’s would be the symptoms of taking Motrin . I also was diagnosed with it but didn’t find out about it until I was checking out . I was infantry in the marines and they gave out Motrin like candy
@@mkultravibes7763 I too was in the infantry but with the Army. So our symptoms would be fatigue, sometimes extreme, and jondice. Sometimes our skin can turn yellow as well. Our red blood cells will prematurely die off making it harder for oxygen to travel through our blood stream. Headaches can be another system as well. But mainly fatigue 😩
@@doncaba7117 I can’t even tell . I asked because I’m putting a VA claim and was trying to see if something could of made it worse especially the Motrin .
Thank you Akosua for the education. Truly a lot are not aware of this condition. I am a victim and only got to know my status just a year ago. Prior to knowing this, I have had a lot of health issues and visited a lot of doctors without solution. One day I just walked into a private lab and demanded full blood test. Everything was fine except g6pd, full defect. I started reading about it, got a lot of info as to what to avoid (food and drugs). I have been fine as long as I stayed away from the avoidable list. If you don't know your g6pd status please go get tested.
I'm glad you found out by getting tested, i found out in the worst way possible, i had a hymolytic attack and my liver completely shut down, i turned yellow, my heart felt week and i couldn't breath that well either. It was absolutely horrific, after eating about a lunchbox full of fava beans. Edit: and i forgot to say my urine was like black tea
I took a 23 and me test and was told I had the markers from both parents, went to the doctor and asked to be tested and I have class 5! I am in my early 50s! This is horrible because my oldest son when he was born the doctor thought he had jaundice and he didn’t and they left it at that. He is now 29 years old and developmentally disabled. I have had horrible bouts with anemia all my life. All these years they couldn’t figure out what was wrong with me and I used to eat all these foods :( I became vegan thinking I was healthy and the tofu was making me miserable (I only felt good when I would eat raw vegan). All these years and no one ever thought to check this.
I’m 39 and just this week the doctor figured that I’m g6pd, all my life suffering from anemia as well and all doctors I went to them was really stupid and they didn’t give me the right answer.
The saddest situations are when a baby is born, is jaundiced at birth, it can cause severe BRAIN DAMAGE, if not treated with bilirubin lights and possibly blood transfusion.
I have had this since I was born and, It's kind of normal since this is my everyday doing. If someone got it after they were born, I wish you have a good life.
Hi .. 👋 Thank You🙏 .. For the education G6PD Deficiency.. Maybe it best to have VideosTutorials Recipes on G6PD Deficiency Food Cooking Fruit .. Vegetable.. Meat.. Chicken.. Fish..
This girl is well well meaning, but she isn't specific with a list of medications and food we must avoid. Moth balls (naphthalene) we must stay away from. Licorice bark is restricted.
This girl is what you Said instead of this Doctor , you may have more than g6pd. Respect for the educator is a minimum. Especially when it pertains to personal health issues.
The day that our doctors and pharmacist will humble themselves to listen to their patients, some of these problems would be solved.You tell them things that don't go with your body and.....hmmmm.God help us.
Im vaccinated. No issues. Only issues I had was when the military prescribed anti malaria medication and accutane (acne treatment). Caused my skin to create scabs as if was ripping. Eventually went away and scars faded once I discontinued use.
My son had this condition and it took God's intervention for me to know. My son has shiny rashes on his body and it took me years to know about it. Doctors never advise you on this so I have been reading a lot on it and I've educated my son on it. Eating beans, legumes, milk and cream is not good for them. I know sulphur medications isn't good as well. Imagine not eating waakye and g)b3
My grandson was diagnosed with this. We are leaning towards using dr sebis hemp seeds along with the sea moss and bladder wrack powder. What type of baby formula did you use for your son. He also breaks out in rashes was told he has excema.
What is G6pd? She never said what exactly it is. Didn’t make it easy to understand at all. I am sorry. What is the ‘IT’ that she continued to talk about. Please.
