I am 37yo and I just found out I was born with congenital dorsal pancreatic agenesis. I had a contrast MRI that made a cool 3D model of my pancreas. I can relate to most of these symptoms my whole life and was misdiagnosed. Only difference is my pain did not radiate to my back, because I don’t have most of a pancreas.
My daughter has the same problem. Actually, we are at this moment, in the hospital for the fourth ERCP. All along, my daughter kept complaining about tummy pain. But only at the age of seven, she was given a diagnosis of pancreatitis. We are so desperate!
As a fellow parent fighting for her child. My heart bleeds for you.
amazing talk! wonderfully delivered, by both the parents and Dr. Schwarzenberg
thanks for posting, truly
I am 37yo and I just found out I was born with congenital dorsal pancreatic agenesis. I had a contrast MRI that made a cool 3D model of my pancreas. I can relate to most of these symptoms my whole life and was misdiagnosed. Only difference is my pain did not radiate to my back, because I don’t have most of a pancreas.
I don't think my story was posted. But I have 3 children with pancreatitis. I can give you my information if you want to contact me. Thank you
How can we get help?
My daughter has the same problem. Actually, we are at this moment, in the hospital for the fourth ERCP. All along, my daughter kept complaining about tummy pain. But only at the age of seven, she was given a diagnosis of pancreatitis. We are so desperate!