My 8 year recovery journey with M.E/CFS
HTML-код
- Опубликовано: 12 янв 2019
- I hope this video can help and inspire others suffering with Myalgic Encephalomyelitis or Chronic Fatigue Syndrome. If you have a friend or family member suffering then make sure to share this with them as it might just give them hope and help them out!
My blog: healthylivingjames.co.uk/
Follow me on social media:
Instagram 👉 / healthylivingjames
Facebook 👉 / healthylivingjames
Twitter 👉 / healthylivingjw
Thank you James. I’ve had chronic fatigue for nearly 30 years and now trying more and more to get better. I’ve had dark times myself and got struck down at age 25. Love 💖 and hugs xxx
How are you today?
@@TheKernal96_ Hi, well my health went from bad to worse a few years ago as I have gastroparesis and eatin any food is a challenge. The last week though I’ve gone low carb as my blood sugar is too high. Therefore I’ve started on the carnivore diet, with a small amount of carbs for the moment that I can digest. I’m eating egg, bacon and other bit of meat with some mashed root veggies. Don’t know if that will help at all. I kind of got so sick and tired of being so sick and tired, I’m joining the world on this diet with my fingers crossed. Hope this helps. Xxxxxx
@@teresagould6987so you getuchuscle pain
@@teresagould698727 years for me after a fall but it's genetic found out why I have heds asperger's ADHD causation do you diagnosed v43 my father had it 1989 1993 then 1998 to 2006 when thyroid was found his was after virus antibiotics he his still low energy but now 74
Just came across your video, thank you for sharing and I'm so glad you have recovered so much. I have had ME for almost 10 years and I have heard of people recovering by improving their diet, but this has always felt out of reach for me because I don't have the energy to cook from scratch, don't have someone to cook for me, and most health diets involve lots of complex ingredients from wholefood stores (which I can't go to because leaving the house involves wheelchair and headphones and several days in bed to recover). So your story about making food with just 5 or 10 minutes of energy is very encouraging 😊. I usually avoid healthy eating blogs because they are often these super healthy energetic people with orange tans and huge muscles... very far from my reality... But you come across as really genuine and I relate to your story a lot. Sorry you had such a hard time with the illness at first- but well done for making so much progress. Thank you very much for sharing, I am going to check out your blog to see whether I could make any of the recipes. Wishing you all the best 😊
How are you today?
Wonderful I’m glad to hear you’re doing so much better and you’ve learned to cook. When you get married and have kids make sure your children know how to cook. Nourishing yourself is number one
Thank you for turning your situation into something so positive. I've noticed your delicious offerings on Facebook and I will try and get your book here in South Africa. Thank you so much xx Congratulations on the baby coming 😘
Thank you for your sharing James. Your efforts have helped scores of people, including myself. Please keep the food blog going.
Hi James, I've been following you on instagram for a few months. Its great to see your food as i've been on a grain/dairy/caffine/alcohol/sugar free diet for a few years now and would say i'm at a similar place to you recovery wise. Something I found really interesting about you is that you've managed to have a relationship throughout your illness. I'd love you to do a video about that. I know that theres no way i've felt well enough to be in a relationship and i still feel like no one would want me because of it. A video of your experience with this would be interesting.
Hi James, I’m a year into this diagnosis now and still struggling a lot, so hearing your story is so motivating to know that I can get my life back one day!
Who are you Nicola?
How are you today?
Thank you so much for sharing James, you are so genuine and I can really see in your eyes the emotion from having to go back over those dark days. It is so encouraging to hear your story, thank you for putting it out there, positive stories like this are so needed to spread the hope. Big hugs xx
What a wild story. Congrats man, glad youre doing much better now
Thank you James for sharing your journey. You are an inspiration to so many of us! God bless and may you continue touching many more lives!!
Well done mate! Best wishes from Australia.
Thanks. 2 years 3 months in with OTS/CFS. I will never give up hope.
I’m impressed about your humility in all this, about how you kept going and learn all that stuff! And very happy to see how good you’re living now. It is very inspiring indeed! Thank you 🙏🏻❤️
Thank you so much for sharing it gives me hope to hear your story
I'm fatigued disabled by mold otherwise my main problem is multiple chemical sensitivity. I wish our communities worked better together especially doctors because the first thing my mcs doctor told me was to remove gluten and dairy from my diet and also do a rotation diet (google it) then also remove "fragrance" products and check for mold in my house. The theory by Dr Theron Randolph is that the body can't heal when trying to deal with other things that are hard on the body.
