Man that pancreatitis pain is no frikin joke. At first I thought it was bad gas for a few days then it went away. The next flare up was definitely not gas I ended up going on to the ER. I culdnt take it anymore
Stay strong Tony. I was in the hospital for near 13 days when i got pancreatitis. Between thwt and the back pain from thr hospital bed...was not an enjoyable time. But the nurses and doctors were on point with helping me get through it.
Could be from eating high fat foods during the holidays. Stay away from any foods (including “healthy” foods) that have more than 3 grams of fat per serving! And no processed foods.
For some of us it's more constant pain, and then we get many acute attacks on top of that constant gnawing type pain. If only, we didn't have to eat anything, then maybe there wouldn't be as much strong pain. What's horrible is most pain doctors at pain clinics think it's just a tummy ache and find it hard to appreciate. I've been told they only receive 30 minutes of education on the topic of pancreatitis. So if your unlucky to find a very knowledgeable doctor, your probably suffering more than you should. I have seen too many patients with this disease killing themselves in past few years, especially after their doctors reduced med due to all the policy's surrounding pain care. For people with this kinds od pain it's torture, and, it honestly feels like a type of genocide is happening. Silently, to the patients least capable to help themselves. Our clinic closed down due to fighting over funding, and they prefer it to be on diabetics not chronic pancreatitis. Our doctors went to Congress to try to reason with them. To cover the islet transplant as it would save thousands in long term, and reduce suffering. Their response was CP is a "Black Box Disease", which means what? I'm guessing they rather us just die, but without much relief. For those of you who are newly diagnosed and can afford islet transplant...do it!! It's your best hope, as it eventually becomes pancreatic cancer according to new multi clinic studies done. I believe it, bc I've known several whose fate has become such even after only a few years into the diagnosis. It's terrible disease, and needs more awareness!! Ty, for talking about it.
Sanday Sunday Wow! I was diagnosed with pancreas divisum almost 6 years ago. No one has come close to explaining what my body & psyche have gone through and continue to go through. Everytime I find a dr I can relate to, who GETS IT, they leave and go to another practice, retire and I have to start all over and usually get sub par treatment. My biggest nightmare came in the form of my dream come true. Finally escape the big dirty city, move to the country on a farm, my pancreas was not hurting because my high stress job and total traffic nightmare was behind me. Breathing fresh air..ahhh! Meanwhile, no jobs worth a damn, my insurance increased so much, I had to let it go. Then I realized farm life is hard ass work and my energy level is lower that it's ever been. I'm trying to live right, eat right & try to figure out this mess that CP is helping me create.
Hiya, I was diagnosed with chronic pancreatitis, after about 4 bouts with acute. I would have to agree, mentally, I took much more of a toll on me that I had ever thought. The pain was excruciating and was something that was unavoidable. There was a point where I couldn’t manage it at all and would end up in hospital weekly! Now, I’m a lot better! I had an islet cell transplantation surgery, to remove my pancreas and put the Islet cells into my liver (so that I wouldn’t have to go down the diabetic route). Now, I can basically eat what I want. Every now and again, I will be hunched with pain, but those are few and far between!
it s a pian that you can understand only if you live it, i had 4 attacks and one of then was the worst thing ever only someone that knows what it feels can understand
Sanday Sunday .....I’m a 65 yo mother of five and grandmother if 14. And, I’m seriously thinking about getting marijuana gummy bears for the pain. I’m told it helps the pain greatly. I don’t smoke or I’d try them. I have Primary Sjogren’s Syndrome along with this NEW problem/acute pancreatitis.
I had it at age 19 it was hard to breath and my whole body Hurt so much I can’t describe the pain I had I think I had pancreatitis because I was vaping a lot for 2 months and I stopped doing it and I haven’t got pancreatitis again
Man that pancreatitis pain is no frikin joke. At first I thought it was bad gas for a few days then it went away. The next flare up was definitely not gas I ended up going on to the ER. I culdnt take it anymore
Felt like death to me. Nothing else can describe it.
Just had gotten diagnosed with pancreatitis and pneumonia on same day. Been in hospital for a week now. Did not know pain this bad existed.
Stay strong Tony. I was in the hospital for near 13 days when i got pancreatitis. Between thwt and the back pain from thr hospital bed...was not an enjoyable time. But the nurses and doctors were on point with helping me get through it.
