Vlogging with EDS: Escaping the Hospital, Jekyll and Hyde, and GIVEAWAY | Week 100
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- Опубликовано: 30 сен 2018
- Body Pillow Giveaway: gimmyit.com/giveaway/week-100-...
DonJoy LSO Brace: www.healthproductsforyou.com/...
Vista ICU Panel: www.dme-direct.com/aspen-vist...
WEGO Health: www.wegohealth.com/
Check 15 On RUclips: / @checkfifteen
Kindred Spirits Fragrance Oil: www.etsy.com/transaction/1499...
Where to find me:
My Instagram: @watercolor_me_impressed / watercolor_me_impressed
My Etsy Shop: www.etsy.com/shop/ChristinaPa...
My Redbubble: www.redbubble.com/people/chris...
My Medical Facebook: LoveOnChrist...
My Personal Facebook: / christina.doherty.315
My Twitter: C_DohertyPaints?l...
My Email: Watercolormeimpressed@gmail.com
Accessibility by Abby provided the captions for this video for free. If you'd like to support this chronic illness warrior here are her social links:
Twitter: / accessibleabby
Facebook: / accessibleabby
Ko-fi: ko-fi.com/accessibleabby"
Gold Rush by Kevin MacLeod is licensed under a Creative Commons Attribution license (creativecommons.org/licenses/...)
Source: incompetech.com/music/royalty-...
Artist: incompetech.com/
Lullabye (Sting) by Twin Musicom is licensed under a Creative Commons Attribution license (creativecommons.org/licenses/...)
Artist: www.twinmusicom.org/
My dear, the fact that you have even posted any videos this past month when you have been so sick and in the hospital is amazing. I don't care if they're late, and I would completely understand if you didn't post at all. Give yourself some credit because you did amazingly well.
So happy you are home! I am just starting my EDS journey. I was diagnosed a few weeks ago with EDS, after ten years of trying to overpower a chiari malformation. I've delayed surgery on my neck bc I'm so scared, but seeing you gives me courage. I'm going through the rounds of specialists now (cardio echo tomorrow), and I'm guessing I'll end up having chiari and fusion surgery next year. As far as I know, I will go back to Cleveland clinic bc I have a retroflexed odontoid, which makes ordinary zipper surgery not an option. It all gets so complicated and scary.
Christina!!!! Put the brakes on girl! You just got out of a lengthy DIFFICULT stay in the hospital! Multiple surgeries, on and on and on.... You said you are weak too. You seriously need to get your strength back and take care of yourself for a while so you can start functioning.
Christina, it’s so good to have you back! I know you will get a much needed proper sleep now that your back in your own bed.
That first breath of fresh air leaving the hospital is always amazing, so glad to see that you finally got to go home :) I found your videos about a year ago sitting in bed with my own chronic illness...they’ve been inspiration and comfort to me that I can keep going and also that rest is okay. Love the painting!
The first ever video I watched of yours was one of your living with EDS series. It was the importance of a diagnosis & early intervention. I found it on May 2017, when I was first diagnosed, and have been watching you ever since. You are the highlight of my week. Be gentle with yourself, Christina. All my healing wishes from all the surgeries...
So glad you are home! Honestly, walking around in stocking feet to feel the ground is really good for your brain and walking! Smell the things, look far distances, all the good stuff. Your eyes are probably tired from staring at the close walls of the hospital room. So glad you love rosemary, I love it too!
