♡ Finally Getting My Hip Surgery! (13th-14th.05.19) | Amy's Life ♡
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- Опубликовано: 26 окт 2024
- ♡ Finally Getting My Hip Surgery! (13th-14th.05.19)♡
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Is it an Amy vlog if she doesn't yawn on camera and make you yawn too
lena bosnjak 😂😂😂
🤣🤣🤣
😂😂😂
Lol! All the time 😂
lena bosnjak anyone else yawn from this comment? 😂
I’m allergic to tegaderm and it takes my skin off. If you use cavillon do not use the cream version, use the wipes version if you need to use it under the tegaderm. I’ve had to switch to IV3000
I have Dysplasia in both my hips. I am going to have hip surgery on my right hip, on July 24th of this year. So good luck on both of our Hip surgery 👍😊
I hope all goes well ❤️
I feel like it’s apart of my daily routine to watch your videos, such an inspiration x
Tea Cozzuol aww thank you so much! ❤️❤️
I would love for you to do a video on the list of your meds! I’m a registered nurse and I’m interested to learn about your pain meds and everything else you’re on! :)
TegaDerm always pulls my EDS3 (trifecta) skin off! I use barrier wipes under my port dressings and have found success with centurion sorbaview. Hope you get some relief, it's miserable!
Your are one of the strongest women I have ever seen! Your hip and lots of other things dislocate and you pop it right back into place and continued like nothing happened! Your so strong Amy! I love you and home you have a good night/day reading this!
praying for everything to get normalized for your surgery and so you can feel better. I am waiting on knee surgery and have to get a bunch of tests too. It sucks you had to wait so long, but i'm happy you can finally get yours done. prayers for you sis!
Yes you can put cavalon on it just make sure it’s dry before putting the dressing on xx STARK house all the way 👍
I’d recommend using a adhesive remover to get all the adhesive off as that can irritate (plus they don’t sting) and then I use a sterile barrier stick (it’s like a film) and that can help protect the skin xx
duuude you’re so strong!! i used to get 4 shots a day and i thought that was bad...😬 you are a literal warrior!!😂
I used to use a tegaderm dressing on my PICC line which worked great for a while, then my skin developed a sensitivity to it & it used to get very red & irritated. I switched to an IV3000 dressing & it's been a lot better. I have a Hickman line now & I still use the IV3000 dressing. It's been over a year & it's working great.
The IV3000 dressing I use on my HICC line incase you're curious is 10cm×12cm, reference number 4008. I just order a prescription for it from my GP & then my local chemist orders it in for me.
I've had to make a sudden trip into hospital before when my TPN was still up. I was in a wheelchair & I had my TPN on a small portable IV stand that I brought from home. I just lifted it up & balanced it on the part where your feet go. Every time we stopped I'd set it back on the floor. I wasn't in the wheelchair for too long so it wasn't too awkward or tiring for me to hold.
I love watching your old vlogs and just wanted to pip in to say I'm really glad you made it to the ManU game!!
I also have hip dysplasia and had my RPAO in September of 2017 and and having my LPAO on July 29th. I'm currently writing a letter to you telling you of my experiences and my hip journey. Until then I wish you the best of luck! You are such an inspiration! Let me know if you had any questions!
Scary stuff. Life can be very painful, mental or physical. Keep your heads up and keep helping one another.
I’ve got my pumps and feed on a little strand. Can also use one of those shower caddy holder things that you hang in the shower and put shampoos and bottles on. It’s smaller than a pole and can carry in one hand easy
I have Lupus and hip prosthesis, and my life changed when I operated, I want you all the best. Greetings from Serbia. 🇷🇸💪❤
I don’t have EDS, but I have super sensitive skin. I’ve gone through all sorts of dressings, but the ones that work best currently (I tend to develop the allergies over time) are sorbaview shield, mepilex border, medipore/primapore, and sometimes tegaderm HP or tegaderm IV (both different than regular tegaderm). The melilex and mediocre are not see through so have to be changed every 2-3 days. Some weeks one of the dressings won’t work while others it will. I’ve also found I’m allergic to chloraprep and sometimes betadine, so I only use alcohol to clean. You may be allergic to the cleaner, the dressing, or both. You can also use cavilon under the dressing, but only use the sterile wipes or swabs, not non sterile cream. There are other skin prep wipes/swabs that may help too. And something that helps me is rotating between a few different dressings, so if I start to build an allergy to one, I can take a week or two break from it, and then my reactions to it lessen.
