Living Well When You Don’t Feel Well: Overcoming Lyme Disease and Illness | Joe Trunzo | TEDxBryantU
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- Опубликовано: 29 сен 2024
- Trunzo highlights a different way of thinking and coping with diseases (and life), specifically Lyme. Dr. Trunzo earned his undergraduate degree in 1993 from Marywood University in Scranton PA and completed his graduate work in 2000 at Drexel University in Philadelphia, PA. He completed his pre-doctoral internship at the University of Vermont and his post-doctoral fellowship at the Centers for Behavioral & Preventive Medicine at Brown University Medical School in Providence, RI.
He is a Professor of Psychology and Chair of the Department of Applied Psychology at Bryant University. He is also a licensed, practicing clinical psychologist with expertise in the psychological management of chronic medical illnesses such as cancer and Lyme disease, as well as the treatment of mood and anxiety disorders, especially obsessive compulsive disorder.
He serves on several professional committees and belongs to a number of professional organizations. In his spare time, he enjoys being with his family, live music, running, and mountain climbing. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx
Have had neurological Lyme for five years. Had to step back from my career, relationships, regular stuff. The physicians denied I was sick or could still be sick after a few weeks on doxycycline. Used my savings to get help from naturopath. When the money ran out I was on my own. Friends and family do not get that this sickness goes on and on. I do not do things now, no volunteering, do not show up for picnics or parties. I am home on the couch. Hearing how I have “changed” from family and friends is the meanest thing. Also disbelief that I can “still be sick” hurts me. So the chronically ill often isolate themselves, often from the ones who should care the most. What a lonely place that is. I know raw suffering everyday.
I'm sorry you're going through this. Have things gotten any better since?
I hope you are in a better place. I know this seems like it will be a never ending nightmare
You speak the truth, I’m in the same boat....All we can do is the best we can. Most won’t understand how horrible this disease is. I set myself personal goals, not the goals of others or the world around me. I know my boundaries and limits. Those who don’t understand Lyme are those who are uneducated on the subject...The majority of the medical field refuses Lyme cause insurance companies don’t want to pay for Lyme treatment or antibiotics...Patient care shouldn’t be based on politics. This being said many Drs who do treat Lyme are forced to be private pay...Most of the data on Lyme with most pcp’s is 20 years old or older...would u fix ur car or computer with 20 year old data...I think not..
I'm the same as you I almost lost my family because they didn't understand and my family is everything to me I had to just act like I'm not sick in order to get them back and I struggle every day inside my mind. From just not feeling like getting up and all in the mornings to not being able to grab my words to talk to people my cognitive thank you slipping away it's f***** up to say but it's nice to know that I'm not alone I hope you get better I hope we all do
Hi Kathleenie, I so feel for you since your story is similar to mine. I've had neurological Lyme for nine years and currently going through a pretty severe flare up. Every day is a struggle to get through and the only time the ordeal of pain and feeling absolutely terrible stops is when I'm asleep, I won't say it here but you can probably guess the desire that brings to mind. Hope of a cure kept me going until recently but after so long and now being in my sixties that hope has faded leaving me in a pretty desperate state. Please reach out with a reply if you feel correspond with a fellow sufferer with a comment or maybe find me on face book name deava skye.
I like this... our mental state also affects how much lyme can rob from us.
yes, it effects the whole body dosnt it stay strong, strong body mind and soul is what us suffers must have to get throught this day by day.
did anyone try Dipsacus fullonum for lyme, every time i take it my head is like the sun, i also cut all the sugar, and go carnivore..because bacteria thrive on sugar, all the best to everyone!
Anyone in arizona ?
Lyme is sexualy transmittable!! Not just ticks!
There is no efficacy of that
Whoop Makayla was my message accident on her account. That is the cognitive.
The problem is when you have 25 plus symptoms that make you think that you're going crazy it is very hard to look at the bigger picture and get yourself out of all the feelings that you're having in your body and dealing with the illness. Fear plays a big role too because the symptoms can be very bizarre
This is very frustrating when a lot of us Lyme patients have been misdiagnosed with psychiatric illnesses. We've been through this and heard this before. It's about making you comfortable, but it's a bacterial infection, treat the underlying illness.
Yes it is a slap in the face. A massive uprising with some swearing at the top of their lungs surrounding the bastards who started it in the labs, won't diagnose or treat it (denial), the insurance industry, military industry, medical insurance industry, and the medical people who are swayed by the criminal CDC..
They diagnosed me with conversion disorder then told my mother calling an ambulance when I had a heart complication and almost died so they didnt treat me.
Lynn Durbin I hate to fall down the rabbit hole, but watching how the CDC is treating Covid-19 right now. A few months before this pandemic, one of my doctors wanted to put me on hydroxychloroquine and low dose methotrexate. No thank you, I don't want my immune system suppressed. But now I see them testing the same treatments (including hydrogen peroxide, UV therapy, etc) at Covid that they throw at Lyme disease. It shows that they don't know what they're doing yet.
