SYNGAP1 Parent/SRF Director Intro: Suzanne & Brent, November 2022 - Jansen's Journey

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  • Опубликовано: 5 ноя 2024
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Комментарии • 6

  • @KelliKyle
    @KelliKyle 2 года назад

    💗 Thank you for sharing! I love seeing other families like ours.

  • @casuallycali4433
    @casuallycali4433 2 года назад

    She seems like an amazing little girl. Her mobility seems awesome! I loved her cat drawing too!

  • @paulmortensen4123
    @paulmortensen4123 2 года назад

    Very enlightening, hope never dies. God bless her, her family and all families confronting this challenge. Thank you for posting.

  • @aprajitasart133
    @aprajitasart133 2 года назад

    SRF is making a difference, and whenever I come across any of these stories, it feels the efforts that SRF is making to bring a cure for SYNGAP1 patients are soooo precious. There is definitely a light at the end of this tunnel.

    • @CureSYNGAP1
      @CureSYNGAP1  Год назад +1

      Thank you for your kind words!

  • @ernietavilla3892
    @ernietavilla3892 2 года назад

    I would like to say thank you for sharing your story with the world. We need as many people as possible to see this powerful video so I would encourage others to share this on as many social media platforms as they can. You have a beautiful family💚💙💜