Oh my god I’m so happy for your surgery date!!! I know you’ve needed it for so long and to see some progress finally is so incredible ❤️ I hope everything goes well when the time comes and I hope it helps you feel so much better
I am so excited about your surgery! You’ve waited so long!❤️
Jill Meyers same! It’s going to be life changing! 🙏🏼
With ur skin problems with the tegaderm, talk to ur nurses-ie. intestinal failure nurse/TPN nurse etc.-there should be at least a couple of other options other than tegaderm. If ur not happy with what they say, ask for a “clinical Nurse consultant in skin/wounds review” (wound/skin CNC as they call them here in Australia)-u may not have a “wound” per se-but they have the knowledge on skin/wounds/healing in relation to the troubles you are having with your current Hickman’s dressing. I think it’s possible u could use a barrier wipe (as they are available) as a part of ur dressing change on ur line-but I’m not 100% sure it would be suitable for u-with your MCAS, I’m not sure if u would react to the barrier wipe! I don’t believe a cream would be possible with your dressings needing to be as aseptic as possible+creams are usually oily+the tegaderm/dressing would unlikely stick after using a cream. I don’t have a line, but have had to use Dressings elsewhere, I do experience “melting” skin (well it seems that way) I’ve found barrier wipes help me to protect my skin when using opsite/tegaderm-but it also helps opsite/tegaderm stick/stay stuck. I guess we all need to experiment a bit, as we are all so different!!
The skin ripping happens during waxing with fragile skin too, its called skin lifting. My only advice for that is to keep it hydrated and maybe try a skin barrier repair cream on it, they are usually for the face, I know dermalogica has one that i love and aveda has an amazing one as well. As someone with sensitive skin serums like that have helped me a lot
Love and blessings for your surgery lovely ❤️
I think backpack is the best way to go. You need things to be as mobile as possible so even the ugly Baxter backpack works well. I have one too and it’s so ugly 😂 but it’s not about the beauty is it lol.
Bugger waiting 3hrs! I would have left too. I remember you vlogging that day. Good luck with your hip surgery xx
I've seen other people use a freearm feeding assistant. I believe you can connect it to your wheelchair and its like a mini IV pole for feeds, IVs etc. Life with stripes (Mickey) has a video about hers.
House Stark all the way!!! Lol! Anyhoo...I am happy to hear that you have a date set for your hip surgery. As for your psychologist appt, they should never make you wait that long to see him. That's ridiculous! I start with my pain team on June 19. Not looking forward to that! I am but I'm not...long story. Hope all is well and that you and Tom are feeling better. ❤ you guys!
When I had to use TagaDerm, I used adhesive remover to pull it off. I used the spray, not the wipes..
I had hip surgery last year and had to use a walker with platform forearm crutch attachments, I’d use a back pack or tape the poll to the back of your wheel chair when you’re in the house
Yep, can't use tegaderm. Try IV-3000, it's what most EDSers usually end up needing/using.
So glad it’s finally happening!
Glad to hear that you are going to find ally get the hip surgery. Maybe you will feel better after it's done. Nice gift for your dad. Take care.
I use cavilon foam applicators , they are like ‘lollipops’ and a quick wipe around my picc line helps under the dressings ..Easier than the cream I find ...I always use the huge backpack provided by Baxters but I can’t pick it up until TPN has run for a few hours making it lighter , hubby carries it and I follow looking like I’m on a lead lol ...Elaine x
I have very sensitive skin that tears very easily and I always use the individually wrapped single use 3M Cavilon wipes (liquid, not the cream) on my skin before applying a tegaderm. When it’s time to remove the dressing or any tape I use adhesive dissolving wipes by Cavilon to release the glue as close to the line entry point as I can (they do come in individually wrapped 2x2’s like an alcohol pad). I get these through my medical supply company and know that they are also available from Amazon. Best of luck from a fellow Zebra!
