About Chronic Fatigue Syndrome and Fibromyalgia
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- Опубликовано: 27 авг 2024
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About Chronic Fatigue Syndrome and Fibromyalgia
Today we’re going to talk about my Chronic Fatigue Syndrome and Fibromyalgia. If you’re a viewer on our RUclips Channel or if you follow us on our website, Pinterest or Facebook, you’ve probably heard me mention something about being sick from time to time. Perhaps you’re wondering what Chronic Fatigue Syndrome and Fibromyalgia are or maybe you wonder if you or someone you know might have it.
This video is not meant for you to diagnose anyone. I’m only sharing my experience to illustrate what I mean when I say, “I’m sick” and also to give you some idea whether you might want to talk to your doctor if you wonder if you might be affected by one of these.
Chronic Fatigue Syndrome is not well understood. It is a debilitating condition that affects me every day.
The Centers For Disease Control says:
“Chronic Fatigue Syndrome, or CFS, is a debilitating and complex disorder characterized by profound fatigue that is not improved by bed rest and that may be worsened by physical or mental activity. Symptoms affect several body systems and may include weakness, muscle pain, impaired memory and/or mental concentration, and insomnia, which can result in reduced participation in daily activities.”
I was part of one of the early long term study groups for the Centers For Disease Control.
There are no known treatments, but I have discovered a few things that ease certain symptoms when I’m experiencing a flare.
Fibromyalgia often accompanies Chronic Fatigue Syndrome. The Mayo Clinic says, “Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues.”
In my experience, this doesn’t sound as bad as it really is. When you have Fibromyalgia, it does come with a substantial amount of pain, with a number of muscular trigger points in various spots on your body where the greatest amount of pain is concentrated. There is also a great deal of mental confusion along with memory and consistently negative mood issues related to living in a state of continual pain.
We have found some things that help my Fibromyalgia, like frequent massage.
Fibromyalgia can be improved with exercise, but I also have Chronic Fatigue Syndrome, which is made much worse with exercise.
Here are some of the points we discuss in this video:
0:47 A lot of people ask me how to know if they have Chronic Fatigue Syndrome or Fibromyalgia
0:53 Symptoms of CFS
2:04 Symptoms of Fibromyalgia
3:40 My mom, brother and I got sick in 1988. We all came down with “the flu” and never got better. My mom and brother both have Chronic Fatigue Syndrome, but I’m the only one that has both CFS and Fibromyalgia. They’re two totally different things that often go together.
4:18 Discussion of difference between CFS and Fibromyalgia from an external perspective.
4:58 We discovered that Alka Seltzer makes Tawra feel better when she is having a CFS flare.
6:58 I got sick when I was 16. I was so sick every day and I often couldn’t get off the couch, so I was missing work and I just couldn’t support myself, so when I was 19, I got on disability.
7:24 It was super hard to get on disability.
7:49 People see the website and say, “How do you do all that?” I don’t.
8:29 I have to give up things. I can’t do it all. If I’m doing videos or something for the website, it means I can’t keep up with the house and I’ll probably be too sick to make dinner.
8:58 Mike says Tawra gets confused or irritable. She can’t remember basic details at times. Mike is good at recognizing the problem and being patient with me.
10:43 My neighbors were alarmed when we first moved in because I would lay out on our driveway when my son was riding his bike.
11:33 It helps to joke about it and brush it off, rather than getting angry. There’s nothing you can really do but humor makes it more tolerable.
11:46 In our next video, I’ll share some of the things that help me function.
11:54 You can get more information about the symptoms on our website here:
About CFS and Fibromyalgia
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Do you suffer from either of these? Our site has many articles to help. www.livingonadime.com/?s=CFS
i got cfs and fibro and i am very sick with it. i was married 30 years and my husband walked out on me bc of it. Weve been divorced two years now. im completely bedridden and i cant get disability bc i havent worked in 33 years .Im delendent on my daughter and things arent going well right now. She has alot of problems. Please say a prayer for us. Thanks.
I truly feel your pain . I will pray for you and your family.. God Bless💖💌🙏
Oh my doll.. Im praying for u as I see this for my future.. Ik my husband going to leave me.. I can't work or get out of bed most days a lot of days
Hopefully you got alimony for being a house wife for that long. Plus you should be able to get disability through your ex from disability dept. 🙏
Thank you for posting this. I am 19 and I was diagnosed with cfs two years ago. I was just diagnosed with fibromyalgia a week ago. It’s been a really awful struggle but it really helps to hear others stories and what helps for them.