LostMy FrenchToast I'm so sorry that happened to you. My heart usually races and I get orthostatic hypotension. My doctor thinks it's anxiety attacks, but it usually happens when I'm at home with nothing to be anxious about. The minimizing is very difficult to deal with, and how people close to us don't understand. I studied clinical psychology in college, and got the impression that conversion disorder is the diagnosis they give when they don't know what else to do. I think the symptoms can also be explained by Lyme disease too.
@@lynndurbin9476 hi there - i am very interested in this disease's Origin ? Seems an obvious question. can you point me to any evidence or studies
40 years with lyme. Nothing has helped. Don’t care if I die now. Can’t take anymore.
How are you now? ❤️
Pure Stevia, sold at Trader Joe’s, will kill it. So will Methylene Blue. Google it. You can be healed! God is still healing!
🙏💕
Doctors don't like testing for Lyme. I had two ticks. They gave me a pamphlet. No test. You'd think with a disease that can be so impactful they would be more proactive about ruling it out. Lyme is a tragic medical blindspot it seems.
I've been to see my doctor twice. 1st time I told him I had a tick bite me. 2nd time I said I found a tick in my bed and another in my house. Just gave me medication for nausea. they won't test us for it unless we have the rash I guess.
“Medical blind spot” is a spot on way to describe it. 💚👌🏼
They hate to admit the don’t know something. God forbid after all those years of med school they don’t know something! 🤷🏻♀️
Yes, doctors do medical gas lighting.
Sad they fda needs get updated with lymes and family Drs need to know how to treat it
It would be so great of whomever uploaded this could fix the volume and re upload. It is SOOO so low, it’s hard to hear. Thank you! ♥️🙏🏻
Yes!!
Yes please!!
yes
+volume
When you are housebound by pain, fatigue and a myriad of symptoms, how can you earn a living, much less volunteer anywhere. People don't understand why you don't show up for commitments and don't have the wherewithal to notify anyone. I go to the desert in the winter and live in my car and sit outside all day in the sun and it relieves all my Lyme disease symptoms for the winter, and when I come home to the mountains for summer, I stay outside in the sun all day. That's what keeps it at bay and the pain levels down. Been doing it for years. It's almost November and cold and rainy and I'm flaring big time right now.
Where do you get pain?
Thanks for the recognition of Lyme and what we go through.
Get infected lose your income ,your profession ,maybe your family , then get back to us on how to survive with nothing. I can't wait for your next acronym.
Mark MacDuff ,me too. Wasn’t diagnosed yet but feel like it could be Lyme. 7 months of numb feet stomach issues fatigue off balance Had so many test from 3 neurologist and they found nothing
I don't think he's trying to belittle what Lyme sufferers are going through at all. Rather, he is saying that it is important to still find purpose despite all that we go through.
This is my journey. Now I’m alone and confused.
Very sad
preach
Thank you Dr. Trunzo!! I have ME/CFS and practice similar coping methods; although I haven't received ACT therapy. You're right; when I say, "I accept my illness," I'm accepting my reality. But, people often mistaken believe that I've given up on treatment or hope. If I express what people consider "negative emotions," ie anger, frustration, sadness, I'm often told that I must stay positive. To me, they are saying deny my feelings rather than work through them and allow them to move through me. You have given me validation, and I thank you!
Been told my pain is all in my head. by more than one doctor! take depression and anxiety meds.
The loss of hope comes from the fact there is no treatment protocol that works. Period. The money is still in developing testing for post treatment lyme syndrome not even treating or curing it. There may some day be, but I can't think of any formerly chronic illness in many years that's been cured. We were just unlucky and we have a medical system that is driven by what is profitable. Curing disease is not.
I want to offer hope to people, but I myself am losing it to.
This all well an good for the upper/ middle classes who can afford to put those rescued resources into "meaningful value" activities rather than just into day to day struggle and survival. For those of us who are unemployed or can't work due to sickness the issue is one of "How am I going to make money to survive now that I am constantly fatigued?". If I can get any energy back I have to use it to work and live.
Yep, and that fear terrifies me daily.
From Ashes get a lawyer who specializes in this. They will get you your disability and you don't have to,pay upfront ...they are paid from your settlement. Better than no disability at all !! Best wishes your way. Chronic Lyme SUCKS
@@FromAshes444 are you getting help.from a llmd?
you are not alone, God bless stay strong, very good questions. Stay strong.
I understand what he saying, it depends on the the person ability, I wish I could go at least for a volunteer work, but I barely make it to doctors appointments I can’t even go to church and I miss that very much. So happy for those who are able to go to work and do volunteer work, before I knew that I had Lyme I used to ouch through out the day raising 3 kids, school appointments, grocery cooking cleaning volunteer work and now I’m trying to lift my head up and oh boy. God bless you all and praying for a cure !!!
I know, that's where I got stuck. so this woman simply just went and started volunteering, she's still sick but she has purpose. Great. Help me off the couch so I can even go walk my dog. I have purpose, three beautiful children who also have lyme from my pregnancies. Tell me how this helps.