Congratulations on your recovery, and your business! Both are great achievements. Recovering from CFS is an amazing feat of persistence and strength, but with it comes having those tools and attributes that allow you to propel yourself forward in other areas that are slow to grow, such as business and entrepreneurship. Keep sharing your story and your message. You did a great job with the communication and presentation aspect of the video. My compliments again on your recovery journey, and I wish you increased vitality and success in the years ahead! Way to go!!
Hi James, I’m glad to see you’ve recovered, gives me hope! I’ve been ill with cfs for a year so far after glandular fever and I can honestly say it’s the closest thing to my version of hell that I could have ever imagined. Ive been considering a nutritionist, might go ahead with it soon
Thanks for sharing ur story James
Thank you for sharing! Amazing what you have achieved. I really hope I can recover as well some day ☺️
Thanks for talking about this. It’s very difficult with no support but people like you talking about it really does help.
Had no idea! I so enjoy your recipes, congratulations, James, on your brave journey. ❤
Wow James thank you so much for sharing. I got diagnosed with MS 15yrs ago and over time it is now putting big limitations on what I can actually do. Take away food was always easier and more convenient, me not being safe in the kitchen, lack of strength and energy. However a few years ago I began a nutritional shift to raw vegan for 2 weeks, everyone around me saw incredible changes. From there it has been an on/off struggle with food (where no1 could understand me saying no to dairy, I was an avid cheese lover growing up). I am on this journey alone, but after discovering you on Insta and now seeing this video, i have been given some yrue inspiration and a kick up the butt to get back into my food journey, currently studying nutrition. Thanks again James for all the simplicity yet so delicious recipes! Keep going strong!!
Such a wonderful video and share ❤ well done you ❤ Thankyou for wanting to make a difference and help others 💚
Thank you for sharing James, my daughter passed me your details to cook her your vegan Yorkshire pudding so I am for it to please her! Thanks Best of Luck and Merry Christmas
I’m so proud of you honey. Xxx 💖💖💖
Thanks for sharing mate :)
This gives me hope 🙏
Hi James thanks for sharing your story. It sounds like you're back to a functioning person now! I don't want to detract away from your personal experience but I always have been skeptical about the relationship of certain diets to CFS recovery and whether or not that recovery would have occurred irregardless of what diet. I am especially skeptical about this in the subset of CFS sufferers who fell ill suddenly.
Anyway, please don't take my comments negatively I intend for it only to be constructive criticism. Hope to hear your thoughts!
Yes I have fibromyalgia and lots of other problems. Trying the prolon fasting mimicking diet next week. I find I still eat gluten and dairy because I enjoy them. On and off the band wagon. Now is time for big change. Well done honey xxx your not alone 💖💖💖 you have helped kick me up the bum. Thank you xxx
instagram.com/p/B-xPbZuFCO_/?igshid=11diq5kkcsjh5
Thank you James, your video is giving me hope, especially to hear how you went from being quite athletic and active to having this issue. This is like me, though not a pro, lol. I am stuck right recently off of work completely with no tests showing anything. I’ve pushed through thirty years of struggle and this time it is really getting the better of me. All the natural supplements and careful eating is helping. I just learned about brain inflammation...cytokines & primed Microglia by Jarred Younger....thought I would mention this in case it is helpful
My story is the same exept there was nobody ...thanks..for your story
Thanks for the upload and sharing your story.. I am very happy you are feeling better! I came down with something a little over 2 years ago and was dx with postural tachycardia syndrome.. which is often considered to be very close to cfs/ me.. I have more air hunger issues and shaky weakness with fatigue and ringing cotton head and stiffness in muscles. Been eating very well and although I have made some improvements, still quite ill with ups and downs. now my teen son is ill as well.. I will have to take a look at your blog.
I deeply appreciate your sharing and caring!
wishes for continued health and happiness for you!
Lisa k have you looked into the buteyko breathing technique? I’ve recently discovered it and have been doing it for the last 3 days, I’ve heard some recovery stories about it and might help you with air hunger
Hi Lisa, Are you sure there isn't an environmental cause to your illness? I know that living in a mouldy / water damaged building has been a factor in me getting ill and the fact that your son is ill too could point to it being environmental. I know my air hunger has cleared up completely since i moved.