Glad it was helpful!
I had all of these health issues as a child just didnt get diagnosed until my mid-30's. I'm pretty sure it stems from a spinal tap injury at birth (that the drs didnt have permission to do) and a life filled with constant adrenaline plus vaccine/flu shot injuries. Its been hell on earth. I stopped seeing drs and started doing my own treatments and have been a LOT better in the past 5 years. Although pain never leaves my body, I lost everything I ever worked for, am destitute, and spend the majority of my days in bed (at 45 it's difficult to accept) but my debilitating stomachaches are gone, I dont get sick anymore or if I do it doesnt require a dr, I dont have anxiety or crippling depression, and I never feel suicidal like I use to. I wont lie tho, death seems favorable over this life and I look forward to the end. My biggest suggestions for you are to avoid stress, toxic people/situations, and detox however you can. Bring water with you and drink it everywhere you go. Sending you tons of love!👍👍💓💓💓💓💞💞💞💞
I really appreciate this post. I was diagnosed with cfs about 20 yrs ago and with fibro 4 yrs ago ..I just thought it was my work .(.I'm a nanny and nursery teacher.)..that made me so sore and tired all over. Work is so hard but the main thing that bothers me is memory loss...I cant remember words either and some days I just cant cope . Your husband is so lovely!! You are blessed!!. I love your videos ..I appreciate any future posts on this topic. 4 years ago i had to shorten my hours with work..went part time..I discovered your posts..blog..and read just about anything that was there...I made things work financially because of all your hard work..I became frugal and mindful with my money. Thank you for everything and take care :) Cheers from Australia
there are over 200 symptoms of FIBROMYALGIA I've had fibro for 17 years I get muscle, nerve, and joint pain among many many other symptoms and relative conditions,I have the trigger points too, fibro fog and flares. It's an everyday struggle, good info thanks for sharing stay #fibrostrong
Thanks for the Video! Sorry for chiming in, I would appreciate your thoughts. Have you heard about - Dinanlinson Rebooting Health Approach (do a google search)? It is an awesome one of a kind product for getting rid of chronic fatigue syndrome minus the headache. Ive heard some super things about it and my close friend Aubrey after many years got great success with it.
No headaches just extremely tired. I have taken just about everything. Groggy feeling won’t go away.
Been dealing with the same for 2 years. Have you found any way to alleviate it?
WOW! I already subscribed to your Living on a Dime hints but had no idea you suffered with CFS and Fibro. I have both of these too. It took 13 years to get a diagnosis on the Fibro, which began in 1980. I admire your chutzpah!! You have learned how to live AROUND these nasty chronic ailments, as have I. We are both luck to have supportive husbands too. I want to offer my kudos and just tell you that you are an inspiration to others. Keep up the good work!! And Thank You!!! All best wishes to you and your family.
I hate it & it has ruined my life 4 ever! I was diagnosed w Fibro 2 years ago after being tested 4 everything under the sun for 6 years!
I can never plan anything because I never know when I am going 2 have a flare up. When I do plan anything and m lucky 2 go thur w my plans I will be bedridden 4 up 2 a week depending on what I did. If I run the vacuum that's a whole day in bed, grocery shopping, 2 days in bed, etc.
I pray 4 anyone suffering from either or both Fibro & CFS & hope that someone comes up w a cure very soon.
I just love you two. Its a nasty disease I know and I am so happy you have each other for support. 23 years I have endured fibro which has gotten progressively worse and each day is a challenge...but you have to 'pace' yourself and carry on. All the best to you and thank you for sharing with us. Frangi England. x
do you feel it has gotten worse over time? :( I felt that .... I dont know why .......
@@shahilagh I have fibro and yes I think it has gotten progressively worse. I spend a lot more time in bed now then I did even 5 yrs ago.
It’s the magnesium in alka seltzer that probably helps so much ☺️. Thanks for the video! I’m suffering with a massive flare up right now. I’m going to get some alka seltzer and see if it helps 🙏🏼
It sounds like I have both....I'm struggling to get to work as I have a physical job...I rest all day just to get to work it's terrible and I have kids .....my son misses a lot of school because some days I just can't get up.....it's a terrible existence,I used to be so active..now all I do is lie on the couch trying to rest to get to do at least one activity or something...😿my husband is great but has to work and we have no family to help us so we just cope with what we have to deal with
Thank you for explaining this, I also have Fibromyalgia, was finally diagnosed after a number of yrs of begin miss diagnosed with RA, an on some heavy meds, finally decided it was Fibro, the only thing I take now is Cymbalta, and you learn to manage the rest. So happy you have a family that understands.