@@Grayseee Dear Julia.. I hear your frustration and pain. I can't imagine having children to support and nurse while suffering with this same torture! I've had Lyme for 8 years.. Don't give up. I'll be thinking of you and praying for you too! Sending ❤ and understanding..
@@Grayseee Gaps diet by Dr Natasha Campbell Mcbride. It has helped me reverse my Lyme. I could not get out of bed for 2 months.
All Yas may need is Vinegar?
Raise Body Acidity pH
Drink 5% With Water
Consult a Medical Practitioner First.
@@Grayseee Why would you have kids if you were suffering so bad with Lyme? Now your kids are going to have to suffer through Lyme all because you were selfish.
I can barely do anything because of lyme. I feel it in my body almost all the time. I m too weak physically to walk much or sit long. I wish everyone suffering fromnthis to heal. I hope for miracles. I ve known many kinds of suffering but this is debilitatingvand despairing.
How are you now?❤️
being so sick for so long and no doctor will listen to you
you are forced to become an expert extremely quickly to actually save your own life
as me how i know....
Lyme disease is a brutal lonely battle, been fighting for little over 3 years now, don't know how long I can go on..
You will need to repair Immune system after treatment. Watch lectures by Andrew Heyman on CIRS. Thats when your body will truly heal.
@@holylabs commenting for future reference
@@kunuelo5576 same but i have lyme
I'm in the same boat, nobody understands and nothing I try seems to help.. I can't live like this is
🙏
I'm one of those that used alcohol to cope with my Lyme symptoms - it didn't work out. I have multi system Lyme involvement, and even with positive lab results in hand most of my California doctors pretend lyme doesn't exist.
Thank you for presenting this. Your volunteer patient is someone like me.
Would love to find a therapist like you 😊
There are good Lyme Doctors on the central coast of california, my boyfriend (with Lymes) is be treated by Dr. Thoring of “Pacific naturopathic medical center” and he’s treated other’s we know with Lymes
18n years lymes, stay strong.
Thank you for acknowledging that the "experts" can not come to an agreement for the best way to help Lyme patients. Where are you putting your energy and live the most meaningful life you can! Good advice. I have Lyme and am fighting. Meaning makes the world a better place.
Beautiful sentiment and well said... (11 years of undiagnosed Lyme and coinfections with only recent diagnosis and way too many years lost)
My doctor after many doctors discarded me with antidepressants, told me they had no answers to calling me crazy finally threw all that out. Diagnosed me from symptoms. As the tests are inaccurate. He wanted to treat the source not just the symptoms. I’ve been in remission for 2 years. I’ve lived with Lyme for 13 years. Not having an answer or treatment made me suicidal. Judgement from others and just waking up feeling rotten.
@@mandywright2669 :( the mornings can be the absolute worst. I'd kill to wake up feeling how I did when I was 18, even though I was in full blown benzo withdrawal I could still get excited about living another day. We are connected, I love you, do not end everything. The day will come when our pain is gone, till then, this is our journey
@@mandywright2669 ¹q1
@@mandywright2669 have you looked into blood ozone treatment and EBOO?
@@justjan2576 I am getting ready to start blood ozone therapy with my new doctor who is a naturopath. I have Bartonella and Borrelia recurrentis. Has it helped you? It’s $200 each session and wondering how many I will need.
First of all thank you.
I have had lymes disease now for 10 years , when I was bitten by the tick the next day I got a bullseye rash on my leg and to touch my hair on my head was extremely painful , I went to my gp in Scotland uk my GP gave me cream to put on the rash and gave me paracetamol for the pain I was getting in my head ,
From that day my life changed forever, as the weeks went on the pain was all over my body on a scale of 1 to 10 my pain was 1000 x worse , I was seeing things that wasn't there hallucinations , I couldn't find items in my home that I always put in the same place ,shoes were found in the freezer , car keys in the bathroom , shopping found in different cupboards in the kitchen , I thought I was going mad , back to the doctors he said I was stressed probably due to work related , my employer ended up asking me to hand my notice in because of the time I was taking off work ,
Before I was bitten I was a very active person 10 years later to now I can't barely walk I'm in a wheelchair most of the time now , I was only diagnosed with lymes disease 18 months ago , I think I've seen every doctor in 4 different hospitals , I was put into a mental health ward by force by doctors they removed my rights , I was not treated for 8.5 years , the mental health doctor's doped me up without my consent.
I absolutely hated anything to do with drugs never touched any drugs in my life growing up , I am now taking fentanyl and probably addicted to it prescribed by my gp for the pain I have and all the other drugs im on for the pain , also on antidepressants which dope me up ,
My life is a mess all because my doctors got it wrong from day one .
Anyone out there who has lymes disease please never think you are alone in this terrible illness , you are Not going crazy , try to come to terms with it , laugh when you find items in the wrong place and try to have the best life possible , try and do exercises even if you can only move your feet back and forwards a couple of times a day , you must try and walk as much as you possibly can but don't over do it , discuss with your family your symptoms don't bottle things up by not talking.
Try to move your fingers in and out
The more you can move your limbs the pain seems to ease off , tens machine are a good way to ease the pain ,
Lymes Disease is the worst illness anyone could ever get if not treated early.
