Elizabeth's Journey with Microvascular Disease
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- Опубликовано: 24 янв 2016
- At 39 Elizabeth suddenly found herself struggling to breathe and battling severe chest pain. For over a year doctors told her it was asthma, anxiety and depression. Finally she was properly diagnosed with coronary microvascular disease and endothelial dysfunction. Basically the micro vessels in her heart didn't work properly and were becoming clogged. For the next three years Elizabeth struggled with allergies to medications and foods to treat her condition. She volunteers with Go Red For Women and speaks out to raise awareness since more women have MVD then men.
PSA for Drs: stop blowing people off and claiming everything is anxiety!
Easy to say, hard to do
This is. EXACTLY me and my 32 year old daughter who just had an MI. So tired of Medical professionals telling us there's nothing wrong or its all in our heads. We finally got same DX and you are right, it's a relief just to know what it is, BUT no treatment is working. Thankful for you sharing your story. God bless you too as we move through this storm of life.
How old are you sir??
I am 35 and just few days back I has MRI which showed mild periventricular changes in brian die to ishemic disease. I am afraid and doubtfull if i will live long life.
I'm experiencing what you went through and its sad how you have to advocate for yourself and nobody believe your pain and suffering. Its a battle!
Wonder Woman im going through the same thing right now,and its so hard to get a diagnoses,its horrible
Fight on sister, I'll be there with you. I'm so glad that you have accepted a role as a mouthpiece for so many that are un-heard. I hate this disease. But I love life and will keep fighting.
Thank you for putting this out there. I struggle with coronary microvascular and there is not much out there in the way of help or support outside the hospital. Like you it took years to actually get help and not be treated or even believed. This is one of the hardest things I deal with, I'm 25 and trying to live my life as best I can.
I had to diagnose myself with Microvascular Disease because my doctor barely knew anything about it. He had heard about it tangentially but never really looked into it. So I told him it might be MVD, he sent me to a specialist, and I got vascular reactivity testing done. Which showed that I had heart issues.
Thank you for sharing your life with us. I’ve been misdiagnosed with this disease since I was a kid. Unfortunately, in my case, it now seems to be advanced. Merry Christmas and a happy new year to you and your family and I wish you God‘s Healing Love. Once again, thank you for posting.
I’m in my twenties and I’m dealing with many things including chronic microvascular ischemic brain disease. I feel like I need help
I am 35 and I think we are in same boat. Just had MRI and it shown mild changes in periventricular resgiom suggesting of microvascular ishemia. Can we talk?
I too have CMVD it has so debilitated me in every walk of life. I have battled for 10 yrs to get a diagnosis. Finally got it 3yrs ago. I thought I was going mad up until that point. I suffer from chronic angina. I’ve watched your story and instantly connected to you. Everything you that has effected you has affected me. It’s dreadful. Do you know the worse thing of all is having people who are close to you and the medical profession say there is nothing wrong with you, this is soul destroying, even after diagnosis they don’t believe you, it’s dreadful. I felt you pain as I feel it too. I still feel very alone with it all. It is rocking my world in a negative way. I feel isolated with it all. Each time I have an attack, the feeling of doom it perpetually looming over me. I’ve tried so many times to act (normal) like I’m fine I can’t remember how many times over 10 yrs. it has stopped me in my tracks. It has affected every area of my life. Thank you for sharing your story .
Dede St leger. Theres an online support group too.
This is unfortunate to hear that you’ve been dealing with it so long. I’m 28 and have been feeling this for 2 months now. I don’t want to feel this the rest of my life. What do you find gives you relief?
@@tigeress77 can i join it
@@tigeress77please mention the name of this group?
Thank u for sharing I just found out I have microvascular disease my MRI came back abnormal. I'm 38 yrs ols
Do they use a contrast when doing a cardiac MRI?
I’ve had symptoms of MVD for a while and multiple cardiologists refused to a cardiac MRI. My symptoms have been continuously labelled psychosomatic, asthma and/sleep apnoea. They’re absolutely not.
