Thank you sweetheart your video was very heartfelt I have surgery in 3 days and am so glad that I was able to hear your voice as an example of what I been described it was a relief ❤ bless your heart
I know im behind on your vids, but thank you for these videos. Im a drug resistant and was diagnosed when I was 26 with epilepsy. Even tho i had had very small auras all my life but no idea how to relay them so I just lived with small partial seizures. They grew bigger. I am now 34 no medicine has helped me and no doctor told me about this now I am going to get my initial VNS "Talk" these videos have helped me. Thank you.......... #UMM forever
Thank you so much for the video I'm getting my vns in a week and I'm freaking but u made me feel so much more comfortable with this decision ur a wonderful person Thank you for sharing
I was originally looking at vns then Dr pushed me for testing for rns for reasons and things made me more nervous about the vns but now my only option is the vns thank you for doing this video it makes me feel better
I've been considering getting VNS for a bit over six months now - your videos and mindset have given me the answers I need and I can't thank you enough for that. It's very rare for me to comment on a video but I had to do it here; thank you for sharing your story and your experiences!!
I'm about to have this done. I'm over 40 now & have been epileptic since age 9 Took me a few years to make the decision,be able to do it. Thank you for your testimonial
Any update since this last video? My daughter just started to get grand mals in Sept and my family is new to this space. This was a very powerful video. I’m glad that you put yourself out there to help others!
I've been thrown a curveball. Insurance said they wouldn't pay for my surgery. I hope the appeal gets approved. Im crying with nervousness if it goes south. Surgery is scheduled for next month.
Thank you for the video! I have epilepsy due to brain cancer, had a tumor removed, needed a second surgery because it came back, its a long story as to why, but I had proton therapy and had a grand maul during treatment, had about four grand mauls since but have auras pretty often, been wanting to go to Mayo Clinic for about a week because I've seen all they can do for epilepsy, I go to Johns Hopkins but they really haven't helped in regards to my epilepsy... they did get me off of Keppra though...
Hi thanks for your information I’m going to get the VNS next week but I feel litter beat scare because they told me it is painful and my Voice turn to the horse voice what do you think??? It’s worth it???
Thank you sweetheart your video was very heartfelt I have surgery in 3 days and am so glad that I was able to hear your voice as an example of what I been described it was a relief ❤ bless your heart
Thank you sweetheart your video was very heartfelt I have surgery in 3 days and am so glad that I was able to hear your voice as an example of what I been described it was a relief ❤ bless your heart
I know im behind on your vids, but thank you for these videos. Im a drug resistant and was diagnosed when I was 26 with epilepsy. Even tho i had had very small auras all my life but no idea how to relay them so I just lived with small partial seizures. They grew bigger. I am now 34 no medicine has helped me and no doctor told me about this now I am going to get my initial VNS "Talk" these videos have helped me. Thank you.......... #UMM forever
Thank you . Your videos help me . Lurning to live with v.n.s
Thank you so much for the video I'm getting my vns in a week and I'm freaking but u made me feel so much more comfortable with this decision ur a wonderful person Thank you for sharing
I was originally looking at vns then Dr pushed me for testing for rns for reasons and things made me more nervous about the vns but now my only option is the vns thank you for doing this video it makes me feel better
I am glad I found you on here!! The Burleson’s love your sweet face!! Glad you are feeling better and doing good!!! 😘😘😘
I've been considering getting VNS for a bit over six months now - your videos and mindset have given me the answers I need and I can't thank you enough for that. It's very rare for me to comment on a video but I had to do it here; thank you for sharing your story and your experiences!!
I’m really touched by this video. I’m getting the VNS in a few weeks! I was just approved yesterday. There’s just so much emotion going through me. 🌞
I'm about to have this done. I'm over 40 now & have been epileptic since age 9 Took me a few years to make the decision,be able to do it. Thank you for your testimonial
Any update since this last video? My daughter just started to get grand mals in Sept and my family is new to this space. This was a very powerful video. I’m glad that you put yourself out there to help others!
Also. Your beautiful and that scar is just fine
Good morning ❤️♥️ Nice sharing ❤️❤️
❤️❤️❤️❤️
you have such a beautiful soul. ❤️
I've been thrown a curveball. Insurance said they wouldn't pay for my surgery. I hope the appeal gets approved. Im crying with nervousness if it goes south. Surgery is scheduled for next month.
Did they end up approving it? Mine just got denied today as well and my surgery was scheduled for next week 😢literally wanted to cry
Mine makes me cough and gag when I set it off
Thank you for the video! I have epilepsy due to brain cancer, had a tumor removed, needed a second surgery because it came back, its a long story as to why, but I had proton therapy and had a grand maul during treatment, had about four grand mauls since but have auras pretty often, been wanting to go to Mayo Clinic for about a week because I've seen all they can do for epilepsy, I go to Johns Hopkins but they really haven't helped in regards to my epilepsy... they did get me off of Keppra though...
Does it disrupt your sleep when it's turned on?
I have an 8year old daughter with intractable epilepsy and we are really considering this. Any thoughts?
Does your breathing change? It doesn't hurt right? I have epilepsy and doctors are recommending the VNS for me.
Have you had problem's breathing. I have a VNS as well. Couple questions.
Can I ask you what kind of epilepsy do you have and with VNS how many seizures do you have in a day or week
Got my Vns about a week ago, get it turned on on the 9th! Little nervous about the voice thing, but anything is better than seizing right?
how did it go? how is it im considering it
Hows the VNS treatment working? Im still trying to get my insurance to authorize mine.
my daughter has LGS and we have tried everything. VNS is the last option I will share your video with her. How is it going now?
why is your voice changing? do you still have epilepsy attacks?
How are you now?
living life thank you!
Hi thanks for your information I’m going to get the VNS next week but I feel litter beat scare because they told me it is painful and my Voice turn to the horse voice what do you think??? It’s worth it???
my voice is fine. hope the VNS is helping you
Thank you sweetheart your video was very heartfelt I have surgery in 3 days and am so glad that I was able to hear your voice as an example of what I been described it was a relief ❤ bless your heart