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May Thurner Venogram Overview
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- Опубликовано: 8 сен 2019
- My overview of what is a venogram and what you should know before having one.
I had a venogram to investigate my May Thurner Syndrome and to look for Nutcracker syndrome and Pelvic Congestion Syndrome, but this information is good for anyone having a venogram for any reason.
Vlog of Procedure: • 3 Hospitals in 3 Days ...
Instagram: / thealyssalayne
Twitter: / thealyssalayne
I have all of the same chronic illnesses as you, and I just found out about vascular compression diseases! I'm so excited to find your channel and watch through everything, as there is very little information available online about these things. I really hope I'm able to get this looked into so my life can finally get back on track. Thank you for making this essential content, I will definitely be binging it!
Hi Frosty Teacup! Thank you so much for letting me know how these videos have helped you! It is always encouraging to hear that they are making a real difference for real people. I hope you get to feeling better very soon! - 💜 Alyssa
Thank you. I had a Venogram at the start of my Vascular Health Issues that basically Chronic Venous Insufficiency. It was over before I realized it had started - I was kind of high as a kite numb. From what I understand there was some efforts made by the surgeon to correct some issues. 16 Vein Ablations followed to deal with superficial veins that were not functioning correctly due to flawed and damaged valves which were causing venous reflux symptoms may indicate venous insufficiency: Edema - swelling of the ankles or legs Leg cramps Pain that eases when you raise your legs but gets worse when you stand up Itchy legs Throbbing, aching, or a heavy sensation in your legs Weak legs Varicose veins Reticular veins Leg ulcers. After about 4 months I had less pain when walking and the ulcers were healing. I had about a 2 month period where I was feeling pretty good and then I had a set back. The ulcers and the other symptoms were returning and I could not walk without a cane again. This is a mystery so far. The Duplex Ultrasound reported no further veins that had bad valves, and a test to check for arterial disease was as well inconclusive. In ten days the surgeons will do another Venogram however they are concerned that I may have something else???? I have become severely affected by Covid Long with major muscle and joint pain in my upper body and I believe that my Venous Insufficiency Disease was triggered by Covid which was an unknown condition that barely had any symptoms until Covid. I have learned of the Micro Blood Clots that are central to Long Covid and specifically the restrictions of blood flow, the lining of veins and the failure of blood cells to perform efficiently. After the Venogram I will continue with what ever the Vascular Surgeons want to do but I will take steps to seek medical attention to my continued now 13 months battle with the virus that was not of natural origin. At least one doctor that my health care provided as a telephone appointment and opinion was certain that Covid is more of a vascular disease than a respiratory disease because the oxygen has to be transported from the lungs throughout the body through blood vessels that certainly have the virus along for the ride> I believe that everyone has Long Covid and will have health issues in the future. Dr. Fauci and his psychopath pals have created a monster for our species to cope with. Like other people with Acute Post Covid Syndrome my life will probably never be normal again. Hopefully my vascular doctors will find a way to relieve the problems I am having with the blood circulation in my legs and the damage caused especially by the micro clots. As for the muscle, bone and joint pain in my upper body - this is a health issue I have only realized is not a fluke but a real danger to my health. The fatigue and overall weakness may never be effectively treated. Again sorry this is so long. I have only become aware of my problems by reading comments of other people like me so maybe I can help other people who have no idea why they feel so badly
Hi Jeffrey, I am so sorry to hear you are having setbacks after getting COVID. I know there are also some studies that have linked Long Covid to dysautonomia (which is a common comorbidity of vascular diseases, I have a form known as POTS). I hope you get to feeling better soon and that you can regain a significant amount of your health and functionality back. Thank you so much for sharing your experiences! - 💜 Alyssa
Thank you so much! I have a venogram coming up to evaluate the same conditions and didn’t know what to expect. You’ve made me feel much more at ease. Thank you!
Contrast is NOT REQUIRED for this exam. The EXACT same images can be taken and found WITHOUT contrast on ANY type of imaging done. Just a little FYI!
Thank you for this video! I'm having this procedure done today & I WAS getting pretty nervous about it until I watched this! I have herniated discs, spondylitis, spinal stenosis, sciatica, arthrosis in my spine, & SEVERE peripheral neuropathy symptoms in both legs, feet, & hands. I've been dealing with the peripheral neuropathy symptoms for over 10 years I'm only 46. Then 2 years ago I got covid. After that I started getting spider veins all over my legs, ankles,& feet. I also started getting giant round blisters on my feet, discoloration on my ankles, & swelling. One of the blisters on my toe got so infected that I almost had to have it amputated! My legs & feet are constantly cramping. I had a sonogram done on my legs & they found out that I have leaky veins or valves. So I'm going in for a venogram today 😬 Wish me luck. If anyone reading this has peripheral neuropathy symptoms & you've found a magic cure PLEASE let me know 🙏🙏🙏
How are you feeling fast forward to today?
@@sergiogomez6 they cancelled my appt when I was half way there because my insurance would only pay for them to do the procedure at a certain hospital. I still can't find a Dr to do the procedure at that specific hospital 😩
I have ncs I have venogram scheduled thanks for being informative
Thank you for this video. I am having the procedure in a few weeks. Especially about the part about going to the bathroom.
Thank you for sharing this your information has brought some peace to my mind.