I've been struggling for years, to get doctors to believe me when I say something is wrong. If it wasn't for a false test result, I never would have gotten the heart catheterization. My main arteries are fine but just this past Friday (its now Sunday) I was diagnosed with MVD. Its a relief to finally know and can confirm something really is wrong! I pray that the medication will help me!! I too want more women to be aware of this. Yes, I know men get this too but women often go undiagnosed more often.
Thank you for sharing your story. I’m a 52 year old mother of 3 and teacher. I’ve been going through this for several years but have basically become home bound the past two years...unable to continue my life of teaching, coaching, running, biking, hiking....to barely able to walk. I’ve seen many specialists and had many tests, been to the ER many times. My cardiologist kept saying it’s not my heart but then he sent me to another cardiologist who specializes in Microvascular disease. She was involved in a study and was going to do the endothelial dysfunction angiogram on me but then all tests were cancelled because of Covid-19. She only had the wires until the end of April. I live in Winnipeg, Manitoba, Canada and now there’s no test available. I’m seriously in need of help. The cardiologist put me on 240 mg Diltiazem and that seems to help somewhat...I’m able to do small things around the house.
Elizabeth, not only is your story mazing. you are amazing! Praying blessings over your life. Keep sharing your story!
Elizabeth, I am so glad to find this. I simply thought I was losing my mind and my life was ending. I am still to get a final diagnosis and the drugs I am on meantime make me feel so ill. I feel my life is on hold at 50. Much love to you.
I'm right there with you, Elizabeth!
Thank you, there needs to be more awareness of this condition. I would disagree though that there is no treatment. Staying away from sugar, reducing blood pressure, gentle exercise, stopping smoking, an anti-inflammatory diet, relaxation techniques and supplementation with Vit B complex if homocysteine is raised can all help.
In there with you. From GA only 48 yo and about 7 years now.
I've experienced similar issues. I know not all medications work the same on all people, but my doctor prescribed me Ranexa. It has been an absolute game changer for me. My symptoms aren't completely gone, but they are very much improved. If you haven't tried it, it might be worth looking into. Thanks so much for sharing your story!
im going to try it thank you
I have this issue with my brain and heart, fell really ill after contracting a mosquito born virus and don't really know what the relationship is. I'm 21, haven't been diagnosed as yet and it's been almost 3 months of excruciating pain. My eyesight, hearing, thinking.... everything has been affected, haven't been able to even go back to school. 😭
If there is anyone out there, anyone at all who I could even speak to about this. I know I have the issue because my brain MRI indicated that I have "accelerated microvascular ischemia".
Just Quily hey, hang in there. I’m 41 and going through a battery of tests next week to see if we can identify my intermittent chest pain.
What you’re going through sounds awful. Are you getting any support?
@@justquily5022yes bro you can share to me . I think I am dealing with same problem as yours since teenage and now I am 35.
Why is HBOT not a standard of care treatment when it forces vessels to grow (Angiogenesis ) and get stronger question mark Are all these CMVD patients being assessed for estrogen issues, diabetes, or excessive radiation exposure question mark Why is this not being taught in medical school as so many doctors are blind to it and write off patients as having idopathic symptoms, mental issues, or zebra cases question mark How much longer are new doctors and old doctors going to be left in the dark of the seriousness of small vessel disease and how it can be treated with HBOT question mark . Thank you for publishing what you can about this.
Thank you for sharing. I was diagnosed with coronary Microvascular dysfunction on 10/2021 it is so frustrating having all this symptoms without being diagnosed. I have the same symptoms, I thank God for my cardiologist who believe in my symptoms and new what was going on, he sent me to have a lot of test and finally the coronary angiogram with the provocative test that revealed the Microvascular dysfunction. Finally I was diagnosed, I thank God they found the reason of my symptoms, I also had an ischemic stroke for the same reason the lack of oxygenated blood supply I thank God that arrive to the hospital on time to get the TPA and didn’t end up having permanent damage. It is so hard to control the symptoms because the medication lowers blood pressure and I am not hypertensive, Doctors said, the medications give me a better quality of life, because this condition is progressive, but I thank God because my quality of life depends on my relationship with His Son Jesus Christ and not but my condition or circumstances.