Hi Christina, so glad to see you finally out of the hospital! I'm a fellow spoonie - I suffer from severe Myalgic Encephalomyelitis and am usually bedbound due to the vertigo, nausea and fatigue from walking and standing. I started watching you videos maybe 6 months ago - I found the EDS video and then went back at started the vlogs from the beginning! I think I finally caught up around week 80. You also introduced me to The Frey Life and I'm now addicted to Mary, Peter and Ollie! Thanks to yourself, The Frey Life and Jessica Kellgren-Fozard (another RUclipsr with a disability), I finally got the confidence to request a wheelchair when I went to IKEA yesterday and I was blown away by how kind the staff were! I was super anxious they'd tell me no or make me explain my illnesses (don't invisible illnesses suck!) but the whole experience was really validating. My partner and I had the best time - I actually got to feel human again without having to worry about my energy levels or collapsing as soon as I got to the car, and he didn't have to wait while I walked super slow or had to take rests every thirty seconds. I never would have had the confidence to consider a wheelchair without having seen your blogs and all the hard work you put into advocating for people with disabilities and invisible illnesses. A massive thank you for all that you do, my world is a brighter place for having you in it :)
I think all of us with chronic pain/illness are super excited when we find things that might make our lives better - and elated when something actually does! I'm so happy the brace attachment relieves some pain ☺
My daughter Grace and I love watching your videos. I found you by searching for videos about EDS to show her in hopes of helping her understand what her diagnosis was. I started from the beginning and then started watching some with her that I felt would help her. Thank you for being real and perfectly you.
Yeah, home sweet home. The vlog that brought me here was "Living with EDS: The Importance of Diagnosis and Early Intervention". It helped me a lot to explain to other people why I needed to visit many doctors, instead of trying to keep swimming, when I was already drowning. Thank you!
My first video was your rehab story! Your videos are so uplifting to me, and you are such a lovely person to "spend time with" through these vlogs. Chronic illness is hard, but having people like you and The Frey Life bringing light to it, being honest about it, and just living life, is so valuable. Watching your videos is healing for many people, I think. Much love!
I don’t even remember what video was the first one that I saw of yours. I think that it might have been where you talked about your braces or your feeding tube. It just popped up on the side and I watched it and subscribed. It’s good to see you back at home again. Take care of yourself and have a good week.
The first video of yours that I found was in August called "Living with EDS: Mast Cell Activation Syndrome / Vogmask Giveaway."
I've been watching for a year maybe. I found you when I was researching EDS. I think the first video I watched was you video on your diagnosis journey. It actually have me courage to approach doctors with what I thought was going on, and find specialists who could help me... so thank you!! I've since been diagnosed with hEDS, POTS, MCAD and MALS. After 37 years of random health problems, it is such a relief to.know what's going on! Thank you for sharing your journey with us. I'm so glad you're home and doing better and that you got to see your show. Musical theatre is LIFE!!
I've been watching since May 2016, the first video was "Living with EDS: Journey to a diagnosis", and have been along for the ride ever since. My husband even watches now.
It's so nice to see you back at home and comfortable. Even though you had a smile on your face at the hospital it still wasn't as bright as it is when you are back home.
I can’t believe that it’s been 100 weeks. You give me strength through the videos, your smile is contagious and your outlook is amazing. I have been watching ever since the What is ehlers danlos syndrome video. It’s been a happy, emotional and exciting journey with you. I’m so happy that you are willing to share your journey with us.
I actually found you first by your shunt video. I was diagnosed with left vertebral artery dominant dolichoecstasia along with chiari 1 and idiopathic intracranial hypertension and degenerative disc disease with ruptured discs throughout my spine. I was already diagnosed with hyperadrenergic pots, congestive heart failure and 24 other not fun diagnoses before hand. Needless to say it has been a very long and uphill battle. I was trying to find out more about VBD possible treatments when I found you. My children and I love to curl up and watch your videos together. The diagnosis of VBD doesnt afford me a whole lot more time on this earth with my little ones so we try to make the best out of what we have left. Laying in bed is about all my body affords me anymore. Thank you for doing what you do and being a bright light beacon for us that struggle in the darkness too! It helps give us strength to keep battling on. Keep on keeping on. Love and prayers continue for you and your sweet family.
I don't remember which of your videos was my first. I remember it was a year ago, watched 10 minutes, paused and started watching all of them in order and have watched each one since then. :)