LETS TALK ABOUT TRAUMA | Negative Emotions - How I've Learnt To Accept My Daughter's Disabilities
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- Опубликовано: 3 мар 2023
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Another great video. I am going to tell you something my father told my sister’s and I since we were small. I have lived in various country very different in languages and cultures. Some of their friend’s also had children with different disabilities to Avery or similar. One day we where in Panama on the beach and someone was commenting about a child with disabilities. The adults and us the kids together, of course not fully understanding anything. My father who was a religious and had gone though the civil war in Spain separated from his parents, got up and said enough….each human his born with their own Peculiarity’s…..big or small so we need to help them reach their milestones. I to this day this use this to explain these thing to my nephews, nieces and even friends and of course the parents of these children. I know you and your family are handling Avery’s peculiarities the way they should. Love that face when she lights up in a smile.
That’s beautiful, your father is a wise man ❤️ i think inclusiveness is so important. I’m glad that Avery was born in a day and age where disabilities are more widely accepted and catered for xx
You and Avery have had a great impact in my life. I think about and pray for you every single day. You are a very wise young lady and you conveyed your emotions so well in this video
Thank you so much ❤️ it makes me happy to know our videos are making an impact xx
I'm so happy you're coming to Orlando! You're going to have such fun and I'm in Atlanta...not too far. I spend a lot of time in Florida...my sister is 20 years older and suffering dementia which took her twin sister a couple of years ago. I was her hospice caregiver...that was the saddest, yet most rewarding time of my life. Anyway, if you need anything while you're here...I will move heaven and earth to get to you and help you with anything. Promise. I don't care what it is, how far or what time it is, I'll be right around the corner, so to speak. ❤
Thank you that’s so very sweet of you ❤️ that’s so sad, it must have been difficult staying strong trying to help your sister though the end of life xx
The negative emotions ebb and flow. The path is undulating and the terrain rocky but know we are never asked to face more than we can endure. That said you would not be human if you did not grieve everything that has been lost. You need to so you can make room for all you have received, though your lows are really low, your highs are extremely high too.
This is very true. I feel like I can appreciate more because I know how bad things can be xx
@@mummyandavery indeed, you are blessed you can still hold Avery. My best friend lost her daughter at 9 months old to a heart attack. Although she had repeatedly seen the gp and was on a failure to thrive list, they never diagnosed a heart defect that could have been remedied if known about. In her 9 months of life she had been seen but the paediatrician no less than 7 times and her gp saw her at least monthly. She would suddenly go limp, her breathing was erratic and from newborn she could not lay flat but all of this was overlooked as a neurotic mother and fussy child. So sadly we buried her, it was later discovered that both her brothers have milder forms of the defect. My friend still worries about the boys but they are for the most part robust young men now although forever they live with a heart that could fail at any time. Life has a funny way of taking us places we have no desire to be. They no longer live here in the uk but there are still new losses my friend faces today. Recently, on her eldest son’s engagement it struck her she will never see Abby wedded or pick out a wedding dress for her big day. She was devastated and blindsided by the realisation. All this to say all we can do is our best, in the here and now. When the curve balls strike we simply have to play the game the best we can. I know even though it’s more than 30 years ago, there are circumstances that can make it seem like it happened yesterday.
That’s so sad. I know there are so many children that aren’t as lucky as Avery, and I do feel very blessed and lucky she is still here ❤️
Absolutely everything you said in this video made sense ❤️ Thank you for sharing and for being so honest. Once again, just sending loads and loads of strength and love to you and your beautiful family ❤️
Thank you so much ❤️❤️
You may not be a doctor but your a brilliant mummy your gorgeous children of course you will have bad day sweetie but you cope with it so well you will never get over its because its your little girl but your find away to cope with it yes Avery is Perfect in every way she such a little character Avery is such a happy little girl and so loved by you all your so brave and amazing xXxX
Hope Avery has a amazing birthday tomorrow xxx
Thank you so much ❤️❤️
You are doing wonderful! We have a 7 yr old daughter with CP/gtube/microdeletion and in a wheelchair. And a 3 year old daughter that needs a walker soon and has microdeletion. And a 5 yr old son in speech therapy. Hang in there. You aren’t alone ❤ They keep us going
You definitely have your hands full then, I’ve not heard of microdeletion before xx
@@mummyandavery it’s a genetic mutation
My friend's neice has Cp , she suffered from lack of oxygen due to a difficult birth resulting in a brain injury . Kinsley is 13 now and can walk with a walker or stand holding her parents hands . She has a horse and has been riding since 6 years old competing and winning
several awards for dressage . Doing dressage has lifted her spirits emotionslly and psychologically big time . It also improves and is great therapy for her muscle tone , posture and social aspect in her life .