@@tinkzorro
I got ill directly after I went to the hospital for a kidney stone and I acquired a esbl superbug sepsis infection and never fully recovered afterwards. My son got sick about a year later. The Dr told me that the bacteria would colonize in my body and I really wonder if since my son and I live together and he got sick about a year later after a bad stomach bug if my germs haven't somehow been passed along to him.
@@lisakaylanemorrishave you got heds is so this is why your son has it and autism ADHD my father had CFS my mum had severe ms heds I have CFS fybromyalgia heds autism ADHD rccx gene theory
@@Truerealism747 yes we have been dx with benign hypermobility. We are still sick
thank you. I have fibromyalgia. Holistic cures like food work best. well done you. this will help me a lot and is very inspiring. well done you 😀
For me fybromyalgia is a part if me as myalgia means muscle Ive had pots to though now no why after 27 years heds autism ADHD rccx gene theory
Amazing video. Thank you for sharing and giving me hope. Can I ask where you bought your NT Factor from?
I've spoken to you on instagram (@_pots.and.pans) and your recovery inspires me so much. I too have been so ill that I couldn't talk or move but for me luckily the longest it has lasted has been a few hours or a day. I can't even imagine feeling that way for as long as you did and honestly congratulations for finding the will to live. When you are that ill it is so hard to find any positive so i'm so glad you got through it. I would never wish that experience on a worst enemy and anyone who has lived through it and has come out smiling deserves a medal. Well done and thank you :)
Hi there I've been struggling with CFS/ME for 26 years now, tried everything but it robbed me of a job and a cricketing career and over time many friends drop off because you aren't fun any longer. Without a person of support one really would be completely lost.
Because our disease doesn't kill you or is palmed off as depression not much money has been put into it's possible causes. I'm always happy for people that have recovered though and I can't give up hope.
You feel like you’re dying and the doctors think it’s psychosomatic, so they just abandon you. This is the salt that’s rubbed on the wound.
Thank you! I have been trying to figure this out for a long long time... I'm tired All the time, I'm sleeping 7-9 hours a night and feel like I have not slept at all. I'm alone and stay in my bedroom all day, I have no energy to do anything. I've come to the conclusion that I have Chronic fatigue syndrome!
Same here 3 years now. God have no clue and have no answer. I'm really gonna try my best with my diet but it's getting so bad now I wonder if it will even make a difference.
search for dr. Sarah Myhill on youtube, she's an English doctor who specializes in CFS/ME and has written a book on it with all the theory she developed on it as well as a practical guide on how to get better. Maybe it will help you!
I've just bought the book it's more like a lesson about m.e an the things recommended are only from her private clinic in Wales so no good for those bed bound or housebound..an thats if it works
@@lelediamondASMR Well I live in the Netherlands and are also housebound, but ordering the vitamins & minerals she recommends, going on a paleo ketogenic diet, asking for tests from your doctor + interpreting them with the values she gives, seem quite possible, at least for me. There are even tips on asking friends to set up paleo+keto meal delivery services for you etc. And every chapter is summarized in max 3 pages, for people that are too fatigued to read the whole thing. She wrote it with the intention to help people that are unable to come to her clinic, so that the patients can help themselves. Sad to hear you had a different experience reading the book, hope you find something else that works for you.
@@juunmiddelkoop it's scary to try these things due to so many allergic reactions. M. E make u sensitive to things.
Hi from Germany 🌻🌟 I just discovered your side. I am very desperate and bedridden over 5 years now after a tick bite. I am very desperate and helpless at the moment. Do you also have had Lyme?
Everyone recovers differently. For some , diet makes little difference. Although a healthy balanced diet is obviously a good idea.
3 years now and serve now. Im at the point of more bed bound really. What was the main thing u think helped you?
How did u get it ?
Hey james
Just a wondering during your recovery did you ever develop new symptoms?
Are you able to exercise? I've come a long way but I still can't do anything that pushes my body
Allergies to so many things. Would you be allergic to reishi mushrooms or Chaga mushrooms or cordyceps mushrooms?