Soft hugs to the suffering.
Jesus saves, Jesus heals, Jesus delivers.. there is no disease too big that Jesus can’t heal
-Micaela’s mum
Amen!
Amen.
Jesus has not cured my lymes and I’ve begged him to sooo
I’ve never understood this belief that religion will miraculously heal you….it begs the question why would your ‘God’ make you sick in the first place?🤔
13 years, countless treatments, now more symptoms MCAS , mold, etc, took 8 years to get disability. 😢
I've recently been diagnosed with Lyme. I have neurological indications that i've had Lyme disease for a long time. After having Covid19 while pregnant and giving birth a few months later my immune system was shot. Every joint in my body aches. I'm currently on antibiotics and I'm sooooooo hopeful that they work b/c I do not like feeling this way. Over the past few years my energy level has plummeted; my body hurts and my general sense of well-being has been very low. My parents told me that I changed a few years back. I didn't know I had Lyme at the time. My response was simply "I don't feel well". Anyway, hoping everyone suffering from Lyme Disease is moving towards complete healing and the varying medical fields catch up quickly with real treatment.
check out dr. axe recommendations,stevia and more can be an addon to help you recover faster. make sure to take it slow, herxheimer reactions are a real thing. lyme is no fun, but you can get through it
Medical Medium books
I am learning newly single.. . That I must reduce myself down to what I can manage alone.. now being homeless and living in my grand am. I'm scared.
Hang in there please I can't say it's gonna get better cause I don't know I have it too an I can feel your pain cause I can
Couldn’t hear him not loud enough
Right! Lyme left fluid in my ears, so this excellent message was mainly lost on me!
Spoken like a person who doesn’t have Lyme disease. Go away.
lymes is a pandemic
Having really bad herx reaction and found this video. I hate the episodes of rage when this happens. Have to tell your loved ones to stay away. I'm a stay at home dad now because I can provide consistently. I can't push past the chronic fatigue most days. Helping my son succeed on my good days gives my life meaning. I pray for those that are suffering with Lyme and other tick borne diseases.
Absolutely amazing talk. My neuropsychiatric lyme disease diagnosis still pending, but lyme or not, as a scientist, professor and health care provider, I want to help the community to never get to my current health status where I can't even bathe myself.
😮really
I have days where I can barely function and then I have some good days. Lyme (and other infections) have brought my life to a halt and turned everything upside down.
Do u treat Lyme and if so where r u located. Im going on over 15 years and not sure how much more I can take
@@porsh8465 yeah, really!!!
Undiagnosed lyme or delayed treatment as well as the other tick born diseases can mean a lifetime of misery and suffering. You can literally go mad, all the time in a terrible pain throughout the body, and to this day physicians are seriously lacking in understanding these diseases.
As soon as I figured out this guy has never had lyme I stopped watching you have to live it to understand it sorry
(founder of lymes warrior) this to will pass stay strong and and dont stop looking for treatments that works. make sure people that you have a lymes litterate doctor, time is of the essence, so please dont let anyone tell you this illness dosent exsist it sure does and you have to have a strong mind to fight all the stigma sourounding those that suffer.
The common person can't afford a Lyme literate doctor.
I watch RUclipsr Jake Doolittle who has Lyme and his death threat tier list video he made, made me so upset for him. He received death threats from his peers and father because they all believe he faked it. He had 15 surgeries (as of that video) and would be wheelchair bound some days and able to walk others. Absolutely hate that people did that to him. He’s doing well now, I don’t think he’s at a point any more where he needs a wheel chair on bad days by the way he talks about it. But honestly sucks he had to go through that to begin with. My heart goes out to all people diagnosed with Lyme, wether or not you’re treated like that as well, chronic illness is something no one should ever have to go through.
You sure find out who your friends and family really are, mine are gone, living in a preverbial van by the river.
9 years Lyme ,and a doctor want me to see a behavioral health specialist, how maddening!!!
Change drs. Seriously
That’s only because our medical industry has NO CLUE on how to deal with it!!!!!
They are all the same why change
thank you sososososo much for this talk. my husband and sister in law down in TEXAS had their lives DESTROYED by lyme.
i nearly cried twice listening to this. i felt so seen and heard. can i has this doctor???
The volume is too low. I can’t hear it.
ikr this guy talks extremly low had to turn volume to max
I'm a Ex British Special forces operator and I got sick 14 years ago and had to retire from the service, over that time I've degraded to the point I'm now in a wheelchair and can no longer walk and need 24/7 care with neurological and Physical disability, I've seen 100's of doctors been told I've got MS, CFS, Fibromyalgia I'm just making it up! And it's all in my head! This year I was diagnosed with Chronic Lyme disease.
So sometime in my military career a tiny tick had its wicked way with me and ruined my life, Drs in the NHS now say because I've been infected this long there is nothing they can do for me.
🙏
My best life now is to stay in bed don’t move and not feel guilty about doing nothing.
So true!
Wish I could hear him. Not sure if he's the quietest speaker ever or if the sound engineer couldn't find the trim pot for his mic gain?
def
needs to be re-upload w more volume.