Great husband!
Wonderful to have that help!!!
Your alchaselzer trick works like a charm! You and your hubs remind me so much of me and mine its CRAZY!
I have been diagnosed with Fibro, and have suspected that I have CFS for a long time. I forget sometimes that I can't push myself. I've been stranded at the grocery store or Super Walmart, and I can't make another step. When I feel the drain coming, I try to get to the pharmacy area where I can sit. I have left a cart full more then once because I couldn't make the check out and then load-unload the groceries.
Valerie Foster I've been in stores and wish I had a place to sit many times. Sometimes I squat down and look at products on the bottom shelf. Line ups are hard though
You all make it to stores!
Was diagnosed too with fibro and chronic fatigue. I also have herniated discs in my neck and lower back. The mental fog and tiredness is strong. Wish I can get a hold of stimulants.
One trick I learned is to bag with forethought. Whether you bag your own groceries, or the clerk does it for you, always know where your perishables and other related items are.
After I make the trip to town, combine my errands, do my shopping and drive back, it’s all I can do to make it to the door, get it unlocked, and wash my hands before collapsing. Unloading the car? Yeah, right. 🙄
I have ten large, super heavy-duty reusable fabric shopping bags. I put all items in those - even if they’re already in the store’s flimsy plastic bags. With one good sling, I can usually get one of those, fully loaded, onto my shoulder. That’s the bag I take in with me. Between that, my purse, and fumbling with my keys, that’s all I can handle. All perishables must go in that bag because all the other purchases will likely spend a night or two in the car.
By the time I get inside, that one bag usually gets deposited on the kitchen floor. After I collapse, I have to set an alarm to remind me to unpack it and put stuff in the frig, for example. But just knowing that my milk won’t spoil, and there will be no sticky puddles of melted ice cream, is a comfort to me. The rest can just wait for another day.
When you go to Walmart get the scooter.it helps a lot to ride around the store.
It goes beyond fatigue. On real bad days I wake up and then it's like I pass out as the next thing I remember is waking up again but hours have passed. This can go on for days, even weeks.
@livingonadimetogrowrich I sooooooooo appreciate u doing these videos!! I cannot even tell u how so many yrs I have struggled with this and it has been so debilitating and trying to wk actually makes me cry to get through the day! Everything you have said I feel!! I was diagnosed with fibro, but do know the extreme fatigue is HUGE for me.. so glad you have Mike to help you! I get so den on myself because I literally don't have the energy to cook and cln..
I feel you. I had all of these health issues as a child just didnt get diagnosed until my mid-30's. I'm pretty sure it stems from a spinal tap injury at birth (that the drs didnt have permission to do) and a life filled with constant adrenaline plus vaccine/flu shot injuries. Its been hell on earth. I stopped seeing drs and started doing my own treatments/self medicating and have been a LOT better in the past 5 years. Although pain never leaves my body, I lost everything I ever worked for, am destitute, and spend the majority of my days in bed (at 45 it's difficult to accept) but my debilitating stomachaches are gone, I dont get sick anymore or if I do it doesnt require a dr, I dont have anxiety or crippling depression, restless legs went away, and I never feel suicidal like I use to. I wont lie tho, death seems favorable over this life and I look forward to the end. My heart hurts for everyone suffering with these invisible illnesses. Sending you tons of love!👍👍💓💓💓💓💞💞💞💞
I also have been diagnosed with both of these, spent almost everyday this week in bed :( lots of time to watch your videos at least :) God bless you and I am praying for a cure!
Mike & Tarwra 😍Appreciate tips, truth about illnesses! God Bless you both and all families! God First. 💝🎚🙌⛪️🙏🏻📿📖🕊
My rtuemotologist told me if you have an autoimmune disease it usually comes in threes.
I've had CFIDS and Fibro since May 1990. Back in the early days of my illness my family and I went to the public library to get library cards. The person setting up our accounts asked me my name, and for the life of me I could not remember it. I turned to my son to ask his help, but couldn't remember his name either. So I elbowed him in the ribs to get his attention and called out, "Boy! What's my name?"