Glucose-6-phosphate dehydrogenase is the rate limiting enzyme in the pentose phosphate pathway and is responsible for the production of NADPH which is important for reducing glutathione and scavenging reactive oxygen species. A deficiency causes haemolysis due to insufficient antioxidants to protect the RBCs. Unless you know a lot about science, the exact explanation of what it is is very complicated which is why she didn't say anything more than it's a genetic disorder.
I found this out in the military. They pulled my blood and briefed me about this. It explains a lot of issues that I have had.
Yeah me to they red dog tag me
What symptoms do u have
Same
Wtf the army diagnosed me with this as well red tagged tf out of me
Same navy
Thanks for sharing this madam. Many people have to be educated about this especially pregnant women.
I have the Mediterranean variant, the most severe. I live in the United States, and many doctors don't know about this. I had to learn all I could on my own.
Can you send me information i also have g6pd
How did you find which variant you have? I'm in the army and all they told me is I can't take motrin. Nothing else. I've looked it up myself and realized how crazy this is.
@@doncaba7117 what’s would be the symptoms of taking Motrin . I also was diagnosed with it but didn’t find out about it until I was checking out . I was infantry in the marines and they gave out Motrin like candy
@@mkultravibes7763 I too was in the infantry but with the Army. So our symptoms would be fatigue, sometimes extreme, and jondice. Sometimes our skin can turn yellow as well. Our red blood cells will prematurely die off making it harder for oxygen to travel through our blood stream. Headaches can be another system as well. But mainly fatigue 😩
@@doncaba7117 I can’t even tell . I asked because I’m putting a VA claim and was trying to see if something could of made it worse especially the Motrin .
Thank you Akosua for the education. Truly a lot are not aware of this condition. I am a victim and only got to know my status just a year ago. Prior to knowing this, I have had a lot of health issues and visited a lot of doctors without solution. One day I just walked into a private lab and demanded full blood test. Everything was fine except g6pd, full defect. I started reading about it, got a lot of info as to what to avoid (food and drugs). I have been fine as long as I stayed away from the avoidable list. If you don't know your g6pd status please go get tested.
I’m a victim like you, and I would like to know that list in order to avoid it
I'm glad you found out by getting tested, i found out in the worst way possible, i had a hymolytic attack and my liver completely shut down, i turned yellow, my heart felt week and i couldn't breath that well either. It was absolutely horrific, after eating about a lunchbox full of fava beans.
Edit: and i forgot to say my urine was like black tea
Some of the first signs will be dark urine, yellow color of eyes, racing heart, fast breathing, weakness, pain in spleen (right side, under ribs).
I see,I experienced the pain in the left rib after adding the fava beans to my stew
The spleen is in your left side.
Pls I will to know if a g6pd person eat beetroot?
Thanks for sharing, my son has it and was so sick when he was born. He needed a blood transfusion.
I took a 23 and me test and was told I had the markers from both parents, went to the doctor and asked to be tested and I have class 5! I am in my early 50s! This is horrible because my oldest son when he was born the doctor thought he had jaundice and he didn’t and they left it at that. He is now 29 years old and developmentally disabled. I have had horrible bouts with anemia all my life. All these years they couldn’t figure out what was wrong with me and I used to eat all these foods :( I became vegan thinking I was healthy and the tofu was making me miserable (I only felt good when I would eat raw vegan).
All these years and no one ever thought to check this.
I’m 39 and just this week the doctor figured that I’m g6pd, all my life suffering from anemia as well and all doctors I went to them was really stupid and they didn’t give me the right answer.
Waaw. We need to do more for our patients and clients. Sorry Tricia Diamond...
Ali, sorry about that too...
