Alyssa Layne
Alyssa Layne
  • Видео 14
  • Просмотров 122 986
Chronic Illness Tag - EDS, POTS, MALS, May Thurner, and Celiac Disease Answers
This is my attempt at the chronic illness tag. I hope you have enjoyed it. Please let me know your answers to the chronic illness tag questions in the comments section and consider subscribing here: ruclips.net/user/AGPCRocks
Here is Mickey's Video: ruclips.net/video/z-YNPNQEsyM/видео.html
Here are the questions! (If you do the tag, let me know so I can watch it!!)
1. What are you diagnosed with?
2. What do you tend to do at night when you can't sleep?
3. What's the worst side effect you've had from a medication?
4. How has your condition affected your mental health?
5. Describe your social life.
6. What's the hardest thing to do when you're flaring?
7. Do you have worries about the futur...
Просмотров: 2 308

Видео

Patient Reacts to Grey's Anatomy S15 E5 MALS Diagnosis
Просмотров 6 тыс.4 года назад
Today I react to the Grey's Anatomy MALS Episode (S15 E5). I have MALS (also known as median arcuate ligament syndrome or celiac artery compression syndrome), and I talk about my experiences and how well I think the show represents that. I am a big fan of Grey's Anatomy, and I want to thank the writers, producers, actors, and everyone else who works on the show for bringing this rare illness in...
SIBO Explained
Просмотров 3,6 тыс.4 года назад
I talk all about what SIBO (small intestinal bacterial overgrowth) is, how it is tested for (breath test), and how it is treated (antibiotics). I also discuss my experiences with SIBO as well as my advice for those facing that diagnosis or with unexplained abdominal symptoms. Welcome to my channel where I share my invisible illness story to help educate and support others. If you are new here, ...
My POTS Diagnosis Story
Просмотров 18 тыс.4 года назад
I share the story of my initial POTS diagnosis story, and what that was like. I talk about the tilt table test, and how dismissive my cardiologist was. I also touch on how I continued to handle school once I became ill and was diagnosed with POTS. I talk about my participation in Dr. Julian Stewart's study which you can find below if you are curious! The big takeaways are to fight for answers a...
All about Brain Fog
Просмотров 2,4 тыс.4 года назад
I talk about what it feels like to experience brain fog, the symptoms of brain fog, and what I try to do to cure or alleviate my brain fog. I explain that for me, I experience a slowness of my thought process, I forget words (often nouns), and I lose my train of thought. I cope by writing things down in my planner and making lots of lists as well as trying to manage my underlying conditions (PO...
Tilt Table Test Explained
Просмотров 22 тыс.4 года назад
Today I explain all about what the Tilt Table Test is, what it is like, how it diagnoses POTS, and how to prepare for and recover from it. I touch briefly on what my experiences with the test are, and provide some tips for how to handle the test. Thank you for watching! Welcome to my channel where I share my invisible illness story to help educate and support others. If you are new here, please...
Gallbladder Removal Story
Просмотров 20 тыс.4 года назад
I tell the story of when I had my gallbladder and appendix out when I was in the 8th grade (14 years old). It is also my appendix surgery story. This story was the start of my chronic illness journey, and I also talk about some of my biggest fears and overarching health problems. Thank you for watching! Welcome to my channel where I share my invisible illness story to help educate and support o...
Ehlers Danlos Syndrome EDS Explained
Просмотров 2,8 тыс.4 года назад
I discuss Ehlers Danlos Syndrome (EDS) as a whole, touch on the subtypes (specifically Hypermobile EDS) I also explain how it is diagnosed, treatment options, and what causes it. This is a pretty general overview of Ehlers Danlos Syndrome. If you are interested in learning more, check out some of these resources, or just ask me down in the comments section. The Ehlers-Danlos Society: www.ehlers...
Postural Orthostatic Tachycardia Syndrome (POTS) Explained
Просмотров 13 тыс.4 года назад
In this video, I explain what Postural Orthostatic Tachycardia Syndrome (POTS) is, what are the common symptoms of it, how it is diagnosed, what causes it, and how to treat it. I also touch on what it is like living with POTS. I want to add a big thank you to Dysautonomia International for being a wonderful source of information. I have turned to them again and again in my personal journey, and...
Alyssa Layne Trailer 2019
Просмотров 6564 года назад
Welcome to my channel! My name is Alyssa Layne, and I am here to share about my chronic illness journey (see POTS, EDS, MALS, May-Thurner Syndrome, and Celiac Disease). I am doing this to help educate and support others. Let's hang out together as people who "get it" by clicking the subscribe button, so that you don't miss my weekly uploads. Check out some of my other videos here: Flying After ...
Flying After Surgery | Tips and Tricks
Просмотров 4,5 тыс.4 года назад
Today I share all my tips for flying after a surgery or for just any medical travel. I have flown out of state for two surgeries (one open and one laparoscopic) and I have compiled my best tips from those experiences here for you! Tip 1 - 0:44 Tip 2 - 1:44 Tip 3 - 2:33 Tip 4 - 3:48 Side Note on Security - 5:05 Tip 5 - 5:34 Learn about MALS: ruclips.net/video/jjNZ56nH4UI/видео.html Watch me do s...
MALS and Celiac Artery Compression Syndrome Explained
Просмотров 15 тыс.4 года назад
I explain what MALS ( Median Arcuate Ligament Syndrome ) and Celiac Artery Compression Syndrome are. As well as give an overview of what the diagnostic and treatment options are. If you are looking for more resources about MALS the closed facebook page MALS Pals is a wealth of information! What is MALS: 0:32 Treatment: 1:23 Diagnosis: 2:29 Learn about venograms: ruclips.net/video/O0NINjmCls4/ви...
May Thurner Venogram Overview
Просмотров 11 тыс.5 лет назад
My overview of what is a venogram and what you should know before having one. I had a venogram to investigate my May Thurner Syndrome and to look for Nutcracker syndrome and Pelvic Congestion Syndrome, but this information is good for anyone having a venogram for any reason. Vlog of Procedure: ruclips.net/video/vf1QaI7MRfI/видео.html Instagram: thealyssalayne Twitter: twitter.com...
3 Hospitals in 3 Days Adventure (MALS, May-Thurner, Thyroid)
Просмотров 1,3 тыс.5 лет назад
I visited 3 different hospitals in 3 different cities within 3 days. First was a surgical consult for MALS release, then a venogram to investigate my May-Thurner Syndrome, and finally an ultrasound of my Thyroid. These are the kinds of hoops that one jumps through when seeing specialists. Subscribe to keep up with my health and invisible illness lifestyle tips! Let me know in the comments if yo...