Thank you for sharing this. I have an upcoming venogram and needed this information.
Thank you for this video. Just found out that I have May-Thurner and Pelvic Congestion. Going for my venogram in the morning.
Hello Alyssa
I too couldn't find much here on the net about this procedure. I stumbled across your video here.
I am having this done to my leg in 2 days. @ least now I know somewhat to expect!
I WILL take your "Pee tip" to heart.....LOL..
Thank you for sharing!! 🩺
Steve, I am so glad this video was helpful for you! I hope your procedure went well and you are armed with new information. Thank you so much for taking the time to watch this video and to leave a comment; I really appreciated it! Hugs 💜 Alyssa
Thanks for Sharing your Experience,Im Nervous about the upcoming procedure i think because of the obvious unknown, i dont know what to Expect.
I'm getting one done in the morning and I'm so scared. They said I would be doing a Twilight sleep, so I can follow commands if need be so I won't be completely out. I really bad anxiety which isn't helping either. Lol I really hope it doesn't hurt. I'm super nervous and really scared. Thank you for sharing your experience! It's helped me feel a little better.
how did it go?
Hi agapeLOVEpietas, I am so glad that my video was able to put some of your concerns at ease. I hope your venogram went well and I hope you are on the way to feeling better! - 💜 Alyssa
Thnkx for uploading ☺️
I am glad you found it helpful! - 💜 Alyssa
We have all of the same diagnosis omg even MALS
Olivia, It is crazy to me, even with a diagnosis as rare as MALS that so many people have the same experiences in common. My hope with these videos and this channel is to make a space on the internet where we can find each other and support each other. Thanks so much for watching; I'm glad you are here! - 💜 Alyssa
Hmmm I am confused why my dr is not putting me under anesthesia? I just scheduled the test but haven't asked any medical questions yet so that will be my first question.
Thank you for sharing your experience! I will have this procedure done because I have PCS and I am honestly little bit scared so I think I should ask for lorazepam 🙈
I am so glad that sharing my experience could help, and if you are worried, it can't hurt to ask your provider! In my case, I tolerated the procedure pretty well, and it ended up not being as big of a deal as I thought it would be going into it. I hope you get lots of good and helpful answers out of your procedure. Thank you so much for watching and for commenting and good luck (not that you need it)! 💜 - Alyssa
My Optic Neurologist just ordered a venogram and I am kind of scared
Hi Leah, I know it's not really helpful for people to just say "don't be scared," but from my experience and research, venograms are pretty easy procedures as a patient. I am sure you will be a-okay! I am sending you lots of love and hugs, and let us know how it goes! - 💜Alyssa
Why do i have to lay flat for four hours
May Thurner here,too. Woo Hoo. Good times. 😁
Glad to see others are indeed out there 😊
I'm having one done soon. Can you tell me how big the incision is? Were you able to go back to work the very next day?
I had 2 very small incisions (less than 1 in each) I was fine to go back to my activities as normal the next day. However, I have heard from other people that if you have any clots removed during the procedure then the recovery time is a bit longer. I wish you all the best!!! Hugs 💜
@@AlyssaLayne Thank you so much Alyssa! Your video was extremely helpful as I was unable to find much info and wasn't sure what the procedure was. Hope you are doing well hun!
That is so sweet of you to say, and thank you so much for watching! I am glad I was able to help. I was in the same position before several of my procedures, tests, and surgeries. I looked online for good info and wasn't able to find any, so that's why I started this channel in the first place. I am doing okay. My vascular stuff is going well, but unfortunately I have had some new GI symptoms pop up recently - which has been a pain. I hope your procedure goes perfectly and that you get all the good answers! Hugs 💜
Thank you. ❤
Absolutely! And thank you for watching and for commenting 💜
@@AlyssaLayne Hi Alyssa. I'm not sure if you are part of the support group on Facebook called Renal Nutcracker Syndrome Support Group, but there is amazing information on it. Several people advise against the stents. Thanks for the info on the Venogram. That is out next step.
@@michaelab2952 I am not a part of that support group, but it sounds wonderful and I will look into it for sure. I am sorry to hear that you are needing a venogram, but I hope that you get the most accurate answers and path forward soon. I am also glad that you found this video helpful, thank you for watching it and for leaving a comment! 💜
Alyssa Layne Ebert
Mine is in one day and they said 45 minutes and go home after
How did it go?
@@jacquelinekolaj5922 my nutcracker syndrome was confirmed and they put in a stent into my renal vein and also they also found may thurner and had to put a stent in for that too. I was flat for an hour after then had to sit up for half hour. Then went home with pain meds. I'm in pain but nothing compared to the nutcracker syndrome! Was told my pain could last a week or so. I was lightly sedated and aware of what was going on. Went very well and would say if anyone is worried about getting this done, it's actually not too bad.
I am so glad that your procedure went well! I am also glad you are getting relief for your nutcracker syndrome and for your May-Thurner Syndrome as well. I am glad to hear that getting stents didn't dramatically change your experience with the venogram since I haven't had any stents placed yet. Thank you so much for sharing, and I hope you are feeling much better now!! - 💜 Alyssa
I am surprised they put you out. It's not really necessary..
I know now that different doctors will use different levels of sedation, but that some level is necessary to help keep the patient still during the procedure. - 💜 Alyssa