I don’t have EDS but when I had my Hickman line my skin used to rip 😭❤️
YES!!! While I’m not allergic to Tegaderm and tolerate it very well, I use it over my fentanyl patch. I can have my skin completely tear on me if the Tegaderm is pulling on my skin in any way, I have a picture of it somewhere on my phone, I can send it to you on Instagram how mine gets. One way for me to get around it is to slap the Tegaderm in place and not pull on it while applying it, I basically just aim it into place and gently apply it and then bitch slap it down. Not sure if that technique would work on a central line though, but on a patch it works very well
that’s a great birthday card! Congrats on the date and hope you stay well until the surgery!
I don't have EDS, but I have sensitive skin. And have had to use tegaderm. It can make your skin red and patchy. especially if you use alcohol before
For any damage done to my body I use Bactene spray, it helps heal my cuts a lot faster and also cleans them out , i was so stressed at the dentist yesterday that I ripped my thumb in the creases at the knuckles, its not to crazy, but it is one of the first time ive ripped my hands although when i started my very first job my hands peeled all the down my fingers, i literally was working my hands to the bone , other than that my feet sometimes itch and when i go to itch it, the skin inbetween and under my toes rips, I typically dont spray bactene on my feet but i will spray anti itch stuff on them before the ripping occurs 👏
I have hEDS, and have very sensitive skin (MCAS). IV3000 will tear my skin and I also get blisters underneath. My Picc is in good shape, but the skin around it is awful. Even paper tape will make my skin react and then the rash will scar. EDS is so much fun.
I use “Skin-tac” from Amazon. It’s a wipe similar to an alcohol wipe. It leaves a thin barrier on your skin to prevent ripping or skin irritations. Hope you find something that helps!!
Whenever I take antidepressants like lexapro or Prozac my pupils get big. Also some anxiety meds do it too like buspar and Xanax
Yeah I'm the same way. I've been medicated for like 5 years and pretty much always have severely dialated pupils.
You make me smile. A true inspiration for everyone.. all the best dearie.. wishing you best of health and happiness..
Good tip with the sick bags ;0). I vomit very easily for some reason. When I’m super nauseous I can’t even think about food or it sets me off
Thank you for entertaing me through my brain surgery recovery amy! Ily and hope everything is going well❤❤
You can also use nasal spray sprayed on a 4x4 then wiped on your skin. It acts as a barrier and works great.
Your such a strong woman everything your going through and continue to go through on a daily basic. God bless you and may he always keep you girl 💁🏻👑✝💛😃💐✌🏼️👊🏼
My skin peels with tape, particularly on my PICC line/Port sites in the past. Cavlon is good, just use the wipes under the tape.
Skin prep? You can get wipes from
Independence Australia. Worth a try. I don’t have eds but get the same thing from tegaderm.
I don't have eds by the tegaderm irritates my skin and causes it to peel and blister. I have to rotate brands of film dressing as they are all different. I also use a barrier wipe that your supply company should be able to source you. I use convacare wipes which are used for stoma care in colostomy bags. The ideal is to air it but it's not always possible. It may also need moisturising but only you will know if it's dry
Cavilon is a magical cream 😂 I would definitely give it a try!
When you take the tegaderm off, do you just pull it off or stretch it off? Stretching it off could help to not damage your skin. It takes a bit longer to remove but if it helps...
The skin thing happens to me with most adhesives and tapes. Tegaderm is ok but I still react to it and it still rips my skin a bit. I would re IV3000 though cause I've heard that's good
Here in Finland there is a powder, Stomahedsive called, which can be put on a stomapus slab, maybe something like that would help you with that Tegaderm?