I laugh about it now, but it wasn't funny at the time. I also have a hard time pulling words from my memory to be able to use them in a conversation.
I got mono when I was 18 and haven't been well since. It took doctors until I was 30 to diagnose me with fibromyalgia and a few years later with CFS. I have just recently been diagnosed with hypothyroidism which took years for doctors to diagnose that also. I've always tried to rest, exercise, take vitamins and supplements and eat right, but most recently I've changed my diet. I've cut out soda, soy products and now gluten. The change has been has been amazing! Thank you for sharing :)
This is very informative! Gives me hope for the future. Thank you
this helps more than I can explain. Thank you for sharing !!!!!!
Great to see you have a sense of humour - really does help with CFS !
I was diagnosed with Fibro/ Chronic Fatigue when I was 25 and I am 60 now.
when you said ''if you feel worse after working out you probably have cfs'' i started tearing up. i definetely wanna get this checked out
I had that extreme fatigue like you said, after working out, I had to go to bed when I got home from the gym. I felt like the life was sucked out if me! I had extreme heat intolerance too. Thankfully that all, pretty much is gone now, I do have flare ups some times. I sorry you are dealing with this!
❤💖 two of the nicest people ever 🌻🌻 together.
When you take the Alkazelter, do you follow directions on box and plop the 2 tablets in water and drink it? I have tried to take the things like that before. It makes me nauseous. Wish I knew another way to take them.
I don’t know how u do it live with it ten year amd last four in bed u always look so great ! Love living on dime recipes
😊 thank you. I've learned to manage it so I can be a semi-functioning person....(she says as she's sitting on the couch trying to get motivated to do something! :-)
I have RSD........reflex sympathetic dystrophy no cure.
I have other medical issues to...so i feel for all that have some medical problem.
I have back/spine issues that wont let me stand for long. So i became a hermit. I do sit outside sometimes, but i tend to stay inside mostly...RSD and pain changed my brain and the way i think......i am the same person with sense of humor...but things that should not tick me off do....and things that should tick me off dont. That is what changed. I had to tell my neighbor cuz he over heard me talking......so i took him aside to let him know pain changed me.
I am so glad i never lost my sense of humor...i try to stay postive...though sometimes hard to do....soft huggies to all in pain
on that note I forgot to add if you are using a short glass it only takes about a half a packet.
Ridiculous comment, but you're hair looks so pretty.
the adrenal problems, and thyroid issues and cleaning up diet has helped me and herbs . it isn't gone and I have bad days but over all I am better . I am 27 expecting my 1st child and I am glad I found how to mange my systoms back 2 or 3 years old and not now
Thank you for bringing awareness to this devastating disease. I've been in bed for 7 years following giardia.
I have both and you explained my life. Thank you for this video.
I know exactly how you feel! I'm afraid of even going shopping. I might get hit with the chronic fatigue while at the store and not be able to get home!
Today has been dreadful..... Busy end of week caused me to b exhausted the past 2 days. ... I had to walk long distances those 2 days. .....so tired..exhausted... I pass out in sleep at times. .....headaches so bad ...
Thank you both for being so honest and open
I too suffer with cfs
I tried the Alka seltzer thing. it really helped. when I ran out I founding mixing in with something containing citric acid helped the baking sida water bubble like Alka seltzer and work better. I choose a little bit of crystal light powder. plus it flavored it and made it easier to drink. I read online it helps because baking soda oxegenates the blood and alkinizes it. it also removes lactic acid from the muscles because lactic acid also causes pain and fatigue.
+April Baker Wow! I never knew that. Thanks so much for sharing. I am going to try that.
+natas313 3 Yes, it does feel like a bad bruise inside. It hurts horribly but if Mike rubs it for me starting off gently and then deeper it can work it out and the knot and pain are mostly gone. Yes, if you feel worse after exersising that is one of the sure signs of CFS. :-(
If you haven't found the website cfidsselfhelp.org yet, you may want to check it out. It's been so helpful to me, they talk about pacing and different strategies, lots of info for both CFS AND FM. I have Fibromyalgia and suspect CFS. Your videos about this have been such a blessing to me! Thank you!
I'm fortunate enough not to have your ailment. You have my sympathy that you have it - thanks for explaining it. I feel for you.