Great, great talk. I do find myself spending my whole life trying not to be sick and all I do is spend my time on healing and treatments. This has been helpful, I’m learning to surrender. We share our journey with Lyme on this channel and we share everything we have learnt along the way, and sharing & helping others has also given me purpose and given me a space to do something meaningful even in my situation. We will never give up but we are learning to ride the waves as they come, even the ginormous waves. We believe that we are given our path for a reason. I would never choose this path in a million years but we have found a way to turn pain into purpose and it’s leading me into a direction that I otherwise would have never taken.
How are you doing now?
@@tigerspiritjourney hi! SO much better thank you - my channel actually follows my journey (on this channel) and long story short I’m now actually pregnant. It was a looooong, complicated road to healing and one discovery led to another. Turns out things go so much deeper and I’m just grateful that I was eventually led to the answers that do actually heal. As I say though it’s complex and a lot of work but I do discuss all on the channel as well as my blog in order to help others along because I certainly know it can be a tedious, frustrating, exhausting road searching for the answers and solutions. Wish I could provide simple answers but the reason why so many are still stuck is because humans are complex and the answers to healing are nuanced but with the knowledge, it all makes sense ❤️
@@KIMandROSS do you have a link to your channel? Not sure what “channel” means?
@@denisewilliams7166 I believe RUclips comments don’t allow for posting links most of the time. But if you click on my picture or name, it should lead you to the channel - RUclips channel ;)
Lyme sure has turned my life upside down. I have finally accepted this is my life. Once you have accepted it it becomes much more tolerable. Keep going warriors!! 💚💚💚
The fact you can afford a phone says a lot....some people, families lose their homes and their lives.
I was just homeless in my car last week. I was paralized for two years. I lost my family due to this disease. Please just stop. Your comment is not needed.
@@andreafox3835 Dear girl, I hope you are doing better. I've had Lyme for about 8 years now, and one of the worst things about it is the dismissive way people treat you. And family! Don't get me started. I am thinking about you and praying for you too, Andrea. ❤ Lyme Sisters
@@sherriday1138 Thank you so much!!
Enjoy accepting it !! But don’t tell others to. That’s wrong. Many people get well again. If you’re watching this and you feel hopeless there is hope.
I don’t know / the pain and chronic fatigue definitely gets in the way of any abd all actions .
I am suffering from Lyme but I do think some of the people on these comments didn’t thoroughly listen. He said accepting doesn’t mean giving up, absolutely still pursue treatments there are lots of success stories of people finding what works for them to keep the bacteria at bay, but he is saying don’t make your life about not feeling well, I know that’s easier said than done and some people probably not even possible but he wasn’t saying to give up.
Lots of success stories? Where? Not seeing any here.
Thank you for uploading this! I have had undiagnosed Lyme disease for 3 years. Finally got a diagnosis and started treatment. Hoping the treatment will help.
Rochalle Racine SAMe girl! So important to spread awareness. I am starting to make videos to spread the word. Wouldn’t it be nice if we didn’t have to suffer anymore
Dev Vasile I would love to see some of those videos. I have been thinking about starting something for it too. Actually right along the lines of this video but I’d also like others to benefit from it as well.
Have you cured now?
Rochalle Racine any update?
Robert Elder remission is what we try to achieve.
I’ve learned, having CLD, & ending up in the hospitals & all, some turn their heads, they don’t realize I’ve fought to live, many of us have that have it... they’ll realize when we pass on, comforting themselves, “ if I would have listened, or this or that...”, it’s been one roller coaster ride, it just won’t stop. I’ve learned, keep it all in, regardless how much pain, suffering, education one has, it’s absolutely to exhausting.
Lyme disease is so bad and it’s so sad and it’s killing my sister and so many others. She can’t live life and hardly functions and she’s only 43 years old. She went misdiagnosed for 12 years. I’m devastated and I wish I knew how to help her. She’s so sick and we don’t know how to help her. Is there any way anyone can help?
Have you tried ozone therapy and or herbs? ❤️ All the best
She is blessed to have someone in her life that believes her and supports her. If you are able, helping with daily living could be huge... meals, shopping, cleaning etc.
My doctors are going to test me today for I've been struggling for two years. Just waking up going to work is a job and itself let alone being at work all day doing labor. That's all I've been known for my whole life is working hard that's all I have now it feels like it's being taken away I feel like I'm nothing
western blot is a false negative, igenex is a reliable lab. ive got 18 years under my belt if i can help you please contact me, stay strong. make shure your dealing with a lymes literate doctor. God bless.