You place your line on your chest in a really pretty curl and I dunno looks neat and pretty xx
If I wait hours for my appointment and have another one, I just go to my other one. I feel like after waiting 2 hours and not being seen ,you should be able to leave if you want. Especially if you get there before your appointment!
..ive got severe itch at first then it became very very dry as if its torn a bit..i just stop using tegaderm instead..
I dont have EDS but I am highly allergic to any type of tape or adhesive. I blister really really bad. Hope everything goes good with your hip.
I have classical EDS and my skin tears really easily, (and scars badly) you can get sterile skin prep wipes to put on before you stick down the tagaderm. I find that I can get a dressing/tape off by dabbing an oil based cleanser (or baby oil), but I don’t think that it would work for your dressing because it would make it hard for the new dressing to stick and it wouldn’t be sterile, but might work for removing strapping tape.
I can’t use crutches or a walker because they just dislocate my shoulders/elbows/wrists but find that I can tolerate a pulpit frame for standing or a few steps if I wear a calliper.
It’s great that you’ve got a date for your surgery, I hope it goes really well and makes a massive difference for you {:•)
Oh oh we need another ASMR video!!! Loved yours!!!! 🌸
I’m not sure if you have it there or not, but Corona ointment works wonders for just about everything!! I use it on my kids and myself and we all have very sensitive skin. It’s actually for horses, but we all use it and everyone I’ve suggested it to keep it on hand now! If not I can send you a tube! It lasts a really long time and a little goes a long way!
May I ask the meaning of your tattoo? That date has particular significance for me so I am just curious.
I think it has to do with Tom somehow but I'm not sure exactly how.
It's something to do with their anniversary
The date of their anniversary of when they got together.
When I had my nose hose and was changing the dressing on it every day or so it did RIP my skin. I would make sure the skin was really dry then put some lotion on and make sure that had really absorbed. I'd even put a gauze on the spot so the adhesive isnt direct touching the skin hope this helps
A year Ago, I had a small surgery on my neck and had to wear plaster for cover. It pulled off the first Layer of Skin at changing it. I have also the hypermobile type.
Try Cavilon protective wipes it puts a layer of protective film on the skin xx
my skin sometimes rips with allergic reactions xx
Maybe try iv3000 or mepore I find are the gentlest dressings. I hate the peeling away skin sting from dressings. Ouchy 😢
Try using Silicone dressings they are available from Surgical House. I’m allergic to all adhesive dressings except silicone dressings. I also use skin prep or silesse barrier wipes. Cavalon barrier wipes will do the same thing but don’t use the cream or ointment.
What surgery are they doing to your hip? Are they replacing the joint?
Cavilon wipes are the thing to use
Can you talk about the hip surgery you're having? Explaining what's wrong and what they'll be doing? Love your videos!!💜💜💜 i have cystic fibrosis and enjoy your videos!😘☺
I don’t have EDS but I’m allergic to plasters and get the same issues, try sudocrem? onto the baby bum cream everyone has in the UK. I’d just watch it doesn’t interfere with how your dressing sticks though especially with it needing to be so sterile
Hopefully the surgery will help. I don’t have experience with it but if you go Life of Stripes Chanel she got a mobile pole thing that she puts her feeds on that can hook on the back of the wheelchair. Don’t know if that could work for your TPN or not?
peacebieberlove unfortunately not it only carries 500mls max and my TPN is almost 2 litres first! Thanks for trying tho! ❤️
put cavilon on your skin, but you'll need to let it dry before you cover with the tegaderm (otherwise it won't stick as good).
Do you need the chest tube all the time? Like for the rest of your life?
