This popped up on my feed as I follow many people, who have gone through similar experiences. Like myself with being born @ 23 weeks, losing my brother at birth and developed Meningococcal CEP B @ 6 weeks. Hydrocephalus @ 11. Just keep going and smiling.
Our daughter has a rare bone marrow disease called PNH. She recently was pregnant on a third try and they took the baby at twenty-nine weeks due to problems. The baby was born with a diagnosis of PVL. So I am watching and reading everything to try to be on top of what might be happening but you just don't know. Like this couple who found out one of their twins was born with CP. They probably missed a diagnosis of PVL. Because PVL is damage to the white matter of the brain where all the bundles of nerves are located that control your walking, talking, and moving are located. When you have a baby with a problem it's the same as having a dog with a problem. Neither can tell you what is the matter, so you have to be a detective and investigate everything. ❤️
Gregory Malchuk yes and they did it because he’s probably in spastic jerks which could’ve been very painful so paralyzing his legs was probably the most comfortable decision for him that’s why the hospital went along with it and why his parents thought that that would be the best for him
Gregory Malchuk They aren’t paralysing the legs altogether. They cut a small selection of nerves that cause spasticity. This is why it’s called selective dorsal rhizotomy. This enables the legs to become less rigid and painful. For some children it improves walking ability, for others it allows them to sit more comfortably in a wheelchair.
This popped up on my feed as I follow many people, who have gone through similar experiences. Like myself with being born @ 23 weeks, losing my brother at birth and developed Meningococcal CEP B @ 6 weeks. Hydrocephalus @ 11.
Just keep going and smiling.
Good for you, Matthew. Keep on trying everything. Remember, you have some things that no one else in the world have....That makes you very SPECIAL !
Mathew you inspired me a lot champ!!!! You are such a blessing. Try try try.... Love you
Q
Our daughter has a rare bone marrow disease called PNH.
She recently was pregnant on a third try and they took the baby at twenty-nine weeks due to problems. The baby was born with a diagnosis of PVL.
So I am watching and reading everything to try to be on top of what might be happening but you just don't know.
Like this couple who found out one of their twins was born with CP. They probably missed a diagnosis of PVL.
Because PVL is damage to the white matter of the brain where all the bundles of nerves are located that control your walking, talking, and moving are located.
When you have a baby with a problem it's the same as having a dog with a problem.
Neither can tell you what is the matter, so you have to be a detective and investigate everything. ❤️
You are heroes
True Heroes
Thank you
Thank you
Thank you
Thank god
Matthew's story really makes us to us 🇺🇸 i am American its okay you can fight this cancer
Mathew champ!
Be healed!
God bless this hospital and those incredible nurses and docs! ♥️
Love u bro
Matthews awesome
I have C.P two
I also have CP 💚
i have CP too but it's a mild one and i was born with it or diagnosed rather
HI GUYS
He’s a smart boy what are you do stuff like that he’s Is so small Matthew Matthew
So his parents deliberately paralyzed his legs!?!?!? And this hospital went along with it????
Gregory Malchuk yes and they did it because he’s probably in spastic jerks which could’ve been very painful so paralyzing his legs was probably the most comfortable decision for him that’s why the hospital went along with it and why his parents thought that that would be the best for him
Gregory Malchuk They aren’t paralysing the legs altogether. They cut a small selection of nerves that cause spasticity. This is why it’s called selective dorsal rhizotomy. This enables the legs to become less rigid and painful. For some children it improves walking ability, for others it allows them to sit more comfortably in a wheelchair.