Hi James, I hope you have been doing great. :) How’s your life going? What do you think about Long-Covid? I have been suffering from it for 12 months. Did you also suffer from MCAS at the beginning of your M.E/CFS journey? Seems to my Long-Covid is a mixture of both MCAS and M.E/CFS.. I’m looking forward to hearing from you! All the best! :)
Viktor--I just wanted to reach out to you because of all the misinformation I've seen being given to "long-haulers." (I've had ME/CFS for over 20 years.) When I look at the symptoms described by people with long Covid, they are exactly the same as my symptoms. So here's my 2 cents worth of unsolicited advice. DON'T use exercise to try to get better. It can make you a whole lot worse. Get plenty of rest, pace yourself, and above all, don't try to push through the fatigue. Stay within your energy envelope. De-stress in whatever way you can, be it through meditation, music, or anything else. Stress can greatly exacerbate symptoms. Do your best to avoid crashes, because it's possible that the more you crash, the more you perpetuate the illness. Take care, and best of luck to you.
@@jackienaiditch7965 Thank you for your message. I appreciate it. 🙂 I’m in the middle of a crash now. I have been suffering from Extreme brain fog, fatigue, chills, light/noise sensitivity, low blood pressure, and so on in the last three days. I haven’t had a good day for 13 months (I’ve had acceptable days, though). I am out of work since.
How severe was your M.E/CFS at the beginning? How have you been doing lately? I’d have tons of questions for you.🙂 You must be right that it’s like M.E. First, I thought I had mostly MCAS-like symptoms. Now they overlapped each other. I still react to food, environmental changes, stress, listening to conversations, and the list goes on.
It’s difficult to deal with this unexpected illness. My life changed one night (one month after Covid) that night, I felt food poisoning-like symptoms and low blood pressure, I almost fainted (never fainted in my life). I never had any health issues before COVID. I studied, worked, and lived in five countries. I’m still living abroad.
Difficult to accept that all this is done for nothing.
How did you cope with this feeling that I see no future? I have a supportive girlfriend (she understands it pretty well, my family at home has been extremely supportive too, but they have a lack of understanding of M.E/CFS or MCAS. Difficult to explain it to them.).
I know that M.E patients have not been diagnosed with this devastating illness for decades but, were misdiagnosed or given antidepressants. I feel sorry for you guys (now I’m in the group as well) when I hear that! Tears in my eyes. It feels like we have been living still in the Middle Ages, where we don’t have the answer to something we don’t know then we do terrible things.
All the best
@@viktorszucs4181 I'm so very sorry you're dealing with this awful illness. Every single symptom you list is a symptom of ME. I developed food sensitivities at the beginning of my illness. I, too, had never fainted, but developed low blood pressure and actually fainted once in the supermarket (!) and twice in the shower. Before I got ill, I was a technical editor, had co-written two computer language books with my husband, we'd built a house, travelled widely, and had a full, healthy life. Then, I got a virus (similar to Covid-19), and that was it. Goodbye to my normal life. Goodbye to my career. (A very high percentage of people with ME had it start with a virus.) I was told by two doctors that it was all in my head. But, as I knew that was ridiculous, I then saw a specialist at UCLA. He diagnosed me immediately with ME. Unfortunately, this doctor never explained post-exertional malaise (PEM) to me, so I exercised and went from moderate to severe. Like you, I'm in the middle of a crash. The feeling of seeing no future is totally understandable with such a devastating illness. But, especially since you've "only" been ill for 13 months, you have every chance to improve--if you take it easy and minimize crashes. That's why I wrote you. Call it early intervention. BTW, I have improved over the years. I went from being completely bedbound to going on two trips to Yosemite recently (I live in Los Angeles). What country do you live in? (If you're in the U.S., I can recommend some doctors.) Please know that having feelings of depression is totally normal with an illness like this. Check out some ME Facebook groups (Like "Myalgic Encelphalomyelitis Global") to connect with people who understand. Also, if you have any questions at all, don't hesitate to reply to this post. I'll help in whatever way I can.
@@jackienaiditch7965 May I have your email address somehow? 🙂
Do you know if there was mold in your parents house?
Was it nervous system
Did You was body feel stiffness
But look where you are now honey xx
Have you pain and anixety
What helped your cfs?
nothing. He is guessing it was food but it wasn't it was just his body's own recovery or he had Celiac disease if gluten was the cause. I don't understand what he is trying to say? I just wasted 11 minutes of my life listening to him talking about recipes. It wasn't recipes that got him better.
You recovered after gluten was removed? Sounds like you have celiac disease?
3:07 six months is too long... should be more like one week