From the U.S and I recently learned that I have this condition. Also learn recently I’m of Igbo descent ❤🇳🇬
Akosua thanks so much, I am G6PD partial and I had a mild stroke on my face when I started taking the drugs given to pregnant women at the hospital
The saddest situations are when a baby is born, is jaundiced at birth, it can cause severe BRAIN DAMAGE, if not treated with bilirubin lights and possibly blood transfusion.
Yes thank goodness my baby got treated for jaundice but they didn’t know he had g6pd so he was sick again.
I have had this since I was born and, It's kind of normal since this is my everyday doing.
If someone got it after they were born, I wish you have a good life.
You can only be born with it…
My daughter has g6ph how can she cure it
@JosephQuaye-lt7wk there is no cure, you have it for life. You need avoid the medication and foods we can not have.
Please, kindly explain what is meant by a G6pd patient being Partial.
My son is 11 we found out when he was 9. He never had any issues.
Good Teacher, thanks so much. Please can I eat pomegranate or Japanese permissimon fruit?
All legumes causes hemolysis according to a recent study. Some just cause a low hemolysis.
Great content, but please stop interrupting her!
Does anyone know if you have g6pd if it is still safe to take resveretrol supplements? I know we shouldnt have red wine but is resveretrol safe?
Hi .. 👋 Thank You🙏 .. For the education G6PD Deficiency.. Maybe it best to have VideosTutorials Recipes on G6PD Deficiency Food Cooking Fruit .. Vegetable.. Meat.. Chicken.. Fish..
This girl is well well meaning, but she isn't specific with a list of medications and food we must avoid. Moth balls (naphthalene) we must stay away from. Licorice bark is restricted.
What foods/drinks are on the list to avoid? Much appreciated.
The list is huge though and keeps growing. 😅
This girl is what you Said instead of this Doctor , you may have more than g6pd. Respect for the educator is a minimum. Especially when it pertains to personal health issues.
No comments yet
Is bilberry OK for G6PD deficiency?
Just got back from my doctor I have G6PD and was told to avoid blueberries at al costs. 🥲
@@maho1122 Blueberries are fine but blue#1 should be avoided. Blueberry flavored products have blue#1
I have G6PD full defect
The day that our doctors and pharmacist will humble themselves to listen to their patients, some of these problems would be solved.You tell them things that don't go with your body and.....hmmmm.God help us.
anyone with g6pd vaccinated ?? is it safe ??
I am. Completely fine.
I took 3 doses for Covid-19 and I’m g6pd but it’s normal no worries
@@basri394 not yet ! Watch closely.
Im vaccinated. No issues. Only issues I had was when the military prescribed anti malaria medication and accutane (acne treatment). Caused my skin to create scabs as if was ripping. Eventually went away and scars faded once I discontinued use.
My son had this condition and it took God's intervention for me to know. My son has shiny rashes on his body and it took me years to know about it. Doctors never advise you on this so I have been reading a lot on it and I've educated my son on it. Eating beans, legumes, milk and cream is not good for them. I know sulphur medications isn't good as well. Imagine not eating waakye and g)b3
My grandson was diagnosed with this. We are leaning towards using dr sebis hemp seeds along with the sea moss and bladder wrack powder. What type of baby formula did you use for your son. He also breaks out in rashes was told he has excema.
First time I have heard of milk and cream being on the avoid list! Where did you hear of that?
I haven't heard of the milk and cream . My son is 8 months old and recently i have discovered he has g6pd. So please
What is G6pd?
She never said what exactly it is.
Didn’t make it easy to understand at all. I am sorry.
What is the ‘IT’ that she continued to talk about. Please.
Glucose-6-phosphate dehydrogenase is the rate limiting enzyme in the pentose phosphate pathway and is responsible for the production of NADPH which is important for reducing glutathione and scavenging reactive oxygen species. A deficiency causes haemolysis due to insufficient antioxidants to protect the RBCs.
Unless you know a lot about science, the exact explanation of what it is is very complicated which is why she didn't say anything more than it's a genetic disorder.