Thank you ❤️ I’ve heard a lot about horse riding, I hear it can be a really good form of therapy. When Avery is a little older I’d like to see if she’d enjoy it xx
You are such a strong mother and woman. You have been able to identify the emotions you’ve gone through and are currently going through and that is a huge step in healing. Avery is so blessed to have you as her mommy 💐💜 She brings such joy to all who watch her. Her smile lights up my day. I am so glad you’re seeking professional mental healthcare this year. I know you will continue moving forward and healing.
Thank you so much ❤️ I think in the beginning I wasn’t as open to professional help as I thought it was silly since I knew where the emotions were coming from. But I think I could definitely learn better ways to cope with them xx
Beautiful video my dear. You have touched my heart and you have a true gift for storytelling. I have watched you since your first video and each one seems to get better and better. Most importantly, the love and dedication you have for your children is so obvious and apparent. Sending love to you!
Thank you so much ❤️❤️
Crissie it is very obvious how much talking and listening to others has brought you a long way on your journey with Avery. Valleys and peaks along the way have made you strong in your determination to give Avery and your boys the best life that they can have. You are an inspirational person with your words and love that so many people are receiving in every video that you make. God bless you and your family from a friend down south NC, USA🙏🫶👋👋
Thank you so much I appreciate it ❤️
North NJ, in USA here, thanks Crissie! You have been through so much! You're a remarkable & inspirational woman and MUM! Avery is such a BEAUTY and you're right about forcing out the bad feelings with good! ❤🩹❤
Thank you so much ❤️❤️
There are not enough words to describe how amazing and loving you are...this video has touched my heart and you,beautiful Avery,your sweet boys who show so much love for their little sister,your wonderful,caring husband,and your loving extended family are absolutely beautiful...everything you shared in this video is so honest and I admire you for all you have shared...you are all in my thoughts and prayers 💙
Thank you so much ❤️❤️
Crissie, you are so wonderful and amazing to share this message! I am so proud of your strength and growth. Avery is happy, and SHE IS HERE! This special little girl has a job here on earth, and she is teaching us all. I wish we lived near each other. I would so love to be a support/respite caregiver for you( on a volunteer basis!) I'm a career registered nurse, newly retired, with a NICU/Birthing Center/Pediatric background. I will just have to support you from afar. Sending my love and prayers to you and the family. I have also suffered PTSD twice. You did an excellent job with this video, and your diagram was perfect! What month will you be going to Orlando? I'm only asking because I have something that I want to send you.🩷🫂🙏🥰
Thank you ❤️ the kindness in your comments gives me a great deal of support. That’s so sweet, we fly to Orlando in the middle of April 🥰 xx
Full respect for making this video which is obviously hard to make.
Glad you have 2023 set as year to talk to someone re the events.
Take care x
Thank you so much ❤️❤️
Thanks for sharing. You and Avery have such a special bond it's lovely to watch. Avery is gorgeous and love her smile. I admire just how much you do in a day but now understand why. Just take some me time which you deserve. I love how close you all are. I keep you guys in my prayers.
Thank you so much ❤️
Thank you so much for sharing your beautiful truth... our world needs more people like you that live life in truth... I admire your walk through a tuff journey, that you show weakness an strengths, Joy an laughter, and a beautiful heart full of love... your family is beautiful... sending you love, hope, strength and positive energy as each new day unfolds.. you are an amazing person, awesome mum, thanks again for sharing....❤❤❤❤❤❤❤❤❤❤
Thank you so much ❤️ this was very sweet cx
That was beautiful!
Thank you ❤️
Thank you for sharing ♥️♥️ xx
❤️❤️
Thank you for sharing. Your right it’s all very normal. Your a sweetheart.
Love y’all bunches 💙💖💙💙💙💖
Thank you so much ❤️
You're actually amazing! And you inspire me to keep strong! So thank you!!!