DR WINA has the parmanet cure, I was cured within 14 Days of using his herbal treatment.
thoughtful inspiring words, and i agree with the Doctor, however ill we are we still need to strive to find meaning in our life, but would add that we need to be flexible, as sometimes we are more capable than other times, Ive had what I suspect asv Lymes for 14 months, have lots of aches, brain fog, tiredness, sometimes i feel on top of it, other times it gets on top of me and i can't do too much, but often in life its about finding the right activity, to fit around the condition, and how it affects you, even if you are exhausted physically perhaps you could read, or write, meditate, have a talk, or listen to music. Of course we don't always have the luxury of fitting the world and our life around our condition, sometimes we can, but at times our condition has to fit around other things, like if you are a parent and the kids need you, being relatively poor I have had to keep working, to stay financially sustainable, if i stop paying my bills and become homeless i think i would deteriorate fast, its a struggle living with it with a home, but it means i must keep working, for the money, sometimes i have worked through pain and madness, just because I have to, no choice, or the option of becoming homeless is too much, i am trying to buy herbal treatments to treat it, with research online, but so far not managed to, but will persevere, i have felt so alone with it, and hard to explain the symptoms, its inside my neck, and recently progressed to cause permanent headaches, which is a bit worrying tbh. but i have recently started some new herbs, will give them a few weeks, ordering Disulfiram tonight, hope that helps, seeing a herbalist to talk about it in a few weeks, and hospital arranging a scan, so trying to keep positive despite the brain fog, but as anyone with lymes knows this does effect you physically, mentally and emotionally, and socially too, affects our relationship. Best wishes to all those struggling with Lymes, or any other debilitating illness, keep going, and keep the faith, i believe that all illness is part of the Trials of life, and that we must strive to find a patience and peace beyond the struggle of the condition, and the judgements of the world, who often dont see the suffering we are going through. God bless all struggling through it
what vitamins are you taking? vitamins help me with a lot of symptoms, especially fatigue and headaches, you could also get your doctor to check your amount of vitamins in a body, its a common issue with chronic Lyme to intake bunch of vitamins, and from my experience, low costing ones don't do much, Solgar brand helped but anything in that category of the natural good ones can hold me 24h in comparison to cheap ones. I know its a lot to ask of, but the difference is it keeps you functioning and holding on. that's from my experience at least. get better soon and if it gets worse, write here, we can talk
@@user-kl3fd8ku1i thanks for the thoughtful suggestions, I do get a lot of minerals and vitamins through my diet as I'm on high juicing up beetroot, apple, celery, ginger and lemon, to reduce Inflammation, also a lot of dark green vegetables, like kale, cauliflower and also nettles that are high in many nutrients. Taking extra vitamin C, I'm considering zinc and magnesium supplements. Good idea to do a vitamin test, not sure how possible it is, I'll try and ask about it
Definitely apply for the Lyme Treatment Foundation's grants when they become available in your region! The financial aid they have given me has really helped me to access treatment and taken some of the strain and worry about affording help. Wishing you all the best
My Grandson was bit by a tic while mowing my yard. that was 10 days ago. He has a bullseye rash radiating from the bite mark. He is in college (even though he has asbergers) so no insurance at all. my daughter did a video doctor thing and he ordered Chris a 10 day supply of doxycycline. He is having trouble with throwing up and diarrhea from the doxycycline. I tried an online lab to get his blood tested, I hit a brick wall as the test is 159.00 and my husband of 30 years just passed away, I am on a small widows pension, I can not afford that. I am hoping someone knows of a clinical trial researching lymes disease. he wouldn't have been bit if he wasn't mowing my lawn. I feel so so guilty. He is truly a good Christian boy. There must be a trial going on somewhere.
Fresh organic or frozen Berries Folks!! Any and as much as You like also fresh Herbs especially Koriander. It's not a be all heal all but helps, also weight lifting and hot Baths do and Sunshine 🌄+Beaches in the Summer.
I would like to listen to this, but the sound is so low, I can’t even hear it!
I Started getting sick 7 years ago!!
And from there the symptoms just became more bizarre and debilitating! I have been to so many different doctors!! And they cant come to a conclusion at what it could be!!
I am sure it is Lyme's disease and I believe I am suffering with neurological and arthritic Lyme's disease.
One of my worst symptoms is the feeling that the whole world is constantly moving, and my eyes that just seem to have so many different symptoms from scratching, floaters, sensitivity to light and blurry vision.
I have not been able to go out with my family or take my kids anywhere!
I'm missing out on their most important years!!
It truly is a very lonely place this disease!! And the best thing a doctor has to say is that it's all in your mind!! So basically you're just crazy in their eyes!!! 😢
To everyone that has got Lyme disease, you are not suffering alone!!!
May God help us all 🙏
God bless you. I'm a Chronic Long Lyme Sufferer. Same stuff going on with me as you. ❤
Can it make ears hear frequency because of this? Had burning shin, joint swelling and odd pains all over.
I’ve heard it can. There are 2 organizations that are great with Lyme research, and I am building a playlist in my channel with helpful videos. Praying you find healing. S
Someone help
As a longtime patient with a related but separate disease, I can appreciate this kind of thing to some extent but the focus should always be on treatment, not on coping or mentally powering through. That's slowing down the course of change. The emphasis should be medical and societal change, not individual psychology.
this guy doesn't have lyme, or hasn't experienced what it means being for years in a wheelchair in excruciating agony with only a portion of your brain left. he doesn't know what he is talking about and shouldn't have put the word Lyme in the title.