I had a very bad allergic reaction to something recently and the skin between my fingers were torn and on the top of my hand the skin was red, it was tight, stingy. Went to the dermatologist they wrote Travocort cream to me with anti histamine and thank god the cream helped it to recover. I don't have eds but since last year I suppose I have a really fragile skin so:\ it's just awful, hopefully yours will go away soon too! 💕
I do not have EDS and my skin rips anyway. Last year I bumped my ankle on a doorway. I had an accident 7 years ago that resulted in me needing 7 stitches on that same ankle, so it's safe to say it had plenty of time to heal in 6 years, but anyway when I bumped my ankle, the scar ripped apart and gaped open and I hemorrhaged. The bleeding wouldn't stop so I had to be taken to the hospital by ambulance to get it re-stitched and have a blood transfusion. Also, 100 of ferritin in crazy, what are they thinking! I would never be able to get surgery if they had such a high treshold. I've never had a ferritin above 43 (and that was after 2 units of blood and 3 weeks of getting a weekly 300mg iron infusion. I guess I would need to eat a tire iron to get there.
Tegaderm rips my skin almost everytime
What surgery is it? I'm scheduled for a PAO in July
coconutshells Good luck! I’m getting a PAO in August! Not looking forward to the surgery or recovery but can’t wait to be out of pain!
I don’t have Eds but it happens to me all the time. The only thing that’s helped me was for my supplier getting tegaderms that are hypoallergenic or for Sensitive skin.
I dont really get it but i scrape really easy if i brush up against something I usually get like a scrape
My doctor thinks i may have gastroparesis. Gonna have my gall bladder checked friday. To rule it out. Your always in my thoughts love.
I dont have cEDS, i have hEDS but yes I get ripped skin. Happens a lot when ive had joints strapped up with strapping tape, even some of my braces have torn my skin from rubbing in spots for too long. our skin is just pretty sensitive and delicate.
I have a feeding tube as well u really inspire me with your videos so thank u I hope u see this
I'm told alcohol releases the stick of the tagaderm. That way it's not so rough on your skin.
Is there anyway you can use duoderm extra thin instead of tegaderm? I use it for complex dressings when when tegaderm causes issues
My surgery is next Wednesday and I’ve had this surgery a bunch, but it’s still nerve wracking! But now I have an actual day and time. Next Wednesday at 10. Tegaderm with the white bit around it I’m allergic to it, it makes my skin around swell and itch and turns red. I have to use the clear tegaderm.
Irrelevant but my mum's getting a hip replacement on the 13th of June so very close to you your surgery
AMY: try sterile skin prep. Theyre wipes that you put on before the tegaderm. I wouldnt use any other creams as they need to be sterile for you to be able to use it in that area. The wipes help me when my skin gets angry around my port!!
I have hEDS and the top player of my skin often gets ripped off from ecg stickers and stuff like that but I’ve never used tegaderm.
That type of adhesive will pull my skin with the dressing, not always off but to an odd high and will freak out the nurse, not to mention it hurts. I get crazy itching and burning from it.
I love all your videos Nd I love you so much your so amazing and I’m here for you ❤️
When is her hip surgery?
It don't have any of the diseases that you are suffering from or any other thing and I do have that problem to and I don't know what to do about it either but I feel ya girl! That hurts 😞 I sure hope something gets figured out for you soon. 🙏💜🙏💜🙏
You should check out the under-arm crutches made by “Mobi-Legs”. They are lightweight, ergonomic crutches that have very comfortable under-arm pads that are spring loaded to keep you from injuring your under arm nerves and have ergonomic hand grips. I got my pair through Amazon in the USA for around $100. Mobi Legs also has their own website that shows all of the advantages of the crutches, but I found the shipping to be cheaper through Amazon. For someone with a bad and reconstructed shoulder as well as torn elbow ligaments they were so much more comfortable than standard under arm crutches. Check out their website. I wish you a positive outcome on your surgery!
I am allergic to it all. Paper tape, silk tape, tecoderms, ekg stickers and anything else adhesive. It pulls my skin literally completely off then leave blisters and itching/burning and scars
Wooo!! Glad you have a surgery date!! 💙💙
You will have surgery on my husband birthday. Prayers for you. Tell Tom I hope he feels better
I had a doctor like that at times I would have to wait for six hours to get shots for my fibromyalgia and spinabifida pain
I hope you get the surgery for real this time
Cat Noir so do I! 😅
Good luck
I don’t have EDS, but Tegaderm was so painful for me as well, I hated to change it 😅