I just found your awesome channel and decided to stay and subscribe. I also have Fibro and many chronic issues. I developed a bad migraine almost 16 yrs ago, and it's there 24/7, of course worse in the morning. Some days are just a bit more bearable than other days. The worst thing for me is 2 yrs ago I got severe loud Tinitus. No cure or med to take the symptoms away. Goes from grinding, ringing,buzzing, air pressure, pounding. Tinitus wants to compete with other noises like the tv and going to the movies is almost impossible. I use ear plugs, doesn't help. It sure wears on our bodies and mid. I also have an amazing husband who works hard but takes care of me and our home. If I do a few dishes, I have to lay down. Sorry for this long post, I just was going to introduce myself lol. Everything you said , I agree. Thanks for listening to me🌹💕See you again soon.
Dr Judy mikovits says they are vaccines related. I've have one or both and the guilt of not being me is so hard. I'm missing work and unable to keep up w anything anymore
That is me….I get worse and have to lay down immediately when I exercise. And I have fibromyalgia. Supporting my adrenal glands with supplements has helped the fatigue.
I understand you completely.
I have a severe case of Fibro with ms symptoms BUT I do not have ms my fibromyalgia just shows in that form along with the usual fibro issues.
hopefloates always I'm the same its agony .
I saw several ms specialists at yale for over a year and i ended up not being diagnosed with ms. Fibromyalgia is the worst.
How do you distinguish between this and depression? How did it develop over time? Because for me it came on all of a sudden with no obvious trigger.
For roughly 7 months now, I've had like 7/8 noticeable symptoms (i.e. IBS, Neck/Back Pain, Leg Tremors/Spasms, Severe Fatigue, Headaches, Insomnia, Sinus related problems...). On any given day I have 2/3 of these symptoms & day-by-day they not only randomly fluctuate, but the extent to them varies too. I think the simplest way to describe it is like chronic Flu-like symptoms - but swap the high fever with muscle spasms/twitching.
I've had an upper abdominal ultrasound, Chest X-Ray, MRCP scan, Head MRI, blood/stool tests looking at my: Liver, Kidneys, Thyroid, Anaemia, Infections... but they are all normal. I'm so lost right now right now 😧
Spasms can definitely be helped with a good magnesium supplement, better absorbed with some vitamin D, and also B complex for nerves and general well being.
I would add a good multivitamin with minerals, twice a day, with food. The amounts in such a supplement are small, and taking one with breakfast and one with supper, as an insurance is a very good policy
I would also avoid caffeine and refined white sugar. Both are quite harmful, and rob the body of nutrients.
Did you take the clot shot?
I’ve had ME for 13 years. I knew immediately it was not depression. It’s nothing like depression. Think of it like this: when you have depression you don’t want to do anything apart from stay in bed. With ME you wake up determined to do 100 tasks that day but can’t physically get out of bed.
Aw I'm sorry you have that. Your kids are older did you assign them a room to clean daily, then rotate it the following week so they don't feel line they got stuck with the hard room. Lol. 5 kids keeping 5 rooms clean daily should help you out. Your a great couple , you have each other's back for sure.
My kids are older now and do help out with chores but I've been sick for 30 yrs. so it wasn't always that way. Mike did always help.
You are very Blessed to have a wonderful family. ❤️
Thank you so much for sharing. This has helped me to understand things that I have been dealing with!
"Road to the Farm" has a great video out regarding her Fibromyalgia, you might want to check it out, she changed her diet and it helped her immensely. Gluten free and dairy free. Corn gives me the pinpoint pain, makes me agitated, short tempered and exhausted because I can't breath well. Gluten makes me extremely foggy brained and forgetful. so I avoid it as much as possible. Best of luck to you.
+itsall forgood Thanks I've pretty much done all that and it helps some but didn't "cure" me by any means.
+Living On A Dime Sometimes also doctors misdiagnose people. They don't know what a person has so they just say the person has CFS or Fibromyalgia when they really have something else. Months and years later the person tries different diets, have tests for thyroid, RA and other things - after trying the diets and being put on some meds and things they often feel better which means the chances are pretty good they had something else wrong other than CFS or Fibro.
+Jill Cooper Also Tawra didn't mention we were on a special study done with the CDC. 500 people had been told by doctors they had CFS and of those 500 only 80 of us truly had it. That is why it is very important to get more than on opinion. We also at that time were pretty much tested for every disease known to man, every body organ tested and we had major psychiatric testing too. You had to pass all those test with flying colors before you were accepted on to the program. That is why we joke and say we have papers to prove we are normal and not crazy. :) :)
My mom has fibromyalgia and I have CFS.