Well said. I would like some ideas on how to handle others push back or refusal to except the limitations. It can be very frustrating. It really surprises me when it happens. I am recovering from late-stage Lyme/co-infections. I was a wilderness guide and recreation director. I have been attempting to lead the best life I can. Most importantly I'm generally happy.
Very informative programme but Herpes’s Best and permanent cure in herbal medicine combination treatment , which is provided by Doctor Salami on RUclips. Contact him for any type of illness you are suffering from.
@@kjulietraven what else could she do?
Chronic lyme is = ME/CFS
Patients get treated like sh….t!
I was just recently told by my orthopedic doctor that I tested positive for Lyme in my blood. Don't know how I got it, I don't remember a tick on me or anything. He just told me that's what it was. I'm going to be getting antibiotics next week, but in the meantime I've noticed that I have this kind of fatigue feeling when I'm trying to be active. I usually have a lot of energy as I'm only 35 but now I noticed that when I go out or try to do some kind of physical activity, sometimes I'll have this tired feeling like exhaustion like I have to sit down and that's not like me at all. So it's been very frustrating because I'm a very active person and then suddenly I feel like I have to sit down in the middle of a work out. It's very frustrating and I'm hoping that the antibiotics will help with this.
What’s up with the sound here? Very frustrating.
Definitely too low
Had it undiagnosed 3 years back in the 90s, only a semi divine intervention probably saved me from destruction. Got another tick disease few years back, this time anaplasmosis and its deja vu all over again.
I went undiagnosed for over a decade and it has been difficult. Took my life and career, family, friends all who couldn't understand how I was not functioning and the doctors couldn't, wouldn't, identify what was going on
The insurance companies do not want to treat and makes it hard to even find a doctor. I still deal with not knowing if I will be able to do anything when I wake up, but keep trying. When I went to the doctor with the rash, she said it was a
spider bite. I hope to get some help, but it is hard to find. I have been on disability since 2007 and still cannot work but a few days a month to supplement it. I still do not have the energy to shower every day, so sponge baths.
I could do everything I did before, except I cannot think as clearly as I once did, and i'm 23 btw. Brain fog is my debilitation and I think it's due to poor circulation.
Dang these comments are wild. I have lyme, i took antibiotic for 2 weeks and am fine.
I was diagnosed yesterday I have complaining of intermittent high fevers joint swelling horrible headaches severe fatigue spine pain I was looked at as by crazy doctors they shrugged their shoulders and passed me along I am already chronically ill so I chalked my systoms up to everything else work with me I was a nurse IF i had EVER had the bulls eye rash I would have run screaming to my doctor I was pushed by fiance to try to explain myself 1 more time to someone I went to my P.A he said ...this sounds like a tick illness did the blood work I waited the 2 weeks for it to return I went to him yesterday when I had a fever extreme joint pain very bad headache I wanted him to see me at my worst he had the lab work back I have southern Lyme disease I have researching now for 24hrs to understand wht is wrong this lecture is relevant to ANY chronic illness I use this practices with other medical problems
I agree with you Trunzo. Acceptance & focusing on your life’s value helps.
However, when you are in debilitating pain & fearful for your life as there is no answer for remission meanwhile this disease breaks you to pieces & drains your wallet, it is so much easier said than done to live in contentment.
The fact that the chronic stage of this disease is highly controversial, that there is no consensus as to how to treat it, that even some doctors don’t believe chronic Lyme disease exists & gaslight their patients as if it’s all in their heads or even worse sell them gimmicks & snake oils as a “cure” is very traumatic for the person who has to live with this illness.
What would make us feel better & live better lives is for us to have more support! More funding for medical research on effective solutions for remission & more treatment modalities that can be covered by health insurance would be a great place to start.
My feet are burning, I’m so worried it’s not going to get better!
Feet burned swollen and pain tingles like being electrocuted, and barely can walk somedays.
Good for you that you managed to keep a professional life and a family, many people don't have that luxury
So basically…life sucks..get on with it or get over it?🤔
Have some more of it....
Interesting that out of everyone I know who had Lyme, I am doing the best. I took no drugs at all. And yes, I was bad. But I walked/crawled thru it. I gave my body the time it needed to heal. Going carnivore pushed me up over the top of the mountain. I am doing great. It has been years and I am going strong and have no symptoms of Lyme... just the oxalate damage I had from years of being vegan which was a huge mistake. Had oxalates coming out my nose. People need to address the underlying issues. No one wants to do that. Everyone wants the magic bullet. Sadly there isn't one.
My wife has lymes and it has contributed in every way possible to destroy my relationship with her, Along with my lack of wisdom. It is truly a curse for those who have it, and their personal relationships.
Hang in there guys. One day we can overcome this disease. I hope you have major support in your journey through this horrible disease.
am i supposed to be able to hear this ????
Try the carnivore diet! That's making me feel better! I have Lyme disease too
I give up.....cannot hear!
how do we stop the abuse of lyme victoms.
