Hi, I "fell" onto your videos the other day. I really love your sincere attempt to assist ME/CFS patients. I hope you won't mind some input from one of us referred to as "doctor." I am Board Certified in a number of specialties, and also hold some PhD's. Ya know what? All that means, in MY case, is I like to learn and I love teaching. At the moment I have no idea how much info I will be allowed to place here, but I am sure going to try to add some. #1. NEVER see any physician ALONE! I don't care if you can only find a willing stranger on the street. (Am I serious? Absolutely.) I don't care if they are your regular doc. When you, or anyone, doesn't feel well it is almost impossible to ascertain WHAT you are imparting to someone who might be able to help. More importantly, on any given day, you may not realize that "healthcare pro" is actually NOT okay! It's hard enough that we, so many of us trained here in America, didn't learn HOW to properly honor those who seek our care and compassion. WORSE; the American Medical System literally created an environment intended to exclude "others" from our intentionally small exam rooms! Will see if this is received....good work...Cheryl
It’s to the point where I’m constantly on the verge of tears. I can’t function! I just want to feel normal again and I’m so greatful that there may be an explanation for this! I’ve never heard of this disease and I feel like I’m discovering something that explains it all. I’ve been to the hospital over this they checked things like iron etc. and after that it was like…. Well I guess there’s nothing wrong with me… even tho there is. Thank you for your videos. It’s so nice to hear from people that TRULY get it. We’re not alone
Thank you! I tell this to everyone, even without ME. Dr's have too big a caseload to be able to stay on top of our needs. We are responsible for our own health.
I'm very lucky, I have a doctor who really gets it, and who wants to help. It's so important to find someone like that, and it may take time find them. The important thing is to keep on fighting until you do.
Yes, unfortunately you have to be your own advocate. But for many of us it gets to a point that we have hit our heads against the walls of medical ignorance and arrogance too often that we got even more ill. Too ill to fight.
Johnny, I agree. Also, I research any medication that they subscribe, so ultimately, i determine if I’m going to take it. Even when looking for a dr, I always read reviews! Sending peace and comfort to all of you beautiful hearts. It is truly a challenge being chronically ill, so we must also insist on making our lives as joyful as possible, too!❤
I am so sick of having to fight through these Arrogant Drs. I also have Complex PTSD and psychiatrists are so ego driven and want to change meds I have been on for 18 years. The entire health care system is broken. I WISH IT WASN'T called CFS. Oh you're tired?.......
If there is no cure and no known cause I feel like doctors are a waste of time and money. I don't need that extra stress of an office visit and invasive tests.
![Life with ME/CFS | Rugby league captain Richie Barnett [Chronic Fatigue | ME]](http://i.ytimg.com/vi/bNpCzU6P-Vs/mqdefault.jpg)
When it comes down to it, not a lot of people care unless it is something that affect themselves…..it’s a sad and lonely world out here….stay strong…x
Preach!!! Thanks, my friend.
Hi, I "fell" onto your videos the other day. I really love your sincere attempt to assist ME/CFS patients. I hope you won't mind some input from one of us referred to as "doctor." I am Board Certified in a number of specialties, and also hold some PhD's. Ya know what? All that means, in MY case, is I like to learn and I love teaching. At the moment I have no idea how much info I will be allowed to place here, but I am sure going to try to add some. #1. NEVER see any physician ALONE! I don't care if you can only find a willing stranger on the street. (Am I serious? Absolutely.) I don't care if they are your regular doc. When you, or anyone, doesn't feel well it is almost impossible to ascertain WHAT you are imparting to someone who might be able to help. More importantly, on any given day, you may not realize that "healthcare pro" is actually NOT okay! It's hard enough that we, so many of us trained here in America, didn't learn HOW to properly honor those who seek our care and compassion. WORSE; the American Medical System literally created an environment intended to exclude "others" from our intentionally small exam rooms! Will see if this is received....good work...Cheryl
Thank you. Your videos help me alot. Please keep doing what ya doing. Thanks.
I'm sure I've said that before on another one of your vids. Hmmm...my brain...
It’s to the point where I’m constantly on the verge of tears. I can’t function! I just want to feel normal again and I’m so greatful that there may be an explanation for this! I’ve never heard of this disease and I feel like I’m discovering something that explains it all. I’ve been to the hospital over this they checked things like iron etc. and after that it was like…. Well I guess there’s nothing wrong with me… even tho there is. Thank you for your videos. It’s so nice to hear from people that TRULY get it. We’re not alone
Thank you! I tell this to everyone, even without ME. Dr's have too big a caseload to be able to stay on top of our needs. We are responsible for our own health.
I'm very lucky, I have a doctor who really gets it, and who wants to help. It's so important to find someone like that, and it may take time find them. The important thing is to keep on fighting until you do.
Thanks. Nice to hear from you.
Yes, unfortunately you have to be your own advocate. But for many of us it gets to a point that we have hit our heads against the walls of medical ignorance and arrogance too often that we got even more ill. Too ill to fight.
Unfortunately that is often the case for many of us.
My point EXACTLY
Johnny, I agree. Also, I research any medication that they subscribe, so ultimately, i determine if I’m going to take it. Even when looking for a dr, I always read reviews! Sending peace and comfort to all of you beautiful hearts. It is truly a challenge being chronically ill, so we must also insist on making our lives as joyful as possible, too!❤
Im the same way. It can be hard to research when you are not well, but its so important.
@@fight4me747 Oh my goodness, yes!!
I am so sick of having to fight through these Arrogant Drs. I also have Complex PTSD and psychiatrists are so ego driven and want to change meds I have been on for 18 years. The entire health care system is broken. I WISH IT WASN'T called CFS. Oh you're tired?.......
Doctors can def have very big egos.
Wo lebst du ? ( Land)
I Love watching your channel , but i just cannot hear you , not sure if it is my computer or not ... big love from a m.e/cfs sister ..
Hey there, have you tried turning the volume up within the youtube app?
@@fight4me747 yes have done that
i am suffering from the brain issue i can;t even advocate for myself 😢, what supplements may help me please it's like tbi man
Which test should be taken. What parameters to look out for?
If there is no cure and no known cause I feel like doctors are a waste of time and money. I don't need that extra stress of an office visit and invasive tests.
Doctors prescribe LDN, they can have you try co Q 10 and various other things that help.