This is need to publicized. I had it for 30 years, misdiagnosed with chronic fatigue, lifetime of depression, destroyed my career, ended up on disability. And it was always treatable!
The worst part of my lyme journey was no one believed me. Even though the ones closest to me seem to believe me now. There are times they say things that make me wonder. One of the saddest things in the world is no one believes me anyone any more.
@TheLymeBug Thank you! It so nice to hear those words. It really depends on the day. Some days I still feel as if I can't even function. Especially when I get so overwhelmed. Other days I am amazed at how much I can remember and articulate now. How are you?
@TheLymeBug One of the biggest reason I kept fighting through all of this was to one day be able to help others also. It's really nice just to talk to someone who understands.
I believe this may be my problem, too, after many years of pain and struggle. No one believes me. I’m starting to feel like a hypochondriac, but I trust my instincts. Now I need to be tested.
Mine was detected in a blood test after limping for 3 weeks thinking it may be tendinitis. An Xray was done at first, but of course nothing there. After being prescribed a non-inflammatory, it helped a little, but still something wasn't right, so my doc put in an order for blood work. I have been going outside for long walks since COVID-19 (May of 2020) to keep the weight off from being inside constantly (and eating) due to the COVID shutdown. I believe to now be in the late stages dealing with tingling in certain areas (right or left arm, shoulder, leg, etc.), RA in my right knee and bouts of mild depression. I am now on antibiotics and pray that I have a successful recovery. My only question/concern is not knowing exactly how long I've had this. My legs are always covered (while wearing sleeveless shirts🤷🏽♀️) and I've never detected a bite or rash. I have eczema so may have randomly scratched in the area without looking assuming it was just that... I could've had this for over a year and not know it. Now that I know that May is Lyme Disease Awareness Month, I will be sure to wave the green ribbon to make everyone aware to please be careful. There is alot of unawareness out there😔 It's funny how you hear about the disease, but don't really take it into consideration until it actually falls in your lap (like I did... smh). 💚
Did your eczema come recently or later on in the disease? because I have it on my scalp. I’ve had the same random symptoms, RA symptoms mostly in the knees for a couple weeks that progressively got better but still pop up randomly. I deal with everything from depression, anxiety, troubles breathing with my heart, random ear ringing. They tested me for Lyme disease during the time I couldn’t walk (it was right before and during Covid for me too funny enough) but I want to get tested again because I feel like it was a false negative. Im convinced I’m in the late stages too because I remember finding a tick on me many years ago and just pulling it off the best I could, I never dealt with any of these symptoms even close to feeling this bad when I was younger so I feel it’s something deeper, definitely a disease that seems to affect everything in you and is such a silent thing as it looks like many other things
I have chronic Lyme and anxiety is crippling. Waking up in the morning into a hopeless,bleak panic with depression. Its terrible but everyone else thinks your fine. It goes into remission for a while but will always show up again for a terrorizing visit. When im having a flare up suicidal thoughts cross my mind alot.
This is need to publicized. I had it for 30 years, misdiagnosed with chronic fatigue, lifetime of depression, destroyed my career, ended up on disability. And it was always treatable!
The worst part of my lyme journey was no one believed me. Even though the ones closest to me seem to believe me now. There are times they say things that make me wonder. One of the saddest things in the world is no one believes me anyone any more.
We live in 🤡 world Dw, so many of these idiots believe anything the cdc tells them
@TheLymeBug Thank you! It so nice to hear those words. It really depends on the day. Some days I still feel as if I can't even function. Especially when I get so overwhelmed. Other days I am amazed at how much I can remember and articulate now. How are you?
@TheLymeBug One of the biggest reason I kept fighting through all of this was to one day be able to help others also. It's really nice just to talk to someone who understands.
The rural areas residents and homeless individuals should be checked for lyme disease, not all disorders are of a psychiatric nature.
Unfortunately many run out of money fighting Lyme.
Me
I believe this may be my problem, too, after many years of pain and struggle. No one believes me.
I’m starting to feel like a hypochondriac, but I trust my instincts. Now I need to be tested.
If only to feel like a human being again...😢 13 yrs...
Mine was detected in a blood test after limping for 3 weeks thinking it may be tendinitis. An Xray was done at first, but of course nothing there. After being prescribed a non-inflammatory, it helped a little, but still something wasn't right, so my doc put in an order for blood work. I have been going outside for long walks since COVID-19 (May of 2020) to keep the weight off from being inside constantly (and eating) due to the COVID shutdown. I believe to now be in the late stages dealing with tingling in certain areas (right or left arm, shoulder, leg, etc.), RA in my right knee and bouts of mild depression. I am now on antibiotics and pray that I have a successful recovery. My only question/concern is not knowing exactly how long I've had this. My legs are always covered (while wearing sleeveless shirts🤷🏽♀️) and I've never detected a bite or rash. I have eczema so may have randomly scratched in the area without looking assuming it was just that... I could've had this for over a year and not know it. Now that I know that May is Lyme Disease Awareness Month, I will be sure to wave the green ribbon to make everyone aware to please be careful. There is alot of unawareness out there😔
It's funny how you hear about the disease, but don't really take it into consideration until it actually falls in your lap (like I did... smh). 💚
Did your eczema come recently or later on in the disease? because I have it on my scalp. I’ve had the same random symptoms, RA symptoms mostly in the knees for a couple weeks that progressively got better but still pop up randomly. I deal with everything from depression, anxiety, troubles breathing with my heart, random ear ringing. They tested me for Lyme disease during the time I couldn’t walk (it was right before and during Covid for me too funny enough) but I want to get tested again because I feel like it was a false negative. Im convinced I’m in the late stages too because I remember finding a tick on me many years ago and just pulling it off the best I could, I never dealt with any of these symptoms even close to feeling this bad when I was younger so I feel it’s something deeper, definitely a disease that seems to affect everything in you and is such a silent thing as it looks like many other things
🙏🏽 for you all
Medical mushrooms have helped all i have referred.
What kind of medical mushrooms?
Awaiting results anxiously 😣😣🤦
Anyone know anything on doxycycline?
took it for months, it didn't change anything.
Once lyme gets in the tendons, doxycycline doesn’t work. We need an herb or medicine that pulls these spirochetes out so then can be killed off
i recommend looking into magnetic treatment. that’s what helped me.
Taken it for months as well, still have it.
I hope I can beat this
I have chronic Lyme and anxiety is crippling. Waking up in the morning into a hopeless,bleak panic with depression. Its terrible but everyone else thinks your fine. It goes into remission for a while but will always show up again for a terrorizing visit. When im having a flare up suicidal thoughts cross my mind alot.
I can help you.
Lyme Warriors
💚🥺
No one will ever know what warriors we are till they have to battle it!🙏