Psych Drs... really? "Just do the best you can while you are sick?" Lyme inhabits the body and can be approached a lot more directly than mental health, which is his domain as a psych dr. So stay in your lane. This speaker is a rude slap in the face.
psychologist: “Lymes disease is extremely controversial, That’s why substance abuse is so bad”
Me: “Ohhh so
That’s why insurance won’t cover my meds anymore, got it”
I suffer from Lyme Disease. Take stevia, I have made great strides in recovery in only the span of two weeks. It really works.
Are you taking liquid stevia
@@simoncowell2694 No, but I'm sure liquid stevia would be just as effective.
@@simoncowell2694 If not more, if its properties are concentrated.
what the connection between stevia and lyme?
@@umy9828 that’s what I want to know
I found out about having lyme disease after having 3rd degree heart block requiring a pacemaker. I don't recall being bitten! Ty
Could it have been a mosquito? They carry Lyme too. I hope you are as well as you can be❤️
No consulting your regular conventional physician won't help. The conventional system don't treat any chronic resistant infections diseases, plus they frown upon alternative treatments. All I've gotten from conversational medicine is alot of ignoring. Naturopath, holistic drs are much more knowledgeable about infections and disease than the conversational drs are, so consultanting with a conventional dr is not worth it, they dont help at all, not trustworthy, coming from experience here, all they do is ignore abnormal test, blame, misdiagnose and make excuses.
I have chronic lyme and i wish i could see this man for help just to talk to because he makes so much sense
I'm also a Chronic Long Lyme victim since June 2021 💔
I am in the process of finding out if I have lyme... I'm terffied. I already started antibiotics, I hope it can be cured.
Antibiotics will never cure Lyme. You should consider ozone therapy, pk protocol, mod. Keto diet, and supplement regimen
@@platinumwellnesscenter6988 No, never listen to those things called ozone therapy. Only proven medicine will cause effects to go away. Ozone therapy is the absolute worst you could do to your body (watch Myles Power's video on it).
Nope...just hope you have a tremendously good immune system that knocks it down.
@@platinumwellnesscenter6988 and your professional credentials for such a sweeping statement regarding a serious health condition are?
@@s_b156 you probably should try watching Dr. Robert Rowen's videos, Dr. Howard Robins videos, or even Dr. Frank Shallenbergers videos on Ozone or reviewing my website/videos, or maybe gain some knowledge about ozone for speaking. First of all, ozone is a gas...not a "thing" In less greedy countries such as Europe, Austria, Italy, Germany etc...ozone is a gold standard of practice. The only reason you dont see it much in the USA(at least not pubically advertised) is because a patent can not be put on it because its natural. In other words, big pharma will make no money on something natural. Sad to say, but true. My credentials are quite high for whomever asked. Hundreds of my patients are now Lyme free. Ozone was a major part of that success. However, the ozone delivered must come from someone who has actually been trained to use it, not some fly by night hold on to the seat of your pants, provider that thinks because he has a medical license that warrants him/her the ability to provide someone ozone therapy. In the right hands, Ozone is the most miraculous treatment one could be fortunate enough to find. Correct knowledge is power! I emphasize correct!
TOA FREE CAT'S CLAW KILLS LYME DISEASE !!!!!
What about the coinfections :(???
On full volume i can't hear anything he is saying
I thought I had lime desease for a long time. It was soo hard get diagnosed or treated that I now believe I have mental and physical damage. It wasen't lime desease it was cat scratch disease but the symptoms of both are very simular with only a few things that set them appart.
I though this was going to be about Lyme Disease.
Is he just saying think good thoughts? He is on to something regarding the difficulties with being hopeful when sick with Lyme disease.
ps TED talks can be a little woo.
For everyone out there, I had great results with lauricidin (you can try other brands of monolaurin but this is my favorite). I could not tolerate plants but this worked for me. Took a really long time. I had to start very low and increase super slowly. Then I was able to addd more stuff in particular gut support; and calm mast cells. Lauricidin was like an exorcism at time esp. Since it addresses viruses, fungi etc… as well. but I moved forwards. Lots of environmental, stress, food shd gif support too. And vit D.
How long have you been taking lauricidin for?
It was a very slow process. I had to go so slow. 3 years.
@@MalincheDeniz Do you feel like your lyme is in remission now(
It was. It was. It was a beautiful time. Then I messed up.
@@MalincheDeniz How did you mess up?
this man is amazing, thank you so much
I've been struggling for over 5 years with chronic Lyme. I'm thankful that so far i don't have it near as bad as so many others.
I love this ACT way of living. Thank you Dr.
Mr. Trunzo..
i appreciate and thank so much.. it could make the difference. I do not see what many other users say. I do not see that you are trying to solve any other but the core issue...that is to not take patients serious. What i see is a bit of light in a very controversial and by doctors not understood ilness (have been to many) (all sorts of diagnoses) one of them being "you can not do anything about that"
So again, i thank u for the effort to shine even a bit of light and hope.
There are some people who have beaten this!!
bet with you that hope and act was part of the healing process. Thank you also for allowing discussion and allowing all sort of coments! Sir!
I am now in the hospital i have been sofering for 2 monthes and now they did the lym test and i am waiting on it and it feels so bad
Is far too quiet