It feels like freddie kruger is trying to claw his way out your upper abdomen
Could be from eating high fat foods during the holidays. Stay away from any foods (including “healthy” foods) that have more than 3 grams of fat per serving! And no processed foods.
For some of us it's more constant pain, and then we get many acute attacks on top of that constant gnawing type pain. If only, we didn't have to eat anything, then maybe there wouldn't be as much strong pain. What's horrible is most pain doctors at pain clinics think it's just a tummy ache and find it hard to appreciate. I've been told they only receive 30 minutes of education on the topic of pancreatitis. So if your unlucky to find a very knowledgeable doctor, your probably suffering more than you should. I have seen too many patients with this disease killing themselves in past few years, especially after their doctors reduced med due to all the policy's surrounding pain care. For people with this kinds od pain it's torture, and, it honestly feels like a type of genocide is happening. Silently, to the patients least capable to help themselves. Our clinic closed down due to fighting over funding, and they prefer it to be on diabetics not chronic pancreatitis. Our doctors went to Congress to try to reason with them. To cover the islet transplant as it would save thousands in long term, and reduce suffering. Their response was CP is a "Black Box Disease", which means what? I'm guessing they rather us just die, but without much relief. For those of you who are newly diagnosed and can afford islet transplant...do it!! It's your best hope, as it eventually becomes pancreatic cancer according to new multi clinic studies done. I believe it, bc I've known several whose fate has become such even after only a few years into the diagnosis. It's terrible disease, and needs more awareness!! Ty, for talking about it.
Sanday Sunday Wow! I was diagnosed with pancreas divisum almost 6 years ago. No one has come close to explaining what my body &
psyche have gone through and continue to go through. Everytime I find a dr I can relate to, who GETS IT, they leave and go to another practice, retire and I have to start all over and usually get sub par treatment. My biggest nightmare came in the form of my dream come true. Finally escape the big dirty city, move to the country on a farm, my pancreas was not hurting because my high stress job and total traffic nightmare was behind me. Breathing fresh air..ahhh!
Meanwhile, no jobs worth a damn, my insurance increased so much, I had to let it go. Then I realized farm life is hard ass work and my energy level is lower that it's ever been. I'm trying to live right, eat right & try to figure out this mess that CP is helping me create.
Hiya, I was diagnosed with chronic pancreatitis, after about 4 bouts with acute. I would have to agree, mentally, I took much more of a toll on me that I had ever thought. The pain was excruciating and was something that was unavoidable. There was a point where I couldn’t manage it at all and would end up in hospital weekly! Now, I’m a lot better! I had an islet cell transplantation surgery, to remove my pancreas and put the Islet cells into my liver (so that I wouldn’t have to go down the diabetic route). Now, I can basically eat what I want. Every now and again, I will be hunched with pain, but those are few and far between!
it s a pian that you can understand only if you live it, i had 4 attacks and one of then was the worst thing ever
only someone that knows what it feels can understand
@@hdoingherbestt May I ask where you had your islet transplant? Thank you for sharing.
Sanday Sunday .....I’m a 65 yo mother of five and grandmother if 14. And, I’m seriously thinking about getting marijuana gummy bears for the pain. I’m told it helps the pain greatly. I don’t smoke or I’d try them. I have Primary Sjogren’s Syndrome along with this NEW problem/acute pancreatitis.
Don’t go on holiday, it’s the stress from holidays, stress always set off cp
Feels like a truck is parked on my back. My abdomen is off and on.
Feels like knives that were heated stabbing you with every breath.
My initial attack, I felt it more in the abdomen, but now I have the same issue and feel it in the middle of my back, especially when lying down.
C Masc ye towards left side and back side
Yes, the holidays are stressful. My pain is always worse at that time.
I had it at age 19 it was hard to breath and my whole body
Hurt so much I can’t describe the pain I had I think I had pancreatitis because I was vaping a lot for 2 months and I stopped doing it and I haven’t got pancreatitis again
it s fells like being stabbed , i know it
The cause of pancreatitis can also from bulimia, if you think you’re bulimic please get help immediately before it’s too late
Dr is fine
Could be the food you eat on holiday.. you should have your thyroid checked as well.