Another yt lady has really bad fibro & having a really rough time and has been admitted to have infusions of ketamine to see if it helps- it can be hit or miss but so far she's been feeling the benefit. She's had to go into Hosp for a week tho.
You guys are so sweet together
Very informative video. Thanks!
I thought cfs was a symptom of fibromyalgia? I definitely have both. I had cfs first though I think, from whst it sounds like. I don't react to those trigger points test though. But I have everything else on the list for fibro thoigh, so does that not still mean I have it? My body is in pain all over, for many years now. But I just don't react to trigger points. I'm a 42 year old man by the way. All these symptoms started happening about 18 years ago.
You both are awesome
Fybromyalgia can cause ibs to become gerd. To have Fybromyalgia and be able to take Advil is lucky.
I wonder if I could have CFS instead of Narcolepsy. The pulmonologist doesn’t really listen to me about what’s happening to me. He just wants to throw a label on me. I’m always exhausted. If I mow the yard or clean the house, I am so tired that I pass out when I sit down. I’ve had the EMS here 4 times in the past few months. I’ve researched narcolepsy and it just doesn’t seem to fit with my symptoms. I wake up every day with migraines. I have meds for them but it doesn’t always work. I feel for u with fibromyalgia. I have it also and many spinal conditions. I haven’t slept in a bed in 3 years cause either my hip hurts laying on my side or my back kills me. Where can I find the information about CFS so I can show my dr that those symptoms r what I’m experiencing? I’m trying to learn from u guys about getting out of debt but it’s hard when the medical bills never stop pilling on
Sounds as if you should find another doctor; one who is actually willing to listen to what you have to say!
I'm diagnosed narcolepsy too, type 2, but I also suspect it's more likely CFS. Mine really started after I had glandular fever/mono. Took about 16 years to get any dx, then fibro pain ramped up a few years later. I figure it doesn't really matter the label because they can't fix either of them anyway, it's down to us to find ways to manage. It's other people really that need our label to understand that we have limitations
Thank you for sharing. In your experience do doctors have a way of diagnosing chronic fatigue syndrome? Or do they test for everything else then land there as a last resort?
+Wise & Simple They pretty much have to rule everything else out first.
I slept at a rock concert! I have both things too
Totally makes sense 😞
So weird about that alka seltzer, my sister use to give it to her son when he was having a bad day, he has ADHD, it helped within like 30 minutes. I will have to remember that next time I have a flare up, or eat something with Gluten.
Thanks for these. I was healthy til I got covid 12 mths later still not better. the gp is thinking of these two, but is still doing testing. My iron and B12 levels were horrrible
Do you have orthostatic intolerance? You didn't mention it and a high percentage of people with CFS have this. It is why it is difficult to stand.
I have both :-( I also have hypothyroidism and Hashimoto's thyroiditis. Are they in any way related to Fibromyalgia and CFS ? Do you know ?
YTfancol it's common for people with fibro to also have a thyroid condition I believe.
Thank you for this. I think I have Fibro. Praying for you.
+Lori H God bless you and your husband.
How do you get your doctors to see that you need thier help to get disability?
You mentioned among the symptoms,you mentioned memoryless loss. That is strictly not correct as memoryloss is permanent but brainfog is temporary with no lasting damage on your brain....
As a writer I am pricky with words ☺
Absolutely!!! Baking soda changes the body's PH to more alkaline...because it is hard for disease to thrive in an alkaline body. It can also aid in helping to increase oxygenation, which of course, can help us breathe better. Taking in more oxygen can help our body rejuvenate and...give us more energy....Thank you sooo much for sharing!!! This can be so debilitating for so many people. God bless for helping others the way you do from your own stories. Real people with real situations. Thank you for being so positive and and funny!!!
I love you both!
You had children while having Fibro and CFS?! I can't fathom that, as many of us with CFS cannot even get out of bed. Hard to believe..
It would not have even been possible if I didn't have a hubby and mom who were willing to help out. It has NOT been even close to easy but they were worth it.
I am on long time disabilities leave and working on SSDI. I have had fibro for a long-time,. As of March 17 2013 I started have seizures. I was Dx with IBS at age 13. I have had 2 brain biopsies with another Dx of CNS Vasculitis, CFS, Anxiety and depression and shame when I have a seizure. I will try the seltzer. You sound so chipper I just wamt One more day of normal then I will go to sleep.
