Jasmine Suarez-O'Connor on living with FASD
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- Опубликовано: 3 ноя 2013
- More info: nofas.org
The National Organization on Fetal Alcohol Syndrome (NOFAS) is the leading voice and resource of the Fetal Alcohol Spectrum Disorders (FASD) community. Founded in 1990, NOFAS is the only international non-profit organization committed solely to FASD primary prevention, advocacy and support.
NOFAS seeks to create a global community free of alcohol-exposed pregnancies and a society supportive of individuals already living with FASD. NOFAS effectively increases public awareness and mobilizes grassroots action in diverse communities and represents the interests of persons with FASD and their caregivers as the liaison to researchers and policymakers. By ensuring that FASD is broadly recognized as a developmental disability, NOFAS strives to reduce the stigma and improve the quality of life for affected individuals and families.
The statements made in this video do not necessarily represent the views or positions of NOFAS. © 2012 NOFAS. All rights reserved. For media inquiries, please contact NOFAS President Tom Donaldson at donaldson@nofas.org
Hello everyone I appreciate everything you all said as comments. I am happy to give a voice to many like me . This was made two years ago almost. Since this video I graduated from a certificate program as a certified nurses assistant. My son will be 4 in May. Anything is possible you are never limited sky's the limit. Proud to be who I am your children should be too:)
I love that she spoke her mind to the doctor who told her it was okay to have a glass of wine during pregnancy. It's ridiculous that the doctor didn't see FASD on her file before saying that.
it's ridiculous that a doctor would say that to anyone. Especially now that the risks are so well documented.
My birth mom drank as well when she was pregnant with me. I have FASD to. I say one glass of alclihal is bad for you. I think a lot of times people are mad at me when they are not. My birth mom has affected my life a lot due to her drinking a part of my body did not form at all. I get upset about that at times because my disabilities are called by alclihal I am scared of drinking and smoking it hurts my hart to see people do that stuff.
She seems to have close to none of the facial features of fasd and is very beautiful. She is also responsible, high functioning, has fluent speech, even made it to college despite not graduating, and holds two jobs for her child. She is very strong willed for overcoming her difficulties.
I have a girlfriend who happens to have fetal alcohol syndrome. When i first found out, i was shocked & speechless. But also deeply emotional upset. As her boyfriend, i do what it takes to defend her. And her grandmother does the same thing. Both me & my girlfriend share Christian values. Her grandmother told me that when my girlfriend went to a Baptist church, most of the church members use discrimination against her and that was upsetting. As for her real mom, well she was a heavy alcohol drinker and when was pregnant that's how it happened. I've never met her real mom but I've met her real dad and her stepmother. Both of them approve of me. As for bringing it up, i don't at all. That's the last thing i want to do.
I am currently in a relationship with a man that has this Fetal Alcohol disorder. for the first few months, it was hard for me, cause his personality and disability likely affected our relationship. But once I start to learn more about his disability and learn about how to live with it, I realized that he was just as loving as a normal person and you just have to pay attention when the syndrome episode came.
She's a brave girl. I know what she's going through!! I used to teach and take care of people like her. I've seen their cruel treatment!! I always protested and finally quit the job over it.
Jasmine thank you for your thoughts, I am raising a daughter with FASD and she is 15. I am wanting to know what it's like for her and want to help others understand where she is coming from, but she doesn't like to talk about it so videos like yours really help. I'm not your mom but as a mom I feel really proud for you, that you are working two jobs and raising your son! That is a really big deal. I do hope my daughter is able to have a positive future as well.
Dont be scared. I'm am scared everyday of my life. But know u are no different then anyone else. Yes were different. Yes people notice. But that's what makes us so special. We are not limited we are limitless. Remember that.
Her story is amazing. Thank you for having the courage to share.
What an amazing story. Thank you Jasmine!...for sharing your story and having the courage to share your story. It's so true that no one really knows or can fully comprehend an FASD situation (or any mental illness situation) unless they are in it. I'm glad to know our family is not alone in this struggle and I am encouraged and grateful when others directly affected share their stories.
Hi. Kaylynn here I have FAS. I'm just like you I can look like a normal person to others, but when I tell them I have FAS, they are shocked. They say I didn't know you had FAS. And it's hard for me to make thr right decisions, I get over whelmed with to many instructions that are given to me. And I only have grade 1. To grade 2 math. I never graduated or got to go collage. My IQ is at 69. I have video on myself if you would like to see it. 👍🏻
Simply...beautiful!! Both you and your message almost brought me to tears. You give me even more hope for my 6 year old son who also has FASD. He is so unique, both a blessing and a gift to my family. I am a better person for having him as a son. Keep up the good work speaking up for individuals who happen to have FASD. You all so special in such an AMAZING way. God Bless You!!!
Did a good job telling people how it is.
Hi Jasmine Awesome Story. I my self have FASD & Let Me Tell You Hearing Your Story Was like meeting your own self. Great!
Jasmine is brilliant. ~☆~
Absolutely beautiful video. I was very happy to hear her correct "the doctor" on NOT CONSUMING ALCOHOL DURING PREGNANCY. I'm shocked to hear any doctor even say such thing-she also didn't even know about Jasmine's status with FASD. That's very disturbing from someone who's supposed to be educated with a strong background in the medical sciences. Really, nobody should be consuming alcohol at all. Alcohol is a well-established toxin, regardless of the amount consumed. It's such a shame alcohol is even legal-it blatantly sends the wrong message to people. The fact that it's a "social drink" and is generally regarded as "socially acceptable" wreaks havoc that some realize only when it's too late. If you Ask me, alcohol should be illegal, or at the very least, sold in specialty shops for those adults 21 and over who chose to poison themselves.
ezekiel e i agree 100% and i am relieved to know i'm not alone...
Jasmine, thank you so much for sharing your story with the world. I'm excited to hear more about you....is there a book/movie in the works? You seem very charismatic! What is the best parenting advice your mom has given you?
I have FASD aswell
Hi Jasmine I have FAS and I'm 22 years old I'm also (Native American) I just made a new youtube channel I was adopted when I was just 2 years old I was born in South Dakota I know what it's like to have fas I hope we can talk more - Thanks/Shawna Sioux Fletcher =)
Good Message!
Jamine, your presentation is amazing!! You are a terrific speaker. Your story is very powerful and inspiring. The story about the doctor? You handled that situation so well. I want more people to see this. Wish I could share this. Keep connecting with others who have FASDS and others.
Shared, Jasmine.
Do u have a facebook i love your story i was born with fas am 29
Are there kids with afs and hearing loss?
+Eric Llanos yes
congrats to 69 for getting his life together
honestly she seems pretty normal.
+Monster X i thought the same
I am normal...
Hi everyone, Anneliese here. Thought you might be interested in this new video we created here at NeuroDevNet. It is about how two of our students developed a curriculum for science teachers to teach high school students about FASD and the effect of alcohol on a developing organism. It is informed by the latest research on FASD that is happening within NeuroDevNet. Please share! bit.ly/1rGnYLA
We also produced a play about FASD and the struggles students with FASD face, check it out: bit.ly/QbtsCX