Toddler faces rare Vanishing White Matter disease

Micaiah Martin has an extremely rare disease, an inherited condition caused by a faulty gene.

[@haxelxox3137]

I just found out through my son's MRI he has this .. he will be 2 in June ..nobody especially a child should ever have to go through this ..I pray all the kids diagnosed get to see happy and healthy full lives 💕

[@motivationalspeech7447]

Plz tell now how is she?? Any improvement ? Improvement in walk ?

[@fasihaahrar1545]

May she be blessed with happiness in every condition and may she recoveres completely i pray from my Allah

[@jnk95]

My sister baby also affected this kind of disease.pls tell which hospital you are treatment taking

[@tchinnieber6381]

My daughter just diagnosed with that,she's 23 months 💔

[@echase416]

Poor little kid.

[@RKI20247]

I have wmd and i was 30 when i was diagnosed 😢

[@varonicaspringer245]

Please for an update?
I hope she improved.

[@stschannelt1476]

Seems to be doing well check her fb page for more

[@tahirrasheed1758]

My son is 4 years old.He diagnosed that disease.Plz.. anyone gide me.

[@michelledavis5869]

My grandson has this. 4H Leukodystrophy. He’s had it since birth. We don’t know anyone else with this or much about a cure.

[@doodaall706]

if the symptoms does not show yet do the bone marrow transplant it stope the mld from effecting on the child but did not bring any thing that he already lose. hope that help and hope all the luck for your grandson.

[@gloriam4855]

Hi my baby has white matter but they goin to do more tests on her she is 3 and she’s doesn’t walk she only craws

[@EyeMemoryLane]

I know a woman who is now 38 with this disease

[@RKI20247]

Im 36 and I have wmd

[@lilybelle9269]

💔

[@AbdulRehman-si9xv]

Any treatment???