I wonder if my brother has that. he has he has headaches and wakes up tired and has to sleep hours at night. and after half an hour working in the yard he comes in and takes a nap
How do I communicate this with doctor because I feel like I have it
Have you considered looking into treatment for CFS? For example what ex-CFS sufferers like Toby Morrison, Daniel Neuffer etc. offer?
Yes those things are good but they aren't a cure for everyone. I have been getting treatment and have spent Thousands of dollars trying to find something to help. I am getting closer and on my last round of treatment. If this doesn't work then I will be done and I'm not going to try anything else. We just can't keep wasting money on treatments that don't work.
You guys are just great, wish you all the best and enjoy the vids.
Name is Justine I’ve had this it with the eggs and pains in my whole body and headaches and that I have got this condition from the doctors my mom’s got it and later on every night when I go to sleep I’m hoping you can help me too
Hi it took 10 years to get dignoise. With fibomalyagia. I have. Pain in my mussels. And in my bones. I definitely got cronic fatigue. . I have to rest up for 2-3 days. After good day. Otherwise I get mentally poorly. . Haven’t told the doctors yet how bad I been. . With cronic fatigue Got. Noise gets to me too. I also have skin burning over my body. I am in Mobillity schooner. But due to where I live. Can’t get one here. So have to move. But where all in lockdown. Here at moment
😎 The lockdown is adding much more isolation and depression to what many people are already dealing with. Also a lot more child abuse, and spousal abuse. Now all the upcoming evictions and foreclosures in numbers, all that will just add to the depressing picture.
We all need God in our lifes. Most definitely. 🙏🙏🙏😎❤🌻🌻
I have fibro and fibro fatigue but not chronic fatigue syndrome it seems :(
The same thing. Great. 😶
Caffeine affects my fibromyalgia. Many people who have thyroid problems have thyroid issues. Once I got my thyroid hormones under control most of symptoms went away. I have flare ups sometimes still. Have you had your thyroid checked!
Also switching from synthyroid Which is the most prescribed medicine for low thyroid. I took it for 8 years but then I switched to NDT natural desiccated thyroid it helped tremediously over synthyroid!!
+Myeverydaywifelife have you tried eating gluten free? That has also helped me!!
+Myeverydaywifelife also I eat clean with very little processed foods etc!
+Myeverydaywifelife Yeah, my thyroid is fine. :-(
+Myeverydaywifelife Yep taken it all out. Gluten, dairy, corn, caffeine, all of it. Helps some but hasn't changed my life by any means.
I hope you read our messages cuz I don't go live but so that loss of memory did that is that one of the things that came on you know like later on because you obviously had a lot longer than me and now it kind of makes sense a lot of stuff to tell the heck of a time trying to say what I want to say so I'm frustrated and it comes to me what I'm trying to say and I have a lot of if I go grocery shopping or something and I live on 3rd floor and apartment building that when I get back from shopping I'm done I can't move I can't do nothing for a little bit for a while sometimes for the rest of the day it's just came so much worse noticing more and more different pain and tired please let me know if you get this message
You can have both, too.
I must try ALKA Saltz
Fibromayalgia and chronic fatigue sydrome are two different diagnosis.
That is what she is saying too. Some people have both.
Is there any possible to get pregnant with fibromyalgia
I had 4 kids. No reason why you can't.
Because I have lot of abdominal pain so I asked?
I didn't have that so you would have to ask your doc. Some of my symptoms did get much better while I was pregnant.
Yes madam but abdominal pain is one of the symptoms of fibromyalgia then you feel throbbing sensation and current shocking sensation I feel every day and I have cheast pain... And stiffness also I have I feel worsen madam please suggest me good solution for me
@@bagavicky9958
Find a good naturepathic doctor.
Also see Dr.Berg's videos and Dr.Axe as well. Two great channels, and very helpful. As well as Dr.Bergman. Amazing knowledge and understanding. Everyone of them. 😎❤🌻
With the CFS, do you also have low grade fever with the swollen lympnodes? Thanks & thanks so much for this video! I've been going to a Rheumatologist & I have most of these, but he can't figure out what it is & in those times, I seriously feel like I have the flu but I'm not sick, just a flu like feeling
Yes a fever and swollen lympnodes.
Fibromyalgia bad