🙌🏼🙏🏼
thanks for video just got home from hospital My journey started before covd. Today I fellow like freedom because I know and Im not crazy and want to know how to treat. Thanks again
My Mom is also suffering with same condition. There is no accurate treatment to treat this condition so far. Researches are going on for solution. We all are with you, god bless you.
Can relate with this... just last june 2020, i had this attack (vertigo,vomiting, shortness of breath,nausea,numbness,severe fatigue,confusion,slurred speech...), went to Dr., all blood test normal, ecg (tachycardia), 2d echo (segmental wall motion abnormality with preserved contractility). I was diagnosed with ischemic heart diease and inappropriate sinus tachycardia.My 1st cardio gave me metoprolol and aspirin as she believed i had CAD. For 6 months iv been taking these meds. But as it getting longer, it makes my condition worst. Everyday I feel tired/severe fatigue, confused, dizzy/lightheaded, heavy body upon waking up, palpitation,i got sleep apnea, sleep paralysis, depression. Its bad and what makes it more bad it that you have to stop working and let some opportunities pass bec. Of your current feelings and condition, and your being hopeless and burnt out bec. Of the expenses and no income. Had 2nd opinion, my 2nd cardio gave me Diltiazem, GODs grace in just less than a week of taking it, i really felt the difference, i felt much better, i can now exercise comfortably and longer than 10 minutes. My 2nd cardio told me, it could be Vasospasm or Myocardial bridge. I made a research and it could be closer to Vasospasm. I am scheduled for Dobu Stress Echo for further assessment. i dont smoke, i dont drink, have an active lifestyle, i weigh 52kgs, normal sugar, not high BP. What went wrong? So it could be vasospasm and dont know why that happen.
I am 36yo by d way, and with chest pain, mostly when lying down.
Have you found that being very active makes a difference?
MVD is more common in women but can also be men. I am male, 68 yrs old, emergency quadruple bypass summer 2004, illiac stent for blockage to the legs in 2007, now perfuse small vessel disease. take bout 11 prescriptions a day and nitro spray is one of my best friends :) Hang in there _ life is way good.
I am a 62 y.o. male also had a Quad CABG in November of 2018. 2 additional drug eluding stents in 2019 within 6 months of each other an 2 more in September of 2020. 6 hospitalizations so far... I have only had 2-3 month stretch from May-July 2020 almost pain free but ended up need the 2 stents by September. I’m also on 11 medications, including 240mg of Isosorbide daily and 2000mg of Ranexa. .04mg nitro does nothing anymore.
Question for you? How does the nitro spray work for you?
I’m still having chest pain basically all the time! Nothing resolving it... Crampy tightness in heart location all day and night!
@@albertmartino2828 Does it causes ED in men ?
@@aglyngdoh4109 I don’t understand your question at all??? I have chest pain! All the time... I’m not concerned with ED
@@albertmartino2828 Nevermind. Is your case Microvascular Disease or other coronary artery disease? I just want to know the symptoms.
Btw someone referred to Dr Harvey herbal products and it has cured these types of complications totally. Any information regarding this.
My daughter 55 was just diagnosed with
mild chronic microvascular
ischemic changes she has not seen the doctor. Just read the diagnosis on her chart. I think it is affecting her eyes. Very worried. mild chronic microvascular
ischemic changes. Any advice or suggestions would be appreciated.
Her heartbeat is irrational to she gets very dizzy
Did she see a neurologist?
😭
Has there been ANYONE who has been cured of this?
Don't mean to be a downer but as I understand it there's not a cure, just treatment for better quality of life. Mostly with my slow release nitro and nitro spray along with several other meds to relax blood vessels and help blood flow. The tiny vessels involved normally can't be bypassed or stented due to size.
I am 57 years old and found out today My MRI Shows I have wide spread Chronic micro vasclar Ischemic
What did your doctor recommend? My grandmother just got diagnosed with the same…and her doc said it’s normal for her age. I’m so confused, I decided she should see a neurologist.
@@ebonib. Yes Get It Checked Out With a Neurologist,and see if they can tell her more, they told me not much can be done, but a lot of what not to do,lol
Do you snore you sound congested. I wonder if you need a cpap?
Thank you for the video. I hate the music.