Thank you so much that’s so sweet ❤️
I think you expressed yourself beautifully. My heart goes out to you. I understand your feelings and moods and feel you have every right to them. Your doing a wonderful job with all your children and I admire you. ❤
Thank you so much ❤️
It all made sense, thank you fot sharing.
Thank you ❤️
You are incredible. I just love you and your beautiful family ❤️
Thank you so much ❤️
Thank you for sharing your emotional journey so openly and sincerely. You are very brave to talk about this. Thank you for helping me understand parents of children with additional needs more (I am speech and language therapist) ❤️ wishing you, Avery and your family the very best!
Thank you ❤️ I think SN parents can feel alone in their emotions (I know I did) but over the last two years I’ve learnt that so many of us share the same emotional journey, and a lot of the things I felt guilty for feeling was really normal. It doesn’t make me less of a parent or mean I love my children any less, it just coexists xx
@@mummyandavery I agree. You've come a long way on this difficult journey and in a short amount of time too. For some parents it takes several years to process those negative feelings to the point they can talk about it. I am very glad, that you have the support you need, that you accepted it (which can also be difficult) and that you are supportive to others with this channel. Best wishes ❤️
Glad you can talk to us. I also have a box with little items from our stillborn son. I don’t look at it very often but I still do. It’s still so sad for me.
I’ve been in support groups and some therapy but we had to go thru the grief stages. Best of luck. You are blessed!!
Thank you so much ❤️ I can only image the pain you must have gone through and still are. I feel very lucky that we still have Avery. My thoughts are with you and your sleeping angel ❤️
You inspire so many people kristie. I know the feeling, and you are 100% right. Its ok to feel that way. Hope is a wonderful feeling. Thank you for sharing your feelings and for helping people like me to know that its okay to feel that way and embrace life and keep going in our journey. Avery its beautiful princess🥰❤
Thank you so much ❤️❤️
Keep strong and be proud you are such a good mummy kind and loving to your family
Thank you so much ❤️
You are a super human and SUPER Mom!! You take such good care of sweet Avery and still care for the rest of your family. You are a wise lady!!! Health and happiness to all of you.
Thank you so much ❤️
You’re so smart to face this head on. I truly believe that everyone can always benefit from talking about and/or writing about their situation . It’s so very important. And yes it’s ok to have your feelings, sadness, etc. It’s all part of the journey, the acceptance, and the coping. ❤❤
Thank you ❤️ for me it’s always helped knowing I’m not alone in my feelings. So I hoped I would help others by sharing this ❤️
Yes knowing you’re not alone makes all the difference.❤️❤️
Thank you so much for sharing
I would love to visit UK 🇬🇧 one day
There are some lovely places in the UK. But America seems so much cooler 😂 xx
You're incredible, you should be proud of the strength you have - even on the days you can't see it ❤ x
Thank you ❤️ I just feel like I’m doing what I should be doing xx
Hi Mummy & Avery, thankyou for creating your channel, you have really helped me get through the past 2 years. our stories are extremely similar. My son (Sunny) was born 7-12-2020, so Sunny and Avery are only a few months apart. during birth he had a stroke. from then its just been diagnosis after diagnosis, hospital trips and more hospital trips. stroke- hydrocephalous- cerebral palsy- Epilepsy- Dystonia and unfortunately he had a bad reaction to sodium valproate (Epilim) which now has made him blind. i have a question for you... has Avery had any gut/stomach problems due to her dystonia? Sunny is back in hospital tonight because his tummy is distended and it real agony, the doctors are lost to the reason why but are putting it down to his dystonia. this particular video really hit the nail on the head, great video!!! its been a difficult 2 years. thanks again for the videos, and I'm looking forward to seeing Avery and Sunny grow up. the last 3 minuets of this video was extremely helpful and I'm grateful for you.
Ryan, KC & Sunny from Australia
Thank you ❤️ I wanted to share this video because I know so many of us go through these emotions. It sounds like you’ve had a rough couple of years, I’m sorry he’s had such a hard time. We’ve definitely noticed Avery is quite upset if she has wind, or needs to poo. She’s always had severe reflux. I have no idea if it’s a result of the Dystonia xx
🙏🙏🙏🙏🙏🙏🙏🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼✨😍💖🥰❤️😍to Avery in my thinking every thing is posible and there is nothing imposible
You’re right nothing is impossible ❤️❤️
@@mummyandavery no no not at all tray to think so
#☝️💪🙏💖
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